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EDSSDateAverageWalkingAssistance (Wall, Railing)BalanceRight Toes NumbnessRight Toes BendingBend Right AnkleLifting Right LegLeg SpasmsCrampsRight Fingers NumbnessRight Fingers DexterityMS Hug?Fatigue LevelUrinary IssuesTrouble SleepingStiff LigamentsTrouble w/ StairsBack PainTypingLeft Knee PainUsed Cane?WeightNotesInfusion Day?Infusion DayMonth average
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July 17th, 20164.2444554451644564344377No254.6
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July 24th, 20164.1855555551255453344376No256.2
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4July 28th, 20163.6555554442344241244266No252.6Infusion Day #13.651
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July 29th, 20163.9454467652124150825133No255Improved results are probably from Steroid infusion4.00
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August 4th, 20164.6576676771455250137637No263
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August 9th, 20164.5365576771245260167567No253.6Infusion Day #24.531
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August 10th, 20165.2476576771167271748374No256.4
Trouble Sleeping Last night. Literally could feel my heart pounding in my chest, but pulse was normal around 70bpm.
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August 12th, 20164.2454467750056150755263No253Started Amantadine yesterday for fatigue.
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August 14th, 20164.4754455554356352555376No253Working in Madison at Boathouse, Very Hot overnight.
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August 19th, 20164.4165457762046160457275No251.2
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August 24th, 20164.7666476772246262347375No252.4
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August 28th, 20164.5977477672135271237265No249.2
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August 31st, 20164.8866466662256472447265No246.8Put together furniture last night, and severly exerted myself.4.64
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September 9th, 20164.4766467771156260237355No246
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September 16th, 20164.2966556662256160236275No245.2
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September 23rd, 20163.8866466650145160127154No247.4
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September 24th, 20164.2466464561255460246254No274.4
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September 28th, 20163.7655555560144250336242No249
*** Regimen of steroids that past few days helped with these numbers
4.13
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October 3, 20164.0066667652155140215151No245
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October 6th, 20163.5955666561044150016141No246
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October 13, 20164.5366667561655250326361No244.8
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October 21, 20163.8855556551235152326250No248.8
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October 26th, 20165.0666777573234373646150Yes246big bright Monday conference. lots of walking g.
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October 28th, 20163.0044445451123241115140No251.2
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October 31st, 20164.2477767770055140036060No2484.04
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November 4th, 20163.4155656551144120125140No247
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November 14th, 20164.3577677651255251026451Yes248
Trouble first thing this morning with right foot, and tendency to twist or sprain. Walking was difficult without asistance.
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November 16th, 20164.1266566552255152126450No250.2
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November 22, 20165.1277677672255372266851No252.2
Took off work due to back pain and fatigue. I also tripped and fell hard this part Sunday after tripping. Bruising on hip and scrape on elbow. :(
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November 25th, 20164.0065566551144151265240No253.6
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November 28th, 20164.1865666651145161156560Yes2504.20
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December 6th4.7667777771245160167250Yes250
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December 8th, 20164.5366767761345250057150Yes246.8
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December 11, 20164.8278766672255261156 60Yes248.2Second day walking wit Walk Aide.
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December 19th, 20164.7166677761166162156260Yes249.4
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December 24th, 20164.5366677751166151156160Yes251.1
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December 28th, 20164.2976566751155162145170Yes254.8MRI, Blood & Urine Tests today4.61
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January 1, 20174.2966777761155150036140No252
Fell at work late last week and needed assistance getting up. Didn't have my cane.
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4.5January 9th, 20174.2467676661155150145250No252Infusion Day. Got the 2nd 600mg dosage too.4.241
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January 19th, 20174.3566666671154161156240Yes250
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January 24th, 20174.0066666660044151434130Yes251
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January 30th, 20174.2967766562245152234176Yes2504.24
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February 6th, 20174.1877767660055260025150Yes250
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February 10th, 20175.1877777773656170047260Yes248.8
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February 20th, 20175.1277777772356173047260Yes248.8
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February 28th, 20175.0677777775156260057560Yes2494.88
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March 6th, 20174.1866666662055050057350Yes250.2
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March 14th, 20175.1288867772167161057760Yes249
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March 20th, 20174.7167766772066251057760Yes248.2
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March 24th, 20174.1866666671055050147750Yes247.2
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March 28th, 20174.2466667662055051137540Yes247.24.48
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April 8th, 20173.8866555661255160016150Yes248
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April 9th, 20176.1288866682566694448260Yes248Travel day conference in texas
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April 16th, 20175.5388977682266292147360Yes244.2
Fell 2 times. Once in the basement carrying a PC. Once in the Kick trip parking lot.
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April 21st, 20174.3566665571555161126460Yes245
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April 30th, 20175.1277767673555173146450Yes249
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April 5th, 20174.0065666561056052126450Yes2484.83
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May 3rd, 20174.7677777781144172137350yes252
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May 5th, 20173.5354455460133141536250Yes252*****
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May 13th, 20174.0077666670033261026250Yes252
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May 15th, 20176.2498887793266593178460Yes252
Traveled to Orange County. Needed wheelchair assistance in airport. Crushing fatigue and difficulty walking today.
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May 21st, 20173.8854666661144053135240Yes250.2
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May 22nd, 20176.2999977784567393158370Yes253.4***
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May 26th, 20173.8855555561244142246150Yes248.4Started New Diet4.66
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June 8th, 20175.1267767673344177156350Yes247
Pain in shoulder that has lingered for a couple of weeks. Urgency to Urinate getting worse.
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June 12th, 20176.5388888883667286368370Yes249
Back shoulder pain is not going away. Hurts when I stretch down towards the floor.
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June 14th, 20175.2966677673256168266360Yes248
MRI and Blood work today. Hang nail on right big toe is infected, and having trouble healing
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June 20th, 20175.1866766684255362556450Yes248
Business trip to Colorado. Fell at the airport. 6000+ steps, most in months.
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4June 24th, 2014.5966766673155251156250Yes248Infusion Day4.591
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June 23rd, 20175.6587877784255371467120Yes248Day After Infusion
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June 27th, 20176.2988877782266484877370Yes248
Started Aderol yesterday, which caused me to be up until after 3:00am
5.60
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June 30th, 20176.1288877783377482377470Yes243.8
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6.5July 3rd, 20175.5377778782266361377360Yes243.8
Checked into Hospital today for MRI and Steroid Infusion. This will take 3 days.
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July 10th,. 20175.1877778772266260167360Yes245Scooter
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July 17th, 20175.5977778783366461267360Yes245Back to Work from Vacation
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July 24th, 20175.7188878783266372167460Yes244.4
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July 29th, 20174.5977666671134163167260Yes244
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6August 3, 20174.5366667771334160167160Yes2445.32
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August 14th, 20173.8266667660024040057040Yes245Travel day from South Carolina to Milwaukee
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August 17th, 20173.7665567661134030047040Yes244.8
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August 23rd, 20173.7155567661044030047140Yes
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August 30th, 20175.7688877775466270358360Yes248
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September 3rd, 20176.1288877685266282678430Yes246.4Severe fatigue today. Lots of resting. Fell hard on right elbow.4.32
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Septmber 7th, 20174.6566767673155150248140Yes245.2
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September 14th, 20174.2466667672144140147140Yes244*Started PT around this time
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September22, 20175.1877777781155480158150Yes244.8Camp Jorn Retreat Weekend
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September 25th4.0066677761044040037150Yes
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September 28th, 20175.0076677774155250457250Yes246.2Fell in house.4.86
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October 2, 20175.1277777782155172158250Yes245
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October 6th 20175.4788777783255272258550Yes245
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October 10th, 20175.7188777784355380368550Yes241.2
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October 19th, 20173.9465556772045021057220Yes245***
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October 22nd, 20175.5377777784255272548040Yes245
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October 27, 20175.7187777784455262558250Yes2435.25
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November 9th, 20175.7688877784455281268450Yes243Fell this morning
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November 14th, 20174.4767767781044151057250Yes244
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November 21, 20175.2977777784155262168150Yes245
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November 28th, 20175.9488888884156372278160Yes2475.37