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��A Bolder, Braver Approach for Organ Donation in the UK��Summary of ODJWG Report�

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Why change is needed

  • Fewer potential donors than before the pandemic
  • Family consent rates have fallen
  • More people than ever are waiting for a transplant
  • Fewer people are registering their donation decision

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Purpose of the Joint Working Group

  • Focus on deceased organ donation
  • Identify actions to increase donation and save more lives
  • Build on learning from the pandemic and recent law changes

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What we found

  • Strategy remains valid – no changes required
  • Progress has slowed in key areas
  • Action needed now to rebuild consent, society support, and build new donor pathways

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Theme 1: Marketing & Societal Action

Ambition: Public action matches public support

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  • Create a clear, recognisable organ donation identity
  • Focus messages on the positive impact of donation
  • Make it easier to record a donation decision though increasing registrations via partnerships (DVLA, NHS App, Passport)
  • Strengthen education, community engagement and partnerships

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Theme 2: Clinical Practice

Ambition: Positive donation culture embedded in care

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  • Identify more potential donors
  • Support donation outside intensive care where appropriate
  • Strengthen teamwork working with embedded SNODs
  • Simplify focused family discussions

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Supporting Families

  • Be bolder and more positive in conversations
  • Focus on the wishes and values of the person who has died
  • Avoid legal language at the bedside
  • Tailor conversations to each family’s needs

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Theme 3: Oversight and ethics

Ambition: Strong oversight and ethical clarity

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  • Improve performance monitoring
  • Act quickly where improvement is needed
  • Provide clear national ethical advice on donation

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What Success Looks Like

  • Higher consent and authorisation rates
  • More people supported to donate through expanding the donor pool
  • More lives saved through transplantation
  • Improved experiences for donor families
  • Organ donation seen as a normal part of care

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Next Steps

  • Deliver all actions as a connected programme
  • Strong collaboration across NHS, Government and partners
  • Continue engagement with donor families and international experts

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Thank you

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