| A | B | C | D | E | F | G | H | I | J | K | |
|---|---|---|---|---|---|---|---|---|---|---|---|
1 | Patient 1 | Patient 2 | Patient 3 | Patient 4 | Patient 5 | Patient 6 | Patient 7 | Patient 8 | Patient 9 | Patient 10 | |
2 | Date 9/10/13 | November 2012 | May 2005 | Sept 25, 2012 | September 2012 | 1/15/2013 | July 2010 | ||||
3 | Dr. Mathesin | Dr. David Lott | Dr. Dominique Dorion, Pierre-Hugues Fortier | Dr. Shaf Keshavjee (thoracic), Dr. Gilbert (ENT) | Dr. Vincent Daniels (thoracic) | Dr. Marshall Smith | Dr Wright | ||||
4 | Massachusetts General Hospital | Mayo Clinic | CHUS Fleurimont | Toronto General Hospital | Ohio State University | University of Utah Medical Center | Mass General | ||||
5 | Boston, ma | AZ | Sherbrooke (Québec) Canada | Toronto, Ontario | Ohio | Salt Lake City, Utah | Boston MA | ||||
6 | Did you Document Your Experience? | www.livingwithsubglotticstenosis.wordpress.com | No | Yes, Living with Subglottic stenosis file | No | No | no | ||||
7 | Surgery Info | ||||||||||
8 | 5 hrs | 4 hours | 5 hours | 3 hours | 5 hours | 5.5 hours | 3 hours | ||||
9 | 0-4 | 0-2 | 0 | 3 | 3 | no | |||||
10 | Subglotic and 1 ring of cartilage | 4cm | 4cm | ? Unknown( 3 rings ) | 1.25 Inches | ||||||
11 | 3-4 inches | 3 inches | 3-4 inches | 3 inches | 3 inches | 3 inches | |||||
12 | No | Yes | ?? | No | No | no | |||||
13 | Yes | No | Yes | Yes | Yes | Yes | yes | ||||
14 | Trach? No | No | Yes | No | No | No | no | ||||
15 | Yes | No | No | Yes | No | Yes | no | ||||
16 | Incision Drain-yes | Yes | No | Yes | No | Yes | no | ||||
17 | Arterial Line?- yes | Yes | Yes | Yes | Pulled after surgery | No | no | ||||
18 | Feeding Tube? No | No | No | no | |||||||
19 | External Stiches/Glue/Tape? Steri strips | None | Yes | Staples | Steri strips | Yes | yes | ||||
20 | Compression Socks no | Yes | No | Yes | No | Yes | yes | ||||
21 | Would You Do it Again- absolutely | Yes | Yes | Yes | Yes,but would have liked to try cryo surgery first | yes | yes | ||||
22 | Hospital Stay | ||||||||||
23 | Duration of Stay- 7 days | 5 days | 20 days | 5ays | 8 | 6 days / 5 nights | 5days | ||||
24 | Number of Roomates- 0 | 0 | At first I was in Intensive care I was alone for ten days but when I have changed of place I had somebody in my room. | 4 in step down unit for 1 night, them a different roommate each day in a semi private room | 0 | 0 | 0 | ||||
25 | Internet/Wi-Fi Access- yes | Yes | No | Not sure | Yes | yes | |||||
26 | Restrictions | ||||||||||
27 | Time Off Work- 6-8 weeks | 3 weeks | One month | 8 weeks | 3 months/ took personal time too | 8 weeks (qualified for short term disability) | 3weeks | ||||
28 | Dietary Restrictions day1-7: nothing by mouth Day: 7 bronchoscope and clears started Day: 8 soft foods Softs foods for 3 weeks and than no restrictions | Day 1 - No food or Drink Days 2 & 3 - Clear Liquids Day 4 - Soft Foods Day 5 - Regular Diet | day of surgery- clear fluids Day 2- soft foods, Day 3- regular diet | Day 1- nothing by mouth Day 2-4- ice chips Day 5-8 soft foods As far as I can recall | Day 1 liquids. Day 2-5 soft foods. Day 6 and after regular diet | none | |||||
29 | Driving Restrictions- 3 weeks | 2 Weeks | until I could safely shoulder check (about 2 weeks) | Six weeks | no driving for 1 month | 3weeks | |||||
30 | Excercise Restrictions: 3-4 weeks | 1 month | 6 weeks other than walking | Six weeks | no exercise for 1 month | ||||||
31 | Lifting Restrictions: 3-4 weeks | 1 month | 6 weeks | Lifting Restrictions | 10 lb limit for 1 month | 3lbs | |||||
32 | Shower Restrictions: once I was discharged | 3 days | 5 months | 5 days | None | no showering while in hospital, afterwards no restrictions | only in hospital | ||||
33 | Voice Restrictions: no talking for 5 days. 3 weeks of soft speaking, than normal | none | 10 days before having my trach | none | None | doctors orders to talk only 15 minutes for every hour for the first few weeks | 3weeks | ||||
34 | Issues | Yes | |||||||||
35 | Voice Changes?yes, deeper- raspy | Yes | not really | Yes | Yes | yes | |||||
36 | Issues Swallowing? No | No | Yes (with my trach) | feels different | None | No | no | ||||
37 | Notes, Advice or Comments | ||||||||||
38 | I had a Laryngotracheal resection. My stenosis was VERY high up, 1mm below my vocal cords. That is why my restrictions are slightly different from a lower tracheal resection | I made sure to take the drain out ASAP so the skin did not start adhering to and there no pain with the removal. This was the best decision I ever made. | Best decision of my life. Advice- research your surgeon and see how many resections they have done. | Have humidification or cool air mist for dry throat Take a firm travel pillow for neck. It helped while the stitch was in place Have someone with you 24/7. Friends and family . | I used a Boppy nursing pillow insted of a travel pillow and it worked great. Use an eye mask in the hospital to block out the lights and help you sleep better. Arrange for lots of help at home especially if you have little kiddos. | heating pad and travel pillow, research physician | |||||
39 | I feel so much better! Absolutely a great decision for surgery | ||||||||||
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