Membership Directory update_9.1.2017
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OrganizationLast NameFirst NameTitlePhoneEmailAddress
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1Adult Congenital Heart AssociationSchaeferTerriCommunications Manager215-849-1260 888-921-2242 info@achaheart.org6757 Greene Street, Suite 335 Philadelphia, PA 19119
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RoederMark
National Executive Director
215-849-1260mroeder@achaheart.org
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2Alpha-1 FoundationCampbellBobCommunications Director877-228-7321 ext. 230 305-567-9888rcampbell@alpha1.org3300 Ponce de Leon Blvd., Coral Gables, FL 33134
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3American Academy of AudiologyTolpeginTanyaExecutive Director703-790-8466ttolpegin@audiology.org 11480 Commerce Park Drive, Suite 220, Reston, VA 20191
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ThomasKateDirector of Payment Policy and Legislative Affairs 703-790-8466kthomas@audiology.org11480 Commerce Park Drive, Suite 220, Reston, VA 20191
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4American Academy of Child and Adolescent Psychiatry Communications202-966-7300communications@aacap.org3615 Wisconsin Ave., N.W., Washington, DC 20016
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5American Academy of Nurse PractitionersTowersJanSenior Policy Advisor202-966-6414 703-740-2529jtowers@aanp.org225 Reinekers Lane, Suite 525, Alexandria, VA 22314
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6American Academy of PediatricsJohnsonPatAssistant Director, AAP Department of Federal Affairs202-347-8600pjohnson@aap.org601 13th Street, NW, Suite 400 North, Washington, DC 20005
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EsquivelMichelleDirector, Division of Children with Special Needs847-434-4989 mesquivel@aap.org141 Northwest Point Blvd., Elk Grove Village, IL 6007
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AllysonPerleoniPolicy Associate, Federal Advocacy 202-347-8600aperleoni@aap.org
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KleinKateProgram Manager, Disaster Preparedness and Response847-434-4326kklein@aap.org
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DaskalovRachelManager, Screening and Public Health Prevention Programs847-434-7863rdaskalov@aap.org
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GerndtKrystaProgram Managerkgerndt@aap.org
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StobHeatherProgram Coordinator, Technical Assistancehstop@aap.org
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7American Academy of Physical Medicine and RehabilitationStautzenbachThomasExecutive Director847-737-6000 tstautzenbach@aapmr.org9700 W. Bryn Mawr, Suite 200 Rosemont IL 60018-5701
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8American Association on Health and DisabilityCarlinRobertaExecutive Director301-545-6140 rcarlin@aahd.us110 N. Washington Street, Suite 328J Rockville, MD 20850
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CooperKarlProject Manager215-803-6542kcooper@aahd.us
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9American Cleft Palate-Craniofacial AssociationToyamaWendy-JoExecutive Director919-933-9044wendy.toyama@acpa-cpf.org1504 East Franklin Street, Suite 102 Chapel Hill, NC 27514
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10American College of Obstetricians & GynecologistsHawksDebraSenior Director, Practice Activities & Strategic Initiatives202-863-2445 dhawks@acog.org409 12th Street, SW Washington, DC 20024
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MahoneyJeanneDirector, Provider's Partnership202-314-2352 jmahoney@acog.org
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11American College of Preventive MedicineMcFaydenKateManager, Goverment Affairs 202-466-2044 ext. 110kmcfadyen@acpm.org 455 Massachusetts Ave, NW, Suite 200, Washington, DC 20001
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12American Music Therapy AssociationPreddieRebeccaFederal Programs Analyst301-589-3300preddie@musictherapy.org8455 Colesville Rd., Suite 1000, Silver Spring, MD 20910
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13American Psychological AssociationFisherCraigSenior Legislative and Gederal Affairs Officer202-336-5762 cfisher@apa.org750 First Street, NE Washington,DC 20002
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VonachenBenLegislative and Federal Affairs Officer202-336-6097bvonachen@apa.org
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14American Society of HematologyLeousSuzyDirector, Government Relations and Practice 202-292-0258sleous@hematology.org2021 L Street, NW, Suite 900 Washington, DC 20036
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KaplanStephanieSenior Manager, Government Relations and Public Health202-292-0263skaplan@hematology.org
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RhoadesTracyLegislative Advocacy Managertbecker@hematology.org
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15American Society of Human GeneticsScholesDerekDirector of Policy dscholes@ashg.org.9650 Rockville Pike Bethesda, MD 20814
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16American Speech-Language-Hearing AssociationPaulDianeDirector, Clinical Issues in Speech Language Pathology301-296-5688 dpaul@asha.org2200 Research BLVD. Rockville, MD 20850
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17American Thrombosis and Hemostasis NetworkAschmanDianePresident and CEO847-607-9479 dashman@athn.org72 Treasure Lane Riverwoods, IL 60015
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18Amputee Coalition of AmericaRichmondJackPresident and CEO9303 Center Street, Suite 100, Manassas, VA 20110
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IzgnaszewskiDanDirector of Government Relations and Marketing703-330-1699dan@amputee-coalition.org
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Director of Communications
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GondoGeorgeDirector of Research and Grantsggondo@amputee-coalition.org
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19Association of Maternal and Child Health ProgramsHaddadAmyDirector Public Policy and Government Affairs202-266-3045ahaddad@amchp.org2030 M Street NW, Suite 350, Washington, DC 20036
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TaylorKristenCommunications Associatektaylor@amchp.org
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StampfelCarolineDirector of Programscstampfel@amchp.org
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TaftKateAssociate Director, Child & Adolescent Health202-266-3056ktaft@amchp.org
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NorthrupAlysonGovernment Affairs Specialist202-266-3041anorthrup@amchp.org
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20Association of Public Health LaboratoriesOjoduJeliliDirector, Newborn Screening and Genetics Program240-485-2772 240-485-2745 (general #) jelili.ojodo@aphl.org8515 Georgia Avenue, #700, Silver Spring, MD 20910
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21Association of State and Territorial Health OfficialsRedolphClaireMaternal and Child Health Senior Analyst571-318-5429crudolph@astho.org2231 Crystal Drive, Suite 450 Arlington, VA 22202
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PliskaEllenFamily and Child Health Director571-527-3187epliska@astho.org
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MordiIfyMaternal and Child Health Directorimordi@astho.org
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22Association of Women's Health, Obstetric, and Neonatal Nurses (AWHONN)DugganCourtneyManager, Marketing and Social Media202-261-2400cduggan@awhonn.org2000 L Street NW, Suite 740, Washington, DC 20036
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22Association of University Centers on DisabilitiesImparatoAndyExecutive Director301-588-8252aimparato@aucd.org1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910
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GriffenAdrianeSenior Director, Public Health and Leadership 301-588-8252agriffen@aucd.org
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RodgersRylinDirector of Public Policy301-588-8252rrodgers@aucd.org
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WebberDanielledwebber@aucd.org
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23Audiology HEARSWercholukCindyOffice Manager678-804-8008 6130 Southard Trace, Cumming, GA 30040
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24Autism SocietyFergusonToniaVice President of Public Policy and Advocacy301-657-0881tferguson@autism-society.org4340 East West Highway, Suite 350, Bethesda, MD 20814
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25Autism Research InstituteEdelsonStephenExecutive Director619-563-0915smedelson@gmail.com4182 Adams Avenue, San Diego, CA 92116
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MushenoKimVice President of Public Policy301-657-0881 ext. 9020mailto:kmusheno@autism-society.org
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26Autism Spectrum Disorder Risk AlertSilvermanJeremyPrincipal Investigator212-659-8822jeremy.silverman@mssm.edu5 East 98th Street, Floor 1 Room 1B-right, New York, NY 10029
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27Autism Speaks, Inc.SpielmanStuart Senior Policy Advisor and Counsel202-955-3312 646-385-8529 sspielman@autismspeaks.orgAutism Votes, 1 East 33rd St, 4th floor, New York, NY 10024 1990 K Street, NW Washington, DC 20006
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GoringLisaExecutive Vice President, Programs and Services609-228-7346lgoring@autismspeaks.org1060 State Road, 2nd Floor, Princeton, NJ 08540
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LelloAngelaangela.lello@autismspeaks.org
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28Avery's Angels Gastroschisis FoundationHallMeghanCEO855-692-8379meghanhall@averysangels.orgPO Box 58312 Raleigh, NC 27658
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29Baby BuildersZervasChrisco-founder918-938-5593 918-543-5323 chris@babybuilders.com57450 E. Highway 125 #615 Afton, OK 74311
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30Bazelon Center for Mental Health LawBarkoffAlisonDirector of Advocacy, Policy202-467-5730communications@bazelon.org1101 15th Street N.W. Suite 1212, Washington, DC 2005
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31Faegre BD ConsultingZookDavidChair202-589-2809dave.zook@faegreBD.com1050 K Street, NW., Suite 400 Washington, DC 20001
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GogolDavidVice Chair202-312-7402david.gogol@FaegreBD.com
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32Birth Defects Research & Education Foundation, Inc.GeorgeBolanlePresident/CEO404-819-4557
bolanlegeorge03@yahoo.com5181 Pat Wiley Drive, Powder Springs, GA 30127
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33Brain Injury Association of AmericaAyotteGreggDirector of Consumer Services703-761-0750 ext. 642 gayotte@biausa.org1608 Spring Hill Road Suite 110 Vienna, VA 22182
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34Breast Health Access for Women With DisabilitiesTovegFloritaManager510-204-4522 maikif@sutterhealth.org2001 Dwight Way, 2nd floor, #2362 Berkeley, CA 94704
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35Brenau University/ Essential Therapy ServicesAlvaradoM. IrmaAssociate Professor/ Occupational Therapist/ CO-owner678-679-1261 ialvarado@essentialts.com4640 Martin Road, Suite 300 Cumming, GA 30041
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36Bronx-Lebanon Hospital CenterArnsteinEllisDevelopmental-Behavioral Pediatrician718-579-7337earnstei@bronxleb.org
POE Medical and Dental Center, 2432 Grand Concourse, Bronx, NY 10458 650 Selwyn Avenue, Suite 6D Bronx, NY 10457
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37California AgraAbilityStilesMarthaProgram Director530-752-2606mcstiles@ucdavis.eduGreater Sacramento and Central Valley Arthritis Foundation, 1851 Heritage Lane, Suite 183, Sacramento, CA 95815
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38Center for Comprehensive Care and Inherited Blood DisordersBakerJudithDirector of Public Health310-794-6264 judithbaker@mednet.ucla.edu655 South Main Street Suite 200-407 Orange, CA 92868
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39Centers for Disease Control and Prevention/National Center on Birth Defects and Developmental DisabilitiesBoyleColeenDirector404-498-3907 cab3@cdc.gov1600 Clifton Road, MS e-86 Atlanta, GA 30333
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PeacockGeorginaDirector, Division of Human Development and Disability404-498-6743
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MooreCynthiaDirector, Division of Congential and Developmental Disabilitiescynthia.moore@cdc.hhs.gov
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WileyMarianPartnership Coordinatormwiley@cdc.org
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ChaneySaschaAssociate Director for Policy
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WalkerNikkiDeputy Associate Director for Policy
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StevensMelodyDeputy Associate Director for Strategic Partnershipssme1@cdc.gov
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Phoenix WeirUrsulaNCBDDD Communications Officeuap3@cdc.gov
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MitchellBetsyAssociate Director for Communication Sciencebhm0@cdc.gov
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FehrenbachNicole Deputy Director, Division of Birth Defects and Developmental Disabilitiesekk5@cdc.gov
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BeckettJulieConsultantwaivermom@earthlink.net
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MorrisGaylonPrincipal610-888-7767 gmorris@morsolutionsdc.com2200 Pennsylvania Ave, NW, Suite 200E, Washington, DC 20037
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BerglandBritaHealth Communications ORISE Fellow
mtv9@cdc.gov
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40Center for Disease Control and Prevention/Center for Emerging & Zoonotic Infectious DiseasesBellBethDirector400-639-6128bzb8@cdc.gov1600 Clifton Road, MS D-76 Atlanta, GA 30333
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41Cerebral Palsy International Research FoundationBlackmanJamesMedical Director212-520-1686jblackman@cpirf.org3 Columbus Circle 15th Floor, New York, New York, 10019
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42CHADDMalsawmaZualiHealth Sciences Librarian240-487-2330zuali_malsawma@chadd.org4601 Presidents Drive, Suite 300, Lanham, MD 20706
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Gower-GetzAprilChief Operating Officerapril_gower-getz@chadd.org
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43Charcot Marie Tooth AssociationGrayAmyChief Executive Officer800-606-2682 ext. 102agray@cmtausa.org2700 Chestnut Street Chester, PA 19013
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44Christopher & Dana Reeve FoundationValenteDonnaDirector, Quality of Life Grants973-467-8270 dvalente@christopherreeve.org636 Morris Turnpike, Suite 3A Short Hills, NJ 7826
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ShethNiketaSenior Vice President, Quality of life800-539-7309nsheth@christopherreeve.org
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45City MatCH at the University of Nebraska Medical CenterAbreschChadExecutive Director402-552-9500cabresch@unmc.eduDept. of Ped. 982170 Nebraska Med. Center Omaha, NE 68198-2170
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PechaDeniseDirector of Programs402-552-9500denise.pecha@unmc.edu
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46Cooley's Anemia FoundationDennisLylePartner, Government Affairs Advisor202-484-1100 ext. 121ldennis@dc-crd.com600 Maryland Ave., SW Suite 835W Washington DC 20024
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DayZarazday@dc-crd.com
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ButlerCraigCommunications Directorc.butler@cooleysanemia.org
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47Count the KicksMestdaghLezlieOutreach Coordinatormestdagh.lezlie@healthybirthday.orgPO Box 71093, PO Box 71093 Clive, IA 50325
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48Diamond Blackfan Anemia RegistryVlachosAdriannaExecutive Director718-470-3610 avlachos@lij.edu269-01 76TH Avenue New, Hyde Park, NY 11040
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49Disability Section of the American Public Health AssociationTraciMeg Ann2017-2018 Chair406-243-4956Meg.Traci@mso.umt.edu2300 Menaul Boulevard NE, Albuquerque, NM 87107
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50DuPont Hospital for ChildrenBrentRobertProfessor of Pediatrics, Radiology, Pathology; Head, Clinical and Environmental Tartology Research Lab302-651-6880 rbrent@nemours.orgJefferson Medical College room 308 R/A, A.I. diPont Hospital for Children, Wilmington, DE 19899
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51Early Learning Coalition of Manatee CountySharffPaulChief Executive Officer941-757-2901psharff@elc-manatee.org600 8th Avenue West, Suite 500 Palmetto, FL 34221
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52Easter SealsKavalarReenieVice President, Program Services312-551-7115rkavalar@easterseals.com1425 K. Street NW. Suite 200 Washington, DC 20005
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