A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | |
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1 | Month | Monthly Patient Feature | Key Activity | Awareness Opportunity | Notes | National Media Relations | Template Materials | Social Media Promotion | Website | Publications | |||||||||||||||
2 | February | Relationships | Includes press releases, web articles, social media posts | Refer to "Home Page FY 16" tab for schedule/placement of content | |||||||||||||||||||||
3 | Entire Month | Relationships & ALS | No | TBD | TBD | TBD | |||||||||||||||||||
4 | 2/2/2015 | Letter to the ALS Community | Joint Statement on Broad Access to ALS Therapeutics | No | Yes - Statement and social media posts | Yes | Statement - http://www.alsa.org/news/archive/letter-to-the-als-community.html | ||||||||||||||||||
5 | 2/5/2015 | Leadership Summit & Winter Walk Forum in Tampa, Fla.. | Highlight Innovation Award Winners | No | Yes - Web article | Yes | Web article- http://www.alsa.org/news/archive/chapters-honored-2015.html | ||||||||||||||||||
6 | 2/13/2015 | Six Months-Post Ice Bucket Challenge Notice | Discuss how funds collected are advancing mission priorities six months following IBC | No | Yes - Press release | No | Press release - http://www.alsa.org/news/media/press-releases/six-months-post-ice-bucket.html | ||||||||||||||||||
7 | 2/13-14/2015 | Valentine's Day | Chapters can highlight local couples & their relationships to local media; national site web article will discuss establishing relationships through the use of technology | No | Yes - e-Card and Development piece | Yes | Yes | ||||||||||||||||||
8 | 2/17/2015 | 2014 Clinical Conference Summary | Summary of 2014 confererence in Phoenix, AZ | No | Yes - Web article | Web article - http://www.alsa.org/news/archive/2014-als-association-clinical-conference.html | |||||||||||||||||||
9 | 2/17/2015 | Bayada Partnership Announcement | Announce ongoing partnership with Bayada Home Health Care | Yes | Yes - Press release and web article | Yes | Press release and web article - http://www.alsa.org/news/media/press-releases/bayada-home-health-care.html and http://www.alsa.org/news/archive/bayada-home-health-care-1.html | ||||||||||||||||||
10 | 2/19/2015 | Research Update | New Disease Model Highlights Astrocyte Contribution to ALS | No | Yes - Press release, web article and social media posts | Yes | Press release and web article - http://www.alsa.org/news/media/press-releases/astrocyte-contribution.html and http://www.alsa.org/news/archive/astrocyte-contribution.html | ||||||||||||||||||
11 | 2/19/2015 | Research Update | Whole Exome Sequencing Reveals New ALS Gene | No | Yes - Press release, web article and social media posts | Yes | Press release and web article - http://www.alsa.org/news/archive/whole-exome-sequencing-2.html and http://www.alsa.org/news/media/press-releases/whole-exome-sequencing.html | ||||||||||||||||||
12 | 2/25/2015 | Quantum Rehab Partnership Announcement | Announce ongoing partnership with Quantum | Yes | Yes - Press release and web article | Yes | Press release and web article - http://www.alsa.org/news/media/press-releases/quantum-rehab-national-partner.html and http://www.alsa.org/news/archive/quantum-rehab-national-partner.html | ||||||||||||||||||
13 | 2/27/2015 | ALS Awareness at the Oscars | The ALS Association Celebrates ALS Awareness at the Movies | No | Yes - Web article | Yes | Web article - http://www.alsa.org/news/archive/als-awareness-at-the-movies.html | ||||||||||||||||||
14 | 2/28/2015 | Walk to Defeat ALS season begins | Recruitment and engagment for Walks | No | Yes- Press release and web article | Yes | Web article and press release - http://www.alsa.org/news/archive/2015-walk-season-begins.html and http://www.alsa.org/news/media/press-releases/2015-walk-registration-opens.html | ||||||||||||||||||
15 | March | Nutrition and ALS | |||||||||||||||||||||||
16 | Entire Month | Maintaining adequate nutrition as muscles weaken is a challenge in living with ALS. Yet tools and equipment are available to help maintain adequate nutrition and support quality of life. | National Nutrition Month | No | Yes - Web article and newsletter article | Yes | Web article - http://www.alsa.org/als-care/living-with-als/maintaining-adequate-nutrition-2015.html | ||||||||||||||||||
17 | 3/1-7/2015 | National Severe Weather Preparedness Week | Have a plan of action for loved ones with ALS during inclement weather | No | Yes - Web article | Yes | Web article on emergency preparedness - http://www.alsa.org/als-care/resources/publications-videos/factsheets/emergency-preparedness-fyi.html | ||||||||||||||||||
18 | 3/12/2015 | Papa John's Partnership | Announcing Walk patnership with national pizza company and CEO John Schnatter being national Walk ambassador | Yes | Yes - Press release and web article | Yes | Web article and press release - http://www.alsa.org/news/archive/papa-johns-helps-boost-walk.html and http://www.alsa.org/news/media/press-releases/papa-johns-helps-boost-walk.html | ||||||||||||||||||
19 | 3/12/2015 | Rsearch Update | Update from Neuralstem Phase 2 trial | No | Yes - Web aricle and social media posts | Yes | Web article - http://www.alsa.org/news/archive/neuralstem-phase-2-nsi566.html | ||||||||||||||||||
20 | 3/12/2015 | Sheila Essey Award Announcement | No | Yes - Web article, press release and social media posts | Yes | Web article and press release - http://www.alsa.org/news/archive/2015-essey-award.html and http://www.alsa.org/news/media/press-releases/2015-essey-award.html | |||||||||||||||||||
21 | 3/16/2015 | TOTO Bassist Mike Porcaro Dies from ALS | No | Yes - Web article and social media posts | Yes | Web article - http://www.alsa.org/news/archive/toto-bassist-mike-porcaro.html | |||||||||||||||||||
22 | 3/17/2018 | ALS Nevada Joins The ALS Association as ALS Association Nevada Chapter | Yes | Yes - Press release and social media posts | Yes | Press release - http://www.alsa.org/news/media/press-releases/nevada-chapter.html | |||||||||||||||||||
23 | Begins on 3/3/2015 | Major League Baseball Spring Training Starts | No | No | Yes | No | |||||||||||||||||||
24 | 3/30/2015 | ALS of Nevada Joins The ALS Association | No | Yes - Web article and social media posts | Yes | Web article - http://www.alsa.org/news/archive/als-of-nevada-joins-association.html | |||||||||||||||||||
25 | April | Tax season and financial planning | |||||||||||||||||||||||
26 | Entire Month | Strategic financial planning in the face of serious illness can maximize the current and future financial plans of people with ALS. This helps minimize worry for caregivers and allows those coping with ALS to focus on pALS' quality of life. | Financial options for people with ALS | No | Yes - Web article | Yes | Web article - http://www.alsa.org/als-care/living-with-als/navigating-your-tax-burden.html | ||||||||||||||||||
27 | Entire Month | National Volunteer Month | No | No | Yes | No | |||||||||||||||||||
28 | Entire Month | National Occupational Therapy Month | Supported by Corporate Sponsor Numotion | No | Yes - Web article and social media posts | Yes | Web article - http://www.alsa.org/news/vision-express/articles/april2015/numotion.html | ||||||||||||||||||
29 | 4/5 - 6/2015 | MLB Partnership | Opening Night/Day for Major League Baseball | Opportunity for chapters to partner and promote partnerships with area MLB teams | No | No | Yes | No | |||||||||||||||||
30 | 4/6 - 12/2015 | National Public Health Week | Recognize issues of public health and highlight issues important to country | No | TBD | TBD | TBD | ||||||||||||||||||
31 | 4/15/2015 | Research Update | ALS Association, Harvard Stem Cell Institute, and Massachusetts General Hospital Neurological Clinical Research Institute Collaborate with GlaxoSmithKline | No | Yes - Web article, press release and social media posts | Yes | Web article and press release - http://www.alsa.org/news/archive/gsk-trial-collaboration.html and http://www.alsa.org/news/media/press-releases/trial-collaboration.html | ||||||||||||||||||
32 | 4/20/2015 | Impact of the Ice Bucket Challenge | Discussing impact of last summer's challenge, infographic and how people can continue momentum | No | Yes - Web article | Yes | Web article - http://www.alsa.org/news/archive/impact-of-ice-bucket-challenge.html | ||||||||||||||||||
33 | 4/22/2015 | Sheila Essey Award Presented | Award Presented at 67th Annual American Academy of Neurology Meeting | No | Yes - Web article and social media posts | Yes | Web article - http://www.alsa.org/news/archive/sheila-essey-award-presented-4-22.html | ||||||||||||||||||
34 | 4/22/2015 | Senate Passes Steve Gleason Act | Legislation Ensures Access to Speech Generating Devices | No | Yes - Web article and social media posts | Yes | Web article - http://www.alsa.org/news/archive/senate-passes-steve-gleason.html | ||||||||||||||||||
35 | 4/22/2015 | ALS Association and AAN Announce Clinical Research Training Fellowship Award | Researcher to examine group of proteins in the cerebral spinal fluid (CSF) of people due to C9orf72 gene mutation | No | Yes - Web article, press release and social media posts | Yes | Web article and press release - http://www.alsa.org/news/archive/clinical-research-training-fellow.html and http://www.alsa.org/news/media/press-releases/clinical-research-training-fellow.html | ||||||||||||||||||
36 | 4/18 - 25/2015 | 2015 AAN Summary | Summary of 2015 conference highlights about ALS | No | Yes - Web article and social media posts | Yes | Yes | ||||||||||||||||||
37 | May | Veterans & ALS - Surviving Spouse Benefits | Research ALS Today | ||||||||||||||||||||||
38 | Entire Month | Honoring our veterans and increasing awareness of benefits available to those with ALS and their families | ALS Awareness Month | No | Yes - Web article, press release, social media posts and newsletter article | Yes | Web article and press release - http://www.alsa.org/news/archive/aam-2015-1.html and http://www.alsa.org/news/media/press-releases/aam-2015.html | ||||||||||||||||||
39 | 5/1/2015 | Quantum Article | Discusses support of ALS Awareness Month | No | Yes - Web article, press release and social media posts | Yes | Web article and press release - http://www.alsa.org/news/archive/quantum-rehab-partner.html and http://www.alsa.org/news/media/press-releases/quantum-rehab-partner.html | ||||||||||||||||||
40 | 5/1/2015 | 2015 Advocacy Day | Lists information on conference events as well as following on Twitter and live stream posted to Facebook | No | TBD - Web article? | Yes | TBD | ||||||||||||||||||
41 | 5/5/2015 | Research Update | Progress in Drug Development Reviewed at ALS Association Drug Company Working Group Meeting | No | Yes - Web article, press release and social media posts | Yes | Web article and press release - http://www.alsa.org/news/archive/progress-in-drug-development.html and http://www.alsa.org/news/media/press-releases/progress-in-drug-development.html | ||||||||||||||||||
42 | 5/10/2015 | Mother's Day | Promote Promise Fund | No | No | Yes | No | ||||||||||||||||||
43 | 5/10 - 12/2015 | National ALS Advocacy Day & Public Policy Conference | No | No | Yes - retweets from Public Policy handle and newsfeed on Facebook | TBD | |||||||||||||||||||
44 | 5/12/2015 | Research Update | New study will look at the youth caregiving experience | No | Yes - Web article, press release and social media posts | Yes | Web article and press release - http://www.alsa.org/news/archive/youth-caregiving-study.html and http://www.alsa.org/news/media/press-releases/new-als-association-funded.html | ||||||||||||||||||
45 | 5/21/2015 | Research Update | New mouse model of the most genetic cause of ALS | No | Yes - Web article, press release and social media posts | Yes | Web article and press release - http://www.alsa.org/news/archive/new-mouse-model.html and http://www.alsa.org/news/media/press-releases/new-mouse-model.html | ||||||||||||||||||
46 | 5/25/2015 | Memorial Day | Opportunity to raise awareness about the connection between military service and ALS; connect to Wall of Honor | No | No | Yes | No | ||||||||||||||||||
47 | June | Disaster preparedness | |||||||||||||||||||||||
48 | Entire Month | Preparing for disasters allows people to respond appropriately to emergencies and re-establish daily care needs quickly | Emergency Preparedness/Hurricane Season | No | Yes- Social media posts; newsletter article, and newsletter article | Yes | Web article - http://www.alsa.org/als-care/living-with-als/emergency-preparedness.html (Update?) | ||||||||||||||||||
49 | TBD | 2015 Public Policy Conference Highlights | No | Yes- Web article and slide | Yes | Yes | |||||||||||||||||||
50 | 6/19/2015 | Lou Gehrig's Birthday | No | Yes- Social media posts | Yes | TBD | |||||||||||||||||||
51 | 6/21/2015 | Father's Day | Community of Hope promotion opportunity | No | Yes - Social media posts and slide | Yes | Yes | ||||||||||||||||||
52 | 6/21/2015 | Global Awareness Day - ALS/MND | No | Yes - Social media posts and web article | Yes | Yes | |||||||||||||||||||
53 | 6/25/2015 | Message from Sarah Caldwell | Lost her dad tp ALS last year; she will give reasons why she is going to do the IBC again this year. | No | Yes - Web article with video from the Public Policy Conference | Yes | Yes | ||||||||||||||||||
54 | July | Traveling with ALS | |||||||||||||||||||||||
55 | Entire Month | Strategic planning is key to local and long distance travel | Traveling with ALS | No | Yes - Web article and newsletter article | Yes | Yes | ||||||||||||||||||
56 | TBD | Challenge ALS/Ice Bucket Challenge Activities | National and chapter activities involving Challenge ALS | TBD | TBD | TBD | TBD | Vision | |||||||||||||||||
57 | 7/2/2015 | One Year Anniversary of IBC - One month reminder | Next month marks one year anniversary of IBC; | Yes | Yes - Web article, press release and pie chart infographic | Yes | Yes | ||||||||||||||||||
58 | 7/4/2015 | Independence Day/Lou Gehrig's Speech Anniversary | Mention Gehrig's Anniversay Speech Day (July 4) and cite MLB partnerships | No | Yes - Web article | Yes | Yes | ||||||||||||||||||
59 | 7/14/2015 | ALS Research Institute Document | Discuss how IBC has positively impacted ALS research | No | Yes - Web article and research video | Yes | Yes | ||||||||||||||||||
60 | Last Week in July | Vision Magazine - Summer 2015 | |||||||||||||||||||||||
61 | TBD | Grants/Safenowitz Post-Doctorate Award Announcements | Highlight awards in media | Yes | Yes - Press release and web article | Yes | Yes | ||||||||||||||||||
62 | Late July/early August | Ice Bucket Challenge Launch Day | IBC Video | Video of Pete Frates and Pat Quinn taking the Ice Bucket Challenge | No | Yes - Video | Yes | Yes | |||||||||||||||||
63 | Late July/early August | Day After Ice Bucket Challenge Launch Day | How Do I Take the Ice Bucket Challenge? | No | Yes - Web article | Yes | Yes | ||||||||||||||||||
64 | August | Driving and the ALS Diagnosis | |||||||||||||||||||||||
65 | Entire Month | Evaluating safe driving ability and using assistive devices or alternate modes of travel is key to successful mobility and transportation. | No | Yes - Web article and newsletter article | Yes | Web article - http://www.alsa.org/als-care/living-with-als/driving-challenges-with-als-1.html (Update?) | |||||||||||||||||||
66 | Early August/late July | Ice Bucket Challenge Launch Day | IBC Video | Video of Pete Frates and Pat Quinn taking the Ice Bucket Challenge | No | Yes - Video | Yes | Yes | |||||||||||||||||
67 | Early August/late July | Day After Ice Bucket Challenge Launch Day | How Do I Take the Ice Bucket Challenge? | No | Yes - Web article | Yes | Yes | ||||||||||||||||||
68 | 8/6/2015 | One Year Anniversary of when Ice Bucket Challenge Went Viral | When hundreds of people gathered in Boston Common and challenged NY and LA | No | Yes - Web article and still image of cake to signify one-year anniversary | Yes | Yes | ||||||||||||||||||
69 | Entire Month | Walk Promotion | Engagement and recruit for Walks | No | Yes - Social media posts, web article, newsletter article | Yes | Yes | ||||||||||||||||||
70 | September | Kids and ALS | Annual Report | ||||||||||||||||||||||
71 | Entire Month | Content specific for supporting kids whose parents have ALS | Kids and ALS | Homepage image changes to “thank you” Seasonal images changes to “thank you” | No | Yes- Social media posts and web article | Yes | Yes | |||||||||||||||||
72 | 9/7/2015 | Labor Day/Back to School | No | No | Yes | No | |||||||||||||||||||
73 | 9/9/2015 | Revert to old Challenge ALS page | |||||||||||||||||||||||
74 | October | Start of influenza season | |||||||||||||||||||||||
75 | Entire month | People with ALS should get vaccinated | Start of flu season | No | Yes - Social media posts and newsletter article | Yes | Yes | ||||||||||||||||||
76 | Entire month | International AAC Awareness Month | No | No | Yes | Web section on AAC - http://www.alsa.org/als-care/augmentative-communication/ (Update?) | |||||||||||||||||||
77 | TBD | CFC/Workplace Giving | 2015 campaign | No | Yes- Web article and slide | Yes | Yes | ||||||||||||||||||
78 | 10/4/2015 | End of baseball season - Major and Minor League thank you and follow-up | Features photos from chapters about ALS awareness activities during regular season | No | Yes - Web article | Yes | Yes | ||||||||||||||||||
79 | 10/17-21/2015 | Society for Neuroscience Meeting, Chicago, IL | Summary of Events | No | Yes - Web article | Yes | Yes | ||||||||||||||||||
80 | 10/24/2015 | Make a Difference Day | No | No | Yes | No | |||||||||||||||||||
81 | November | National Family Caregivers Month | Research ALS Today | ||||||||||||||||||||||
82 | Entire Month | Acknowledging, thanking and supporting the estimated 60 million family caregivers who provide care for their loved ones across the country | National Family Caregivers Month | A coordinated plan for the NFCM and Veterans Day Campaigns will be sent well in advance | Yes | Yes - Talking points; social media posts; slide; newsletter article and press release | Yes | Yes | |||||||||||||||||
83 | Entire Month | Assistive Technology for Caregivers | How assistive technology benefits people caregiving for those with ALS | No | Yes - Web article | Yes | Yes | ||||||||||||||||||
84 | 11/9-11/2015 | Veterans Day | No | Yes - Talking points; social media posts; newsletter article, press release, e-advocacy alert (letter to the editor) | Yes | Yes | |||||||||||||||||||
85 | 11/9 - 11 2015 | Bayada National Home Care Aid Week (links to Caregivers landinage page with fact of the day) | Need image and CORPORATE CONTENT | ||||||||||||||||||||||
86 | 11/30/2015 | Year End Giving Article | Information about #GivingTuesday and year end activities | No | Yes - Web article | Yes | Yes | ||||||||||||||||||
87 | December | Family Keepsakes | |||||||||||||||||||||||
88 | All month | Using modern technology to create family keepsakes | No | No | Yes - Web article | Yes | |||||||||||||||||||
89 | All month | Year-End Giving | No | Yes - newsletter article and web article | Yes | Yes | |||||||||||||||||||
90 | 12/2/2015 | Giving Tuesday | No | Yes- social media posts, slide and overlay | Yes | Yes | |||||||||||||||||||
91 | 12/5/2015 | International Volunteer Day | International Volunteer Day (IVD) is a chance for volunteer-involving organizations and individual volunteers to promote their contributions to development at local, national and international levels. | No | Yes - newsletter article and web article | Yes | Yes | ||||||||||||||||||
92 | 12/11 -13/2015 | International Symposium on ALS/MND Orlando, Florida) | No | TBD | TBD | TBD | |||||||||||||||||||
93 | January | Living with ALS - New Year's Inspirational Message | Vision | ||||||||||||||||||||||
94 | All month | Inspirational Message from President & CEO | New Year's message from Barb Newhouse | No | Yes - web article | Yes | Yes | ||||||||||||||||||
95 | TBD | Recap of breakthrough news through 2015 | Research Annual Report | TBD | TBD | TBD | TBD | ||||||||||||||||||
96 | 1/19/2016 | MLK Day - National Day of Service | No | No | Yes | No | |||||||||||||||||||
97 | |||||||||||||||||||||||||
98 | |||||||||||||||||||||||||
99 | |||||||||||||||||||||||||
100 |