1 of 39

WIN Measures Update:

Community Vitality

Civic Engagement, Social Connection, and Trust in Government

Supported by Well-being and Equity (WE) in the World

September 16, 2021

2 of 39

Opening Reflection

Thinking of ways communities thrive, what matters most to you and your community (or professional affinity)?

3 of 39

Together, we acknowledge indigenous peoples, on whose ancient and sacred land we live, work, and play. As a community, we recognize the ever-present systemic inequities that stem directly from past wrongdoings, and we commit ourselves indefinitely to respecting and reconciling this long history of injustice.

Land Acknowledgement

https://native-land.ca/

Adapted from BSS Land Acknowledgement Statement by Isabell COLEMAN 17’ and Abbie LAI 17’

4 of 39

Agenda

Welcome / Reflection / Groundsetting
Spotlight Presentations & Reflection
Reaction to the WIN Measures
Breakout Sessions: Racial Justice & Intergenerational Well-being - How can we improve?
Closing & Next Steps

5 of 39

www.winnetwork.org

6 of 39

LEADING INDICATORS

6

7 of 39

7

www.winmeasures.org

8 of 39

Overview of the WIN Measure Update Process

Phase 1 Information Gathering	Phase 2 Rate and Prioritize	Phase 3 Refine and Alignment	Phase 4 Report
Build field strength on topic Conduct a landscape analysis of existing research Develop database of existing resources Host domain-specific listening session webinars Host community dialogues	Compile results from Phase 1 into draft measures set Decision criteria will be developed to rate the draft measures Draft measures will be rated and prioritized via online survey Multiple rounds to refine list of measures �	Refine and align proposed measures with major national initiatives and other organizations/groups	Develop and share report of process and recommendations Update WIN Measures website

9 of 39

WIN Community Vitality Measures

10 of 39

Dwight “Kip” Holley, MSW�

Social Research Associate

Kirwan Institute for the Study of Race and Ethnicity

The Ohio State University

10

Speaker

11 of 39

Stephanie Russo Carroll, DrPH, MPH�Assistant Professor of Public Health and Associate Director for the

Native Nations Institute

University of Arizona �

Christina Oré, DrPH, MPH�Senior Advisor, Seven Directions, Center for the Study of Health & Risk Behaviors�University of Washington�

11

Speakers

12 of 39

Indigenous Data Sovereignty +

Community Wellbeing

WIN Measures Update Series

Presenters:

Stephanie Russo Carroll, MPH, DrPH

Christina E. Oré, MPH, DrPH

Well Being in the Nation Network,

Measuring Community Vitality Listening Session

September 16, 2021

13 of 39

WHAT ARE INDIGENOUS DATA?

Data, information and knowledge, in any format, that impacts Indigenous Peoples, nations, and communities at the collective and individual levels:

DATA ABOUT US AS INDIVIDUALS

Administrative, legal, health, social, commercial, corporate, services, etc.

DATA ABOUT OUR RESOURCES AND ENVIRONMENTS

Land, water, geology, titles, air, soil, sacred sites, territories, plants, animals, etc.

DATA ABOUT US AS NATIONS

Traditional and cultural information, archives, oral histories, literature, ancestral and clan knowledge, stories, belongings, etc.

Informed by British Columbia First Nations Data Governance Institute - BCFNDGI.COM

USINDIGENOUSDATA.ORG

@USIDSN

GIDA-GLOBAL.ORG

@GidaGlobal

14 of 39

INDIGENOUS DATA SOVEREIGNTY

The right of Indigenous Peoples and nations to govern the collection, ownership, and application of their own data.

Derives from inherent rights to govern peoples, lands, and resources.

1

Genesis in traditions, roles, and responsibilities for the use of community held information.

2

Knowledge belongs to the collective and is fundamental to who we are as peoples.

4

See Kukutai T & Taylor J. (Eds). (2016). Indigenous Data Sovereignty. Canberra: Australian National University Press.

3

Positioned within a human rights framework and court cases, treaties, and/or recognition.

GIDA-Global.ORG | @GIDAGlobal

USINDIGENOUSDATA.ORG | @USIDSN

Indigenous data sovereignty is the right of Indigenous Peoples to govern their data, from collection and storage, to use and reuse. Finding its foundations in inherent sovereignty, only Indigenous Peoples and nations as rightsholders can exercise Indigenous data sovereignty. Indigenous data sovereignty is a responsibility and expression of the ways, traditions, and roles that communities have for the care and use of their knowledge. Using a human rights framework, Indigenous data sovereignty leverages tools such as laws, polices, and agreements including the UN Declaration on the Rights of Indigenous Peoples, nation-state recognition of Indigenous Peoples, treaties, and other mechanisms. Indigenous data sovereignty underscores that knowledge belongs to the collective and is fundamental to who we are as Indigenous Peoples.

15 of 39

Centering Sovereignty:�The Interdependence of Nation Rebuilding�and Data Rebuilding

Carroll, Stephanie Russo, Desi Rodriguez-Lonebear, Andrew Martinez. “Indigenous Data Governance: Strategies from United States Native Nations.”

Data Science Journal 18(1)p.31. DOI: 10.5334/dsj-2019-031. informed by Smith, D. 2016. Governing data and data for governance: the everyday practice of Indigenous sovereignty. In: Kukutai, T and Taylor, J (eds.), Indigenous data sovereignty: Toward an agenda, pp. 253–272. Canberra, Australia: Australian National University Press. DOI: https://doi.org/10.22459/CAEPR38.11.2016.07.

16 of 39

INDIGENOUS DATA GOVERNANCE

Data stewards managing by tribal standards

ENHANCING DATA RELATIONSHIPS

Tribes governing tribal data

Low Control

Social Media

Tribal Enrollment

High Control

Rainie, S., and Jorgensen, M. DOI Tribal Data Meeting, July 2017, Flagstaff, AZ. Adapted from Kukutai, T. Indigenous Data Sovereignty and Governance Masterclass. Australian Indigenous Governance Institute. March 31 2017. Brisbane;

17 of 39

CARE Principles for

Indigenous Data Governance

Carroll, SC, Garba, I, Figueroa-Rodríguez, OL, Holbrook, J, Lovett, R, Materechera, S, Parsons, M, Raseroka, K, Rodriguez-Lonebear, D, Rowe, R, Sara, R, Walker, JD, Anderson, J and Hudson, M. 2020. The CARE Principles for Indigenous Data Governance. Data Science Journal, 19: 43, pp. 1–12. DOI: https://doi.org/10.5334/dsj-2020-043

18 of 39

CARE Principles for Indigenous Data Governance

Collective Benefit.

Data ecosystems shall be designed and function in ways that enable Indigenous Peoples to derive benefit from the data.

C1. For inclusive development and innovation

C2. For improved governance and citizen engagement

C3. For equitable outcomes

Authority to Control.

Indigenous Peoples’ rights and interests in Indigenous data must be recognized and their authority to control such data respected.

A1. Recognizing rights and interests

A2. Data for governance

A3. Governance of data

Responsibility.

Those working with Indigenous data have a responsibility to share how those data are used to support Indigenous Peoples’ self determination and collective benefit.

R1. For positive relationships

R2. For expanding capability and capacity

R3. For Indigenous languages and worldviews

Ethics.

Indigenous Peoples’ rights and wellbeing should be the primary concern at all stages of the data life cycle and across the data ecosystem.

E1. For minimizing harm and maximizing benefit

E2. For justice

E3. For future use

The CARE Principles include four principles and three sub principles for each principle. They are:

CLICK Collective benefit which Details that data ecosystems shall be designed and function in ways that enable Indigenous Peoples as collectives to benefit from data.

CLICK Authority to control emphasizes the need for those working with data to uphold Indigenous Peoples rights to and support their interests in data.

CLICK Responsibility reminds us that those working with Indigenous data must center Indigenous Peoples self determination and collective benefit in data relationships.

CLICK Ethics focuses on using Indigenous Peoples ethics to guide decisions on harm, benefits, justice, and future use.

The high level CARE Principles direct those interacting with Indigenous data toward regional, for example The First Nations Principles of OCAP, or tribal specific data guidance.

19 of 39

20 of 39

Indigenous Knowledge & Data: �Infrastructure Challenges

Every Indigenous community has enormous collections of tangible and intangible cultural material, knowledge, and data, held in archives, museums, libraries, repositories, and other online databases.

Significant information about these collections, including individual and community names and proper provenance information, is missing.

Indigenous peoples and communities are largely not the legal rights holders.

Issues of responsibility & ownership, as well as the incomplete and significant mistakes in the metadata, continue into the digital lives of this material.

There are more researchers working and collecting data and samples from Indigenous communities than ever before, generating vast amounts of new data.

21 of 39

Law, e.g., Common Rule, UNDRIP, tribal

Policy, e.g., government, institutional, professional guidelines

Ethics, e.g., training, metadata labels

Infrastructures, e.g., data standards, programming innovations

Where can Indigenous Data Governance

be put into practice?

We are concerned about implementing FAIR and CARE on already existing data, as well as instituting policies and practices to ensure that plethora of new data created every day adhere to both. Indigenous Data Governance can be put into place through

laws ((())),

policy (())),

ethics ((())), and

infrastructure ((())).

But more tools are needs, as well as criteria to assess and evaluate how other institutions are enacting the CARE Principles.

The goal is to create mechanisms that support Indigenous rights to Indigenous data throughout the data lifecycle and across the data ecosystem, and to strengthen such rights by making changes, even minimal at first, across data actors such as research institutions, repositories, publishers, funders, and more. Next I will highlight a few brief examples.

22 of 39

Community Well-being

Indigenous Data Sovereignty + Governance

context + principles + mechanisms to ensure rights
create structural/ systemic conditions for wellbeing and equity

Indigenous Knowledge Pathways - Data + Information

Wellbeing of the people and lands are interconnected
Intergenerational wellbeing, stories of resilience along the life course
Indigenous centered methodology

Reflections on the WIN measures

Civic Engagement, Social Connection, and Trust in Government

23 of 39

Huataypallana, Ore Giron, 1995

Centering Community

decolonizing existing data - mis classifications, lack of disaggregation, invisibility - erasure - affecting ability to develop programs, services, policies, allocate resources

opportunity to collect data based on concepts/ constructs with indicators and measures that have meaning and relevance to tribal nations and Indigenous communities.

highlighting: healing, health, and wellbeing are collective, intergenerational, Indigenous knowledge derived and reflective of sovereign rights

We are here to discuss community vitality - community wellbeing - from our work - hearing story and literature - community wellbeing is synonymous with healing, health, and safety of indivdual, family, communities. determinants include kinship to people and land, language and culture, spirituality, collective action and sovereignty

soveriegnty govn/self deter; lang and identiy; land and kinship; and indigenous knowledge

24 of 39

25 of 39

Resilience + Thrivance

Intergenerational Wellbeing

26 of 39

Connectedness + Relationships

Social capital

Trust

Relational Accountability

Social Network Analysis

27 of 39

Value-based frameworks

Oré de Boehm, C (2018) Indigenous health systems: An emergent Yaqui-centered framework for public health practice. https://repository.arizona.edu/handle/10150/627745

28 of 39

Indigenous Data Lifecycle + Ecosystems

Indigenous Sovereignty and Governance

Community and Relationships

Indigenous, Indigenous centered methodologies

Social is Cultural, Cultural is Social

574 federally recognized tribes in the U.S.

positionality, protocols, power dynamics, accountability Researchers are challenged to define, operationalize, and measure community and cultural resilience. Community resilience is currently measured by aggregating individual proxy psychosocial or sociological measures (e.g., sense of self or coherence; social cohesion, social capital, social networks; Goodkind, Hess, Gorman, & Parker, 2012; Wexler, 2014). For example, in the studies included in this literature review, data from narratives or participant interviews were compiled to yield a picture of resilient people. To date, only Kirmayer et al. (2009) have explored other determinants that might reflect community and cultural resilience. They identified several dimensions of cultural resilience, including family and community connectedness, oral traditions and storytelling, and collective knowledge and identity. The challenge offered by their work is quantifying these proposed dimensions of cultural resilience.

29 of 39

Reflections on the WIN Community Vitality Measures

Thriving Communities: civic engagement, social connection and trust in government

In context of racial injustices and intergenerational wellbeing

Measures:

Social Capital + Social Networks

Trust in Government

Civic Engagement

Social Inclusiveness

Assumptions + Considerations + Suggestions

30 of 39

Tsin’aen

Tupananchiskama

Stephanie Russo Carroll, MPH, DrPH

stephaniecarroll@arizona.edu

Christina E. Oré, MPH, DrPH

core1@uw.edu

31 of 39

Reflections and Q&A

32 of 39

WIN Community Vitality Measures

33 of 39

In your breakout group, designate a scribe.
Open up the Google doc.
Review the list of current WIN Community Vitality Measures with racial justice and intergenerational well-being lenses.
Reflect on the following questions with a racial justice and intergenerational well-being lens in mind.

Breakout Discussion

Link to Google Doc

34 of 39

Please reflect on the current Community Vitality WIN Measures. What measures would you:

Add or Change?
Remove?
Keep as is? �

What other sources of information on Community Vitality measures should we consider?

Please include links to reports, articles, organizations �

Are there other dimensions of “Community Vitality” we need to consider?

Breakout Discussion Questions

Link to Google Doc

Please star (*) any that you think are most important for policy change

35 of 39

Key Takeaways & Reflections

36 of 39

Visit our WIN Measures Update page for the latest information: https://winnetwork.org/win-measures-updates
Continue to add your reflections and ideas to the Google doc that was shared during today’s session
Participate in future domain-specific listening sessions (registration is open for all sessions)
Help connect us with clients and community members
Questions? Email: kristen.rego@weintheworld.org

How to stay involved:

37 of 39

37

Domain Listening Session

Topic: Education

November 18th, 2021

1:00 pm - 2:30 pm ET

Stay informed about the WIN Measures update process and

register for future listening sessions:

https://winnetwork.org/win-measures-updates �

Learn more about the WIN Measures: https://www.winmeasures.org/

Upcoming Meetings

38 of 39

38

Domain Listening Session

Topic: Transportation

December 16th, 2021

1:00 pm - 2:30 pm ET

Stay informed about the WIN Measures update process and

register for future listening sessions:

https://winnetwork.org/win-measures-updates �

Learn more about the WIN Measures: https://www.winmeasures.org/

Upcoming Meetings

Transportation

39 of 39

39

www.winnetwork.org

@network_win

win@weintheworld.org

@WellBeingIntheNation

Visit us

Contact us

Thank you!