| A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z | |
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1 | June 27, 2021 - "Gadget" Meeting - Brain Support Network (supportgroup@brainsupportnetwork.org) and Stanford University Parkinson's Community Outreach (rriddle@stanford.edu) | |||||||||||||||||||||||||
2 | Meeting host was Candy Welch, volunteer with Brain Support Network | Video posted here: | ||||||||||||||||||||||||
3 | Meeting note-taker was Mindy Lumm, volunteer with Brain Support Network | Notes posted here: | ||||||||||||||||||||||||
4 | green shading means we talked about this on 6/27/21 | |||||||||||||||||||||||||
5 | ||||||||||||||||||||||||||
6 | Gadget Category - Who Addressed | Recommended Item | URL for More Information | |||||||||||||||||||||||
7 | ||||||||||||||||||||||||||
8 | Mobility | |||||||||||||||||||||||||
9 | Marnie | UStep walker | ustep.com (largely reimbursed by Medicare Part B) Marnie used: https://www.thewrightstuff.com/in-step-mobility-products.html | |||||||||||||||||||||||
10 | Marnie | Pivot disk [Marnie can show] | https://www.amazon.com/Drive-Medical-Lifestyle-Transfer-Disc/dp/B005AK41W8 | |||||||||||||||||||||||
11 | Robin | Gait belt (72" fabric) [Robin can show] There are many other kinds. | https://www.amazon.com/Essential-Medical-Supply-Metal-Buckle/dp/B00366DTLW | |||||||||||||||||||||||
12 | Anyone? Group mbr Cindy asks... | Which SUVs or cars are relatively easy to get into for someone w/mobility issues? We have a Cayenne but the seat is too high and the door smaller than ideal. | ||||||||||||||||||||||||
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14 | Safety | |||||||||||||||||||||||||
15 | Margo (not present) | Raizer remote-controlled lift for getting someone off floor | raizer.com; costs $2K; from Norway | |||||||||||||||||||||||
16 | Tiffany | Gurney for picking up someone from the floor. (Takes 4-5 people to lift.) | https://www.amazon.com/LINE2design-Emergency-Transport-Stretcher-Gray-Handles-1500/dp/B01A9A0OBU | |||||||||||||||||||||||
17 | Tiffany | Portable "chair" - could be used if someone is in a sitting position (family hasn't used it yet) | https://www.amazon.com/LINE2design-Transport-70096-Evacuation-Transportation/dp/B07573JKZ8 | |||||||||||||||||||||||
18 | Denise | Liberty Lift standing aid | https://buylibertylift.com/ | |||||||||||||||||||||||
19 | Marsha (not present) | Powered toilet lift seat | liftseat.com | |||||||||||||||||||||||
20 | Robin | SuperPole with bar or trapeze. This idea (not necessarily this brand) seconded by many. Fairly easy to install. | https://www.healthcraftproducts.com/products/superpole-system/ | |||||||||||||||||||||||
21 | Margo (not present) | Stander pole | https://www.amazon.com/Standers-Security-Pole-Curve-Grab/dp/B000OR3SYE | |||||||||||||||||||||||
22 | Keith | Stander bed cane (wooden; straps around mattress; about $79; be careful about shipping charges from some vendors on Amazon). Robin seconds this. | https://stander.com/product/2041-bedcane/ | |||||||||||||||||||||||
23 | Pat (not present) | Undercushion sofa grab bars | One example: https://www.caregiverproducts.com/stand-a-roo-standing-aid-single.html | |||||||||||||||||||||||
24 | Bed rail | One example: https://www.walmart.com/ip/Medline-Bed-Assist-Bar-with-Storage-Bag-Height-Adjustable-Bed-Grab-Bar-Black-Frame/21782273 | ||||||||||||||||||||||||
25 | Robin | Sensor bed alarm or chair alarm [Robin can show one]. Marnie points out that the sensory battery runs out after awhile (for the wireless ones). | https://val-u-care.com/product/caregiver-pager-with-bed-exit-alarm-for-seniors https://smartcaregiver.com/sensor-pads-and-mats/ | |||||||||||||||||||||||
26 | Dianne | Sensor alarm with clip to attach to clothing | ||||||||||||||||||||||||
27 | Joyce | Bear bell attached to bed rail | ||||||||||||||||||||||||
28 | Anyone? | "Nanny cameras" to monitor family members in care facilities? | ||||||||||||||||||||||||
29 | Pat (not present) | Video baby monitor with audio - Infant Optics DXR-8. (Joyce bought at Target) | https://www.amazon.com/Infant-Optics-DXR-8-Monitor-Interchangeable/dp/B00ECHYTBI | |||||||||||||||||||||||
30 | Chuck | Baby monitor. Small monthly fee (if you need to monitor when you are away from home) | cloudbabymonitor.com | |||||||||||||||||||||||
31 | Diane (not present) | Lap buddy (from AliMed) - a non-restraint system to keep people seated | https://www.allegromedical.com/wheelchair-accessories-c545/inflatable-lap-buddy-p198129.html | |||||||||||||||||||||||
32 | ||||||||||||||||||||||||||
33 | Getting in/out of a car | |||||||||||||||||||||||||
34 | Someone mentioned | Stander car handle (used by Robin) | https://www.medicalsupplydepot.com/Assistive-Aids/Sit-to-stand-Aids-2/Stander-Metro-Car-Handle-Plus.html | |||||||||||||||||||||||
35 | Candy | Garbage bag "trick" for turning person | ||||||||||||||||||||||||
36 | Susan (not present) | Wooden beaded car seat cover, smooth for turning and prevents sweating | ||||||||||||||||||||||||
37 | Pat (not present) | Swivel seat cushion | Several brands: https://smile.amazon.com/s?k=swivel+seat+cushion | |||||||||||||||||||||||
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39 | Incontinence and Hygiene | |||||||||||||||||||||||||
40 | Marsha (not present) | Bidet - she likes Brondell brand | brondell.com | |||||||||||||||||||||||
41 | Tiffany | PureWick - incontinence system for women | https://www.purewickathome.com/how-it-works/ | |||||||||||||||||||||||
42 | Robin | Bedside urinal. Get one that is spillproof. [Robin can show] | ||||||||||||||||||||||||
43 | Marnie | Bedside commode | ||||||||||||||||||||||||
44 | Robin and Denise | Unisex disposable urine bag [Robin can show TravelJohn bag] | Several brands: https://smile.amazon.com/s?k=unisex+disposable+urine+bags Robin likes TravelJohn! traveljohn.com | |||||||||||||||||||||||
45 | Robin | Condom catheter. Comes in different sizes. Can use a leg bag. Many brands. We liked Hollister brand. [Robin can show] | https://www.hollister.com/en/products/continence-care-products/male-external-catheters/latex_free/inview-silicone-male-external-catheter https://www.hollister.com/en/products/continence-care-products/urine-collectors/leg-bag-systems/urinary-leg-bag-combination-pack | |||||||||||||||||||||||
46 | Robin | Retracted penis pouch. (Also Hollister brand.) | https://www.bettymills.com/retracted-penis-pouch-urological-product-hollister-mon206166bx | |||||||||||||||||||||||
47 | Joyce (and RobinK - not present) | Disposable toilet floor mat [Joyce showed] | https://www.webstaurantstore.com/23-x-22-gray-disposable-toilet-floor-mat-imp-1550/9991550G.html | |||||||||||||||||||||||
48 | Robin and Marnie | Quilted, washable incontinence pads to save the fitted sheet and mattress. Lots of sizes. One size we liked: 36"x54" [Robin can show]. Marnie - these pads are handy as draw sheets. | One brand: https://www.salkinc.com/product-category/incontinence/underpads/bed-pads-underpads/ | |||||||||||||||||||||||
49 | Robin | Incontinence briefs (two kinds - pull ups and side-tape), small pads (also called liner pads), and larger pads. Various absorbencies and configurations are available. [Robin can show] | One brand: tena.us | |||||||||||||||||||||||
50 | Galen and Marnie | Double-ups (product name) - incontinence liner pads. Also called "booster pads." | https://www.amazon.ae/FitRight-Incontinence-Booster-Adhesive-Packaging/dp/B00KHUMLGY | |||||||||||||||||||||||
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52 | Bathing | |||||||||||||||||||||||||
53 | Robin | Pre-moistened, rinse-free disposable washclothes. Can be heated in microwave. We liked the Sage brand. [Robin can show] | https://sageproducts.ca/product-prepackaged-bathing/ | |||||||||||||||||||||||
54 | Robin | Shampoo caps with no-rinse shampoo. Can be heated in microwave. We liked the Sage brand. [Robin can show] | https://sageproducts.ca/product-prepackaged-bathing/ | |||||||||||||||||||||||
55 | Robin | No-rinse shampoo and no-rinse bathing liquid. [Robin can show] | Many brands including: https://www.carewell.com/product/cleanlife-no-rinse-shampoo/ | |||||||||||||||||||||||
56 | ||||||||||||||||||||||||||
57 | Meal-time | |||||||||||||||||||||||||
58 | Dianne (and Jean - not present) | Weighted eating utensils with firm, large grips (many on Amazon). [Dianne showed] | https://www.alimed.com/weighted-handle-flatware.html?pid=94093 | |||||||||||||||||||||||
59 | Joyce (and Patti - not present) | Weighted plate that can be firmly set on table. Joyce quiche dish works great. [Joyce showed] | https://www.performancehealth.com/weighted-dining-kit | |||||||||||||||||||||||
60 | Dianne and Robin | Scoop dish with non-skid bottom. [Robin can show] | Robin showed NorthCoast Medical: https://www.ncmedical.com/item_219.html | |||||||||||||||||||||||
61 | Dianne | Dianne: Bibs are great but call it a "clothing protector." [Dianne showed] Candy call it an "apron" | ||||||||||||||||||||||||
62 | Denise | Bib with pouch | https://www.amazon.com/Waterproof-Silicone-Washable-Clothing-Protector/dp/B07NV13GS9 | |||||||||||||||||||||||
63 | Denise | Crumb catcher apron | https://www.amazon.com/Optional-Waterproof-Mealtime-Clothing-Protector/dp/B07ZNGTV2J | |||||||||||||||||||||||
64 | Marnie | DysphagiAide - gum-based thickener. Xanthan gum. [Marnie can show] | https://www.amazon.com/Clear-DysphagiAide-Thickener-Powder-Consistency/dp/B08S45NCS7 | |||||||||||||||||||||||
65 | Robin | SimplyThick - gum-based thickener. Comes in 1oz packets for honey thick. Use two packets for pudding thickness. [Robin can show] | simplythick.com | |||||||||||||||||||||||
66 | Robin | Hormel Thick&Easy pre-packaged, thickened liquids and meals [Robin can show] | https://www.hormelhealthlabs.com/products/brand/thick-easy/ | |||||||||||||||||||||||
67 | Robin | Use a plastic-tip syringe or eye dropper for "feeding" when the person cannot open his/her mouth. [Robin can show] | ||||||||||||||||||||||||
68 | ||||||||||||||||||||||||||
69 | Dressing | |||||||||||||||||||||||||
70 | Marsha (not present) | Device for getting pants on. (Sometimes uses stock assist.) | https://miracledressingaid.com/store/ols/products/miracle-dressing-aid-gen-811 | |||||||||||||||||||||||
71 | Joyce (Rebecca and RobinK - not present) | Kizik. These are hands-free shoes | https://kizik.com/ | |||||||||||||||||||||||
72 | Candy | Coilers. Transforms shoes with laces to slip ons. [Robin can show] | https://www.ncmedical.com/item_322.html https://www.amazon.com/Providence-Spillproof-Coiler-Shoelaces-WHITE/dp/B009R2EE1S | |||||||||||||||||||||||
73 | Laurie (not present) | Big stadium blanket with zippers and hood. | https://www.amazon.com/gp/product/B074DHLD7Z | |||||||||||||||||||||||
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75 | Voice Amplifiers | |||||||||||||||||||||||||
76 | Denise | Chattervox (several designs, none of them cheap) | chattervox.net | |||||||||||||||||||||||
77 | Pat (not present) | Shidu (both wired and bluetooth versions) | https://www.amazon.com/s?k=voice+amplifier&rh=n%3A11091801%2Cp_89%3ASHIDU | |||||||||||||||||||||||
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79 | Medication Management | |||||||||||||||||||||||||
80 | Dwight (not present) | Hero brand medication manager (manages up to 10 meds-90 day supplies of each) | https://herohealth.com/ | |||||||||||||||||||||||
81 | Celia (not present) | MedReady 1700 FL Automatic Medication Dispenser with alarm. Lockable. Holds up to 9 M&M size pills. | ||||||||||||||||||||||||
82 | Robin | MouthKote dry mouth spray (and many other brands). Useful when medications give you dry mouth. | https://www.singlecare.com/prescription/mouth-kote/what-is | |||||||||||||||||||||||
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84 | Stretching and Exercise | |||||||||||||||||||||||||
85 | Keith | Styrofoam roller (white 6"x30") for stretching and improved mobility | https://www.rehab-store.com/p-cando-white-pe-foam-rollers.html | |||||||||||||||||||||||
86 | Candy | Stationary recumbent bike | ||||||||||||||||||||||||
87 | Anyone? | Recumbent trike (which can be driven on roads). Cost $500 to $3K. | ||||||||||||||||||||||||
88 | Marnie | Pedal exerciser [Marnie can show] | https://www.rehab-store.com/p-bilt-rite-deluxe-pedal-exerciser.html | |||||||||||||||||||||||
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