Sample Data Dictionary
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CategorySubject TypeVariableTimepointData SourceCollected byNotesCase propertyMappingFormHow to calculate
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SociodemographicsField patientGenderEnrollmentCommCareNursegendermale
female
Enroll New Patient
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SociodemographicsField patientRaceEnrollmentCommCareNurse
race, race_specify
African
Arabic
Asian
Caucasian
Other (prompts for race_specify)
Enroll New Patient
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SociodemographicsField patientMarital StatusEnrollmentCommCareNursemarital_status
Married
Single
Widow/widower
Divorced/separated
Enroll New Patient
5
SociodemographicsField patientResidenceEnrollmentCommCareNurseresidenceUrban
Rural
Enroll New Patient
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SociodemographicsField patientEducational levelEnrollmentCommCareNurseHighest education leveled_level
None
Some primary school
Completed primary school
Trade/vocational
Some secondary
Completed secondary
University
Enroll New Patient
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SociodemographicsField patientTrade or ProfessionEnrollmentCommCareNurse
profession, trade_specify
Business (vendor)
Tailor
Teacher
Farmer
Student
Self employed
Unemployed
Other (prompts for trade_specify)
Enroll New Patient
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SociodemographicsField patientPrimary language and language(s) spokenEnrollmentCommCareNurse
primary_langauge [sic], primary_language_specify, secondary_language, secondary_language_specify
Kiswahili
Tribal language
English
Arabic
Other
Enroll New Patient
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SociodemographicsField patientYear of birthEnrollmentCommCareNurseyob4 digit number between 1915 - 2018Enroll New Patient
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SociodemographicsControl patientGenderEnrollmentNurse
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SociodemographicsControl patientRaceEnrollmentNurse
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SociodemographicsControl patientMarital StatusEnrollmentNurse
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SociodemographicsControl patientResidence (urban or rural)EnrollmentNurse
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SociodemographicsControl patientEducational levelEnrollmentNurse
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SociodemographicsControl patientTrade or ProfessionEnrollmentNurse
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SociodemographicsControl patientPrimary language and language(s) spokenEnrollmentNurse
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SociodemographicsControl patientYear of birthEnrollmentNurse
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SociodemographicsSpecialistResidenceEnrollmentSelf-complete
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SociodemographicsSpecialistEducation levelEnrollmentSelf-complete
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SociodemographicsSpecialistPrimary language and language(s) spokenEnrollmentSelf-complete
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SociodemographicsSpecialistGenderEnrollmentSelf-complete
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SociodemographicsSpecialistYear of birthEnrollmentSelf-complete
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SociodemographicsSpecialistRaceEnrollmentSelf-complete
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SociodemographicsSpecialistTrainingEnrollmentSelf-complete
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SociodemographicsSpecialistYears in practiceEnrollmentSelf-complete
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SociodemographicsSpecialistMobile devices ownedEnrollmentSelf-complete
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SociodemographicsLHWResidenceEnrollmentSelf-complete
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SociodemographicsLHWEducation levelEnrollmentSelf-complete
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SociodemographicsLHWPrimary language and language(s) spokenEnrollmentSelf-complete
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SociodemographicsLHWGenderEnrollmentSelf-complete
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SociodemographicsLHWYear of birthEnrollmentSelf-complete
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SociodemographicsLHWRaceEnrollmentSelf-complete
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SociodemographicsLHWTrainingEnrollmentSelf-complete
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SociodemographicsLHWYears in practiceEnrollmentSelf-complete
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SociodemographicsLHWMobile devices ownedEnrollmentSelf-complete
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ClinicalField patientDisease typeEnrollmentCommCareNurse
cancer_type_primary, cancer_type_primary_specify
Bladder
Brain
Breast
Hodgkin lymphoma
Leukemia (chronic)
Liver
Lung
Melanoma
Ovary
Pancreas
Stomach
Other (prompts for cancer_type_primary_specify)
Create Clinical Record (RN)
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ClinicalField patientDisease stageEnrollmentCommCareNursecancer_stageI
II
IIIA
IIIB
IV
Unknown
Create Clinical Record (RN)
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ClinicalField patientPerformance status at enrollmentEnrollmentCommCareNurseecog_status0
1
2
3
4
Create Clinical Record (RN)
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ClinicalField patientComorbitiesEnrollmentCommCarePhysicianMulti-select question. Each answer option has a text box displayed if selected, to enter description of condition treatment and control. relevant_medical_history
diabetes [prompts for relevant_medical_history_diabetes]
coronary_artery_disease [prompts for relevant_medical_history_coronary_artery_disease]
stroke [prompts for relevant_medical_history_stroke]
depression [prompts for relevant_medical_history_depression]
hiv_aids [prompts for relevant_medical_history_hiv_aids]
hepatitis [prompts for relevant_medical_history_hepatitis]
other_infection [prompts for relevant_medical_history_other_infection]
other_chronic_condition [prompts for relevant_medical_history_other_chronic_conditions]
Create Clinical Record (Specialist)
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ClinicalControl patientDisease type ('diagnosis')EnrollmentNurse
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ClinicalControl patientDisease stage ('current cancer stage')EnrollmentNurse
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ClinicalControl patientPerformance status at enrollment ('Discharge ECOG Status')EnrollmentNurse
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ClinicalControl patientComorbities ('Other relevant medical history')EnrollmentPhysician
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POSField patientPOS items2x per weekCommCareSelf-complete
pos_q1 - pos_q10
0
1
2
3
4
5
Report How You are Feeling (POS)
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POSControl patientPOS items2x per weekNurse
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Attitudes and BeliefsField patient6-week phone survey6-week follow upCommCareNurse
six_week_survey_patient_1 - six_week_survey_patient_24
Definitely agree
Agree somewhat
Disagree
Six-week Field Test Survey, Patient/Caregiver
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Attitudes and BeliefsSpecialist6-week 6-week follow upCommCareSelf-complete
six_week_survey_specialist_1 - six_week_survey_specialist_28
Definitely agree
Agree somewhat
Disagree
Six-week Field Test Survey (Specialist)
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Attitudes and BeliefsLHW6-week6-week follow upCommCareSelf-complete
six_week_survey_lhw_1 - six_week_survey_lhw_28
Definitely agree
Agree somewhat
Disagree
Six-week Field Test Survey (LHW)
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Care satisfaction, attitudes and beliefsField patientEnd of study phone surveyEnd of studyCommCareNurse
end_field_test_survey_1 - end_field_test_survey_11
Varies by questionEnd of Field Test Survey for Patient or Caregiver (as Proxy)
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Care satisfaction, attitudes and beliefsControl patientEnd of study phone surveyEnd of studyNurse
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Care satisfaction, attitudes and beliefsSpecialistEnd of study phone interviewEnd of studyMicrosoft Word (Qual)Usability specialistEnd of study Skype qualitative interviews with interview notes recorded in password protected computer
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Care satisfaction, attitudes and beliefsLHWEnd of study phone interviewEnd of studyMicrosoft Word (Qual)Usability specialistEnd of study Skype qualitative interviews with interview notes recorded in password protected computer
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Project facilitator, limitations, barriers and suggestions for changeSpecialistEnd of study phone interviewEnd of studyMicrosoft Word (Qual)Usability specialistEnd of study Skype qualitative interviews with interview notes recorded in password protected computer
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Project facilitator, limitations, barriers and suggestions for changeLHWEnd of study phone interviewEnd of studyMicrosoft Word (Qual)Usability specialistEnd of study Skype qualitative interviews with interview notes recorded in password protected computer
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Back-up Emergency CallsField patientNumber of calls per patient per patientEnd of studyCommCare Data analystData analyst will need to aggregate data
make_emergency_phone_call_count; contact_your_care_team_count
Integer count of how many times the form has been filled out by the patientMake Emergency Phone Call;
Contact Your Care Team
Alternatively, can calculate via the number of form submissions per patient for the forms "Make Emergency Phone Call" and "Contact Your Care Team
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MessagingField patientAutomatic SMS to remind patients to fill out POSEnd of studyTelerivetNurse
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AggregateTotal patientsNumber of patients recruited (asked to participate)End of studyStudy RN LogData analyst
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AggregateField patientNumber of patients enrolled (agreeing to participate)End of studyCommCareData analystEnroll New PatientCount of all unique patients enrolled
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AggregateControl patientNumber of patients enrolled (agreeing to participate)End of studyData analyst
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AggregateField patientField test patients successfully trained in using digital toolEnd of studyStudy RN LogNurseNumber of unique patients enrolled who are eligible to be included in data analysis
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AggregateField patientField test patients unable to be trained on digital toolEnd of studyStudy RN LogNurse
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AggregateField patientNumber of POS responsesEnd of studyCommCareData analystpos_countInteger count of how many times the POS has been filled out for a given patientReport How You are Feeling (POS)Can also calculate POS submissions by unique days (e.g. to remove multiple POS submissions from the same day) using case property pos_filled_date
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AggregateField patientNumber of POS promptsEnd of studyCommCareData analystMessages
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AggregateField patientNumber of POS responses responded to by specialistEnd of studyCommCareData analystRecord Outpatient InteractionsThis study variable can be captured by the specialist filling out the 'Record Outpatient Interaction' or 'Update Medications' forms within 48 hours of a patient filling out the POS.

To calculate, find patients with POS scores of 4 or 5, and within 48 hours after that, pull all record outpatient interactions forms and look at those interactions
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AggregateLHWNumber of dropoutsEnd of studyNurse
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AggregateField patientNumber of dropoutsEnd of studyCommCareNurse
close_case_reason; close_case_reason_other
Study period has ended
Patient dropped out of study
Lost contact with patient
Patient deceased
Other (prompts for close_case_reason_other)
Remove Patient From StudyCount of the number of form submissions where close_case_reason is NOT 'study period has ended' or 'patient deceased'
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AggregateControl patientNumber of dropoutsEnd of studyNurse
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AggregateField patientNumber of phones usedEnd of studyDevice Managment SpreadsheetIT
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AggregateLHWNumber of phones usedEnd of studyDevice Managment SpreadsheetIT
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AggregateField patientNumber of phones lost and reason for lossEnd of studyDevice Managment SpreadsheetIT
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AggregateLHWNumber of phones lost and reason for lossEnd of studyDevice Managment SpreadsheetIT
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AggregateTotal patientsNumber of patients not eligibleEnd of studyStudy RN LogNurse
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AggregateTotal patientsNumber of patients not eligible (and reason)End of studyStudy RN LogNurse
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77
78
79
80
81
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