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2 | 2026 Education for Empowerment | ||||||||||||||||||||||||||
3 | Session Title | Session Description | Length | Facilitated by | Session Type | Notes | |||||||||||||||||||||
4 | ADULTS | ||||||||||||||||||||||||||
5 | Advocating in the ER | Having to advocate for yourself or a loved one’s care can be difficult, especially in an urgent situation! This presentation will cover how to prepare in advance for an emergency, and provide information to help you navigate difficult situations that you may encounter when you are in the emergency room. | 60 min | NBDF Staff | Presentation with Q&A | ||||||||||||||||||||||
6 | Aging as a Person with a Bleeding Disorder | While getting older is part of our lives, it often comes with new and unknown hurdles. This holds particularly true for the inherited blood and bleeding disorders community. This discussion based workshop will explore what we have learned about aging with a bleeding disorder, while providing a space for sharing lived experiences. You will be provided with resources and skills to navigate the unknown. | 60 min | Speaker's Bureau | Group Discussion | Can be done without A/V | |||||||||||||||||||||
7 | Candid Conversations | The bleeding disorders community continues to experience increases in the number and types of therapies available to treat bleeding disorders. What new therapies seem promising? What parts of our community need more representation and support? This will be a moderated session that includes lived experience experts (LEEs), and physicians who will provide their perspectives on the changing landscape of bleeding disorders. | 60 min | NBDF Staff | Panel Discussion | *Plenary session for 75+ attendees *Maximum of 4 speakers *This session will be available for up to 3 chapters | |||||||||||||||||||||
8 | Chair Yoga - NEW for 2026 | Join us for a yoga class that offers a gentle and accessible way for individuals of all ages and abilities to experience the benefits of yoga while staying on or near the floor while utilizing props for support. Practioners will engage in a series of poses and movements that focus on breath and body awareness. We’ll cultivate an empowering atmosphere of inner calm and relaxation with others in our bleeding disorder community. | 60 min. | Speaker's Bureau | Workshop | *This session can also be done as a floor yoga session if the chapter has yoga mats they can provide. *This session is best for a breakout session or retreat | |||||||||||||||||||||
9 | Community Conversations - NEW for 2026 | Every story has the power to connect, encourage, and inspire. In this session, community members living with bleeding disorders share their personal experiences in a moderated panel discussion. Featuring a mix of perspectives—from adults and young adults to parents and caregivers—this session highlights the many ways people navigate life with a bleeding disorder. Each panel is tailored to the needs of the chapter, making it a meaningful opportunity for learning and connection. This session is especially valuable for new families who want to hear real stories and find support within their community. | 60 min. | NBDF or Chapter | Panel Discussion | *This session can be moderated by NBDF or chapter staff with NBDF assisting with developing questions for the panel. *Chapter staff will be responsible for recruiting speakers for the panel from their chapter. | |||||||||||||||||||||
10 | Cracking the Code: Understanding Your Health Insurance Coverage, Needs, and Coming Changes - NEW for 2026 | We all know navigating insurance coverage for those with bleeding disorders is confusing, stressful, and downright scary! This session from the NBDF Public Policy & Access Department untangles the complexity of insurance coverage, important considerations for the bleeding disorder community, and tips on navigating new insurance changes on the state and federal levels". | 60 min. | NBDF Public Policy & Access Team | Presentation with Q&A | *The Public Policy and Access Team will be available to speak at events from April - July and September - 1st week of December *The Team will be able to speak at up to 4 events. | |||||||||||||||||||||
11 | Don't Fear the Poke | From gloves and tourniquets to medication and sterilization, it’s no wonder infusions and injections can feel overwhelming for kids. Needle fear and phobia are common, but they don’t have to stand in the way of treatment. This workshop is designed for parents, offering tools and strategies to help your child manage anxiety, reduce stress, and face infusions and injections with greater confidence. | 60 min | Speaker's Bureau | Workshop | ||||||||||||||||||||||
12 | Dream It, Do It: Empowered Goal Setting - NEW for 2026 | This session is designed to help people and families living with bleeding disorders to thrive through empowered goal setting. Participants will learn how to set goals through self-examination of key focus areas including family, work or school, health, social and spiritual wellbeing, community building, and managing bleeding disorders. Participants will be able to identify their goals and priorities and develop a list of action items to achieve them. | 60 min. | NBDF Staff | Workshop | Tables are needed for the audience | |||||||||||||||||||||
13 | Finding Light in the Shadows: Coping with Grief - NEW for 2026 | Grief affects each of us differently, especially when living with a bleeding disorder. Yet many carry this grief alone, unsure of how or with whom to share it. This session welcomes anyone who has experienced any form of grief, whether through death, a job loss, divorce, or other major life change. We will explore personal grief, listen with compassion, and provide support without judgement. Together we will create a safe space to share experiences, connect with others who truly understand, and discover ways to heal, grow, and build resilience. | |||||||||||||||||||||||||
14 | Finding the Strength through the Struggle | As a person with a bleeding disorder, you have individual struggles and triumphs. There are many people – even some you haven’t met – who care deeply about the challenges you face. Join us for this interactive workshop that will focus on you; your hopes and your empowerment. You will learn how to harness frustration and turn it into positive action. You will walk away feeling energized and ready to face a new day! | 60 min | NBDF Staff | Workshop | This session is best as a breakout session where tables are available for writing | |||||||||||||||||||||
15 | From Past to Present: The History of Bleeding Disorders and NBDF | This presentation explores the significant milestones in the history of bleeding disorders and the pivotal events that led to the establishment of the National Bleeding Disorders Foundation (NBDF). Attendees will gain insights into the timeline of awareness, advocacy, and education efforts that led to driving progress within this community. | 60 min | NBDF Staff | Presentation with Q&A | ||||||||||||||||||||||
16 | How do you THRIVE? | Join the empowering THRIVE campaign, an initiative by NBDF designed to educate individuals with bleeding disorders and their support networks. Through this interactive workshop, discover six key steps for leading a healthy life with a bleeding disorder, offering valuable knowledge and resources to empower both you and your loved ones. | 60 min | NBDF Staff | Workshop | Tables are needed for the audience | |||||||||||||||||||||
17 | How to be a Savvy Community Member | Having a blood or bleeding disorder comes with great responsibility to get the best care possible. This interactive session will give you information on the sometimes confusing acronyms – HTC, 340B, HRSA, etc. – which can be a roadblock to getting care. You will learn the critical questions to ask when choosing a medication provider. You will also gain an understanding of the responsibility that parents, consumers, pharmaceutical and homecare representatives have in following the rules and laws that affect us all. | 60 min | NBDF Staff | Presentation with Q&A | ||||||||||||||||||||||
18 | Journey Through the Clotting Cascade | Journey Through the Clotting Cascade" is an engaging and interactive workshop that brings the complex clotting process to life through a hands-on escape room themed activity. You will gain a deeper understanding of the clotting cascade and the vital role it plays in the body's response to bleeding. | 60 min | NBDF Staff | Workshop | Breakout session for a small group (no more than 20 people). Tables are needed for this session. | |||||||||||||||||||||
19 | Medical Marijuana: A Way to Manage Your Pain? | Medical marijuana is increasingly legal and used as a remedy for pain. This session will explain what people with bleeding disorders need to know should you be considering medical marijuana as part of a pain treatment plan. | 60 min | Speaker's Bureau | Presentation with Q&A | ||||||||||||||||||||||
20 | Navigating Clinical Trials | Clinical trials are key to advancing safe and effective treatments for blood and bleeding disorders. They are an important step in the FDA drug-approval process and provide researchers with invaluable data about a drug’s effectiveness and side effects. With the pace of innovation, it is important to understand the Clinical Trials process - including informed consent - and what your role is should you choose to participate. | 60 min. | NBDF Research Team | Presentation with Q&A | ||||||||||||||||||||||
21 | Pain Explained | Many people with blood and bleeding disorders find that bleeding-related pain and joint damage impact their quality of life. This workshop will improve your understanding of how pain affects people with a bleeding disorder and approaches for managing pain. It will also provide you with innovative tips, tools, and skills to decrease your experience of pain without taking a pill. | 60 min. | Speaker's Bureau | Presentation with Group Discussion | ||||||||||||||||||||||
22 | Pressure Points: Understanding Stress and Finding Relief | Stress touches everyone, but it can look and feel different depending on what you’re going through. In this session, we’ll explore what stress really is, how it shows up in our bodies and minds, and the many ways people experience it. We’ll also talk about common sources of stress—like job loss, finances, divorce, or managing a chronic condition—and share practical coping strategies to handle life’s challenges. Participants will leave with a better understanding of stress and simple, realistic tools to help manage it in daily life. | 60 min. | Speaker Bureau | Presentation with Group Discussion | This session was formerly called, "Mental Health: A Deeper Dive" | |||||||||||||||||||||
23 | Reproductive Health, Menstruation, and Menopause | Reproductive health, menstruation, and menopause are vital topics in the lives of girls, women, and those who have or had the potential to menstruate. Yet, our conversations about these within the blood and bleeding disorders community have been sparse. It's time to change. This workshop will provide a deeper dive into physiological components of these topics, highlight implications for bleeding disorders, and provide essential skills and resources to you. | 60 min | Speaker's Bureau | Presentation with Group Discussion | ||||||||||||||||||||||
24 | Shared Decision Making and the Shift to Person Centered Care | You are the lived experience expert of your and/or your child's blood or bleeding disorder. And, as the lived expereience expert, you are the center of your care network and a vital member of the shared-decision making process. This workshop will explore the shift towards person-centered care and outline the concepts of shared-decision making. In addition, you will gain advocacy and communications skills as well as important resources. | 60 min. | NBDF Staff or Speaker Bureau | Presentation with Group Discussion | ||||||||||||||||||||||
25 | Steps for Living: Navigating Life with a Bleeding Disorder | Do you know about Steps for Living (SFL)? Join us for this engaging session where we will present our revamped website with practical resources and tips for people with bleeding disorders for all ages and many types of bleeding disorders. We will talk about the different stages of life and highlight some of the important topics and changes to consider related to treatment, staying healthy, life transitions to daycare, school, college, work, as well as health insurance, financial literacy, and more. | 60 min | NBDF Staff | Workshop | Wifi is needed for this session | |||||||||||||||||||||
26 | The Basics of Innovative Therapies: What You Need to Know | We continue to see significant research and innovation in the treatment of hemophilia and VWD. It is becoming more important than ever to stay informed on all the advancements and innovation – what they are, how they work in the body and how safe they are. Understanding all the options including currently approved treatments and the promise and limitations of each type of therapy will enable you to have informative conversations with your providers to make the best treatment decision for you. This session will provide a basic overview of current and future treatment options for hemophilia and VWD and make these complex concepts more understandable. | 60 min. | Speaker's Bureau | Presentation with Q&A | ||||||||||||||||||||||
27 | Ultra-Rares and Personal Advocacy | This session will explore the lived experiences of the ultra- rare bleeding disorders community through a personal advocacy lens. This is a discussion- based session that will allow you to learn from fellow community members' experiences in addition to sharing your challenges, experiences, and perspectives. | 60 min. | NBDF Staff | Presentation with Group Discussion | This is a similar presentation to the "Women and Personal Advocacy" presentation but through the lens of ultra rare bleeding disorders instead of being focused solely on women. | |||||||||||||||||||||
28 | Using Your Voice to Shape the Future of Research | Research is the engine that drives better treatments, stronger advocacy, and a healthier future for everyone affected by bleeding disorders but it cannot move forward without the community. This session will spotlight the vital role that individuals play in shaping the research landscape, far beyond traditional clinical trials. Attendees will learn how their lived experiences, insights, and stories can provide the foundation for scientific discovery and improved care. Through engaging discussion and real-world examples, we will explore a wide range of research opportunities accessible to all—such as patient registries, survey participation, observational studies, advisory panels, and community-driven research partnerships. Attendees will gain a clearer understanding of how these contributions fuel innovation, influence policy, and guide the development of new therapies and support programs. By the end of the session, attendees will feel empowered and inspired, recognizing that every contribution matters. | 60 min. | NBDF Staff | Presentation with Group Discussion | ||||||||||||||||||||||
29 | Who's Taking Care of the Caregiver? | Through engaging discussion and real-world examples, we will explore a wide range of research opportunities accessible to all—such as patient registries, survey participation, observational studies, advisory panels, and community-driven research partnerships. Attendees will gain a clearer understanding of how these contributions fuel innovation, influence policy, and guide the development of new therapies and support programs. | 60 min | NBDF Staff | Workshop | Tables are needed for the audience | |||||||||||||||||||||
30 | Women and Personal Advocacy | By the end of the session, attendees will feel empowered and inspired, recognizing that every contribution matters. | |||||||||||||||||||||||||
31 | Women Bleed Too: Looking at Women in Research - NEW for 2026 | For decades, women in the bleeding disorders community have been overlooked, underdiagnosed, and underrepresented in research. We will explore the long-standing research gaps that have contributed to women being diagnosed much later than men, often after years of symptoms going dismissed or unrecognized. Participants will learn what current studies reveal about women's unique experiences with bleeding disorders, including the physical, emotional, and reproductive health impacts that have too often been misunderstood or ignored. We will also share how emerging research is beginning to close these gaps and why women's participation is essential to building a more equitable future. From surveys and registries to advisory roles and clinical studies, there are many ways for women to add their voices, share their experiences, and help shape the next generation of care. This session aims to educate, validate, and empower. Women will learn how their involvement in research today can ensure that future generations of women receive earlier diagnosis, better treatment, and the care they deserve. | 60 min. | Research Team | Presentation with Q&A or Presentation with Group Discussion (whichever the Chapter prefers) | ||||||||||||||||||||||
32 | Your Roadmap to Resources | Discover a wealth of educational tools and support designed for individuals with inherited bleeding disorders and their caregivers. In this session, we’ll guide you through NBDF's comprehensive library of resources—covering everything from treatment basics and self-management tips to communication strategies with healthcare professionals. Whether you’re newly diagnosed or a long-time advocate, you’ll leave with practical information to help you feel empowered and confident in navigating every step of your bleeding disorder journey. | 60 min | NBDF Staff | Presentation with Q&A | ||||||||||||||||||||||
33 | TEENS | ||||||||||||||||||||||||||
34 | Being Different, Belonging Together! | Bullying has become a major public health issue. In this interactive workshop we will be tackling the topic of bullying amongst teenagers. Through a creative process you will be able to address questions, feelings, and concerns you might have. You will receive helpful tips on how to navigate difficult situations and come up with creative solutions for creating a safe environment. | 45 - 60 min | Speaker Bureau | Workshop | ||||||||||||||||||||||
35 | Don't Fear the Poke | Infusions and injections are scary. There are gloves and tourniquets and medication; skin to sterilize and steps to follow. And then, there is the poke. This workshop will explore needle fear and phobia in teenagers and will provide you with essential skills to take charge of your fears and navigate this daunting task. | 45 - 60 min | Speaker's Bureau | This session is being revised for 2026 and will include updated activities. | ||||||||||||||||||||||
36 | Do You Bleed Like Me? | The blood and bleeding disorders community is a very educated and empowered group of people, but how much do you know about bleeding disorders other than your own? “Do You Bleed Like Me?” gives you an opportunity to test your knowledge with your peers! By the end of the workshop, you will be able to assess your knowledge, discuss things you wished others knew, and break down barriers within your community. | 45 - 60 min | NBDF Staff | Workshop | A group that has several different bleeding disorders is best for this session | |||||||||||||||||||||
37 | Failure is an Option | We often hear that “failure is not an option.” However, by acknowledging and understanding our greatest failures, we can experience some of our deepest moments of personal growth. In this interactive workshop, you will learn how to celebrate your failures in a safe environment and walk away feeling more empowered and confident. | 45 - 60 min | NBDF Staff | Workshop | ||||||||||||||||||||||
38 | Being a Leader While Gen Z - NEW for 2026 | ‘Being a Leader While Gen Z’ is a workshop designed to develop and strengthen leadership skills among young adults within the bleeding disorders community. Through real-world examples and interactive activities, participants will explore what effective leadership looks like, and what ineffective leadership looks like. As well as learn how leadership directly impacts group dynamics and community success. Emphasis is placed on shared decision-making, personal responsibility, and peer support, empowering participants to contribute positively to their communities. The workshop also provides practical strategies for addressing challenges which many leaders may face. | |||||||||||||||||||||||||
39 | Goals That Matter: Build the Life You Want - NEW for 2026 | Living with a bleeding disorder can make life feel full of challenges, but setting the right goals can help you take charge and move forward. In this session, teens will explore what matters most to them—school, health, friendships, family, community, and more. You’ll learn how to set goals that fit your life, break them down into steps you can actually follow, and walk away with a personal action plan to help you thrive. | 60 min. | NBDF Staff | Workshop | Tables are needed for the audience | |||||||||||||||||||||
40 | Jeopardy | Bleeding disorders for 500 Please! Who wouldn’t want to test their knowledge in a fun, interactive way? This versatile game engages teens as they learn new information on bleeding disorders… unless they’re already experts! | 60 min. | NBDF Staff | Workshop | ||||||||||||||||||||||
41 | Journey Through the Clotting Cascade | Journey Through the Clotting Cascade" is an engaging and interactive workshop that brings the complex clotting process to life through a hands-on escape room type activity. You will gain a deeper understanding of the clotting cascade and the vital role it plays in the body's response to bleeding. | 45 - 60 min | NBDF Staff | Workshop | Tables are needed for the audience | |||||||||||||||||||||
42 | Level Up: Navigating Independence With a Bleeding Disorder | From the excitement of moving up to high school to the challenge of choosing a college or beginning to work, each stage of your life brings new opportunities—along with fresh hurdles when managing a bleeding disorder. This session is all about helping you “level up” your self-advocacy skills so you can tackle each transition with confidence. We’ll talk about handling medication and treatment routines on your own, traveling with a bleeding disorder, and scheduling healthcare appointments. Get ready to discover the tips, tricks, and life hacks that will empower you to thrive every step of the way! | 45 - 60 min | NBDF Staff | Workshop | ||||||||||||||||||||||
43 | Mental Health for Teens | Mental Health issues are not just for adults, but also affect younger generations. It is important to recognize and understand the mental health challenges impacting teenagers in the blood and bleeding disorders community. This session will equip you with a greater knowledge, innovative strategies, skills, and resources to tackle these challenges. | 60 min. | Speaker's Bureau | Presentation with Group Discussion | ||||||||||||||||||||||
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45 | KIDS | ||||||||||||||||||||||||||
46 | Being Different, Belonging Together! | Bullying has become a major public health issue and it often starts at a very young age. Through a creative process we will discuss this topic and you will be able to address questions, feelings, and concerns you might have. You will receive helpful tips on how to navigate difficult situations and come up with creative solutions for creating a safe environment. | 30 - 60 min | NBDF Staff | Workshop | ||||||||||||||||||||||
47 | Building Blocks of You | There are many different aspects that make up how an individual perceives themselves and their larger community. This interactive workshop is an exploration of the parts that make up you. Participants will learn about the role we each play in our smaller communities and the bleeding disorders community. We will explore these questions and more through hands-on activities and guided open discussions. | 30 - 60 min | NBDF Staff | Workshop | ||||||||||||||||||||||
48 | Clotting for Kids | Understanding the clotting process is important when learning about your blood or bleeding disorder. This fun and interactive workshop assigns a job to each player in the clotting process and will bring the science to life by acting out what is happening in the body to stop the bleeding. | 30 - 60 min | NBDF Staff | Workshop | ||||||||||||||||||||||
49 | Don't Fear the Poke | Infusions and injections are scary. There are gloves and tourniquets and medication; skin to sterilize and steps to follow. And then, there is the poke. This workshop will explore needle fear and phobia in kids and will provide you with essential skills to take charge of your fears and navigate this daunting task. | 30 - 60 min | Speaker's Bureau | Presentation with Group Discussion | This session is being revised for 2026 and will include updated activities. | |||||||||||||||||||||
50 | Ink to Advocacy - NEW for 2026 | Everyone has the power to make a difference, especially YOU! In this session, kids ages 9-12 will hear from a speaker who has used their voice to advocate for themselves and others in the bleeding disorders community. After hearing their inspiring story, kids will get a chance to bring their own advocacy journey to life through art! Each participant will receive a blank comic strip to illustrate a way they can stand up for themselves or help others, whether they have a bleeding disorder or not. Through creativity and conversation, kids will discover that being an advocate isn’t just about big moments—it’s about everyday actions that make a difference. | |||||||||||||||||||||||||
51 | Jeopardy for Kids - NEW for 2026 | Get ready to play Jeopardy—just for kids! In this fun, game-show style session, kids will test their knowledge by answering questions pulled from the Steps for Living website’s special kids section. From health and safety to everyday life with a bleeding disorder, the questions are designed to be both fun and educational. Kids will have the chance to learn new facts, show what they know, and cheer each other on in a lively and interactive game. | 60 min. | NBDF Staff | Workshop | ||||||||||||||||||||||
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