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Complex Care Educational Resources
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The goal of this repository is to provide a common space for sharing educational resources in pediatric complex care.
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SUBMIT Your Educational Resource Here
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RESOURCE TITLE / TOPICRESOURCE TYPETARGET LEARNER(S)LINK TO RESOURCEAUTHORSFREE OR COST ASSOCIATED?CONTINUING EDUCATION CREDIT AVAILABLE?OTHER INFORMATION / COMMENTS
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OPENPediatrics Complex Care CatalogOnline videos and courses in complex careInterprofessional health care professionals and traineeshttps://learn.openpediatrics.org/pages/62/complex-careSee individual resources for detailed authorshipFreeYesOpen-access with free registration on OPENPediatrics; virtual home visit course is available for continuing education credit for physician, nurses and social workers
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Approach to Clinical Assessment of Children With Medical ComplexityMedEdPORTAL (register for an account to access)Pediatric residentshttps://www.mededportal.org/publication/10765/Huth K, Long-Gagne S, Mader J, Sbrocchi AMFreeNoA MedEdPORTAL account is required to access, registration is free
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American Academy of Cerebral Palsy and Developmental Medicine eCourseseCourses are self paced online courses with discussion board forumPhysicians, Therapists, Nurseshttps://www.aacpdm.org/education/ecoursesAmerican Academy for Cerebral Palsy and Developmental Medicine (AACPDM)Cost associatedYeseCourse options rotate, cost associated (more for non-member than member), continuing education credits (CME, CEU) available
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COMPLEX CARE ELECTIVE: An Outpatient Learner-Directed Complex Care Elective for Pediatric ResidentsArticle, supplement includes educational resourcesResidents and faculty interested in developing an elective; all learners for list of educational resourceshttp://complexcarejournal.org/2020/01/24/complex-care-elective/Breann Butts, MD, Rebecca Steuart, MD, Jennifer Lail, MDFreeNoFree access through Complex Care Journal, no CME. Supplement includes list of educational resources.
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Complex Care CurriculumMedEdPORTAL (register for an account to access)Traineeshttps://www.mededportal.org/publication/9274/
https://www.mededportal.org/publication/9282/
https://www.mededportal.org/publication/9302/
https://www.mededportal.org/publication/9999/
https://www.mededportal.org/publication/9737/
https://www.mededportal.org/publication/9944/
https://www.mededportal.org/publication/9538/
https://www.mededportal.org/publication/10246/		Children's National Hospital, see individual modules for detailed authorshipFreeNoMay require an AAMC MedPortal Account to access/download this resource. Creating an account is free at www.aamc.org
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Simulation Series: Emergencies in Technology-dependent ChildrenCase-based low-fidelity simulationTraineeshttps://www.mededportal.org/publication/9310/Shah N, Bhansali P, McGarry M, Melwani A, Morozova O, Parikh K, Davis A, Children's National HospitalFreeNoDownload and use may require registering for a free account through AAMC at www.aamc.org
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Understanding the Needs of Children With Medical ComplexityMedEdPORTAL (register for an account to access)Pediatric residentshttps://www.mededportal.org/publication/10709/Huth K, Long-Gagne S, Mader J, Sbrocchi AMFreeNoMay require an AAMC MedPortal Account to access/download this resource. Creating an account is free at www.aamc.org
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Caring for Children with Chronic Health Care Needs: An Introductory Curriculum for Pediatric ResidentsMedEdPORTAL (register for an account to access)Pediatric residentshttps://www.mededportal.org/publication/9172/Jackson J, Albertini LFreeNo
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Special Care Optimization for Patients and Education (SCOPE): Training Pediatric Residents About Children With Special Health Care NeedsMedEdPORTAL (register for an account to access)Pediatric residentshttps://www.mededportal.org/publication/9627/Bogetz J, Gabhart J, Rassbach C, et alFreeNo
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Virtual Home Visit for a Child with Medical Complexity CourseOnline coursePediatric residents, Attending physicians, Nurses, Social workershttps://learn.openpediatrics.org/learn/course/internal/view/elearning/3647/virtual-home-visit-for-a-child-with-medical-complexity-courseHuth K, Amar-Dolan L, Newman LFreeYesIn this module, learners will be introduced to an approach to the care of a child with medical complexity in the home and community, with insights from a family's experience. Areas of focus in the module include accessibility of the home environment, medication safety, post-discharge considerations, care of medical technologies including feeding tubes and non-invasive ventilation, and opportunities for community participation. Register for an account for free at www.openpediatrics.org
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AAP Council of Children With Disabilities educational opportunities Podcasts and webinars for its members and the public. These webinars expand on COCWD-authored clinical reports and/or policy statements.Medical students, Pediatric residents, Attending physicians, Nurseshttps://services.aap.org/en/community/aap-councils/council-on-children-with-disabilities/cocwd-educational-opportunities/American Academy of Pediatrics Council if Children with DisabilitiesFreeNo
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Yale Primary Care CurriculumHandout/documentPediatric residentshttps://medicine.yale.edu/pediatrics/pcpc/Sinead Murphy Salem, MD & Kathleen Huth, MD, MMScCost associatedNoGuided resource. Chapter 43 - Children with Medical Complexity: Initial Assessment; Chapter 44 - Children with Medical Complexity: Physical Examination, Medical Technology Care, and Decision Making
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A Health Care Transition Curriculum for Pediatric ResidentsOnline coursePediatric residents, Attending physicianshttps://bcm.box.com/s/guh0mtstou1he56f7sr331ng4okbwm7dEmily Goodwin MD (Children's Mercy Hospital and Clinics), Ruchi Kaushik, MD, MPH (Baylor College of Medicine - Children's Hospital of San Antonio)FreeNo
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Caring for Children Who Have Severe Neurological Impairment: A Life with GraceBookMedical students, Pediatric residents, Attending physicians, Nurses, Social workers, TherapistsCan purchase online at AmazonJulie M. HauerCost associatedNo
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Children and Youth with Complex Cerebral Palsy: Care and ManagementBookMedical students, Pediatric residents, Attending physicians, Nurses, Social workers, TherapistsPurchase book online at Amazon or AACPDM Laurie Glader and Richard StevensonCost associatedNo
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Complex Care at Home for ChildrenWebsiteMedical students, Pediatric residents, Attending physicians, Nurses, Social workers, Therapists, Parentshttp://complexcareathomeforchildren.com/Montreal Children's HospitalFreeNoResources developed for parents but useful for med tech education
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SickKids Paediatric Project ECHO - Complex CareOnline courseAttending physicians, Nurses, Social workers, Therapistshttp://www.sickkids.ca/ProjectECHO/program-options/index.htmlFreeNoMust request access, q3 month meetings
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Resilience in the Face of Grief and Loss: A Curriculum for Medical Students, Pediatric Residents, and FellowsHoused online, Includes slide deck and facilitator guideMedical students, Pediatric residents, Attending physicians, The Resilience in the Face of Grief and Loss Curriculum was designed primarily for residents and fellows, but could be an excellent learning source for all learners across the educational continuum, including medical students, faculty and community practitioners. The exercises are intended for physicians but with minor adaptations could be used by any health care provider with some advanced clinical skills with children (e.g. nurse practitioners, physician assistants, nurses and social workers.)https://www.aap.org/en-us/advocacy-and-policy/aap-health-initiatives/hospice-palliative-care/Pages/Resilience-Curriculum.aspxJanet R. Serwint, Susan Bostwick, Ann E. Burke, Annamaria Church, Albina Gogo, Dena Hofkosh, Marta King, Jennifer Linebarger, Megan E. McCabe, Margaret Moon, Amanda Osta, Deborah T. Rana, OJ Sahler, Keely Smith, Florence Rivera, Constance Baldwin. American Academy of Pediatrics FreeNo
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Pediatrics Ambulatory Care Curriculum: Care of Children with Special Healthcare Needs 2020-2021Online coursePediatric residentshttps://www.peaconline.org Revised 2019: Rebecca Seltzer, MD, MHS
Original authors: Dennis Kuo, MD, MPH; Jack Rusley, MD, MHS		Cost associatedNofree trial available
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Anticipatory Social Supports for
Children With Chronic Conditions
and Their Families		Journal articlePediatric residents, Attending physicians, Social workers https://doi.org/10.1177/00099228221106470Ed Schor & Amy FineFreeNoPublished by Clinical Pediatrics, June 21, 2022; DOI: 10 1177/0009922822 106470
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A Better Way: Team Care for Children with Special Health Care NeedsPediatric residents, Attending physicians, Nurses, Social workers, Therapistshttps://www.lpfch.org/publication/better-way-team-care-children-special-health-care-needsEd SchorFreeNo
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The Future of Pediatrics: Redefining Chronic CarePediatric residents, Attending physicianshttps://www.lpfch.org/publication/future-pediatrics-redefining-chronic-careEdward SchorFreeNoIssue Brief
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An Almost Complete List of Services Used by Families and Children with Special Health Care NeedsHandout/documentPediatric residents, Attending physicians, Social workershttps://www.lpfch.org/publication/almost-complete-list-services-used-families-and-children-special-health-care-needsEdward SchorFree
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Personal Advocacy: Why Families Always Will Be Their Child's Care CoordinatorHandout/documentPediatric residents, Attending physicians, Social workershttps://www.lpfch.org/publication/personal-advocacy-why-families-always-will-be-their-childs-care-coordinatorEdward SchorFreeNoCommentary
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Supporting Self-Management of Chronic Health

Problems
Handout/documentPediatric residents, Attending physicians, Social workershttps://publications.aap.org/pediatrics/article/135/5/e20143431/33714/Supporting-Self-Management-of-Chronic-HealthHolly Henry & Edward SchorFreeNo
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Clinical Image Library: Medical technology, Mobility aids and orthoticsDownloadable imagesMedical students, Pediatric residents, Attending physicians, Nurses, Social workers, Therapistshttps://www.openpediatrics.org/clinicalimage-libraryOPENPediatricsFreeNo
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Entrustable Professional Activities in the Care of Children with Medical ComplexityHandout/documentMedical students, Pediatric residents, Attending physicianshttps://www.sciencedirect.com/science/article/pii/S1876285921004563#sec0009MultipleFreeNoDownload Appendix/Supplemental Information for full EPA descriptions
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