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StateNumber of Conditions ScreenedRUSP CompliantRUSP Alignment Law in Place? (With a timeline?)Second Screen PerformedHow Conditions are Added NBS Advisory BoardNBS Advisory Board WebsiteRare Disease CaucusRare Disease Advisory/ Advocacy CouncilScreening Status for Known Advocate Activity (Historic or Current)NBS FeeWhich lab handles NBS for the StateTechnology Used for LSD ScreeningLength of Bloodspot RetentionCondition Nomination Form State NBS WebsiteState NBS Program Email AddressLife Sciences Trade Organization?
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X-ALDKrabbeMLDPompe & MPS I
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Alabama59NonoDept. of HealthYes(none found)YesActive$150.00Alabama3 monthsNone foundhttp://www.alabamapublichealth.gov/newbornscreening/rachael.montgomery@adph.state.al.us
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Alaska54NonoDept. of HealthYes(none found)NoEfforts StartedMLD$190.50Iowa3 yearsNone foundNewborn Bloodspot Screening Programnewborn.screening@alaska.gov
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Arizona35NoYesyesDept. of HealthYes(none found)NoActiveBoth$171.00Arizona3 monthsNone foundADHS - Newborn Screening - Homekathryn.fitzpatrick@azdhs.gov
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Arkansas33NoYesnoRUSPYes(none found)In ProgressActiveBothKrabbe$131.00Arkansas1 yearNone foundNewborn Screening Arkansas Department of Healthpatricia.purifoy@arkansas.gov
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California80NoYesnoRUSPNoN/AYesIn ProgressActiveBoth$210.00CaliforniaIndefinitelyNone foundNewborn Screening Programnbs@cdph.ca.gov
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Colorado45NoyesLegislativelyYesColorado NBS StakeholdersYesActiveBoth$111.00ColoradoSix MonthsNone foundNewborn screening | Department of Public Health & Environmentcdphe_conbs@state.co.us
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Connecticut71NonoLegislativelyYes(none found)YesYesActiveBoth$110.00Connecticut3 yearsNone foundThe Connecticut Newborn Screening Programadrienne.manning@ct.gov
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Delaware55NoYesDept. of HealthYes(none found)YesActiveBoth$135.00Revvity90 daysNone foundDelaware Newborn Screening Programdenewbornscreening@nemours.org
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District of Columbia62NonoMayor/LegislationYes(none found)NoActiveBoth$0.00Revvity1 yearNone foundNewborn Screening | dohlindsay.handelsman@dc.gov
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Florida57NoYesnoRUSP/Advisory BoardYesGNSACYesActiveBoth$15.00FloridaSix monthsNone foundFlorida Newborn ScreeningEmily.Reeves@flhealth.gov
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Georgia36NoYesnoDept. of HealthYesNBS Advisory CommitteeYesActiveActiveBothKrabbe$80.40GeorgiaFour monthsNBS Advisory Committee Newborn Screening (NBS) | Georgia Department of Public Healthdph-nbs@dph.ga.gov
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Hawaii45NonoDept. of HealthYes(none found)NoActiveBoth$99.00WashingtonOne YearNone foundhttp://health.hawaii.gov/genetics/programs/nbshome/dana.mulcahy@doh.hawaii.gov
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Idaho52NoyesDept. of HealthYes(none found)NoActiveBoth$120.70WashingtonOne YearNone foundAbout Newborn Screening | Idaho Department of Health and WelfareIdahoMCH@dhw.idaho.gov
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Illinois57YesnoDept. of HealthYesGenetic and Metabolic Diseases Advisory CommitteeYesActiveActiveLaw PassedBoth$128.00Illinois2- 6 monthsNone foundNewborn ScreeningDPH.Newbornscreening@illinois.gov
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Indiana58NonoDept. of Health OR LegislativelyYes(none found)NoActiveActiveBoth$120.00IndianaSix months or three yearsGNBS: Nominate a NBS ConditionHealth: GNBS: Newborn Screening ProgramISDHNBS@isdh.IN.gov
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Iowa53NoYesnoDept. of HealthYesCongenital and Inherited Disorders Advisory CommitteeNoActiveEfforts StartedBothKrabbe/X-ALD$162.00IowaFive yearsNone foundIowa Newborn Screening Program (INSP)kimberly.piper@idph.iowa.gov
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Kansas34NonoDept. of Health/Advisory BoardYesAdvisory Council for NBSIn ProgressActiveBoth$0.00KansasThirty daysNone foundScreening & Surveillance | KDHE, KS
kdhe.newbornscreening@ks.gov (Zachery.Leeker@ks.gov)
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Kentucky59NonoRUSP or LegislativelyYes(none found)YesActiveActiveBoth$150.00Kentucky2 monthsNone foundNewborn Screening Program - Cabinet for Health and Family Serviceswanda.atha@ky.gov
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Louisiana34NoAct 17 of 2023noDept. of Health OR LegislativelyYesFamily Health Boards & CommissionsYesPending 2023Law PassedBothKrabbe$30.00Louisiana1 monthNone foundhttp://dhh.louisiana.gov/index.cfm/page/470tcrocket@la.gov
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Maine56NonoDept. of HealthYesJoint Advisory Committee (JAC)YesActiveBoth$220.00MassachusettsIndefinitelyNone found
Maine Newborn Bloodspot Screening Program - Division of Disease Prevention
anne.watson@maine.gov
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Maryland61NoYesrecommendedDept. of HealthYesOffice of Genetics Advisory Councils and CommitteesIn ProgressActiveEfforts StartedBoth$106.00Maryland25 yearsNone foundMaryland Department of Health Newborn ScreeningFizza.Majid@maryland.gov
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Massachusetts66NonoDept. of HealthYes(none found)YesPilotBoth$171.21Massachusetts15 yearsIn progressNew England Newborn Screening Programmailto:roger.eaton@umassmed.eduMassBio
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Michigan58NonoDept. of Health/Advisory BoardYesNewborn Screening Advisory In ProgressActiveBoth$135.29MichiganUp to 100 yearsNone found
https://www.michigan.gov/mdhhs/0,5885,7-339-73971_4911_4916-64851--,00.html
NewbornScreening@Michigan.gov
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Minnesota61NonoDept. of HealthYesNewborn Screening Advisory Committee (NSAC)YesActiveEfforts StartedBothKrabbe$235.00MinnesotaIndefinitelyCondition Nomination Form http://www.health.state.mn.us/divs/phl/newborn/health.newbornscreening@state.mn.us
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Mississippi63NoYesnoDept. of HealthYes(none found)In ProgressActiveBoth$110.00Revvity1 yearhttps://msdh.ms.gov/msdhsite/_static/41,0,101.htmlmailto:Philis.hoggatt@msdh.state.ms.us
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Missouri77YesnoDept. of HealthYesMissouri Genetic Advisory CommitteeYesActiveActiveBoth$116.00Missouri5 yearsMissouri Newborn Screeninginfo@health.mo.gov, tracy.klug@health.mo.gov
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Montana33NonoDept. of HealthYesNewborn Screening Advisory CommitteeNoApprovedEfforts Started$145.00Montana & Wisconsin1 yearNomination Formhttps://dphhs.mt.gov/ecfsd/cshs/newbornscreeningprograms/lbeischel@mt.gov
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Nebraska35NonoDept. of HealthYesNewborn Screening Links & ResourcesNoActiveBoth$86.00Revvity3 monthshttp://dhhs.ne.gov/Pages/Newborn-Screening.aspxjillian.chance@nebraska.gov
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Nevada57NoyesDept. of HealthYes(none found)YesEfforts Started$81.00NevadaSix months - One YearNevada State Public Health Laboratoryogentscheff@med.unr.edu
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New Hampshire42NonoDept. of HealthYesNewborn Screening ProgramYesactiveBoth$146.00MassachusettsSix monthshttps://www.dhhs.nh.gov/dphs/bchs/mch/newborn.htmamanda.merrill@dhhs.state.nh.us
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New Jersey62NonoDept. of HealthYesNBS Advisory Review CommitteeYesActiveActiveBoth$150.00New Jersey23 yearsDepartment of Health | Newborn Screening & Genetic Servicesmiriam.schachter@doh.nj.gov
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New Mexico49NoyesDept. of HealthYes(none found)NoActiveLaw PassedBoth$240.00Oregon1 yearNewborn Genetic Screeningbrenda.romero@state.nm.us
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New York60NonoDept. of Health OR LegislativelyNoN/AYesActiveActivePilotBoth$0.00New YorkUp to 27 yearsNew York State Newborn Screening Programjoseph.orsini@health.ny.gov
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North Carolina41NoYesnoDept. of HealthYes(none found)YesActivePrevious ActivityBothKrabbe, MLD$132.00North Carolina5 yearsN.C. DPH: State Lab > Newborn Screeningkimberly.blake@dhhs.nc.govhttps://www.ncbioscience.net/
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North Dakota53NonoDept. of HealthYesND Newborn Screening ProgramNoEfforts Started$109.00IowaAge 18
ND Newborn Screening Program | Health and Human Services North Dakota
jbmeyer@nd.gov
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Ohio38NoYesnoDept. of HealthYesAdvisory Council | Ohio Department of HealthYesActiveActiveBoth$98.63OhioFIA-MS/MS2 yearsNewborn Screening | Ohio Department of HealthODHLabs@odh.ohio.gov
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Oklahoma58NoYesnoDept. of HealthYesGenetics Advisory CouncilNoActive$160.42Oklahomaup to 42 daysNewborn Screening Programnewbornscreen@health.ok.gov
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Oregon42NoNo (see note)noDept. of HealthYesNorthwest Regional NBS Program AdvisoryNoActivePrevious ActivityBoth$175.00Oregon1.5 years
Oregon Health Authority : Northwest Regional Newborn Screening Program
NWRegional.NBS@dhsoha.state.or.us
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Pennsylvania63NoYesnoDept. of Health/Advisory BoardYesNewborn Screening Advisory BoardsYesYesActiveActiveBoth$0.00Revvity1 yearDried Blood Spot (DBS)Newborn Screening Programjebixler@pa.govLifeSciencesPA.org
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Rhode Island35NoYesnoDept. of HealthYes(none found)NoActiveBoth$162.98Massachusetts23 yearsNewborn Screening InformationEmily.Eisenstein@health.ri.gov
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South Carolina56NonoDept. of HealthYes(none found)YesActiveActiveBoth$127.00South Carolina1 yearNewborn Screening | SCDHECspellsty@dhec.sc.gov
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South Dakota50NonoDept. of HealthYesNewborn Screening Advisory CommitteeNoEfforts StartedPompe$75.00Iowa1 monthCondition Nomination Formhttps://doh.sd.gov/family/newborn/metabolic/bernadette.boes@state.sd.us
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Tennessee71NonoDept. of HealthYesNewborn ScreeningYesActiveActiveEfforts StartedBoth$185.00Tennessee1 yearhttps://www.tn.gov/health/health-program-areas/newborn-screening.htmlthomas.childs@tn.gov
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Texas57NoYesyesDept. of HealthYesNewborn Screening Advisory CommitteeIn ProgressActive$127.10TexasUp to two yearsNewborn Screening Program | Texas DSHSrachel.lee@dshs.texas.gov
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Utah53NoyesDept. of HealthYes(none found)YesActiveBoth$140.00UtahMin. 90 dayshttp://health.utah.gov/newbornscreening/kimhart@utah.gov
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Vermont36NonoDept. of HealthYes(none found)NoActiveBoth$203.00Massachusetts1 yearVermont Newborn Screening ProgramAHS.VDHNewbornScreening@vermont.gov
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Virginia35NoEveryLife focus - 2024noDept. of HealthYesGenetics Advisory CommitteeYesActivePrevious ActivityBothKrabbe$138.00VirginiaSix MonthsNewborn Screening - VDHLiveWellchristen.crews@vdh.virginia.gov
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Washington37NorecommendedDept. of HealthYesNewborn Screening - OTCDIn ProgressActiveBoth$135.10Washington21 yearsNewborn Screening | Washington State Department of Healthnbs.prog@doh.wa.gov
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West Virginia39NonoDept. of HealthYes(none found)YesActiveBoth$186.00West Virginia3 monthsWV DHHR - OMCFH - Newborn Screening - Home Pagekristel.f.fijolek@wv.gov
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Wisconsin49NoEveryLife focus - 2023noDept. of HealthYesNewborn Screening Program: Committee In ProgressActivePrevious ActivityPompeKrabbe$195.00Wisconsin1 yearNominate a Condition for AdditionNewborn Screening (NBS) | Wisconsin State Laboratory of Hygienemei.baker@wisc.edu
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Wyoming53NorecommendedDept. of Health/Advisory BoardYes(none found)NoActiveBoth$97.32ColoradoSix monthsNewborn Screening Education - Wyoming Department of Healthmegan.callahan@wyo.gov
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Data primarily compiled from state websites, www.babysfirsttest.org, www.rarediseases.org, and data.newsteps.org
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