Database of Special Needs Groups
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Group NameCategoryLinkDescriptionContact for Secret Groups
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Special Needs Resources - China AdoptionAllhttps://www.facebook.com/groups/883306798366624/a group where potential adoptive families can reach out to experienced families who have adopted a child with special needs
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Considering Older Child Adoption from Chinahttps://www.facebook.com/groups/778564888909698/group for families considering adopting children from China who are age 8 or older
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BLOOD CONDITIONS
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Adoptive Parents of Children with ThalassemiaBlood Conditionsgroup for parents who have children with thalassemia who have joined their family through adoptionemail the Database Coordinator for contact info - jennifer2217@icloud.com
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Parenting ThalassemiaBlood Conditionshttps://www.facebook.com/groups/1409672149286916/
group for parents raising children with Thalassemia
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Hemophilia Adoption AdvocacyBlood Conditionshttps://www.facebook.com/groups/929705510383282/group for families who have adopted children with hemophilia and other bleeding disorders
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PKU Children Adopted from ChinaBlood Conditionshttps://www.facebook.com/groups/293049187561987/group for adoptive families of children with PKU from China
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CENTRAL NERVOUS SYSTEM
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Hydrocephalus Families - China AdoptionCentral Nervous Systemhttps://www.facebook.com/groups/1605828276296720/a place to offer support and exchange information about our amazing kiddos from China with hydrocephalus
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Epilepsy in Adoptive FamiliesCentral Nervous Systemhttps://www.facebook.com/groups/1429695213954200/group for adoption families with children living with Epilepsy
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China CP MomsCentral Nervous Systemhttps://www.facebook.com/groups/1262642020415686/group for moms of children adopted from China with cerebral palsy
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Parenting Our Adopted Children with CPCentral Nervous Systemhttps://www.facebook.com/groups/182793291916000/group or adoptive parents of children diagnosed with Cerebral Palsy
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China Hemi MomsCentral Nervous Systemhttps://www.facebook.com/groups/1477142752585919/group for parents of children adopted from China and diagnosed with hemiplegia
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China Adoption - Spina BifidaCentral Nervous Systemhttps://www.facebook.com/groups/180284775716174/group for the parents of children adopted from China with Spina Bifida
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Spina Bifida Parents GroupCentral Nervous Systemhttps://www.facebook.com/groups/264604987035642/group for parents, grandparents, caregivers, and supporters of those with or affected by Spina Bifida
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Considering Spina BifidaCentral Nervous Systemgroup for parents who are considering adopting a child with spina bifidaemail the Database Coordinator for contact info - jennifer2217@icloud.com
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Spina Bifida SupportCentral Nervous Systemgroup for parents of children adopted from China and diagnosed with spina bifidaemail the Database Coordinator for contact info - jennifer2217@icloud.com
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Bowel Management for Spina BifidaCentral Nervous Systemhttps://www.facebook.com/groups/729598100490391/group for adults with Spina Bifida and parents/guardians of children with Spina Bifida to share information about SB bowel management
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Tethered Cord Support GroupCentral Nervous Systemhttps://www.facebook.com/groups/133604640090762/group for Tethered Spinal Cord, Tethered Cord Syndrome, Occult Tethered Cord, Tight Filum Terminale, Split Cord, Spinal Cord Lipoma or Lipomyelomeningocele, Chiari Malformation, Dermal Sinus Tract
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Adopted from China with SMACentral Nervous Systemgroup for parents of children adopted from China with Spinal Muscular Atrophyemail the Database Coordinator for contact info - jennifer2217@icloud.com
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Arachnoid CystsCentral Nervous Systemhttps://www.facebook.com/groups/19417613280/
group for those with an arachnoid cyst, and supporters
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iSACRA international Sacral Agenesis Caudal Regression AssociationCentral Nervous Systemhttps://www.facebook.com/groups/iSACRA/offers support and information to persons with SA/CRS and their families worldwide
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CRANIOFACIAL
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Children Adopted From China With Cleft Lip/Cleft Palate
Craniofacialhttps://www.facebook.com/groups/270126333171333/group is for parents with children adopted from China with Cleft Lip/Cleft Palate
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Precious Cleft Smiles ChinaCraniofacialgroup is for parents with children adopted from China with Cleft Lip/Cleft Palateemail the Database Coordinator for contact info - jennifer2217@icloud.com
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Adoptive Parents of Children with MicrotiaCraniofacialhttps://www.facebook.com/groups/501085443256959/
group for adoptive parents of children with microtia
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Goldenhar Syndrome Support Network (GSSN)Craniofacialhttps://www.facebook.com/groups/goldenharsyndrome/group for families impacted by Goldenhar Syndrome (GSSN is a program of AmeriFace)
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DEVELOPMENTAL
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Beautiful BrainsDevelopmentalhttps://www.facebook.com/groups/564831487006751/group for parents of children adopted from China with Brain Diagnoses
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Autism in Children Adopted from ChinaDevelopmentalhttps://www.facebook.com/groups/autism.china.adopt/group for parents of children adopted from China with an Autism Spectrum Disorder
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Children Adopted from China with Intellectual Disabilities
Developmentalhttps://www.facebook.com/groups/1083154851765258/group for parents who have adopted children from China with intellectual disabilities
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Down Syndrome Adoption QuestionsDevelopmentalhttps://www.facebook.com/groups/1257965514302609/group for those interested in the possibility of adopting a child with Down syndrome
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Down Syndrome Adoption Developmentalgroup for parents of children with Ds who were adopted, current families who are actively pursuing the adoption of a child with Ds or agency Ds advocatesemail the Database Coordinator for contact info - jennifer2217@icloud.com
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Adopted Children with Severe MalnourishmentDevelopmentalhttps://www.facebook.com/groups/1489241311350942/group for parents adopting or that have adopted children with severe malnourishment
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China Adoptive Parent Support - Speech/Language Delay
Developmentalhttps://www.facebook.com/groups/1426082930970764/group for parents who have adopted (or are considering adopting) children from China with speech and/or language delays
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China Adoptive Parent Support - Developmental Delays
Developmentalhttps://www.facebook.com/groups/414335638743908/group for parents that have adopted children from China with developmental delays
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Parents of Preemies Adopted from ChinaDevelopmentalhttps://www.facebook.com/groups/275476406215877/group is for families adopting or who have adopted kids from China who were born prematurely
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HEART
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Heart to HeartHeartgroup for parents who have adopted or have PA for a child with congenital heart defects (CHD)email the Database Coordinator for contact info - jennifer2217@icloud.com
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Questions of the Heart: Support for China CHD Adoption
Hearthttps://www.facebook.com/groups/579411735781776/group is for families considering the adoption of a child from China born with Congenital Heart Disease.
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Tetralogy of FallotHearthttps://www.facebook.com/groups/tetralogyoffallot/group for families impacted by TOF
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INFECTIOUS
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Parents of HBV+ KidsInfectious Diseasesgroup for parents of adopted children who are hepatitas B positiveemail the Database Coordinator for contact info - jennifer2217@icloud.com
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HIV+ China Adoption Information and AdvocacyInfectious Diseaseshttps://www.facebook.com/groups/1527188424256264/group to advocate for HIV+ children, spread awareness about the HIV epidemic in China, and to gain knowledge about this treatable condition
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Positive AdoptionInfectious Diseasesgroup for families who have or are in the process of adopting a child who is HIV positiveemail the Database Coordinator for contact info - jennifer2217@icloud.com
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ORTHOPEDIC
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ArthrogryposisOrthopedichttps://www.facebook.com/groups/133454450005482/group to provide knowledge, support, and personal experiences relating to arthrogryposis and people affected by this condition
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AMC AdoptionOrthopedicgroup for adoptive parents of children with arthrogryposisemail the Database Coordinator for contact info - jennifer2217@icloud.com
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Brachial Plexus for ParentsOrthopedichttps://www.facebook.com/groups/199852043405235/group for parents of children brachial plexus injury
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International Adoption - Club Foot Support GroupOrthopedichttps://www.facebook.com/groups/123197974959042/group for the support of parents that have adopted a child from China (or from international adoption of other countries
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Clubfoot MommasOrthopedichttps://www.facebook.com/groups/clubfootmommas/group for anyone who has a connection to clubfoot
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LFP Adoptive Parents ChapterOrthopedichttps://www.facebook.com/groups/196864410493151/Lucky Fin Project chapter for those who have adopted children with a limb difference
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Limb Differences Red Thread ChinaOrthopedichttps://www.facebook.com/groups/720494697986784/families that have either adopted or are adopting a child from China with a limb difference
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OI ParentsOrthopedic
https://www.facebook.com/groups/OIParents/?hc_location=ufi
group for parents of children with Osteogenesis Imperfecta under the age of 18
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Parents of Adopted Children with OIOrthopedichttps://www.facebook.com/groups/377415102359470/group for parents who have adopted children with osteogenesis imperfecta
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Adopt from China on WHEELSOrthopedichttps://www.facebook.com/groups/1744579959112183/group for families who have or will be adopting a child from China in a wheelchair
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Children with Radial AplasiaOrthopedic
https://www.facebook.com/groups/childrenwithradialaplasia/
group for families with children with Radial Aplasia (adults living with RA welcome)
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Scoliosis Parents Support: Strenght In The CurveOrthopedic
https://www.facebook.com/groups/scoliosisparentssupport/
group for parents of children and adolescents with scoliosis
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Congenital Scoliosis SupportOrthopedic
https://www.facebook.com/groups/congenitalscolisupport/
group for those dealing with scoliosis due to malformations of the bones of the spine
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Helping Hands (Symbrachydactyly)Orthopedichttps://www.facebook.com/groups/21843487131/group for people affected by symbrachydactyly
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Pals - Parents of Adopted LittlesOrthopedichttps://www.facebook.com/groups/149969741825085/group for parents who have PA for or adopted a child who has or is believed to have dwarfism
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SENSORY
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DeafHOH-AdoptionSensoryhttps://www.facebook.com/groups/1020813841312134/group for discussing the domestic or international adoption of deaf and hard of hearing children
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Parents of Deaf/HOH ChildrenSensory
https://www.facebook.com/groups/parentsofdhohchildren/
group for parents of children with hearing loss
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Deaf/HOH Adoption SupportSensorygroup for adoptive parents of children with hearing lossemail the Database Coordinator for contact info - jennifer2217@icloud.com
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Parents of Children with Low VisionSensorygroup for parents of children with low visionemail the Database Coordinator for contact info - jennifer2217@icloud.com
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Now that they're home: Parenting our adopted Blind and VI kiddosSensoryhttps://www.facebook.com/groups/342418532630597/group for parents to discuss and learn the best ways to assist our adopted blind and visually impaired children
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Med El Cochlear Implant Discussion GroupSensoryhttps://www.facebook.com/groups/MedEldiscussion/support group for users/parents of Cochlear implants
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Adoption and Oral Aversion SupportSensoryhttps://www.facebook.com/groups/1634727840125976/group for adoptive families who are helping their child through oral aversion
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SKIN CONDITIONS
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EB AdoptionSkin Conditionshttps://www.facebook.com/groups/316944145006615/group for those who have adopted, fostered, or had guardianship of children with epidermolysis bullosa
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Adopt Burn SurvivorsSkin Conditionshttps://www.facebook.com/groups/adoptburnsurvivors/group for moms and dads that have adopted burn survivors or are in the process
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Albinism Adoptive FamiliesSkin Conditionshttps://www.facebook.com/groups/175359272596075/group for adoptive parents of children from around the world with albinism and hypo-pigmentation
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Families of Adopted Kids From China With CMNSkin Conditionshttps://www.facebook.com/groups/890576184344720/group for families with kids adopted from China who have congenital melanocytic nevus
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UROGENITAL
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Imperforate Anus/Adoptive MamasUrogenitalhttps://www.facebook.com/groups/298748973595167/group for moms who have adopted or have PA for a child with an anorectal malformation (imperforate anus, anal atresia, cloaca)
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Considering IA Adoption (imperforate anus/anal atresia)
Urogenitalhttps://www.facebook.com/groups/324134454713575/group ifor families interested in or considering adopting a child with imperforate anus (IA)/anal atresia (AA)
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Imperforate Anus / Bowel ManagementUrogenitalhttps://www.facebook.com/groups/99804044741/group for parents/guardians, as well as adults born with IA to talk about issues related to IA and bowel management
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Imperforate Anus USA Support GroupUrogenitalhttps://www.facebook.com/groups/IA.USA.Support/group for residents of the U.S. dealing with imperforate anus (IA) or related issues
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Persistent CloacaUrogenitalhttps://www.facebook.com/groups/153812524718254/group for families and girls with cloaca
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China Kidney KidsUrogenitalhttps://www.facebook.com/groups/823752831087196/group for parents of children with kidney disease who were adopted from China
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Parents of kids with Urogenital Differences Urogenitalgroup for adoptive parents of children with urogenital differences and/or disorders of sexual developmentemail the Database Coordinator for contact info - jennifer2217@icloud.com
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Mamas Considering CAHUrogenitalgroup for families considering adopting a child with congenital adrenal hyperplasia (CAH)email the Database Coordinator for contact info - jennifer2217@icloud.com
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CAH Can Be FunUrogenitalgroup for parents of children with congenital adrenal hyperplasiaemail the Database Coordinator for contact info - jennifer2217@icloud.com
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VASCULAR
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China Adoption-Vascular Anomalies Support GroupVascularhttps://www.facebook.com/groups/1252104604917934/group for parents that have adopted a child internationally who have vascular anomalies
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GENETIC
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Exceptional by Design: Rare Disease & Genetic Syndrome support for APCGenetichttps://www.facebook.com/groups/1089551877813587/group for parents of children with rare genetic conditions adopted from China
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Beckwith Wiedemann SyndromeGenetichttps://www.facebook.com/groups/78357624606/group for families impacted by Beckwith Wiedemann syndrome
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Deletion 22q Support GroupGenetichttps://www.facebook.com/groups/168958323192431/group for families impacted by 22q (aka DiGeorge syndrome)
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22q Group ForumGenetichttps://www.facebook.com/groups/253883990182/group forum for discussion involving 22q (aka DiGeorge syndrome)
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22q, DiGeorge, VCFS International Adoption FamiliesGeneticgroup for adoptive parents of children with 22q (DiGeorge syndrom)email the Database Coordinator for contact info - jennifer2217@icloud.com
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TRAUMA/ATTACHMENT
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Parenting with Connection - China Adoption
Trauma/Attachment
https://www.facebook.com/groups/connectedparentingchina/
group that supports parents in implementing connection based tools for children adopted from China
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Parenting with Connection
Trauma/Attachment
https://www.facebook.com/groups/parentingwithconnection/
group that supports parents implementing connection based tools
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Parenting Teens and Tweens with Connection
Trauma/Attachment
https://www.facebook.com/groups/Empoweringadoptedteens/
group that supports parents implementing connection based tools with teens and tweens
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OTHER
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Sacrococcygeal TeratomaCancerhttps://www.facebook.com/groups/39811553486/
group for parents who have children living with teratoma
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Short Gut SyndromeGastrointestinalhttps://www.facebook.com/groups/179029535475631/group for parents and families of children with short gut syndrome
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