| A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z | AA | |
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1 | August 27, 2023 (2-3:30pm PT) - "Gadget/Equipment and Techniques/Tricks" Meeting (virtual) | ||||||||||||||||||||||||||
2 | Brain Support Network (supportgroup@brainsupportnetwork.org) and | ||||||||||||||||||||||||||
3 | Stanford University Parkinson's Community Outreach (rriddle@stanford.edu) | ||||||||||||||||||||||||||
4 | Meeting host: Candy Welch, volunteer with Brain Support Network | ||||||||||||||||||||||||||
5 | Meeting note-taker: Mindy Lumm, volunteer with Brain Support Network | ||||||||||||||||||||||||||
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7 | Person | Recommended Item | URL | ||||||||||||||||||||||||
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9 | Category - Mealtime | ||||||||||||||||||||||||||
10 | Carrie V. | "It's a spoon that stabilizes itself against tremor, allowing the part that goes into your mouth to stay still while your hand is shaking." $200 | liftware.com/steady | ||||||||||||||||||||||||
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13 | Category - smartphone apps and Apple devices | ||||||||||||||||||||||||||
14 | Tamara S. | Voice Analyst: Pitch and Volume (includes recording feature to share w/clinicians). Free app for Apple and Google | https://speechtools.co/voice-analyst | ||||||||||||||||||||||||
15 | Tamara S. | Decibel X (includes recording feature and has a really good user interface). Free app for Apple and Google. | https://skypaw.com/decibel10.html | ||||||||||||||||||||||||
16 | Denise D. and other commenters | Apple watch and other watches that detect falls. Apple "Workouts" may be those the watch is recording data for. | Apple: Settings, SOS, Fall Detection (always on, or only during workouts) | ||||||||||||||||||||||||
17 | Doug D. | Showing photos from an iPad or iphone on a (smart) TV for vision-impaired people. Connect via Apple AirPlay and Lightning cable. Same technique available for Android phones. Get a long cable. | |||||||||||||||||||||||||
18 | Doug D. | Sends stuff wirelessly from PC to TV. (Connect to "wireless display") Showing photos or emails for vision-impaired. | |||||||||||||||||||||||||
19 | Doug D. | "Snug Safety" - free app | |||||||||||||||||||||||||
20 | Michelle P. | TD Pilot: eye-controlled communication device for iPad | https://us.tobiidynavox.com/pages/tdpilot | ||||||||||||||||||||||||
21 | Kathy S. | Safewander bed alarm system. Requires wifi. Connects to phone. Kathy says: " I hesitated because literature said clothing must be tight fitting but this hasn’t been true." $199 sensor + transponder. ($79 sensor only) | https://www.safewander.com/ | ||||||||||||||||||||||||
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24 | Category - Safety | ||||||||||||||||||||||||||
25 | Nicole S. | Stainless steel grab bars. Nicole uses different sizes all over the house, in places where falls are likely. Her father uses them like monkey bars. | One brand is Moen: https://www.amazon.com/Moen-R8918P-18-Inch-Bathroom-Peened/dp/B001EHVERG | ||||||||||||||||||||||||
26 | Rose M. | Motion sensor night light. (Light only comes on when motion. Stays on 30sec) inexpensive; plug-in (battery-operated available too) | One brand is Auvon: https://www.amazon.com/AUVON-Nightlight-Adjustable-Brightness-Bathroom/dp/B07MLS6H2S/ref=sr_1_1_sspa? | ||||||||||||||||||||||||
27 | Gail | anti-blue night light (if you are sensitive to light) | |||||||||||||||||||||||||
28 | Michelle P. | Swivel tub transfer seat. This brand is $300. Doug D. says to consider getting an extender (if you have a deep shower); works great. | https://www.platinumhealthllc.com/products/carousel-sliding-transfer-bench-with-swivel-seat-free-online-bonus-offer-1 | ||||||||||||||||||||||||
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31 | Category - Pressure sore prevention | ||||||||||||||||||||||||||
32 | Michelle P. | Low air loss mattress. Helps prevent pressure ulcers and improve wound healing. Covered by Medicare. (Robin R seconded) | https://www.joerns.com/products/dermafloat-apl/ | ||||||||||||||||||||||||
33 | Michelle P. | Prevalon heel protector boot. Cushioned Boot for Heel Pressure Relief for Bed-Bound Individuals. Covered by Medicare. (Candy seconded) | https://www.amazon.com/Sage-Products-Prevalon-Heel-Protector/dp/B01MRE4WOW?th=1 | ||||||||||||||||||||||||
34 | Michelle P. | Adding soft pillows under elbows and at knees. Candy seconds. | |||||||||||||||||||||||||
35 | Michelle P. | ROHO wheelchair seat cushion. Adjustable for weight and shape (button control), contoured surface. (RobinR seconds) (Cheryl, an OT, says to be careful. Need to follow directions for the air pump.) | https://www.permobil.com/en-us/products/seating-positioning/cushioning-products/roho/select-series/roho-quadtro-select-cushion | ||||||||||||||||||||||||
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38 | Category - Mobility | ||||||||||||||||||||||||||
39 | Robin R. | Undercushion sofa grab bars ("chair stand assist" or "sofa stand assist") - mentioned last time but there a some brands that don't have the bars at foot-level (which might be safer) | Kind with bars at foot-level: https://www.easycomforts.com/buy-universal-stand-assist-351312 https://ablelifesolutions.com/product/universal-stand-assist/ Kind w/o bars at foot-level: (Vive - a brand) https://www.vitalitymedical.com/vive-stand-assist-aluminum-handrail.html | ||||||||||||||||||||||||
40 | Nicole S. | Remove bed frame to make the bed lower. Nicole's father can more easily get in/out of bed. Joan seconds. Doug uses bed w/6" legs. Denise suggests.... | |||||||||||||||||||||||||
41 | Candy W. | Risers at head of bed | |||||||||||||||||||||||||
42 | Nicole S. | Purchase a sturdy oak kitchen chair w/arms to have around in case of falls (so the faller can use it to get off the floor). Nicole got one for $20 at Goodwill. | |||||||||||||||||||||||||
43 | Robin R. | Portable "chair lifts." One brand - Carex Upeasy Seat Assist Plus | carex.com | ||||||||||||||||||||||||
44 | Dag | Comodita Tipo All Terrain Rollator Walker. Highly collapsible. Comes with a suitcase-like carry case. Very stable and collapsible. $330 | https://www.comoditausa.com/rollators/tipo-all-terrain | ||||||||||||||||||||||||
45 | Dag | Let's Fly Rollator, Euro Style Walker. Very lightweight. (Trust Care brand) $590. | https://stander.com/product/lets-fly/ | ||||||||||||||||||||||||
46 | Dag | Karman foldable wheelchair for travel. 24.5 lbs. | https://www.karmanhealthcare.com/product/lt-980-ultra-lightweight-wheelchair/ | ||||||||||||||||||||||||
47 | Dag | Vive Rollator Travel Bag and Transport Chairs - for Folding Walker, Compact Wheelchair (35” x 26” x 9.5”) | https://www.amazon.com/Vive-Rollator-Travel-Bag-Black/dp/B07G5LDDN4/ref=sr_1_3? | ||||||||||||||||||||||||
48 | Dag and Joan (w/comment by Mark) | Stander security pole w/curved grab bar. (repeat from last webinar w/some new info) Joan - Medicare paid for part of it w/an MD's RX. Mark O - here's a review by an OT of this pole: https://www.youtube.com/watch?v=qPLsQNHKItA | Device from last webinar: https://www.amazon.com/Standers-Security-Pole-Curve-Grab/dp/B000OR3SYE | ||||||||||||||||||||||||
49 | Michelle P. | Car Transfer Mobile Floor Lift. Person to be transferred hangs in a sling from a frame that folds small enough to fit in the trunk of a sedan, although probably easier to slide into an SUV or minivan | https://www.bestcarellc.com/pl350ct/ | ||||||||||||||||||||||||
50 | Michelle P. | Mini compact sit-to-stand lift | https://www.bestcarellc.com/sa400h-he-mini-sit-to-stand-lift/ | ||||||||||||||||||||||||
51 | Michelle P. Seconded by Judith | Offset hinges. Widen doorways for wheelchair or lift access. Judith: did widen their doors. | https://www.amazon.com/Offset-3-Pack-Radius-Brushed-Nickel/dp/B08XMXF6ZL/ref=sr_1_7? | ||||||||||||||||||||||||
52 | Michelle P. | Hospital bed - Drive Medical is one brand. Lighter than many hospital beds, 9v battery backup. Covered by Medicare. | https://www.drivemedical.com/us/en/products/beds/homecare-beds/semi-electric-beds/delta-ultra--light-1000-semi-electric-bed/p/794-1 | ||||||||||||||||||||||||
53 | |||||||||||||||||||||||||||
54 | Category - Clothing/Shoes | ||||||||||||||||||||||||||
55 | Alison R. (seconded by Jane; another product mentioned by Kaly) | another brand of hands-free shoes: Skechers Slip-Ins. "variety of designs - extra arch support, memory foam inserts, etc. brother appreciates being able to put them on/remove them w/o help. super comfortable, brother says." Kaly: kizik brand (covered at last webinar) | https://www.skechers.com/skechers-slip-ins-ultra-flex-3.0---smooth-step/232450.html kizik.com | ||||||||||||||||||||||||
56 | Dag | Ikea Kallax storage display case (w/drawers) | |||||||||||||||||||||||||
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59 | Category - Incontinence and Hygiene | ||||||||||||||||||||||||||
60 | Joyce McP | Cut a piece of under rug anti-slide mesh and puts it under bed pads to keep them from sliding | |||||||||||||||||||||||||
61 | Nicole S. | One brand of portable "spill proof" urinals (models for men and women) - Oocome | |||||||||||||||||||||||||
62 | Nicole S. | We'll try to share a photo of how Nicole attaches part of the Oocome urinal to the toilet. | need to post photo! | ||||||||||||||||||||||||
63 | Rose M. (seconded by Kaly) | Puppy pads (Costco Kirkland brand $22 for 100 extra large size; puppy pads cheaper than human pads!) Also available at Target and other sources, but more $ and not as large. Kaly: adds pads above and below fitted sheet and uses double stick tape at the corners to keep in place | |||||||||||||||||||||||||
64 | Dag | Waterproof Reusable Washable Elderly Incontinence Care Protection Underwear. Uses them with folded washcloths instead of the inserts -- easier to rinse and dry for small quantities of urine. Update 8/23: Dag finds these inconvenient now; leakage when rolling onto one's side. | https://www.amazon.com/dp/B098L6Z756 | ||||||||||||||||||||||||
65 | Dag | LivDry brand (now prefers) - holds 20oz of urine. Some leakage when getting out of bed. | |||||||||||||||||||||||||
66 | Michelle P. (Seconded by Judith) | Bidet toilet seat. (Different brand from last webinar.) Judith: had a plumber install but one could install oneself; need an outlet handy; paid $299. | https://biobidet.com/collections/bidet-seats/products/uspa-6800u? | ||||||||||||||||||||||||
67 | Kaly | Abena incontinence brand (multiple options)- pull ups hold 40oz, briefs hold nearly 1gal.; reduces fall risk walking to the toilet and having to change sheets at night | https://www.abena.com/healthcare/incontinence-products/abena-pants/product/abena-pants-m3 | ||||||||||||||||||||||||
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70 | Category - Medication Mgmt | ||||||||||||||||||||||||||
71 | Nicole S. (Seconded by Mindy) | pharmacies can put your pills in a unique pouch, based on the time you need to take the pills. Mindy: if meds change, the pharmacy will take it back and re-do the pak. | pillpack.com - Amazon (takes insurance) Other pharmacies offer the same service | ||||||||||||||||||||||||
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74 | Category - Writing Tools | ||||||||||||||||||||||||||
75 | Christine Hirabayashi, PhD | Create a weighted pencil by putting (lug) nuts around the pencil and securing the lug nuts with electrical tape or rubber bands | |||||||||||||||||||||||||
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78 | Category - Low Vision/ Dementia Tools | ||||||||||||||||||||||||||
79 | Sheila. Seconded by Joan. | 7" digital calendar clock with alarms | https://www.amazon.com/dp/B07C2LL3XF?th=1 | ||||||||||||||||||||||||
80 | Robin to try to find "meal clock" | ||||||||||||||||||||||||||
81 | |||||||||||||||||||||||||||
82 | Note: Michelle P. recommendations are from Jan '23 MSA Coalition blog post, "You Don't Know What You Don't Know - Equipment for MSA" - https://www.multiplesystematrophy.org/blog/you-dont-know-what-you-dont-know-equipment-for-msa/ | ||||||||||||||||||||||||||
83 | |||||||||||||||||||||||||||
84 | |||||||||||||||||||||||||||
85 | June 27, 2021 - "Gadget" Meeting (virtual) | ||||||||||||||||||||||||||
86 | Brain Support Network (supportgroup@brainsupportnetwork.org) and | ||||||||||||||||||||||||||
87 | Stanford University Parkinson's Community Outreach (rriddle@stanford.edu) | ||||||||||||||||||||||||||
88 | Meeting host was Candy Welch, volunteer with Brain Support Network | ||||||||||||||||||||||||||
89 | Meeting note-taker was Mindy Lumm, volunteer with Brain Support Network | ||||||||||||||||||||||||||
90 | |||||||||||||||||||||||||||
91 | Recommended Item | URL for More Information | |||||||||||||||||||||||||
92 | |||||||||||||||||||||||||||
93 | Category - Mobility | ||||||||||||||||||||||||||
94 | UStep walker | ustep.com (largely reimbursed by Medicare Part B) Marnie used: https://www.thewrightstuff.com/in-step-mobility-products.html | |||||||||||||||||||||||||
95 | Pivot disk [Marnie showed] | https://www.amazon.com/Drive-Medical-Lifestyle-Transfer-Disc/dp/B005AK41W8 | |||||||||||||||||||||||||
96 | Gait belt (72" fabric) There are many other kinds. | https://www.amazon.com/Essential-Medical-Supply-Metal-Buckle/dp/B00366DTLW | |||||||||||||||||||||||||
97 | |||||||||||||||||||||||||||
98 | Category - Safety | ||||||||||||||||||||||||||
99 | Raizer remote-controlled lift for getting someone off floor | raizer.com; costs $2K; from Norway | |||||||||||||||||||||||||
100 | Gurney for picking up someone from the floor. (Takes 4-5 people to lift.) | https://www.amazon.com/LINE2design-Emergency-Transport-Stretcher-Gray-Handles-1500/dp/B01A9A0OBU |