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#PtEngagement Tools, Tips and Resources
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This workbook is a collection of feedback provided through several Twitter threads, starting with #HowNotToDoPtEngagement, and then migrating to #HowToDoPtEngagement. To date, it represents the insights from 74 unique patient partners and advocate organizations from within and outside Canada. I am deeply indebted to them sharing their thoughts, and for continuing this work.
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Canada = 36; USA = 19; England = 8; Unknown = 5; Australia = 2; New Zealand = 1; Ireland = 1; Ghana = 1.
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Last edited: Wednesday, March 21, 2018 by @brynphd
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A special acknowledgement to @couragesings for starting these two important threads and for sharing numerous resources to facilitate good patient engagement in clinical care and research. In reviewing these comments, please remember their words: "Know there isn’t a cookie cutter formula for engaging #pts. Always ask your #pt partners what works best for them."
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Contributors:
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Twitter HandleNameFromWebsite
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@AbSPORU_PEPAlberta SPOR SUPPORT Unit (PE platform)Canada
http://www.aihealthsolutions.ca/initiatives-partnerships/spor/patient-engagement-platform/
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@alexhaagaardAlex HaagaardCanadahttps://in-visibleproject.tumblr.com/
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@allyc375Alison Cameron #FBPEEnglandhttps://allywritesblog.wordpress.com
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@AmandaBolderstoAmanda BolderstonCanadahttps://doctoralbraindump.wordpress.com/
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@AmandaRossWhiteAmanda Ross-WhiteCanada
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@amaybeeAlies MaybeeCanadahttp://patientthinking.blogspot.ca/
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@anettoAnnette McKinnonCanadahttp://yourgoldwatch.blogspot.ca/
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@AureliaCottaAurelia CottaCanadahttp://nomatterhowsmall.blogspot.ca/
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@BantingJenniferJenn BantingCanada
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@BCampbellDukeBeth Campbell DukeCanadahttp://campbellduke.com/
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@BCSUPPORTUnitBC SPOR SUPPORT UnitCanadahttp://bcsupportunit.ca/
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@BrianDonnaPenn1Brian & Donna PennerCanada
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@ChronicallyJessJessica CaronUSAhttps://www.chronically-jess.com/
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@CJadams80Carl AdamsEngland
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@clockbirddesignClockwork FirebirdEngland
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@couragesingsCanadahttps://www.redbubble.com/people/couragesings
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@current_mikeCanadahttps://macromichael.com/
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@danamlewisDana LewisUSA
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@DeborrahSDeborrah Sherman
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@dianapoulsenCanadahttps://dianapoulsen.wordpress.com/
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@drlfarrellLiam FarrellIrelandhttps://drliamfarrell.wordpress.com/home/
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@DrMWeiserMargaret WeiserCanada
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@esiobhanoneilSiobhan O'Neil England
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@fqureFaisal Qureshihttps://fqure.github.io/
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@GailBellissimoG.BellissimoCanada
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@GenCounsNewsLeslie OrdalCanada
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@GERONursingJennifer BaumbuschCanadahttps://nursing.ubc.ca/our-people?c=78.4601809837321
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@gilmerHealthLawErin GilmerUSAhealthasahumanright.wordpress.com/about/
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@graceCordovanoGrace CordovanoUSAhttps://www.enlighteningresults.com/
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@heartSistersCarolyn ThomasCanadahttps://myheartsisters.org/
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@hedy_waldHedy WaldUSA
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@HelenKaragioHelen KaragiozakisAustraliahttps://t.co/i85XKBO7Di
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@hwittemanHolly WittemanCanadaholly.witteman.ca
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@janoldenburgJan OldenburgUSAjanoldenburg.com
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@JessHavens_Jess HavensCanada
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@Know_HGMargaret O'HaraEnglandpregnancysicknesssos.co.uk
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@kristine_lemon
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@kylierpeacockKylie PeacockCanada
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@leorapinhasPinhas Leora
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@lisafieldsmsLisa Fields
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@maladorphelinesRQMOrphelinesCanadarqmo.org
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@maritimesporMaritime SPOR SUPPORT UnitCanadahttp://www.spor-maritime-srap.ca/
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@MaryOCMackMary MACKUSAhttps://t.co/q6ViQRSfsw
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@miShouldTalkAmanda C. ItliongUSAhttps://t.co/WhQXvrwPlT
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@MMaxwellStroudMax StroudUSAhttp://blog.galenhealthcare.com/2014/06/13/the-work/
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@morgan_gleasonMorgan GleasonUSAhttps://morgangleason.com/
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@MortuaryReportace ratcliffUSAhttps://www.stayweirdbekind.com/bio
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@pacerinnovatesPacer InnovatesCanadapacerinnovates.ca
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@PatientAdvisorsPatient AdvisorsCanadapatientadvisors.ca
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@PatientIntvHeidi GrabenstatterUSApatientinitiative.org
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@patientlibraryPatient Exp LibraryEnglandhttps://www.patientlibrary.net
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@pattynecePatty NeceUSA
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@PharmacareFacesBill SwanCanadahttps://www.facesofpharmacare.ca/
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@RaeofSunshine79Rachel MartensCanadahttps://coffeeandresearch.blogspot.ca/
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@researchgirlcaCanada
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@RobynKLaczyRobyn LaczyCanada
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@salthorneSally ThorneCanadahttps://nursing.ubc.ca/our-people?c=51.2249938994628
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@SandraWoodsMtlSandra Woods, CIPP/CCanadahttps://www.linkedin.com/in/sandrawoodsmtl/
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@savvy_coopSavvy CoopUSAsavvy.coop
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@seastarbatitaIsabel JordanCanadahttp://modelingchange.blogspot.ca/
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@ShariBerman68Shari BermanUSAhttps://lifeaccordingtosomebody.com/
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@ShereesePubHlthShereeseM, MS/MBAUSAhttps://about.me/shereesemaynard
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@SKoczkurSusanna KoczkurCanada
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@StephEBasSteph EduseiEnglandanewviewconsultancy.com
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https://twitter.com/tanthonyhowell
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@thePatientsSideAmy GleasonCanadahttp://amygleason.blogspot.ca/
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@TheSameMelMelody SmithUSA
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@TimothyKariotisTKariotisAustralia
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@tjhockeymomTracy WasylakCanada
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@trishpatonTrish Paton
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@TuneInHealthCanada
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@UnuhinuiiAnna MUSA
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@unsuicideSandraCanadaunsuicide.wikispaces.com
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@WellbeingWgtnWellbeing Wellington
New Zealand
https://wellbeingwellington.nz/
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@yawampomaYaw AmpomahGhanahttps://publichealthconcern.wordpress.com/
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@ZakkisMomStephanie MiddletonUSA
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