Genomes Unzipped reader survey anonymised
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TimestampAre you male or female?How old are you?Do you have children?What is the highest educational qualification you have obtained?How would you rate your level of background knowledge about genetics/genomics?What is your usual occupation?How would you describe your ancestry?What is your current country of residence?What other genetics/genomics blogs do you read?What genetic tests (if any) have you done?If you have had a DIRECT-TO-CONSUMER (not clinical) genetic test, what were your motivations?If you have had a DIRECT-TO-CONSUMER (not clinical) genetic test, did you discuss the implications with your family before purchasing the test?If you have had a DIRECT-TO-CONSUMER (not clinical) genetic test, did you discuss the RESULTS with your family?If you have had a DIRECT-TO-CONSUMER (not clinical) genetic test, did you discuss the results with a doctor or other medical professional?If you have had a DIRECT-TO-CONSUMER (not clinical) genetic test, have you changed your behaviour as a result?How much would you pay to get your genome sequenced?Would you be interested in donating genome scan data (e.g. from 23andMe) to a project like Genomes Unzipped?Would you be interested in donating WHOLE GENOME SEQUENCE data to a project like Genomes Unzipped?Have you experienced, or do you know someone who has experienced, harm from a direct-to-consumer genetic test?Do you think that newborn babies should routinely have their genomes sequenced once the technology to do so becomes affordable?Do you think parents/guardians should be able to consent minors for direct-to-consumer genetic testing?
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11/30/2010 14:39:51Male21-25No, and not currently planning toMasters or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanUKI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$500 (£350)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoNo
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11/30/2010 14:40:21Male31-40No, and not currently planning toUndergraduateExpert in geneticsResearch scientist (genetics/genomics)EuropeanNetherlandsGenetic Future, Genomics Law Report, Genetic Inference, Saaien Tist, MassGenomics, GenomeBoy, The Genetic Genealogist23andMe "Complete" genome scanIntellectual curiosityNot at allYes, brieflyNot at allI have had a genetic test but haven't made any changes$1000 (£700)Not under any circumstancesNot under any circumstancesNoYesYes
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11/30/2010 14:41:25Male26-30No, but planning toPhD or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics)EuropeanUKGenetic Future, Genomics Law Report, Genetic Inference, MassGenomics, GenomeWeb Daily Scan23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant informationNot at allYes, brieflyNot at allI have had a genetic test but haven't made any changes$500 (£350)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoYesYes
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11/30/2010 14:46:07Male21-25No, but planning toMasters or equivalentExpert in geneticsResearch scientist (genetics/genomics), Industry (biotech/pharma)EuropeanGenetic Future, Saaien Tist, Gene Expression (classic), Gene Expression (Discover), GenomeWeb Daily ScanPlease select an optionPlease select an optionPlease select an option$1000 (£700)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my namePlease select an optionYesYes
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11/30/2010 14:58:55Female31-40No, but planning toPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics), Ethics/policy/law, EducatorEuropeanUSGenetic Future, GenomeWeb Daily ScanI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Please select an optionPlease select an optionNoPlease select an optionPlease select an option
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11/30/2010 15:01:49Male>50YesPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics), EducatorEast/South-East AsianUSGenomeBoy23andMe "Complete" genome scan, Mitochondrial DNA markersIntellectual curiosityYes, brieflyYes, brieflyNot at allI have had a genetic test but haven't made any changes$500 (£350)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoNoYes
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11/30/2010 15:09:02Male46-50YesSecondary schoolBasic understanding of geneticsInformation Systems & SecurityEuropeanUSGenomeBoy, The Genetic Genealogist, http://www.bga101.blogspot.com/23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesNot at allYes, discussed in depthNot at allI have had a genetic test but haven't made any changes$100 (£70)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoNoYes
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11/30/2010 15:21:08Male41-45YesPhD or equivalentI could explain key genetic concepts to othersResearch scientist (field other than genetics/genomics), Industry (biotech/pharma)EuropeanUKGenetic Inference, MassGenomics, GenomeWeb Daily ScanI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an optionI would get my genome sequenced only if it was freeYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
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11/30/2010 15:25:14Male31-40No, but planning toProfessional degree (e.g., JD or MBA)I could explain key genetic concepts to othersEthics/policy/lawEuropeanUSGenetic Future, Genomics Law Report, PHG Foundation, GenomeWeb Daily ScanI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$1000 (£700)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoNo
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11/30/2010 15:31:21Female26-30No, and not currently planning toPhD or equivalentI don't know much about geneticsResearch scientist (genetics/genomics)EuropeanUKGenetic Future, MassGenomics, GenomeWeb Daily Scan, GenomeBoy23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant informationYes, brieflyYes, brieflyNot at allI have had a genetic test but haven't made any changes$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoYes
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11/30/2010 15:32:21Female31-40No, and not currently planning toUndergraduateBasic understanding of geneticsEuropeanUSGenetic Future, Gene Expression (Discover), The Genetic Genealogist23andMe "Complete" genome scan, Family Finder from FamilyTreeDNA, Mitochondrial DNA markersIntellectual curiosityNot at allYes, brieflyNot at allChanged diet, Taken a medical test/increased screening$500 (£350)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoYesYes
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11/30/2010 15:32:34Male26-30No, but planning toPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanUSGenetic Future, Genomics Law Report, Genetic Inference, http://compgen.blogspot.com/23andMe "Complete" genome scan, Bought the recent $99 special, haven't gotten results yetIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Wanted the info now, while I can still get it, in case FDA decides to step in sometime in the future and restrict access to DTC providers. Also, although the info is of limited utility now, we've no idea what we'll know in 5 years, 10 years, when I'm 50, etc.Yes, brieflyYes, brieflyNot at allI have had a genetic test but haven't made any changes, Purchased the kit, but don't have results yet$100 (£70)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoNo
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11/30/2010 15:32:4326-30YesPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanUKGenetic Future, Genomics Law Report, Genetic Inference, Saaien Tist, PHG Foundation, Gene Expression (classic), Gene Expression (Discover), MassGenomics, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, Pathogens: Genes and Genomes, The Gene Sherpa, Golden Helix, PolITiGenomics, Omics! Omics!, The Spittoon, OpenHelix23andMe "Complete" genome scan, Counsyl Universal Genetic TestIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came fromYes, discussed in depthYes, discussed in depthNot at allI have had a genetic test but haven't made any changes$1000 (£700)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
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11/30/2010 15:38:23Male41-45YesMasters or equivalentI could explain key genetic concepts to othersIndustry (bioinformatics and software)EuropeanUSGenetic Future, Genomics Law Report, Genetic Inference, MassGenomics, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant informationYes, brieflyYes, discussed in depthYes, brieflyI have had a genetic test but haven't made any changes$1000 (£700)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
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11/30/2010 15:42:03Female21-25No, and not currently planning toMasters or equivalentBasic understanding of geneticsResearch scientist (genetics/genomics), Research scientist (field other than genetics/genomics), statisticianEuropean, Native AmericanUSGenetic Future, MassGenomicsI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an optionI would get my genome sequenced only if it was freeYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoNo
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11/30/2010 15:42:17Male46-50YesUndergraduateExpert in geneticsProgrammerEuropeanUSGenetic Future, Gene Expression (classic), Gene Expression (Discover), The Genetic Genealogist, The Spittoon, Dienekes' Anthropology Blog23andMe "Complete" genome scan, deCODEme "Complete" genome scan, Y chromosome markers, Mitochondrial DNA markers, PGP1000 participant (not tested yet)Intellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relatives, Paternity of my daughterYes, brieflyYes, discussed in depthNot at allI have had a genetic test but haven't made any changes$1000 (£700)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
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11/30/2010 15:45:05Male>50YesMasters or equivalentBasic understanding of geneticsUnited States Air ForceEuropeanUSGenetic Future, Genomics Law Report, The Genetic Genealogist, The Gene Sherpa, The Spittoon23andMe "Complete" genome scan, Family Finder from FamilyTreeDNA, Y chromosome markers, Mitochondrial DNA markersIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesYes, brieflyYes, discussed in depthYes, brieflyI have had a genetic test but haven't made any changes$1000 (£700)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
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11/30/2010 15:46:22Male26-30No, but planning toMasters or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanItalyGenetic Future, Genomics Law Report, Genetic Inference, Saaien Tist, PHG Foundation, Gene Expression (classic), Gene Expression (Discover), MassGenomics, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, Pathogens: Genes and Genomes, eurogene.blogspot.comNutriGENEIntellectual curiosity, Interest in obtaining health-relevant informationYes, brieflyYes, brieflyNot at allIncreased exercise$500 (£350)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoNo
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11/30/2010 15:51:16Female41-45No, and not currently planning toPhD or equivalentExpert in geneticsIndustry (biotech/pharma)EuropeanUSGenetic Future, Genomics Law Report, GenomeWeb Daily Scan, The Gene Sherpa, OpenHelixI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$1000 (£700)Not under any circumstancesNot under any circumstancesYes (please provide details below)NoYes
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11/30/2010 15:51:47Male31-40No, but planning toPhD or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics)EuropeanUSGenomeWeb Daily ScanI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoYesYes
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11/30/2010 15:52:53Female26-30No, and not currently planning toPhD or equivalentI could explain key genetic concepts to othersIndustry (biotech/pharma)EuropeanUKI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an optionI would get my genome sequenced only if it was freeYes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
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11/30/2010 15:57:51Male>50YesPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics), EducatorEuropeanUSGenetic Future, Genomics Law Report, PHG Foundation, Gene Expression (Discover), MassGenomics, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, The Gene Sherpa, The Spittoon, GenomeWeb-ALL23andMe "Complete" genome scan, Navigenics Genome scanIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came fromNot at allYes, brieflyNot at allI have had a genetic test but haven't made any changes$500 (£350)Yes, and I would be happy with the data to be publicly associated with my namePlease select an optionNoYesPlease select an option
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11/30/2010 16:02:19Male31-40YesPhD or equivalentI could explain key genetic concepts to othersEthics/policy/lawEuropean, Native AmericanUSGenetic Future, Genomics Law Report, Genetic Inference, PHG Foundation, Gene Expression (classic), Gene Expression (Discover), GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, The Gene Sherpa, Omics! Omics!, The Spittoon23andMe "Complete" genome scan, Pathway Genomics, Family Finder from FamilyTreeDNA, Y chromosome markers, Mitochondrial DNA markersIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesNot at allYes, discussed in depthYes, brieflyIncreased exercise, Changed diet$500 (£350)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoNoYes
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11/30/2010 16:04:10Male26-30No, and not currently planning toProfessional degree (e.g., JD or MBA)Expert in geneticsResearch scientist (genetics/genomics)EuropeanGenetic Future, Genomics Law Report, PHG Foundation, MassGenomics, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, The Gene Sherpa, Omics! Omics!, The Spittoon, OpenHelixNavigenics Genome scan, Pathway GenomicsIntellectual curiosityNot at allYes, brieflyYes, brieflyI have had a genetic test but haven't made any changes$500 (£350)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousYes (please provide details below)YesYes
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11/30/2010 16:04:52Male>50YesPhD or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics), EducatorEuropeanNetherlandsGenetic Future, Genomics Law Report, PHG Foundation, Gene Expression (Discover), MassGenomics, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, The Gene Sherpa, The Spittoon, OpenHelix23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant information, Interest in tracing my historical family treeNot at allYes, brieflyNot at allI have had a genetic test but haven't made any changes$100 (£70)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoNo
27
11/30/2010 16:08:26Male41-45YesPhD or equivalentExpert in geneticsIndustry (biotech/pharma)EuropeanUSGenetic Future, Genomics Law Report, MassGenomics, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, The Gene Sherpa, PolITiGenomics, Omics! Omics!ran Affx 6.0 SNP chip on my own DNA in my labPlease select an optionPlease select an optionPlease select an option$1000 (£700)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
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11/30/2010 16:09:04Male26-30No, and not currently planning toPhD or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics)Middle-EasternUKGenetic Inference, Gene Expression (classic), MassGenomicsI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an optionI don't plan to ever get my genome sequencedPlease select an optionPlease select an optionNoNoNo
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11/30/2010 16:11:14Male46-50YesPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics), Industry (biotech/pharma), Industry (consumer genetic testing), EducatorEuropeanItalyGenetic Future, Genomics Law Report, Genetic Inference, PHG Foundation, Gene Expression (Discover), GenomeWeb Daily Scan, GenomeBoy, The Gene Sherpa, The SpittoonIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came fromNot at allYes, brieflyNot at allIncreased exercise, Changed diet$100 (£70)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
30
11/30/2010 16:16:28Male31-40YesSecondary schoolBasic understanding of geneticsSystem AdministratorEuropean, Sub-Saharan African, Native AmericanUS23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family treeYes, brieflyYes, discussed in depthYes, brieflyI have had a genetic test but haven't made any changes$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoYesYes
31
11/30/2010 16:19:31Male>50No, and not currently planning toPhD or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics), Research scientist (field other than genetics/genomics)EuropeanFranceGenetic Future, Genomics Law Report, Gene Expression (classic), Gene Expression (Discover), GenomeWeb Daily Scan, The Genetic Genealogist, Pathogens: Genes and Genomes23andMe "Complete" genome scanIntellectual curiosityNot at allNot at allYes, brieflyI have had a genetic test but haven't made any changes$100 (£70)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
32
11/30/2010 16:21:08Female26-30No, and not currently planning toMasters or equivalentExpert in geneticsResearch scientist (genetics/genomics), Grad studentEast/South-East AsianUSGenetic Future, Genomics Law Report, Genetic Inference, Gene Expression (Discover), MassGenomics, GenomeWeb Daily Scan, The Genetic Genealogist, Omics! Omics!, The SpittoonI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$500 (£350)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoYesYes
33
11/30/2010 16:22:15Male46-50YesPhD or equivalentExpert in geneticsEthics/policy/lawEuropeanUSGenetic Future, Genomics Law Report, PHG Foundation, Gene Expression (Discover), GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, The Gene Sherpa, The Spittoon23andMe "Complete" genome scan, Navigenics Genome scan, Whole genome sequence (other source), Affy500 from PGP; BRCA Ashkenazi via DNA DirectIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came fromNot at allYes, brieflyYes, discussed in depthIncreased exercise$500 (£350)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
34
11/30/2010 16:34:30Male>50YesUndergraduateBasic understanding of geneticsSoftware EngineerEuropeanUKGenetic FutureClinical genetic test (prescribed by a doctor)Please select an optionPlease select an optionPlease select an option$1000 (£700)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoNo
35
11/30/2010 16:36:38Female26-30No, but planning toPhD or equivalentI don't know much about geneticsResearch scientist (field other than genetics/genomics)EuropeanUSThe Genetic Genealogist, The Spittoon23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesNot at allYes, brieflyNot at allI have had a genetic test but haven't made any changes$100 (£70)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, but only if the project could guarantee the data would remain anonymousNoNoYes
36
11/30/2010 16:43:53Male31-40YesPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics), Industry (biotech/pharma)EuropeanFranceGenomeWeb Daily Scan, The Gene Sherpa, OpenHelix, Building confidence, PharmGKBlog, etc...I haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoYes
37
11/30/2010 16:49:21Female41-45No, and not currently planning toProfessional degree (e.g., JD or MBA)I could explain key genetic concepts to othersActuaryEuropeanSouth AfricaThe Genetic Genealogist, The Spittoon, Eurogenes, Dienekes, The Lineal Arboretum, Salabencher23andMe "Complete" genome scan, Family Finder from FamilyTreeDNA, Mitochondrial DNA markers, dnatribesInterest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesNot at allYes, discussed in depthYes, brieflyI have had a genetic test but haven't made any changes$500 (£350)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
38
11/30/2010 16:50:06Male26-30No, and not currently planning toMasters or equivalentI could explain key genetic concepts to othersResearch scientist (field other than genetics/genomics)EuropeanUSSaaien Tist, GenomeWeb Daily Scan, Golden Helix, Omics! Omics!I haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoNo
39
11/30/2010 16:51:27Male26-30No, but planning toPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanUSGenetic Future, Saaien Tist, MassGenomics, PolITiGenomics, Omics! Omics!23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came fromYes, brieflyYes, discussed in depthNot at allI have had a genetic test but haven't made any changes$1000 (£700)Please select an optionPlease select an optionNoYesYes
40
11/30/2010 17:14:42Male46-50YesPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics), Industry (biotech/pharma)European, Native AmericanUSGenetic Future, Genomics Law Report, MassGenomics, GenomeWeb Daily Scan, OpenHelix23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family treeYes, brieflyPlease select an optionPlease select an option$1000 (£700)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoYes
41
11/30/2010 17:22:41Male>50YesPhD or equivalentPlease select an optionResearch scientist (genetics/genomics), Research scientist (field other than genetics/genomics), Industry (biotech/pharma), EducatorEuropeanUSGenetic Future, Genomics Law Report, Genetic Inference, PHG Foundation, Gene Expression (Discover), MassGenomics, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, The Gene Sherpa, PolITiGenomics, Omics! Omics!, The SpittoonI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
42
11/30/2010 17:38:28Male31-40No, but planning toUndergraduateI could explain key genetic concepts to othersOther field related to geneticsCentral/South AsianUSGenetic Future, Genomics Law Report, Genetic Inference, Gene Expression (classic), Gene Expression (Discover), The Spittoon23andMe "Complete" genome scanIntellectual curiosityNot at allYes, brieflyNot at allI have had a genetic test but haven't made any changes$1000 (£700)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
43
11/30/2010 17:45:35Male21-25YesUndergraduateI could explain key genetic concepts to othersIndustry (biotech/pharma)EuropeanUSGenetic Future, Genomics Law Report, MassGenomics, Golden HelixI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoNo
44
11/30/2010 17:47:15Female26-30No, and not currently planning toMasters or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanSpainGenetic Future, GenomeWeb Daily Scan, The Gene Sherpa, Omics! Omics!I haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoNo
45
11/30/2010 18:04:38Male26-30No, and not currently planning toPhD or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics)EuropeanUSGenetic Future, PolITiGenomics, Omics! Omics!, OpenHelixI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$500 (£350)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
46
11/30/2010 18:06:25Female31-40No, and not currently planning toMasters or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanUSGenetic Future, OpenHelixI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoYesYes
47
11/30/2010 18:10:59Female>50YesProfessional degree (e.g., JD or MBA)I don't know much about geneticsFinance DirectorEuropeanUKNational Childrens Bureau child survey 1958Please select an optionPlease select an optionPlease select an option$100 (£70)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
48
11/30/2010 18:32:32Female26-30No, and not currently planning toPhD or equivalentI could explain key genetic concepts to othersIndustry (consumer genetic testing)East/South-East AsianUSGenetic Future, Genomics Law Report, GenomeBoy, The Genetic Genealogist, The Spittoon, Whatever is tweeted within my "personal genomics" twitter list23andMe "Complete" genome scanIntellectual curiosityNot at allYes, brieflyNot at allI have had a genetic test but haven't made any changes$500 (£350)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
49
11/30/2010 18:39:17Male31-40YesUndergraduateBasic understanding of geneticsEthics/policy/lawEuropean, Middle-Eastern, AshkenaziIsraelGene Expression (classic), Gene Expression (Discover), The Genetic Genealogist, The Spittoon23andMe "Complete" genome scan, Y chromosome markers, Mitochondrial DNA markersIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesYes, brieflyYes, brieflyNot at all$500 (£350)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoYes
50
11/30/2010 18:39:42Male31-40YesPhD or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics), Director of ResearchEuropean, Middle-EasternUSGenetic Future, Genomics Law Report, Genetic Inference, PHG Foundation, MassGenomics, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, Pathogens: Genes and Genomes, Golden Helix, PolITiGenomics, Omics! Omics!, The Spittoon, OpenHelix, The Chromosome Chronicles23andMe "Complete" genome scanIntellectual curiosity, 23andMe $99 sale on DNA DayYes, brieflyYes, brieflyNot at allI have had a genetic test but haven't made any changes$500 (£350)Yes, and I would be happy with the data to be publicly associated with my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoNo
51
11/30/2010 18:44:46Female21-25No, and not currently planning toUndergraduateI don't know much about geneticsGraduate studentEuropeanUKGenetic InferenceI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an optionI would get my genome sequenced only if it was freeYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
52
11/30/2010 18:44:47Male46-50YesPhD or equivalentExpert in geneticsEthics/policy/lawEuropeanUSGenetic Future, Genomics Law Report, GenomeWeb Daily ScanI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$1000 (£700)Not under any circumstancesNot under any circumstancesNoYesYes
53
11/30/2010 18:52:39Female>50No, and not currently planning toPhD or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics)AshkenaziUSGenetic Future, The Genetic Genealogist, PolITiGenomics, The Spittoon, The DNA Exchange23andMe "Complete" genome scanIntellectual curiosityYes, brieflyYes, brieflyNot at allI have had a genetic test but haven't made any changes$500 (£350)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoYes
54
11/30/2010 19:17:04Female31-40No, and not currently planning toMasters or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics)Central/South AsianUSGenetic Future, Genomics Law Report, Gene Expression (classic), Gene Expression (Discover), MassGenomics, PolITiGenomics, The Spittoon23andMe "Complete" genome scanIntellectual curiosityNot at allNot at allNot at allI have had a genetic test but haven't made any changes$500 (£350)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
55
11/30/2010 19:18:04Male46-50No, and not currently planning toPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics), Research scientist (field other than genetics/genomics)EuropeanUSGenomeWeb Daily Scan, The Spittoon23andMe "Complete" genome scanIntellectual curiosity, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family treeNot at allYes, discussed in depthNot at allI have had a genetic test but haven't made any changes$100 (£70)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
56
11/30/2010 19:29:57Male31-40No, but planning toPhD or equivalentI could explain key genetic concepts to othersEthics/policy/lawEuropeanUSGenetic Future, Genomics Law Report, PHG Foundation, GenomeBoy, The Gene SherpaI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$1000 (£700)Not under any circumstancesYes, but only if the project could guarantee the data would remain anonymousNoYesYes
57
11/30/2010 19:41:02Male31-40No, and not currently planning toPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanUKGenetic Future, Gene Expression (classic), Gene Expression (Discover), The SpittoondeCODEme "Complete" genome scanIntellectual curiosityYes, discussed in depthYes, discussed in depthNot at allI have had a genetic test but haven't made any changes$1000 (£700)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
58
11/30/2010 19:43:55Female31-40No, and not currently planning toPlease select an optionExpert in geneticsResearch scientist (genetics/genomics)EuropeanFinlandI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$1000 (£700)Not under any circumstancesNot under any circumstancesNoNoYes
59
11/30/2010 19:51:42Male26-30No, but planning toMasters or equivalentI could explain key genetic concepts to othersResearch scientist (field other than genetics/genomics)EuropeanUSGenetic Future, Genomics Law Report, Genetic Inference, PHG Foundation, Gene Expression (classic), Gene Expression (Discover), MassGenomics, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, Pathogens: Genes and Genomes, Golden Helix, PolITiGenomics, Omics! Omics!, The Spittoon, Your Genetic Genealogist, Dienkes' Anthropology Blog, Eurogenes, NSGC President's Blog, The DNA Exchange, Anthony Fejes' blog23andMe "Complete" genome scan, Y chromosome markersIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesNot at allYes, brieflyNot at allChanged diet$500 (£350)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
60
11/30/2010 20:56:42FemalePlease select an optionYesUndergraduateI could explain key genetic concepts to othersFreelance editor and writerEuropean, BritishUKGenetic Future, Genomics Law Report, PHG Foundation, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, The Spittoon, Your Genetic Genealogist, Dienekes23andMe "Complete" genome scan, Family Finder from FamilyTreeDNA, Mitochondrial DNA markersIntellectual curiosity, Interest in obtaining health-relevant information, Interest in tracing my historical family tree, Interest in finding new living relativesNot at allYes, brieflyNot at allI have had a genetic test but haven't made any changes$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoYesYes
61
11/30/2010 21:13:11Male31-40No, but planning toPhD or equivalentI could explain key genetic concepts to othersIndustry (biotech/pharma)East/South-East AsianUSGenetic Future, Genomics Law Report, PHG Foundation, Gene Expression (classic), GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, The Gene Sherpa, The Spittoon23andMe "Complete" genome scan, Y chromosome markersIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesNot at allYes, brieflyNot at allI have had a genetic test but haven't made any changesI would get my genome sequenced only if it was freeYes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoNo
62
11/30/2010 21:22:22Male>50YesMasters or equivalentBasic understanding of geneticsOil and GasEuropeanUSGene Expression (classic)I haven't had any genetic testsIntellectual curiosity, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family treePlease select an optionPlease select an optionPlease select an option$500 (£350)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my namePlease select an optionNoNoYes
63
11/30/2010 21:25:04Male46-50YesMasters or equivalentBasic understanding of geneticsEducatorEuropeanUSGenetic Future, Genomics Law Report, Omics! Omics!I haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
64
11/30/2010 21:27:44Male31-40No, and not currently planning toPhD or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics)EuropeanUSGenetic Future, Genomics Law Report, Genetic Inference, Saaien Tist, MassGenomics, GenomeWeb Daily Scan, The Gene Sherpa, Golden Helix, PolITiGenomics, Omics! Omics!, The Spittoon, OpenHelix23andMe "Complete" genome scanIntellectual curiosity, Data integration, methods developmentNot at allNot at allNot at allI have had a genetic test but haven't made any changes$1000 (£700)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameYes (please provide details below)NoNo
65
11/30/2010 21:46:29Female21-25No, and not currently planning toMasters or equivalentI could explain key genetic concepts to othersStudent, science but not genetics/genomicsEuropean, Native AmericanUSGene Expression (Discover)Mitochondrial DNA markersIntellectual curiosity, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family treeYes, brieflyYes, discussed in depthNot at allI have had a genetic test but haven't made any changesI don't plan to ever get my genome sequencedYes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoNo
66
11/30/2010 21:46:51Male21-25No, and not currently planning toUndergraduateExpert in geneticsResearch scientist (genetics/genomics), EducatorEuropeanUSGenomics Law Report, Genetic Inference, GenomeWeb Daily Scan, The Spittoon23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came fromYes, brieflyYes, discussed in depthNot at allI have had a genetic test but haven't made any changes$500 (£350)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
67
11/30/2010 21:50:34Female41-45No, and not currently planning toPhD or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics), EducatorEuropeanUKGenomeBoy, Plos blogs1 million SNPs (university project)Please select an optionPlease select an optionPlease select an option$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoNo
68
11/30/2010 21:51:56Female31-40No, but planning toPhD or equivalentExpert in geneticsOther field related to geneticsEuropeanUSGenomics Law ReportI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
69
11/30/2010 21:52:01Male46-50YesPhD or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics)EuropeanUSGenomeWeb Daily Scan, Golden Helix, Varigenome23andMe "Complete" genome scan, Clinical genetic test (prescribed by a doctor)Intellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relatives, Curious to converse with my primary care physicianYes, brieflyPlease select an optionPlease select an optionawaiting results of the test$500 (£350)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoYes
70
11/30/2010 22:01:16Male31-40YesMasters or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics)EuropeanGenomeWeb Daily ScanI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoNo
71
11/30/2010 22:15:34Female26-30No, but planning toPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics)European, East/South-East Asian, Native American, African, exact location unknownUSGenetic Future, Genomics Law ReportI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$1000 (£700)Not under any circumstancesNot under any circumstancesNoNoYes
72
11/30/2010 23:11:14Female>50YesProfessional degree (e.g., JD or MBA)Expert in geneticswriter/consultant for genetic genealogyEuropeanUSGenetic Future, Genomics Law Report, Gene Expression (Discover), The Genetic Genealogist, The Spittoon23andMe "Complete" genome scan, deCODEme "Complete" genome scan, Family Finder from FamilyTreeDNA, Mitochondrial DNA markersIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesYes, brieflyYes, discussed in depthYes, brieflyChanged diet$1000 (£700)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoYes
73
11/30/2010 23:37:39Please select an option31-40No, but planning toMasters or equivalentI could explain key genetic concepts to othersSoftware engineerEuropeanUSGenomics Law Report, The Spittoon23andMe "Complete" genome scan, Y chromosome markersIntellectual curiosity, Interest in obtaining health-relevant informationYes, brieflyYes, discussed in depthNot at allI have had a genetic test but haven't made any changes$1000 (£700)Not under any circumstancesNot under any circumstancesNoYesYes
74
11/30/2010 23:46:08MalePlease select an optionPlease select an optionPlease select an optionPlease select an optionPlease select an optionPlease select an optionPlease select an optionPlease select an optionPlease select an optionPlease select an optionPlease select an optionPlease select an optionPlease select an option
75
12/1/2010 0:08:10Other31-40YesPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanUSGenetic Future, Genomics Law Report, Genetic Inference, Gene Expression (classic), GenomeBoy, PolITiGenomics, The Spittoon23andMe "Complete" genome scanNot at allYes, discussed in depthNot at allI have had a genetic test but haven't made any changes$500 (£350)Not under any circumstancesNot under any circumstancesNoYesNo
76
12/1/2010 0:49:19Male31-40No, but planning toPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanAustraliaGenetic Future, Saaien Tist, Omics! Omics!, The Spittoon23andMe "Complete" genome scanIntellectual curiosity, Interest in learning about which part of the world my ancestors came fromNot at allYes, brieflyNot at allI have had a genetic test but haven't made any changes$500 (£350)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoYesNo
77
12/1/2010 0:55:47Male31-40No, but planning toPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics), Clinician, Genetic counsellorEuropeanuruguayGenetic Future, Genomics Law Report, PHG Foundation, GenomeBoy, The Gene Sherpa, The Spittoonsome medical polymorphisms (APOE, CYP2C9, etc)i´m about toPlease select an optionPlease select an optionPlease select an option$1000 (£700)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoNoNo
78
12/1/2010 1:34:50Male26-30YesPhD or equivalentPlease select an optionResearch scientist (genetics/genomics), ClinicianMiddle-EasternUKPHG Foundation, MassGenomics, Omics! Omics!, OpenHelixY chromosome markers, Mitochondrial DNA markers, Whole genome sequence from IlluminaIntellectual curiosity, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesNot at allYes, discussed in depthNot at all$1000 (£700)Yes, but only if the project could guarantee the data would remain anonymousNot under any circumstancesNoNoNo
79
12/1/2010 2:38:52Female26-30No, and not currently planning toPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanUSGenetic Future, GenomeWeb Daily Scan, The Spittoon23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came fromNot at allYes, brieflyNot at allI have had a genetic test but haven't made any changes$100 (£70)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
80
12/1/2010 2:41:03Male31-40YesUndergraduateBasic understanding of geneticsBanking/ITEuropeanUSGenetic Future, The Genetic Genealogist, The Spittoon23andMe "Complete" genome scan, Family Finder from FamilyTreeDNA, Y chromosome markers, Mitochondrial DNA markersIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesYes, brieflyYes, discussed in depthYes, brieflyChanged diet$500 (£350)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
81
12/1/2010 3:31:11Female31-40YesUndergraduateI could explain key genetic concepts to othersEducator, journalistEuropeanUSGenetic Future, Genomics Law Report, Genetic Inference, PHG Foundation, Gene Expression (Discover), GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, The Gene Sherpa, Golden Helix, The Spittoon, OpenHelix23andMe "Complete" genome scan, deCODEme "Complete" genome scan, Clinical genetic test (prescribed by a doctor)Intellectual curiosityYes, discussed in depthYes, brieflyYes, discussed in depthI have had a genetic test but haven't made any changes$1000 (£700)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
82
12/1/2010 3:35:12Male31-40No, but planning toMasters or equivalentExpert in geneticsClinicianEuropeanUSGenetic Future, Gene Expression (Discover)23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family treeYes, discussed in depthYes, discussed in depthYes, discussed in depthI'm already a healthy guy$5000 (£3500)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoYesYes
83
12/1/2010 3:44:20Male41-45YesPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics), Research scientist (field other than genetics/genomics), Industry (biotech/pharma), Other field related to geneticsEuropeanUSGenetic Future, Genomics Law Report, Genetic Inference, MassGenomics, GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, The Gene Sherpa, Golden Helix, PolITiGenomics, Omics! Omics!, The Spittoon, OpenHelixNavigenics Genome scan, Clinical genetic test (prescribed by a doctor)Intellectual curiosity, Interest in obtaining health-relevant informationYes, discussed in depthYes, discussed in depthYes, brieflyIncreased exercise, Changed diet, Taken a medical test/increased screening$1000 (£700)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
84
12/1/2010 4:01:05Male31-40No, and not currently planning toProfessional degree (e.g., JD or MBA)I could explain key genetic concepts to othersClinicianEuropeanUSExistence Genetics (ordered by my MD)Please select an optionPlease select an optionPlease select an optionIncreased exercise, Changed diet, Taken a medical test/increased screening, Seen a skin specialist and modified sun-protective behaviors$500 (£350)Not under any circumstancesNot under any circumstancesNoYesYes
85
12/1/2010 4:05:56Female31-40YesPhD or equivalentExpert in geneticsResearch scientist (field other than genetics/genomics), Genetic counsellor, EducatorEuropeanUSGenetic Future, Genomics Law Report, GenomeWeb Daily ScanI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$500 (£350)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousYes (please provide details below)NoNo
86
12/1/2010 4:08:36Male>50YesPhD or equivalentI could explain key genetic concepts to othersIndustry (biotech/pharma)EuropeanUSGenetic Future, GenomeWeb Daily ScanI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoYes
87
12/1/2010 4:53:35Male>50YesSecondary schoolBasic understanding of geneticsInformation security officerEuropeanUSThe Spittoon23andMe "Complete" genome scan, Y chromosome markersIntellectual curiosity, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesYes, brieflyYes, discussed in depthYes, brieflyIncreased exercise$500 (£350)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
88
12/1/2010 5:16:01Male31-40No, but planning toUndergraduateI could explain key genetic concepts to othersEngineer (Computer Science & Applied Mathematics)European, Middle-EasternCanadaGenetic Future, Gene Expression (classic), Gene Expression (Discover), The Genetic Genealogist, The Gene Sherpa, The Spittoon, Dienekes, John Hawks, European Genetics and Anthropology Blog, Polish Genetics and Anthropology Blog, Dodecad Ancestry Project, Eurogenes 500,000 SNP BioGeographicAncestry ProjectI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoYes
89
12/1/2010 5:16:02Male>50YesPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics)Middle-EasternGenetic Future, Genetic Inference, PHG Foundation, Gene Expression (classic), GenomeWeb Daily Scan, GenomeBoy, The Genetic Genealogist, Pathogens: Genes and Genomes, The Gene Sherpa, Golden Helix, PolITiGenomics, The Spittoon, OpenHelixI haven't had any genetic testsIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesYes, brieflyYes, brieflyYes, brieflyIncreased exercise$100 (£70)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesNo
90
12/1/2010 5:40:59Male46-50YesProfessional degree (e.g., JD or MBA)Expert in geneticsResearch scientist (genetics/genomics)EuropeanUSGenetic Future, Genomics Law Report, MassGenomics, tomasson.tumblr.comI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$100 (£70)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoNo
91
12/1/2010 6:18:03Male>50No, and not currently planning toMasters or equivalentBasic understanding of geneticsRetiredEuropeanUSGenetic FutureI haven't had any genetic testsIntellectual curiosity, Interest in obtaining health-relevant information, Interest in tracing my historical family treePlease select an optionPlease select an optionPlease select an option$1000 (£700)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, but only if the project could guarantee the data would remain anonymousNoYesYes
92
12/1/2010 6:45:12Female31-40No, and not currently planning toPhD or equivalentI could explain key genetic concepts to othersIndustry: Tools CompanyEuropeanUSGenetic Future, GenomeWeb Daily ScanNavigenics Genome scan, Mitochondrial DNA markersIntellectual curiosity, Interest in learning about which part of the world my ancestors came from, I am participating in a Scripps Research Institute sponsored studyNot at allYes, brieflyNot at allChanged diet$100 (£70)Not under any circumstancesNot under any circumstancesNoYesYes
93
12/1/2010 6:46:56Male>50YesPhD or equivalentPlease select an optionResearch scientist (genetics/genomics)EuropeanGenomics Law Report, The Spittoon23andMe "Complete" genome scanIntellectual curiosityYes, discussed in depthYes, discussed in depthNot at allChanged diet$500 (£350)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
94
12/1/2010 7:35:32Male31-40No, and not currently planning toPhD or equivalentI could explain key genetic concepts to othersIndustry (biotech/pharma), Marketing (genomics)EuropeanUSGenomeWeb Daily Scan, Omics! Omics!23andMe "Complete" genome scanIntellectual curiosity, Interest in obtaining health-relevant information, Interest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesYes, discussed in depthYes, brieflyNot at allI have had a genetic test but haven't made any changes$500 (£350)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoYesYes
95
12/1/2010 8:18:19Male31-40No, but planning toMasters or equivalentExpert in geneticsResearch scientist (genetics/genomics)EuropeanNetherlandsGenetic Future, Genomics Law Report, MassGenomics, PolITiGenomicsI haven't had any genetic testsIntellectual curiosityPlease select an optionPlease select an optionPlease select an option$500 (£350)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
96
12/1/2010 8:25:57Male>50No, and not currently planning toPhD or equivalentBasic understanding of geneticsResearch scientist (field other than genetics/genomics)EuropeanUSGene Expression (classic)I haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$1000 (£700)Yes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoYesYes
97
12/1/2010 8:49:48Male31-40No, but planning toMasters or equivalentExpert in geneticsResearch scientist (genetics/genomics), Industry (biotech/pharma), Industry (consumer genetic testing)EuropeanSpainGenomeWeb Daily ScanCYP2D6, 2C9, 2C19Please select an optionPlease select an optionPlease select an option$500 (£350)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoNoNo
98
12/1/2010 8:51:45Please select an optionPlease select an optionPlease select an optionPlease select an optionI could explain key genetic concepts to othersResearch scientist (field other than genetics/genomics)USGenetic Future, The Genetic Genealogist, The Spittoon23andMe "Complete" genome scan, Y chromosome markersInterest in learning about which part of the world my ancestors came from, Interest in tracing my historical family tree, Interest in finding new living relativesYes, brieflyYes, brieflyYes, brieflyI have had a genetic test but haven't made any changes$1000 (£700)Yes, and I would be happy with the data to be publicly associated with my nameYes, and I would be happy with the data to be publicly associated with my nameNoYesYes
99
12/1/2010 8:57:07Male26-30No, but planning toMasters or equivalentI could explain key genetic concepts to othersResearch scientist (genetics/genomics)EuropeanSwedenGenetic Future, MassGenomicsI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$1000 (£700)Yes, but only if the project could guarantee the data would remain anonymousYes, even without guarantee of anonymity, so long as my data is not publicly linked to my nameNoNoYes
100
12/1/2010 9:06:29Male31-40YesPhD or equivalentExpert in geneticsResearch scientist (genetics/genomics), EducatorEuropeanUKGenetic FutureI haven't had any genetic testsPlease select an optionPlease select an optionPlease select an option$500 (£350)Yes, but only if the project could guarantee the data would remain anonymousYes, but only if the project could guarantee the data would remain anonymousNoYesYes
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