A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | |
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1 | Welcome to the Index for The Things We Don’t Say: An Anthology of Chronic Illness Truths | ||||||||||||||||||||||||
2 | For information about the book, please visit chronicillnesstruths.com | ||||||||||||||||||||||||
3 | |||||||||||||||||||||||||
4 | Main Listing | Sublisting | Essays | ||||||||||||||||||||||
5 | Ableism | Pain | Heron Greenesmith Chronic Illness Eugenics | chaya hazel caninsky High-Maintenance | Lindsey M. Clouser | |||||||||||||||||||||||
6 | Accessibility | Snakes & Accessibility Ramps | Alix Penn Forgive Yourself for Saying Yes | Glynis Scrivens The Superior Mutant’s Victory Garden | Raven Kaldera | |||||||||||||||||||||||
7 | Accommodations | school | This Is Hard | Julie Morgenlender | ||||||||||||||||||||||
8 | Accommodations | work | I Am Not My Cornea | Keidra Chaney My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | ||||||||||||||||||||||
9 | Activism | I Didn’t Cry on My Birthday This Year | Tara A. Chronic Illness Eugenics | chaya hazel caninsky Snakes & Accessibility Ramps | Alix Penn That’s Why the Lady Was on Stamps | Litsa Dremousis | |||||||||||||||||||||||
10 | Adenomyosis | We Don’t Get Any Medals | Jane Lesley | |||||||||||||||||||||||
11 | Adolescence | One-Two Punch | Charity Cole Snakes & Accessibility Ramps | Alix Penn Chronically Ill Teens | Michaela Shelley My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | |||||||||||||||||||||||
12 | Adrenal Disorder | The Superior Mutant’s Victory Garden | Raven Kaldera | |||||||||||||||||||||||
13 | Ageism | My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | |||||||||||||||||||||||
14 | Allergies | The Superior Mutant’s Victory Garden | Raven Kaldera Hope’s Visible in Me: How My Invisible Illness Is Actually Visible | Jessica Ward | |||||||||||||||||||||||
15 | Anorexia | The Tale of a POTSie | Bella | |||||||||||||||||||||||
16 | Anosmia | We Don’t Get Any Medals | Jane Lesley | |||||||||||||||||||||||
17 | Anxiety | Yes, We Can: Sex and Chronic Illness | Kit Stubbs, PhD One-Two Punch | Charity Cole I Didn’t Cry on My Birthday This Year | Tara A. PTSD: The Illness I Couldn’t See | Amy Oestreicher Miss Treated | Katherine Ernst “. . . Sixteen, Seventeen, Eighteen . . .” | Katie Hiener The Tale of a POTSie | Bella Pudendal Neuralgia | Atara Schimmel The Monster Within | Annie Wittenberg Anxiety Is My Constant Companion | Devin Reynolds Wishing I Had a Heads-Up on My Autoimmune Illnesses | Jamie Jasinski Along the Way | Dess See also Generalized anxiety disorder See also Obsessive compulsive disorder (OCD) See also Panic attacks | |||||||||||||||||||||||
18 | Arthritis | Chronic Contradictions | Wendy Kennar Forgive Yourself for Saying Yes | Glynis Scrivens Chronic Pain Versus Masculinity | Bret Stephenson | |||||||||||||||||||||||
19 | Asexual | See LGBTQIA+ | |||||||||||||||||||||||
20 | Asthma | Growing Up with Asthma | Mark Ludas Hope’s Visible in Me: How My Invisible Illness Is Actually Visible | Jessica Ward We Don’t Get Any Medals | Jane Lesley | |||||||||||||||||||||||
21 | Autism | The Monster Within | Annie Wittenberg | |||||||||||||||||||||||
22 | Autoimmune disease | One-Two Punch | Charity Cole Chronic Contradictions | Wendy Kennar Miss Treated | Katherine Ernst The Superior Mutant’s Victory Garden | Raven Kaldera Wishing I Had a Heads-Up on My Autoimmune Illnesses | Jamie Jasinski My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | |||||||||||||||||||||||
23 | Autonomic nervous system dysfunction | Hope’s Visible in Me: How My Invisible Illness Is Actually Visible | Jessica Ward | |||||||||||||||||||||||
24 | Autonomic neuropathy | The Tale of a POTSie | Bella | |||||||||||||||||||||||
25 | Bartholin’s cyst | A Flash of Blue | Shelia Bolt Rudesill | |||||||||||||||||||||||
26 | BDSM | Yes, We Can: Sex and Chronic Illness | Kit Stubbs, PhD | |||||||||||||||||||||||
27 | Bilateral pulmonary emboli | We Don’t Get Any Medals | Jane Lesley | |||||||||||||||||||||||
28 | Bipolar disorder | One-Two Punch | Charity Cole Anxiety Is My Constant Companion | Devin Reynolds | |||||||||||||||||||||||
29 | Bisexual | see LGBTQIA+ | |||||||||||||||||||||||
30 | Brace | see Mobility aid | |||||||||||||||||||||||
31 | Brain fog | What Is It Like? | Hannah Rembrandt A Little Understanding | Mary Lee Evelyn Keeney My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender 219 See also Cognition: impaired | |||||||||||||||||||||||
32 | Breathing exercises | The Superior Mutant’s Victory Garden | Raven Kaldera | |||||||||||||||||||||||
33 | Cane | See Mobility aid | |||||||||||||||||||||||
34 | Celiac Disease | My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | |||||||||||||||||||||||
35 | Charcot-Marie-Tooth disease | Chronic Illness Eugenics | chaya hazel caninsky | |||||||||||||||||||||||
36 | Chemical sensitivities | This I Believe | Marcia Allar The Superior Mutant’s Victory Garden | Raven Kaldera If I Had Known Then, What I Know Now... | Marcia Allar | |||||||||||||||||||||||
37 | Childhood illness | Introduction Expecting Motherhood, Creating Self | Sarah Myers PTSD: The Illness I Couldn’t See | Amy Oestreicher An Echo Unheard | Deepti Dilip Kumar Chronic Illness Eugenics | chaya hazel caninsky The Monster Within | Annie Wittenberg Snakes & Accessibility Ramps | Alix Penn Anxiety Is My Constant Companion | Devin Reynolds The Superior Mutant’s Victory Garden | Raven Kaldera Growing Up with Asthma | Mark Ludas High-Maintenance | Lindsey M. Clouser My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | |||||||||||||||||||||||
38 | Chronic fatigue and immune dysfunction syndrome | See Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) | |||||||||||||||||||||||
39 | Chronic fatigue syndrome (CFS) | See Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) | |||||||||||||||||||||||
40 | Cognition, impaired | Anxiety Is My Constant Companion | Devin Reynolds All About the Pain | Nikki Albert See also Brain fog | |||||||||||||||||||||||
41 | Colitis | The Superior Mutant’s Victory Garden | Raven Kaldera Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez | |||||||||||||||||||||||
42 | College | Graduate program | Adventures in Snow Shoveling: January 9, 2016 | Danielle Lorenz Miss Treated | Katherine Ernst What Is It Like? | Hannah Rembrandt My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | ||||||||||||||||||||||
43 | College | One-Two Punch | Charity Cole Imagine | Michaela Shelley Pain | Heron Greenesmith The Tale of a POTSie | Bella The Monster Within | Annie Wittenberg Anxiety Is My Constant Companion | Devin Reynolds Along the Way | Dess Chronically Ill Teens | Michaela Shelley The Importance of Representation: Why Using My First Cane Was Scary | Rebecca Bartlett My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | |||||||||||||||||||||||
44 | Communication | Yes, We Can: Sex and Chronic Illness | Kit Stubbs, PhD Going to the Emergency Department with a Chronic Illness | R.S. Nash | |||||||||||||||||||||||
45 | Community | Introduction Expecting Motherhood, Creating Self | Sarah Myers Chronic Illness Eugenics | chaya hazel caninsky Pudendal Neuralgia | Atara Schimmel Anxiety Is My Constant Companion | Devin Reynolds Wishing I Had a Heads-Up on My Autoimmune Illnesses | Jamie Jasinski The Things That Go Bump...In Your Body | Lindsey M. Clouser | |||||||||||||||||||||||
46 | Congenital | heart defect | An Echo Unheard | Deepti Dilip Kumar | ||||||||||||||||||||||
47 | Congenital | Adventures in Snow Shoveling: January 9, 2016 | Danielle Lorenz Chronic Pain Versus Masculinity | Bret Stephenson | |||||||||||||||||||||||
48 | Connective tissue disorder | Chronic Contradictions | Wendy Kennar Pain | Heron Greenesmith My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | |||||||||||||||||||||||
49 | Constipation | Along the Way | Dess | |||||||||||||||||||||||
50 | Coping | Multiple Sclerosis: My Lost Connections | Sónia Lopes I Didn’t Cry on My Birthday This Year | Tara A. PTSD: The Illness I Couldn’t See | Amy Oestreicher “. . . Sixteen, Seventeen, Eighteen . . .” | Katie Hiener The Monster Within | Annie Wittenberg Forgive Yourself for Saying Yes | Glynis Scrivens Grieving the Loss of Body | Bret Stephenson The Superior Mutant’s Victory Garden | Raven Kaldera Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez Wishing I Had a Heads-Up on My Autoimmune Illnesses | Jamie Jasinski Chronically Ill Teens | Michaela Shelley All About the Pain | Nikki Albert The Quandaries of Chronic Pain | Elin Walther We Don’t Get Any Medals | Jane Lesley | |||||||||||||||||||||||
51 | Crohn's disease | PTSD: The Illness I Couldn’t See | Amy Oestreicher Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez Hope’s Visible in Me: How My Invisible Illness Is Actually Visible | Jessica Ward We Don’t Get Any Medals | Jane Lesley | |||||||||||||||||||||||
52 | Crutches | See Mobility aid | |||||||||||||||||||||||
53 | Cyberchondria | Anxiety Is My Constant Companion | Devin Reynolds | |||||||||||||||||||||||
54 | Degenerative disc disease | We Don’t Get Any Medals | Jane Lesley | |||||||||||||||||||||||
55 | Dehydration | The Tale of a POTSie | Bella Hope’s Visible in Me: How My Invisible Illness Is Actually Visible | Jessica Ward | |||||||||||||||||||||||
56 | Depression | postpartum | One-Two Punch | Charity Cole | ||||||||||||||||||||||
57 | Depression | Introduction One-Two Punch | Charity Cole I Am Not My Cornea | Keidra Chaney An Echo Unheard | Deepti Dilip Kumar Miss Treated | Katherine Ernst Pudendal Neuralgia | Atara Schimmel The Monster Within | Annie Wittenberg Grieving the Loss of Body | Bret Stephenson We Don’t Get Any Medals | Jane Lesley See also Five stages of grief cycle See also Suicidal ideation | |||||||||||||||||||||||
58 | Deterioration | This Is Hard | Julie Morgenlender I Am Not My Cornea | Keidra Chaney Grieving the Loss of Body | Bret Stephenson | |||||||||||||||||||||||
59 | Diagnosis | delayed | Introduction Pain | Heron Greenesmith Miss Treated | Katherine Ernst The Tale of a POTSie | Bella Anxiety Is My Constant Companion | Devin Reynolds The Superior Mutant’s Victory Garden | Raven Kaldera Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | ||||||||||||||||||||||
60 | Diagnosis | misdiagnosed | Pain | Heron Greenesmith Miss Treated | Katherine Ernst We Don’t Get Any Medals | Jane Lesley My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | ||||||||||||||||||||||
61 | Diagnosis | receiving | A Flash of Blue | Shelia Bolt Rudesill Multiple Sclerosis: My Lost Connections | Sónia Lopes One-Two Punch | Charity Cole I Didn’t Cry on My Birthday This Year | Tara A. Chronic Contradictions | Wendy Kennar Pain | Heron Greenesmith The Tale of a POTSie | Bella Chronic Illness Eugenics | chaya hazel caninsky The Monster Within | Annie Wittenberg Snakes & Accessibility Ramps | Alix Penn Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez Wishing I Had a Heads-Up on My Autoimmune Illnesses | Jamie Jasinski Along the Way | Dess The Things That Go Bump...In Your Body | Lindsey M. Clouser Chronic Pain Versus Masculinity | Bret Stephenson High-Maintenance | Lindsey M. Clouser My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | ||||||||||||||||||||||
62 | Diagnosis | undiagnosed | Introduction PTSD: The Illness I Couldn’t See | Amy Oestreicher Pain | Heron Greenesmith The Superior Mutant’s Victory Garden | Raven Kaldera The Things That Go Bump...In Your Body | Lindsey M. Clouser We Don’t Get Any Medals | Jane Lesley My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender About the Editor | ||||||||||||||||||||||
63 | Diagnosis | Pain | Heron Greenesmith Pudendal Neuralgia | Atara Schimmel Wishing I Had a Heads-Up on My Autoimmune Illnesses | Jamie Jasinski Along the Way | Dess I Wish I’d Known | Zoe A. Bateman Chronically Ill Teens | Michaela Shelley The Things That Go Bump...In Your Body | Lindsey M. Clouser We Don’t Get Any Medals | Jane Lesley | |||||||||||||||||||||||
64 | Diet | Multiple Sclerosis: My Lost Connections | Sónia Lopes This Is Hard | Julie Morgenlender I Didn’t Cry on My Birthday This Year | Tara A. Chronic Contradictions | Wendy Kennar PTSD: The Illness I Couldn’t See | Amy Oestreicher The Superior Mutant’s Victory Garden | Raven Kaldera High-Maintenance | Lindsey M. Clouser My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | |||||||||||||||||||||||
65 | Disability | To the Friend Who Told Me that I Talk About My Illnesses Too Much | R.S. Nash Chronic Contradictions | Wendy Kennar Adventures in Snow Shoveling: January 9, 2016 | Danielle Lorenz I Am Not My Cornea | Keidra Chaney PTSD: The Illness I Couldn’t See | Amy Oestreicher An Echo Unheard | Deepti Dilip Kumar The Tale of a POTSie | Bella Chronic Illness Eugenics | chaya hazel caninsky Snakes & Accessibility Ramps | Alix Penn Forgive Yourself for Saying Yes | Glynis Scrivens The Superior Mutant’s Victory Garden | Raven Kaldera All About the Pain | Nikki Albert That’s Why the Lady Was on Stamps | Litsa Dremousis The Things That Go Bump...In Your Body | Lindsey M. Clouser The Importance of Representation: Why Using My First Cane Was Scary | Rebecca Bartlett My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | |||||||||||||||||||||||
66 | Disability benefits | Grieving the Loss of Body | Bret Stephenson That’s Why the Lady Was on Stamps | Litsa Dremousis Chronic Pain Versus Masculinity | Bret Stephenson My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender See also Social Security Disability Insurance (SSDI) | |||||||||||||||||||||||
67 | Disability justice theory | Chronic Illness Eugenics | chaya hazel caninsky | |||||||||||||||||||||||
68 | Disability pride | Chronic Illness Eugenics | chaya hazel caninsky | |||||||||||||||||||||||
69 | Disembarkment syndrome | We Don’t Get Any Medals | Jane Lesley | |||||||||||||||||||||||
70 | Dissociation | PTSD: The Illness I Couldn’t See | Amy Oestreicher The Superior Mutant’s Victory Garden | Raven Kaldera | |||||||||||||||||||||||
71 | Dizziness | The Tale of a POTSie | Bella The Quandaries of Chronic Pain | Elin Walther | |||||||||||||||||||||||
72 | Doctors | See Medical professionals | |||||||||||||||||||||||
73 | Dysautonomia | Going to the Emergency Department with a Chronic Illness | R.S. Nash The Tale of a POTSie | Bella 93 See also Postural orthostatic tachycardia syndrome (POTS) | |||||||||||||||||||||||
74 | Dyslexia | The Superior Mutant’s Victory Garden | Raven Kaldera | |||||||||||||||||||||||
75 | Ehlers-Danlos syndrome | This I Believe | Marcia Allar Snakes & Accessibility Ramps | Alix Penn If I Had Known Then, What I Know Now... | Marcia Allar | |||||||||||||||||||||||
76 | Eli Clare | Chronic Illness Eugenics | chaya hazel caninsky | |||||||||||||||||||||||
77 | Emotions | acceptance | Yes, We Can: Sex and Chronic Illness | Kit Stubbs, PhD This I Believe | Marcia Allar Chronic Contradictions | Wendy Kennar PTSD: The Illness I Couldn’t See | Amy Oestreicher An Echo Unheard | Deepti Dilip Kumar “. . . Sixteen, Seventeen, Eighteen . . .” | Katie Hiener Anxiety Is My Constant Companion | Devin Reynolds Grieving the Loss of Body | Bret Stephenson Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez If I Had Known Then, What I Know Now... | Marcia Allar My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender See also Fives stages of grief cycle | ||||||||||||||||||||||
78 | Emotions | anger | A Flash of Blue | Shelia Bolt Rudesill To the Friend Who Told Me that I Talk About My Illnesses Too Much | R.S. Nash PTSD: The Illness I Couldn’t See | Amy Oestreicher An Echo Unheard | Deepti Dilip Kumar “. . . Sixteen, Seventeen, Eighteen . . .” | Katie Hiener The Tale of a POTSie | Bella Anxiety Is My Constant Companion | Devin Reynolds Grieving the Loss of Body | Bret Stephenson Chronically Ill Teens | Michaela Shelley Chronic Pain Versus Masculinity | Bret Stephenson We Don’t Get Any Medals | Jane Lesley See also Five stages of grief cycle | ||||||||||||||||||||||
79 | Emotions | anxiety | See Anxiety | ||||||||||||||||||||||
80 | Emotions | avoidance | PTSD: The Illness I Couldn’t See | Amy Oestreicher | ||||||||||||||||||||||
81 | Emotions | compassion | I Didn’t Cry on My Birthday This Year | Tara A. Pudendal Neuralgia | Atara Schimmel The Monster Within | Annie Wittenberg Growing Up with Asthma | Mark Ludas Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez No Different from Anyone Else | Glynis Scrivens High-Maintenance | Lindsey M. Clouser | ||||||||||||||||||||||
82 | Emotions | confusion | Introduction Chronic Contradictions | Wendy Kennar Expecting Motherhood, Creating Self | Sarah Myers PTSD: The Illness I Couldn’t See | Amy Oestreicher Pain | Heron Greenesmith The Monster Within | Annie Wittenberg Anxiety Is My Constant Companion | Devin Reynolds Chronically Ill Teens | Michaela Shelley | ||||||||||||||||||||||
83 | Emotions | defeat | An Echo Unheard | Deepti Dilip Kumar Anxiety Is My Constant Companion | Devin Reynolds Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez | ||||||||||||||||||||||
84 | Emotions | denial | Chronic Contradictions | Wendy Kennar Anxiety Is My Constant Companion | Devin Reynolds Grieving the Loss of Body | Bret Stephenson Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez That’s Why the Lady Was on Stamps | Litsa Dremousis See also Five stages of grief cycle | ||||||||||||||||||||||
85 | Emotions | depression | See Depression | ||||||||||||||||||||||
86 | Emotions | determination | A Flash of Blue | Shelia Bolt Rudesill See also Willpower | ||||||||||||||||||||||
87 | Emotions | disappointment | A Flash of Blue | Shelia Bolt Rudesill PTSD: The Illness I Couldn’t See | Amy Oestreicher The Monster Within | Annie Wittenberg | ||||||||||||||||||||||
88 | Emotions | discouraged | The Tale of a POTSie | Bella Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez | ||||||||||||||||||||||
89 | Emotions | doubt | Introduction Pain | Heron Greenesmith Forgive Yourself for Saying No | Glynis Scrivens Growing Up with Asthma | Mark Ludas Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez If I Had Known Then, What I Know Now... | Marcia Allar That’s Why the Lady Was on Stamps | Litsa Dremousis The Things That Go Bump...In Your Body | Lindsey M. Clouser | ||||||||||||||||||||||
90 | Emotions | embarrassment | A Flash of Blue | Shelia Bolt Rudesill “. . . Sixteen, Seventeen, Eighteen . . .” | Katie Hiener Wishing I Had a Heads-Up on My Autoimmune Illnesses | Jamie Jasinski Along the Way | Dess Chronic Pain Versus Masculinity | Bret Stephenson | ||||||||||||||||||||||
91 | Emotions | failure | An Echo Unheard | Deepti Dilip Kumar Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez I Wish I’d Known | Zoe A. Bateman Chronic Pain Versus Masculinity | Bret Stephenson | ||||||||||||||||||||||
92 | Emotions | fear | A Flash of Blue | Shelia Bolt Rudesill This Is Hard | Julie Morgenlender I Didn’t Cry on My Birthday This Year | Tara A. I Am Not My Cornea | Keidra Chaney An Echo Unheard | Deepti Dilip Kumar Pain | Heron Greenesmith Chronic Illness Eugenics | chaya hazel caninsky Pudendal Neuralgia | Atara Schimmel The Monster Within | Annie Wittenberg Anxiety Is My Constant Companion | Devin Reynolds The Superior Mutant’s Victory Garden | Raven Kaldera Growing Up with Asthma | Mark Ludas Along the Way | Dess The Things That Go Bump...In Your Body | Lindsey M. Clouser Chronic Pain Versus Masculinity | Bret Stephenson My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | ||||||||||||||||||||||
93 | Emotions | frustration | Introduction One-Two Punch | Charity Cole I Am Not My Cornea | Keidra Chaney PTSD: The Illness I Couldn’t See | Amy Oestreicher Pain | Heron Greenesmith The Monster Within | Annie Wittenberg Grieving the Loss of Body | Bret Stephenson Chronically Ill Teens | Michaela Shelley The Quandaries of Chronic Pain | Elin Walther Chronic Pain Versus Masculinity | Bret Stephenson My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | ||||||||||||||||||||||
94 | Emotions | gratitude | This I Believe | Marcia Allar This Is Hard | Julie Morgenlender Chronic Contradictions | Wendy Kennar PTSD: The Illness I Couldn’t See | Amy Oestreicher Miss Treated | Katherine Ernst Good Morning | Kaitlyn M. Smith Grieving the Loss of Body | Bret Stephenson The Superior Mutant’s Victory Garden | Raven Kaldera Growing Up with Asthma | Mark Ludas Along the Way | Dess The Quandaries of Chronic Pain | Elin Walther My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender Acknowledgements | ||||||||||||||||||||||
95 | Emotions | grief | PTSD: The Illness I Couldn’t See | Amy Oestreicher Pudendal Neuralgia | Atara Schimmel Grieving the Loss of Body | Bret Stephenson If I Had Known Then, What I Know Now... | Marcia Allar My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender See also Five stages of grief cycle | ||||||||||||||||||||||
96 | Emotions | guilt | A Flash of Blue | Shelia Bolt Rudesill This Is Hard | Julie Morgenlender Chronic Contradictions | Wendy Kennar Things Every Newly Diagnosed Patient Needs to Know | Dylan Gomez No Different from Anyone Else | Glynis Scrivens | ||||||||||||||||||||||
97 | Emotions | happiness and joy | Introduction A Flash of Blue | Shelia Bolt Rudesill To the Friend Who Told Me that I Talk About My Illnesses Too Much | R.S. Nash Imagine | Michaela Shelley This Is Hard | Julie Morgenlender PTSD: The Illness I Couldn’t See | Amy Oestreicher Miss Treated | Katherine Ernst Snakes & Accessibility Ramps | Alix Penn What Is It Like? | Hannah Rembrandt Grieving the Loss of Body | Bret Stephenson The Superior Mutant’s Victory Garden | Raven Kaldera Growing Up with Asthma | Mark Ludas Wishing I Had a Heads-Up on My Autoimmune Illnesses | Jamie Jasinski If I Had Known Then, What I Know Now... | Marcia Allar All About the Pain | Nikki Albert The Quandaries of Chronic Pain | Elin Walther No Different from Anyone Else | Glynis Scrivens Chronic Pain Versus Masculinity | Bret Stephenson | ||||||||||||||||||||||
98 | Emotions | hope | Introduction A Flash of Blue | Shelia Bolt Rudesill To the Friend Who Told Me that I Talk About My Illnesses Too Much | R.S. Nash This I Believe | Marcia Allar One-Two Punch | Charity Cole The Tale of a POTSie | Bella Chronic Illness Eugenics | chaya hazel caninsky Pudendal Neuralgia | Atara Schimmel The Monster Within | Annie Wittenberg The Superior Mutant’s Victory Garden | Raven Kaldera If I Had Known Then, What I Know Now... | Marcia Allar The Things That Go Bump...In Your Body | Lindsey M. Clouser The Quandaries of Chronic Pain | Elin Walther A Little Understanding | Mary Lee Evelyn Keeney Hope’s Visible in Me: How My Invisible Illness Is Actually Visible | Jessica Ward My Journey for Answers: Because No One Will Care More about My Health Than Me | Julie Morgenlender | ||||||||||||||||||||||
99 | Emotions | hurt | Multiple Sclerosis: My Lost Connections | Sónia Lopes This I Believe | Marcia Allar This Is Hard | Julie Morgenlender PTSD: The Illness I Couldn’t See | Amy Oestreicher Pain | Heron Greenesmith “. . . Sixteen, Seventeen, Eighteen . . .” | Katie Hiener | ||||||||||||||||||||||
100 | Emotions | isolation | Introduction This I Believe | Marcia Allar Along the Way | Dess Chronically Ill Teens | Michaela Shelley |