INCLUDE Data Contributor Guide

	A	B	C
1	INCLUDE COMMON DATA ELEMENTS
2	For co-occurring conditions, we are also interested in whether it is a current or resolved problem (or general "history of"), as well as age at observation/diagnosis/occurrence
3	If you would like to collect data using our REDCap survey, please contact Angela Rachubinski (angela.rachubinski@cuanschutz.edu) for assistance.
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6	Category	Data Element	Description
7	autoimmune	dermatitis_herpetiformis	Dermatitis herpetiformis (chronic, very itchy skin rash made up of bumps and blisters)
8	autoimmune	dermatomyositis	Dermatomyositis (inflammatory disease marked by muscle weakness and skin rash)
9	autoimmune	hemolytic_anemia	Hemolytic anemia (red blood cells are destroyed faster than they can be made)
10	autoimmune	kawasaki	Kawasaki disease
11	autoimmune	lichen_planus	Lichen planus (purplish, itchy, flat-topped bumps)
12	autoimmune	lichen_sclerosus	Lichen sclerosus ( thin, white patches of skin, usually in the genital area)
13	autoimmune	meniere	Meniere's disease (inner ear disorder causing vertigo)
14	autoimmune	myositis	Myositis (muscle inflammation)
15	autoimmune	narcolepsy	Narcolepsy (sudden attacks of sleep)
16	autoimmune	neutropenia	Neutropenia (low levels of white blood cells)
17	autoimmune	autoimmune_other	Other autoimmune condition
18	autoimmune	pandas	PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections)
19	autoimmune	psoriatic_arthritis	Psoriatic arthritis (chronic joint inflammation)
20	autoimmune	restless_legs	Restless legs syndrome (RLS)
21	autoimmune	rheumatoid_arthritis	Rheumatoid arthritis (immune system attacks lining of the joints)
22	autoimmune	sarcoidosis	Sarcoidosis (masses usually on the lungs or lymph glands)
23	autoimmune	lupus	Systemic lupus erythematosus (SLE, lupus)
24	autoimmune	ttp	Thrombocytopenic purpura (TTP) (blood clotting disorder)
25	autoimmune	vasculitis	Vasculitis (inflammation of the blood vessels)
26	autoimmune\|endocrine	graves	Graves disease (immune system attacks thyroid and too much thyroid hormone is produced)
27	autoimmune\|endocrine	hashimoto	Hashimoto's thyroiditis (immune system attacks thyroid gland which stops making T4)
28	autoimmune\|endocrine	t1_diabetes	Type I (juvenile) diabetes
29	autoimmune\|gi	celiac	Celiac disease (gluten or wheat intolerance)
30	autoimmune\|gi	ibd	Inflammatory bowel disease (IBD)/Crohn's disease/ulcerative colitis
31	autoimmune\|skeletal	arthritis_arthropathy	Arthritis/arthropathy (swollen or painful joints)
32	autoimmune\|skin	alopecia	Alopecia areata (loss of hair on scalp)
33	autoimmune\|skin	atopic_dermatitis	Atopic dermatitis/eczema
34	autoimmune\|skin	hidradenitis_suppurativa	Hidradenitis suppurativa (painful bumps or boils near sweat glands such as armpits)
35	autoimmune\|skin	psoriasis	Psoriasis (red, scaly patches of skin)
36	autoimmune\|skin	vitiligo	Vitiligo (white patches of skin without any pigment)
37	cardiac	asd	Atrial septal defect (ASD)
38	cardiac	av_canal	Atrioventricular canal defect (AV Canal)
39	cardiac	arrhythmia	Cardiac arrhythmia/dysrhythmia (irregular heartbeat) (Tachycardia; Bradycardia; Prolonged QT; Other)
40	cardiac	cardiomyopathy	Cardiomyopathy (disease of the heart muscle, often associated with heart enlargement)
41	cardiac	congestive_heart	Congestive heart failure (heart muscle doesn't pump blood as well as it should)
42	cardiac	cardiac_surgery	Corrective heart surgery required
43	cardiac	cholesterol	Elevated cholesterol levels
44	cardiac	heart_attack	Heart attack (myocardial infarction or MI)
45	cardiac	hypertension	Hypertension (high blood pressure)
46	cardiac	mitral_regurgitation	Mitral valve regurgitation
47	cardiac	chd_other	Other congenital heart defect
48	cardiac	cardiac_other	Other heart condition
49	cardiac	pda	Patent ductus arteriosus (PDA)
50	cardiac	pfo	Patent foramen ovale (PFO)
51	cardiac	peripheral_artery	Peripheral artery disease (claudication)
52	cardiac	syncope	Syncope (Fainting or dizzy spells)
53	cardiac	tof	Tetralogy of Fallot (TOF)
54	cardiac	thymus	Thymus removed
55	cardiac	tricuspid_regurgitation	Tricuspid valve regurgitation
56	cardiac	vsd	Ventricular septal defect (VSD)
57	development	communication	Current communication method (Sign language; Reading lips; Assistive technology or augmentative communication device, app, or system; Nonverbal; Minimally verbal; Verbal)
58	development	expressive_language	Expressive language disorder
59	development	feeding_therapy	Feeding therapy (help chewing, drinking, eating foods)
60	development	fine_therapy	Therapy for fine motor delay (hand writing, dressing, feeding)
61	development	gross_therapy	Therapy for gross motor delay (walking)
62	development	mixed_language	Mixed receptive-expressive language disorder
63	development	nonverbal	Nonverbal/absent speech
64	development	develop_other	Other developmental delay condition
65	development	speech_other	Other speech or language delay
66	development	selective_mutism	Selective mutism
67	development	sensory_therapy	Therapy for sensory (sensory processing) disorder/difference
68	development	speech_delay	Speech delay
69	development	speech_therapy	Speech/language therapy
70	endocrine	calcium	Calcium deficiency
71	endocrine	congenital_diabetes	Congenital or early infant diabetes
72	endocrine	hyperthyroid	Hyperthyroidism (overactive thyroid)
73	endocrine	hypothyroid	Hypothyroidism (low thyroid function)
74	endocrine	endocrine_other	Other endocrine condition
75	endocrine	thyroid_other	Other thyroid condition
76	endocrine	prediabetes	Pre-diabetes (high blood sugar levels but not high enough to be called diabetes)
77	endocrine	t2_diabetes	Type II (adult onset) diabetes
78	endocrine	vitamin_b	Vitamin B deficiency
79	endocrine	vitamin_d	Vitamin D deficiency
80	endocrine	zinc	Zinc deficiency
81	ent	adenoidectomy	Adenoidectomy
82	ent	apnea_treatment	Apnea treatment (CPAP/BiPAP; Airway surgery (includes tonsillectomy/adenoidectomy); Tongue reduction surgery; Oxygen supplementation; Dental appliance; Weight loss for obesity; Other)
83	ent	central_apnea	Central sleep apnea
84	ent	rhinitis	Chronic rhinitis (stuffy or runny nose)
85	ent	ent_tubes	PE (pressure equalization) tubes/myringotomy/tympanostomy (middle ear tubes)
86	ent	eustachian	Eustachian (auditory) tube dysfunction
87	ent	hearing_aid	Hearing aid use
88	ent	hearing_loss	Hearing loss (Conductive; Sensorineural; Mixed; Transient; Unknown; Other)
89	ent	laryngomalacia	Laryngomalacia (soft voicebox)
90	ent	obstructive_apnea	Obstructive sleep apnea
91	ent	ent_other	Other ENT condition
92	ent	snores	Snores
93	ent	tonsillectomy	Tonsillectomy
94	eye	amblyopia	Amblyopia (lazy eye)
95	eye	astigmatism	Astigmatism (blurry vision)
96	eye	blindness	Blindness
97	eye	blocked_nld	Blocked nasolacrimal duct (blocked tear duct)
98	eye	cataracts	Cataracts
99	eye	depth	Depth perception issues
100	eye	glaucoma	Glaucoma