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Study Name Primary ContactIn-House or Available Via ApplicationGenetic DataRace/EthnicityBiological SexGender IdentitySexual Preference/OrientationGeographic LocationAgeSocioeconomic StatusDisability StatusNationality/Immigrant StatusLanguageData use restrictions?Ascertainment stategy, if any
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ABCDNealeIn-house except raw MRIYApprox USBothAssessedAssessedContinental US9-16, more to comeAvailableProbablyYesYesYes, DUA with NIH/NDA
School-based to approximate US average, plus ~1000 pairs of twins from 4 population-based registries
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Add HealthEdwardsIn-house, after addition to current approved protocolYApprox USBothUSAvailableYes, DUA with Add Health
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ALSPACEdwardsin-houseY96% whiteBothNot assessedAvailable
Southwest UK in origin
Assessed approx annually, beginning at birth in 1991-1992
AvailableLimited infoAll born in UKLimited infoLots of hoops to jump through
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AYATSRoberson-Nayin-houseY
92.8% white, 7.2% black
BothNot assessedNot assessed
Mid-Atlantic (VA, NC, MD)
15-22AvailableLimited infoNot assessedEnglishPermission from Roberson-Nay
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BLTSGillespiein-houseY98% whiteBothNot assessedAvailableOceania12-40AvailableLimited infoNot assessedEnglishPermission from Gillespie
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BBNAmstadterin-houseY
~55% white, ~24% black
bothnot assessednot assessed
Alabama and Missouri
12-17AvailableNot availableNot assessedEnglishPermission from Amstadter
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CONVERGEKendlerin-houseY
100% Han Chinese descent
Female onlyNot assessedNot assessedAll China
Cases 30+; controls 40+
Employment, educational attainment, social class
All born in China
Not sure about dialectical variation
Permission from KSK/JF
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ENIGMABjorkY
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HBDHSNealein-houseNMultipleBothNot assessedNot assessedUSA8-28 yearsUnknownUnknownUnknownEnglishYes, permission from J Giedd
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GAPEdwards/Kendlerin-houseupcomingMultipleBothNot assessedNot assessedAll US18+
Employment status and educational attainment
Not assessedNot assessed
Survey in English; not otherwise assessed
Permission from AE/KSK
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GEDIMaespartly in-houseYMultipleBothNot assessedNot assessedUS/NZ8-35ishAvailableNot assessed
Permission from Maes/Copeland/Kennedy
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IASPSADRileyin-houseYWhite (Irish)BothNot assessedNot assessed
Ireland/Northern Ireland
18+UnknownUnknown
All grandparents born in Ireland or UK
English
Permission from Riley, inclusion of Irish collaborators on publications
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ATRGillespievia application to Nick MartinYWhite (Irish)BothAssessed
Available as part of anonymed 'Sex Survey'
AUS18-80AvailableLimited info
All born in Australia
English
Permission from Nick Martin, QIMRB
Population-based
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ISGCRileyin-houseYWhite (Irish)BothNot assessedNot assessed
Ireland/Northern Ireland
18+UnknownUnknown
All grandparents born in Ireland or UK
English
Permission from Riley, inclusion of Irish collaborators on publications
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Rileyin-houseYWhite (Irish)BothNot assessedNot assessed
Ireland/Northern Ireland
18+UnknownUnknown
All grandparents born in Ireland or UK
English
Permission from Riley, inclusion of Irish collaborators on publications
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JASHettemain-houseY100% EABothNot assessedNot assessed
Mid-Atlantic (VA, NC, MD)
9-13AvailableLimited infoNot assessedEnglishPermission from Hettema
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PREGYorkin houseDNAm, GE50% AA, 50% EA
mothers and their offspring
Not assessedNot assessedRichmond, VA
18-40 yo mothers and their infants
AvailableNot assessed
non-Hispanic, non-Middle Eastern (Nationality and immigration status not assessed)
English
Yes; some IRB and data use restrictions. Permission from York.
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PRINTSSilbergin houseHispanicmale and femalenot assessednot assessedPuerto RIco2-5Available not assessednot assessedSpanishpermission from Silberg
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RRFTAmstadterY
~60 white, ~30% black
bothnot assessednot assessedSC13-18AvailableNot assessedNot assessedEnglish
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S4SDick/Amstadterin-house (after data sharing agreement is approved)Y
~50% white, ~6% hispanic, ~19% black, ~15% Asian
both
assessed in recent cohorts
assessed in recent cohorts
VA18+AvailableNot assessedEnglish
Data sharing agreement through S4S
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Stress-RAmstadterin-houseY~80% whitebothnot assessednot assessedVA21-40Availablelimited infonot assessedEnglishPermission from Amstadter
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UKBPetersonvia applicationY
white, black, asian, multi; 500,000 participants 20,000 are non-EUR
bothnot assessedsomeUK37-82, 57.4Availablesomeimigration statusEnglish
DUA through VIPBG UKB committee
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VA30KMaesin-houseNwhitebothnot assessednot assessedVA + US18+AvailableNot assessedNot assessedEnglishPermission from Maes
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VATSPSUDKendlerin-houseYwhitebothnot assessedVA18+AvailableNot assessedNot assessedEnglish
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VETSANeale/Gillespiepartly in-houseYmultipleMale onlynot assessednot assessedAll US65-75AvailableUnknownUS citizensEnglish
Kremen/Lyons permission needed
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VTSABDMaesin-houseY99% whiteBothNot assessedNot assessedAll US8-35ishAvailableNot assessedPermission from Maes
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LEAFBrownin-houseNmultipleBothassessedNot assessedUS12-45AvailableDown syndromen/aEnglishPermission from Brown
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DSFAMBrownin-houseNmultipleBothassessedNot assessedUSbirth +AvailableDown syndromeN/aEnglish/SpanishPermission from Brown
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DEHSheerinin-house (being collected still) upcoming100% EAMale onlynot assessednot assessedVA21-42AvailableNot assessedn/aEnglishPermission from Sheerin
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COTSilbergin-house100% caucasianmale and femalenot assessednot assessedUS8-17Availablenot assessednot assessedEnglishPermission from Silberg
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VTSABDSilbergin-house100% Caucasianmale and femalenot assessednot assessedUS8-17Availablenot assessednot assessedEnglishPermission from Silberg
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YAFUSilbergin-house100% Caucasianmale and femalenot assessednot assessedUS18-25Availablenot assessednot assessedEnglishPermission from Silberg
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FLAReBountress in-houseY (on about half)100% Causasianmale and femalenot assessednot assessedUS18-22 (ish)Availablenot assessednot assessedEnglishPermission from Bountress
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ENIGMA GADSawyersvia applicationYBothnot assessednot assessed
US + international
6-95Unknownnot assessednot assessedEnglish
DUA with NIH/Permission from Daniel Pine, inclusion of collaborators on publications
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