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Long term survivor of MBC
Those who lived 5+ years since diagnosis of MBC. Especially Liver/Brain mets and triple negative people. newly dxed people need your inspiration and information. Thank you very much!
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How was your MBC diagnosed and when? What symptoms? What grade? ER, PR, HER2
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Your answer
Where were your mets initially and progress with your therapy?
Please give as much details as you can. Include size and numbers if you recall
Your answer
Any lifestyle changes since BC diagnosis or MBC diagnosis?
Diet, exercise, alternative therapy, pets,stress reduction
Your answer
What conventional therapy, clinical trials for you and how did they work?
Surgery, radiosurgery, chemo, hormone therapy, clinical trials
Your answer
What other chronic conditions do you have? What medications were you or are you using long term?
heart, blood pressure, allergies, diabetes, thyroid, autoimmune disorders
Your answer
How compliant are you to doctor's orders? Would you describe your relationship with doctor as trusting, open, flexible or otherwise?
Your answer
Looking back, what are the choices you made that makes you think "That's a good call!"
Your answer
Looking back, what are the choices you made that makes you think "Hmmm, I shouldn't have done that"
Your answer
Anything else in your life that you think might be relevant?
Climate where you live, where you travel, pets, general lifestyle, career/relationship stuff.
Your answer
Name, email address and how you want this information be shared in public
Everything is optional
Your answer
Would you be interested in genetic sequencing study of your tumor/blood samples?
Give me permission to email you if I find a good one
Don't email me, ever
Email me if such project is available
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Check out the questionaire of self-regulation in my blog. Report here what your self-regulation score is
6 is very high self-regulation, 1 is very low self-regulation. The questionare is super long. So skip this question if you don't have time
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