Ehlers-Danlos Proclamation Forms/Links to All States: created by Diana Cleaveland/contributions from MAC 13 and EDS Proclamations groups
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State /
Province /
City
STATE LINKS TO
PROCLAMATION FILING FORMS,
where available
Link to Proclamation Formats: Sample Wording in Active Year
Latest ActivityEDS Organization in the State2017 PROCLAMATIONS (applied for- applicant)2016

PROCLAMATIONS (applied for - applicant)
2016

PROCLAMATIONS PASSED!
2016 LINKS TO PHOTOS OF PROCLAMATIONS PASSED2015
LINKS TO SPECIAL EVENTS PLANNED / PRESS
2015 PROCLAMATIONS (applied for- applicant)2015

PROCLAMATIONS PASSED
2015


PICTURE LINKS
2015
LINKS TO SPECIAL EVENTS PLANNED / PRESS
2014

PROCLAMATIONS PASSED-Who
2014

PROCLAMATION PICTURE LINKS
2014
Articles / Events for EDS Awareness
20132013


LINKS
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Alabamahttp://governor.alabama.gov/newsroom/category/proclamations/http://www.govlive.com/us/al/montgomery-al/alabama-state-governor-office2010
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Alaskahttp://gov.alaska.gov/Walker/contact/constituent-relations/proclamations.html
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Arizonahttp://azgovernor.gov/governor/form/proclamation-request
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Arkansashttp://governor.arkansas.gov/proclamation-request-formhttp://cdm16039.contentdm.oclc.org/cdm/singleitem/collection/p15021coll1/id/267/rec/42011
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Californiahttp://gov.ca.gov/s_faq.phpYES- CITY OF BRANFORD; CITY OF SAN DIEGOhttp://www.brantford.ca/news_room/local_focus/Pages/Proclamation-Ehlers-DanlosSyndromeAwarenessMonth.aspxhttp://www.brantford.ca/news_room/local_focus/Pages/Proclamation-Ehlers-DanlosSyndromeAwarenessMonth.aspxChristina Rightmer- city of Atascadero- with award to Christina; City of San Diego by Angel Avec D'Coulisseshttps://docs.google.com/file/d/0B4u05OH4olj6Vnp1VUJTT2lrYjA/edit?usp=sharing https://docs.google.com/file/d/0B4u05OH4olj6bDY1Vl94Z05qZWs/edit?usp=sharing https://docs.google.com/file/d/0B4u05OH4olj6anJxRERHYmRJeFE/edit?usp=sharing
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Coloradohttp://www.colorado.gov/govhdir/requests/proclamation.html2016Justin "J" Blair and Nancy NickoleyYesYES- Brianna Werkmeister Felzhttps://drive.google.com/file/d/0B4u05OH4olj6dktyQm9kX19ZVU0/edit?usp=sharing
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Connecticuthttp://www.governor.ct.gov/malloy/cwp/view.asp?a=3998&q=4790902015Yes- Eloise Ribisil StagerYES- town of Sherman, CT- MONTH OF MAY!http://www.townofshermanct.org/calendar/pdfs/ehlersdanlos.pdfhttps://www.facebook.com/events/753535964768078/
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Delawarehttp://smu.governor.delaware.gov/cgi-bin/mail.php?recognition
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District of Columbiahttp://os.dc.gov/service/ceremonial-services
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Floridahttp://www.flgov.com/proclamations/http://citrus.granicus.com/MetaViewer.php?view_id=2&clip_id=1522&meta_id=283770YES- Kim Bledsoe Boddiehttps://www.facebook.com/photo.php?fbid=10200917531900702&set=gm.699230573456655&type=1&theater
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Georgiahttp://gov.georgia.gov/documents/proclamation-request-form2015Yes- Amy ColemanYES! Amy Coleman
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Hawaiihttp://governor.hawaii.gov/guidelines-for-requesting-a-proclamation-commendation-or-special-message/
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Idahohttp://gov.idaho.gov/mediacenter/proc/NEW%20Proclamation%20Request%20Form%20as%20of%202011.pdf
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Illinoishttps://www2.illinois.gov/gov/Documents/GOCA/Guidelines-for-Proclamations-from-the-Office-of-the-Governor.pdfhttp://connection.ebscohost.com/c/articles/73461288/2012-31-ehlers-danlos-syndrome-awareness-month2013MAC 13 EDSYES! Acquired by Carmen Rosita Flobo- photo not available?
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Indianahttp://www.in.gov/gov/2361.htm
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Iowahttps://governor.iowa.gov/constituent-services/proclamation-request/2012
Joe Thurman
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Kansashttps://governor.ks.gov/serving-kansans/constituent-services/proclamation-guidelines
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Kentucky http://governor.ky.gov/Lists/Proclamations/form.aspxhttp://governor.ky.gov/Lists/Proclamations/DispForm.aspx?ID=1162012
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Louisianahttp://gov.louisiana.gov/index.cfm/form/home/132015yes, Petra Cook (Scars Ashes)Yes!
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Mainehttp://www.maine.gov/governor/lepage/citizen_services/request_proclamation.shtml
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Marylandhttp://governor.maryland.gov/mail/citations.asp2015yes-Petra Cook (Scars Ashes): also Montgomery County, MD http://www3.montgomerycountymd.gov/311/Solutions.aspxYES! Scars Ashes Montgomery County Maryland, AND the State of Maryland!!https://www.facebook.com/photo.php?fbid=1627786660787288&set=p.1627786660787288&type=1&theaterhttps://www.facebook.com/photo.php?fbid=1641753276057293&set=p.1641753276057293&type=1&theaterYES- Scars Asheshttps://www.facebook.com/photo.php?fbid=1477170635848892&set=gm.691895897523456&type=1&theater
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Massachusettshttp://www.mass.gov/governor/constituent-services/http://www.youtube.com/watch?v=-oeegW8-xdc2016Ehlers-Danlos NE/MA Support contact: Jon Rodis @ WSALMGCDJM@aol.comYes- Diana CleavelandYes- Diana Cleaveland; in process with Speaker of the House DeLeo's office, with visit to the Statehouse by Jon Rodis YES!https://drive.google.com/file/d/0B4u05OH4olj6ODhuWGNEYlUteXU2TXFXMXVmOE9ERVl2Ul9J/view?usp=sharingMay 16- Team Zebra "Walk" and Awareness at Salem Willows- for more info., write WSALMGCDJM@comcast.net; stay tuned- planning on creating an event at the Statehouse to thank the Staff at the Governor's office- we are looking for a speaker/doctor- trying also to drum up some real press this year!YES- Diana Cleaveland: EDS NE/MA Supporthttps://drive.google.com/file/d/0ByeM2izqvZOSeXgxMkZFQnprZ0U/edit?usp=sharinghttp://www.chronicpainpartners.com/may-is-ehlers-danlos-syndrome-month-in-massachusetts/https://docs.google.com/file/d/0B4u05OH4olj6bUZRdldNZ1Z6NzQ/edit?usp=sharing
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Michiganhttp://www.michigan.gov/snyder/0,4668,7-277-57577_59874---,00.html2015Yes- Heidi Marie JonesYes!!! Heidi Marie Joneshttps://www.dropbox.com/s/t6pnar6pjhd3jq0/eds_2015_proclamation.pdf?dl=0YES- Jenn Filber
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Minnesotahttp://mn.gov/governor/resources/proclamations/http://www.sos.state.mn.us/index.aspx?page=9&recordid=50372017https://www.facebook.com/groups/MN.EDS/Yes -Tracy WalbergYes -Tracy WalbergYes - Tracy WalbergYes- Tracy WalbergYES!!! Tracy Walberghttps://www.facebook.com/photo.php?fbid=10205529332325512&set=p.10205529332325512&type=1&theaterYES- Tracy Walberghttps://www.facebook.com/photo.php?fbid=10202911785728483&set=p.10202911785728483&type=1&theaterhttps://docs.google.com/file/d/0B4u05OH4olj6TldfYmtkSlVlRjQ/edit?usp=sharing
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Mississippihttp://www.governorbryant.com/requests/proclamation-request/
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Missourihttps://governor.mo.gov/get-involved/request-proclamation-governor-jay-nixon2016Yes- Mish RogersMAC EDS13https://docs.google.com/file/d/0B4u05OH4olj6c3B4M2hoRk5LUnM/edit?usp=sharing
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Montanahttp://governor.mt.gov/
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Nebraskahttp://ballotpedia.org/Governor_of_Nebraska
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Nevadahttp://gov.nv.gov/contact/proclamation/http://danielledaviseds.blogspot.com/2011/04/may-is-eds-awareness-month-in-nevada.html2011YES- Dani Sequoia Davis-Robesonhttp://www.lifewitheds.com/2013/03/Proclamation-2013-May-EDS-Awareness-Month-Nevada-Ohio-Oregon.html http://gov.nv.gov/news/item/4294973592/
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New Hampshirehttp://www.governor.nh.gov/citizen/index.htm2016NH EDS SUPPORT GROUP WEBSITE:
http://www.chronicpainpartners.com/new-hampshire-eds-support-group/about/
www.chronicpainpartners.com
The New Hampshire Ehlers-Danlos Sydrome Support Group was founded, in October 2015, out of the need for support. NH EDS COALITION: (website in progress)
https://www.facebook.com/NHEDSCoalition/?ref=bookmarks
NH EDS Coalition | Facebook
www.facebook.com
NH EDS Coalition. 2 talking about this. Our Vision: Earlier recognition and better quality of life for people in New Hampshire living with Ehlers-Danlos...Annaca Cook
DoneDoneDone
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New Jersey2011http://bit.ly/CNJ-EDS-SGYes- Ronnie UbermanYES- Ronnie Uberman
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New Mexicohttp://www.governor.state.nm.us/Proclamations_1.aspxMAC EDS 13https://docs.google.com/file/d/0B4u05OH4olj6VjhyOVZDV2pnN28/edit?usp=sharing
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New YorkYes - Vanessa BalterNO - rejected! :(
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North Carolinahttp://www.governor.state.nc.us/contact/recognition-request/request-certificate-award-proclamation-or-note-please-note-all-requestsin process- Maria Thomas
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North Dakotahttp://governor.nd.gov/home
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Ohiohttp://apps.das.ohio.gov/govmeetingrequest/schedulerequestform.aspxhttp://apps.das.ohio.gov/govmeetingrequest/schedulerequestform.aspxhttp://apps.das.ohio.gov/govmeetingrequest/schedulerequestform.aspxhttp://apps.das.ohio.gov/govmeetingrequest/schedulerequestform.aspxhttp://apps.das.ohio.gov/govmeetingrequest/schedulerequestform.aspxhttp://apps.das.ohio.gov/govmeetingrequest/schedulerequestform.aspxhttp://apps.das.ohio.gov/govmeetingrequest/schedulerequestform.aspxhttp://apps.das.ohio.gov/govmeetingrequest/schedulerequestform.aspxYES- Dani Sequoia Davis-Robesonhttp://www.chronicpainpartners.com/eds-awareness-month-radio-broadcast-in-dayton-ohio/http://www.lifewitheds.com/2013/03/Proclamation-2013-May-EDS-Awareness-Month-Nevada-Ohio-Oregon.html
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Oklahomahttps://www.ok.gov/triton/modules/formbuilder/form.php?form_id=06f2c591e968592fd1c77e83874080933b60eb19edcdc602986eae9c12d826cbYES- AnonymousYES! Monica Juleshttps://docs.google.com/file/d/0B4u05OH4olj6UVI2TVhrSV9DRXM/edit?usp=sharing
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Oregonhttp://www.oregon.gov/gov/policies/diversity/Pages/proclamations.aspxinfo@oreds.orgYES- Dani Sequoia Davis- RobesonYES- Jan Groh, with the help of Dani Sequoia Davis!http://www.lifewitheds.com/2013/03/Proclamation-2013-May-EDS-Awareness-Month-Nevada-Ohio-Oregon.html https://docs.google.com/file/d/0B4u05OH4olj6emRncHBzWGtMYzQ/edit?usp=sharing
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Pennsylvaniahttp://ballotpedia.org/Governor_of_Pennsylvaniahttp://www.legis.state.pa.us/cfdocs/Legis/CSM/showMemoPublic.cfm?chamber=S&SPick=20130&cosponId=122142016* Also see Cities belowYES- Amie Knauerhttps://www.facebook.com/photo.php?fbid=827323569944&set=gm.690427824336930&type=1&theaterYES- Amie Knauer: https://docs.google.com/file/d/0B4u05OH4olj6c3hkTXBqT283bE0/edit?usp=sharinghttps://docs.google.com/file/d/0B4u05OH4olj6YTAxbGxxYVFxTTg/edit?usp=sharing
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Rhode Islandhttp://www.governor.ri.gov/contact/2015YES Ellen SmithYES- Ellen Smith and riedshttp://www.valleybreeze.com/2015-04-22/observer-smithfield-west/scituate-resident-suffering-ehlers-danlos-syndrome-spreads#.VTjGD2RVhHwYES- Ellen Smith
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South Carolinahttp://www.governor.sc.gov/ExecutiveOffice/Pages/Proclamations.aspxMAC EDS 13https://docs.google.com/file/d/0B4u05OH4olj6OHROdndpY2VibE0/edit?usp=sharing
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South Dakotahttp://sd.gov/governor/contact.aspx
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Tennesseehttp://www.tn.gov/governor/proclamation.shtml
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Texashttps://gov.texas.gov/contact/YES- Sandra Kay BarrYES- Sandra Barrhttps://docs.google.com/file/d/0B4u05OH4olj6bWVzZEQ0dzFkMzg/edit?usp=sharing
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Utahhttp://www.utah.gov/governor/declarations/
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Vermonthttp://governor.vermont.gov/contact-us/proclamation
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Virginiahttps://governor.virginia.gov/constituent-services/make-a-request/proclamations/http://www.governor.virginia.gov/ourcommonwealth/proclamations/2011/Ehlers-Danlos.cfmone day only in 2011YEShttps://governor.virginia.gov/constituent-services/proclamations/proclamation/ehlers-danlos-syndrome-awareness-month/Filed- awaiting status
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Washingtonhttp://www.governor.wa.gov/contact/requests-invites/request-proclamation-greeting-or-ceremonial-letterhttps://www.facebook.com/media/set/?set=a.395991478026.174594.546913026&type=12016Dani Davis-RobesonMayor of San Juan Island passed it locally, WA State would not, but this gives me ammunition to help for next year since I got it to be a forever proclamation. Woohoo! YES- Dani Sequoia Davis-Robesonhttps://www.facebook.com/events/1384045251919259/
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West Virginiahttp://www.governor.wv.gov/Pages/ProclamationRequestGuidelines.aspx
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Wisconsinhttp://walker.wi.gov/contact-us2013EDS Network CaresYES- Lynn Sanders
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Wyominghttp://governor.wyo.gov/wp-content/uploads/2015/01/Proclamation-Policy.pdf
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Puerto Rico
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CANADAhttp://en.wikipedia.org/wiki/Provinces_and_territories_of_Canada
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Alberta
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British Columbia
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Manitoba
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New Brunswick
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Newfoundland and Labrador
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Nova Scotia
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Ontario
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Prince Edward Island
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Quebec
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Saskatchewan2014City of North Battleford and EstevanYES- Anastacia Felix- North Battleford Jennifer Howie Estevan SKhttps://scontent-b-sea.xx.fbcdn.net/hphotos-frc3/t1.0-9/10308095_766586430040847_3293829528910907001_n.jpghttp://www.sasklifestyles.com/article/20140508/ESTLIFESTYLES0101/140509949/0/estlifestyles/local-resident-spreading-awareness-about-rare-condition
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Territorieshttp://en.wikipedia.org/wiki/Provinces_and_territories_of_Canada
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Northwest Territories
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Nunavut
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Yukon
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CITIES
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Lancaster, PA2016Yeshttps://drive.google.com/open?id=0B6Z-tyWlcWUXZjd2dExMOC00U3c
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San Diego, CA2015https://www.facebook.com/photo.php?fbid=10203463841583365&set=gm.818649878181390&type=1&theater
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***** TO ADD YOUR LINKS, FEEL FREE TO EDIT THIS SPREADSHEET, OR TO JOIN IN THE EFFORT, PLEASE JOIN US ON FACEBOOK AT: Ehlers-Danlos Proclamations
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***** Feel free to share this document with any/all groups: the goal is to build a cohesive group that includes all EDS Zebras throughout the nation/Canada, and eventually, Internationally!
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