A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z | AA | ||
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1 | Study Name | Primary Contact | In-House or Available Via Application | Genetic Data | Race/Ethnicity | Biological Sex | Gender Identity | Sexual Preference/Orientation | Geographic Location | Age | Socioeconomic Status | Disability Status | Nationality/Immigrant Status | Language | Data use restrictions? | Ascertainment stategy, if any | ||||||||||||
2 | ABCD | Neale | In-house except raw MRI | Y | Approx US | Both | Assessed | Assessed | Continental US | 9-16, more to come | Available | Probably | Yes | Yes | Yes, DUA with NIH/NDA | School-based to approximate US average, plus ~1000 pairs of twins from 4 population-based registries | ||||||||||||
3 | Add Health | Edwards | In-house, after addition to current approved protocol | Y | Approx US | Both | US | Available | Yes, DUA with Add Health | |||||||||||||||||||
4 | ALSPAC | Edwards | in-house | Y | 96% white | Both | Not assessed | Available | Southwest UK in origin | Assessed approx annually, beginning at birth in 1991-1992 | Available | Limited info | All born in UK | Limited info | Lots of hoops to jump through | |||||||||||||
5 | AYATS | Roberson-Nay | in-house | Y | 92.8% white, 7.2% black | Both | Not assessed | Not assessed | Mid-Atlantic (VA, NC, MD) | 15-22 | Available | Limited info | Not assessed | English | Permission from Roberson-Nay | |||||||||||||
6 | BLTS | Gillespie | in-house | Y | 98% white | Both | Not assessed | Available | Oceania | 12-40 | Available | Limited info | Not assessed | English | Permission from Gillespie | |||||||||||||
7 | BBN | Amstadter | in-house | Y | ~55% white, ~24% black | both | not assessed | not assessed | Alabama and Missouri | 12-17 | Available | Not available | Not assessed | English | Permission from Amstadter | |||||||||||||
8 | CONVERGE | Kendler | in-house | Y | 100% Han Chinese descent | Female only | Not assessed | Not assessed | All China | Cases 30+; controls 40+ | Employment, educational attainment, social class | All born in China | Not sure about dialectical variation | Permission from KSK/JF | ||||||||||||||
9 | ENIGMA | Bjork | Y | |||||||||||||||||||||||||
10 | HBDHS | Neale | in-house | N | Multiple | Both | Not assessed | Not assessed | USA | 8-28 years | Unknown | Unknown | Unknown | English | Yes, permission from J Giedd | |||||||||||||
11 | GAP | Edwards/Kendler | in-house | upcoming | Multiple | Both | Not assessed | Not assessed | All US | 18+ | Employment status and educational attainment | Not assessed | Not assessed | Survey in English; not otherwise assessed | Permission from AE/KSK | |||||||||||||
12 | GEDI | Maes | partly in-house | Y | Multiple | Both | Not assessed | Not assessed | US/NZ | 8-35ish | Available | Not assessed | Permission from Maes/Copeland/Kennedy | |||||||||||||||
13 | IASPSAD | Riley | in-house | Y | White (Irish) | Both | Not assessed | Not assessed | Ireland/Northern Ireland | 18+ | Unknown | Unknown | All grandparents born in Ireland or UK | English | Permission from Riley, inclusion of Irish collaborators on publications | |||||||||||||
14 | ATR | Gillespie | via application to Nick Martin | Y | White (Irish) | Both | Assessed | Available as part of anonymed 'Sex Survey' | AUS | 18-80 | Available | Limited info | All born in Australia | English | Permission from Nick Martin, QIMRB | Population-based | ||||||||||||
15 | ISGC | Riley | in-house | Y | White (Irish) | Both | Not assessed | Not assessed | Ireland/Northern Ireland | 18+ | Unknown | Unknown | All grandparents born in Ireland or UK | English | Permission from Riley, inclusion of Irish collaborators on publications | |||||||||||||
16 | Riley | in-house | Y | White (Irish) | Both | Not assessed | Not assessed | Ireland/Northern Ireland | 18+ | Unknown | Unknown | All grandparents born in Ireland or UK | English | Permission from Riley, inclusion of Irish collaborators on publications | ||||||||||||||
17 | JAS | Hettema | in-house | Y | 100% EA | Both | Not assessed | Not assessed | Mid-Atlantic (VA, NC, MD) | 9-13 | Available | Limited info | Not assessed | English | Permission from Hettema | |||||||||||||
18 | PREG | York | in house | DNAm, GE | 50% AA, 50% EA | mothers and their offspring | Not assessed | Not assessed | Richmond, VA | 18-40 yo mothers and their infants | Available | Not assessed | non-Hispanic, non-Middle Eastern (Nationality and immigration status not assessed) | English | Yes; some IRB and data use restrictions. Permission from York. | |||||||||||||
19 | PRINTS | Silberg | in house | Hispanic | male and female | not assessed | not assessed | Puerto RIco | 2-5 | Available | not assessed | not assessed | Spanish | permission from Silberg | ||||||||||||||
20 | RRFT | Amstadter | Y | ~60 white, ~30% black | both | not assessed | not assessed | SC | 13-18 | Available | Not assessed | Not assessed | English | |||||||||||||||
21 | S4S | Dick/Amstadter | in-house (after data sharing agreement is approved) | Y | ~50% white, ~6% hispanic, ~19% black, ~15% Asian | both | assessed in recent cohorts | assessed in recent cohorts | VA | 18+ | Available | Not assessed | English | Data sharing agreement through S4S | ||||||||||||||
22 | Stress-R | Amstadter | in-house | Y | ~80% white | both | not assessed | not assessed | VA | 21-40 | Available | limited info | not assessed | English | Permission from Amstadter | |||||||||||||
23 | UKB | Peterson | via application | Y | white, black, asian, multi; 500,000 participants 20,000 are non-EUR | both | not assessed | some | UK | 37-82, 57.4 | Available | some | imigration status | English | DUA through VIPBG UKB committee | |||||||||||||
24 | VA30K | Maes | in-house | N | white | both | not assessed | not assessed | VA + US | 18+ | Available | Not assessed | Not assessed | English | Permission from Maes | |||||||||||||
25 | VATSPSUD | Kendler | in-house | Y | white | both | not assessed | VA | 18+ | Available | Not assessed | Not assessed | English | |||||||||||||||
26 | VETSA | Neale/Gillespie | partly in-house | Y | multiple | Male only | not assessed | not assessed | All US | 65-75 | Available | Unknown | US citizens | English | Kremen/Lyons permission needed | |||||||||||||
27 | VTSABD | Maes | in-house | Y | 99% white | Both | Not assessed | Not assessed | All US | 8-35ish | Available | Not assessed | Permission from Maes | |||||||||||||||
28 | LEAF | Brown | in-house | N | multiple | Both | assessed | Not assessed | US | 12-45 | Available | Down syndrome | n/a | English | Permission from Brown | |||||||||||||
29 | DSFAM | Brown | in-house | N | multiple | Both | assessed | Not assessed | US | birth + | Available | Down syndrome | N/a | English/Spanish | Permission from Brown | |||||||||||||
30 | DEH | Sheerin | in-house (being collected still) | upcoming | 100% EA | Male only | not assessed | not assessed | VA | 21-42 | Available | Not assessed | n/a | English | Permission from Sheerin | |||||||||||||
31 | COT | Silberg | in-house | 100% caucasian | male and female | not assessed | not assessed | US | 8-17 | Available | not assessed | not assessed | English | Permission from Silberg | ||||||||||||||
32 | VTSABD | Silberg | in-house | 100% Caucasian | male and female | not assessed | not assessed | US | 8-17 | Available | not assessed | not assessed | English | Permission from Silberg | ||||||||||||||
33 | YAFU | Silberg | in-house | 100% Caucasian | male and female | not assessed | not assessed | US | 18-25 | Available | not assessed | not assessed | English | Permission from Silberg | ||||||||||||||
34 | FLARe | Bountress | in-house | Y (on about half) | 100% Causasian | male and female | not assessed | not assessed | US | 18-22 (ish) | Available | not assessed | not assessed | English | Permission from Bountress | |||||||||||||
35 | ENIGMA GAD | Sawyers | via application | Y | Both | not assessed | not assessed | US + international | 6-95 | Unknown | not assessed | not assessed | English | DUA with NIH/Permission from Daniel Pine, inclusion of collaborators on publications | ||||||||||||||
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