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Course: Pediatric Nursing

Topic: Nursing care of Child with Gastrointestinal Disorder Part IV

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Module Goals

Learners will be able to:

  • Identify common structural anomalies the GI tract of childhood including signs and symptoms (Cleft Lip and Palate,Inguinal Hernia, Umbilical hernia,Intussusception, Anorectal Malformations).
  • Identify risk factors associated with those gastrointestinal disorders.
  • Describe common diagnostic procedures, medical treatment, nursing management and nursing implications for such anomalies and disorders.

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Structural Anomalies of GI Tract

  • Cleft lip and palate
  • Inguinal and umbilical hernias
  • Anorectal malformations

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Structural Anomalies of GI Tract: Cleft Lip and Palate

  • Birth defects where baby’s lip or mouth does not form properly.
  • A cleft is a gap or split in the upper and/or roof of the mouth (palate).
  • Also called orofacial clefts.
  • A cleft lip results in an opening of upper lips; opening may go through the lips into the nose.
  • Cleft lip and cleft palate may occur together.

CDC, 2020

NHS, 2019

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Cleft Lips and Palate: Problems

  • Difficulty feeding: Unable to breastfeed or feed from a bottle.
  • Hearing problems: Vulnerable to ear infections and a buildup of fluid in ears (glue ear).
  • Dental problems: Teeth do not develop correctly. May be at a higher risk of tooth decay.
  • Speech problems: Unclear or nasal-sounding speech as the child grows older.

CDC, 2020

NHS, 2019

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Cleft Lip and Palate: Cause

Cause is unclear. However, in a few cases, cleft lip and palate is associated with:

  • The genes a child inherits from their parents
  • Smoking or drinking during pregnancy
  • Obesity during pregnancy
  • Lack of folic acid during pregnancy
  • Taking certain medicines in early pregnancy (anti-seizure, steroids)
  • gene alteration

CDC, 2020

NHS, 2019

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Cleft Lip and Palate: Risk Factors, Diagnosis

  • Smoking: Smoking during pregnancy increases risk
  • Diabetes: Diabetes diagnosed before pregnancy
  • Certain medicines: Using medicines to treat epilepsy, such as topiramate or valproic acid, during the first trimester (the first 3 months) of pregnancy

Diagnosis:

  • Ultrasound: Anomaly scan between 18-21 weeks of pregnancy
  • After Birth: Newborn physical examination within 72 hours of birth

CDC, 2020

NHS, 2019

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Cleft Lip and Palate: Treatment

The major treatment is surgery

  • Lip repair surgery: Done in 3-6 months of age
  • Palate repair surgery: Done in 6-12 months of age
  • Additional Surgery: To improve the appearance e.g. rhinoplasty, jaw surgery

CDC, 2020

NHS, 2019

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Cleft Lip and Palate: Nurses’ Role

  • Ensure adequate nutrition
  • Feed via NG tube if necessary
  • Position the child in upright position while feeding
  • Provide support and address parental concerns
  • Address family anxiety and help them to cope with stress
  • Provide teaching: About condition, treatment plans and post surgery
  • Monitor hearing
  • Collaborate with speech and language therapist
  • Ensure good dental hygiene and orthodontic treatment

CDC, 2020

NHS, 2019

Nurses Lab, 2021

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Critical Thinking Question

While trying to breastfeed a child with a cleft palate, the mother experiences the milk coming out of the baby's nose.

She is worried that the baby may aspirate the breastmilk and asks what can be done to prevent aspiration.

What would be the nurse’s response?

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Inguinal Hernia

  • Protrusion of part of the abdominal contents into the inguinal canal.
  • Common in children, affecting more boys than girls and occurring on the right side more often than the left.

Causes:

Embryologic failure of closure of the processus vaginalis.

Government of Canada, 2013

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Inguinal Hernia: Diagnostic Tests

  • Ultrasound can be used to differentiate a hernia from a condition of testicular origin.

  • Computed Tomography (CT) scan.

  • Magnetic Resonance Imaging (MRI).

Government of Canada, 2013

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Inguinal Hernia: Risk factors

  • Most common between the ages of 0 and 5 years
  • More common in premature infants
  • Family history of having hernia among a parent or sibling
  • Having cystic fibrosis
  • Having developmental dysplasia of the hip at birth
  • Being a boy with undescended testes
  • Having problems with urinary or reproductive organs

NIDDK, 2019a

University of Rochester Medical Center, n.d.

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Inguinal Hernia: Signs and Symptoms

  • Vital signs usually normal, unless bowel infarction has occurred
  • Mass visible in the inguinal area, especially when the baby is crying
  • Impulse on coughing or sneezing
  • A bulge in the groin with no involvement of GI function
  • Transillumination of scrotum while transilluminate the scrotum
  • A bulge in the scrotum in a male
  • Feelings of discomfort, pain, heaviness, or burning in the groin

Government of Canada, 2013

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Inguinal Hernia: Treatment and Management

Treatment depends on age, symptoms, severity, and health

  • Appropriate consultation: to early diagnosis and treatment
  • Nonpharmacological interventions: Reassuring and supporting parents
  • Pharmacological interventions: None
  • Surgery is an ultimate treatment: open hernia or laparoscopic hernia surgery
  • Monitor and follow up: Assess the size and reducibility of hernia every 3 months

Government of Canada, 2013

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Inguinal Hernia: Nurses’ Role

  • Pain assessment (use pediatric pain rating scale)
  • Ensure comfort: position child comfortably
  • Ensure adequate nutrition and hydration status
  • Support and reassure care providers or parents
  • Client education:
    • Observe for the signs and symptoms of complications
    • Seek medical help if pain develops or child’s status changes

Nurses Lab, 2022

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Umbilical Hernia

  • An umbilical hernia appears as a painless lump in or near the abdomen button (navel).
  • May get bigger when laughing, coughing, crying or going to the toilet and may shrink when relaxing or lying down.
  • In many cases, the umbilical hernia retracts and the muscles reseal by the time a child is 4 or 5 years old.

NHS, 2022

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Umbilical hernia: Causes

  • Exact etiology is unknown.
  • During pregnancy, the umbilical cord passes through an opening in the baby's abdomen.
  • This opening should close shortly after birth, but in some cases the muscles don't seal completely.
  • This leaves a weak spot in the surrounding abdominal wall muscle.
  • Can develop when fatty tissue or a part of the bowel pokes through into an area near the navel.

NHS, 2022

Troullioud, 2021

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Umbilical Hernia: Risk Factors, Diagnosis

Risk factors:

  • African-American children
  • Babies who were born premature

Diagnosis:

  • Physical examination
  • X-rays
  • Ultrasounds

University of Rochester Medical Center, n.d.

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Umbilical Hernia: Signs and symptoms, Treatment, and Management

Physical Findings:

  • Enlargement and protrusion of the umbilicus
  • Pain suggests incarceration or strangulation

Treatment:

  • Usually disappears by 2 or 3 years of age
  • If not, surgery is recommended; umbilicoplasty

NHS, 2022

Troullioud, 2021

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Umbilical Hernia: Nurses’ Role

  • Similar to inguinal hernia
  • Reassure the parents/caregivers
  • Instruct caregiver to bring the child for immediate assessment if any pain or, uncontrollable crying
  • Frequent monitoring and follow ups: If the hernia persists beyond 3 years of age or pain is present, a physician should be consulted
  • Educate family that strapping and taping are not of clinical value

Nurses Lab, 2022

Government of Canada, 2013

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Critical Thinking Question

A student asks the nursing instructor how umbilical hernias are formed in children

What would be the instructor’s response to the student nurse’s question?

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Intussusception

Telescoping of one section of bowel into another.

In children, the most common form of intussusception is prolapse of the terminal ileum into the colon.

Cause

  • Unknown in most cases
  • Processes that can cause a mechanical lead point (for example, foreign body, intestinal polyp)

Government of Canada, 2013

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Intussusception: Signs and Symptoms

Physical Findings

  • Vital signs usually normal in the early stages, pallor.

Abdominal Examination

  • An empty feeling in the right lower quadrant and a sausage-shaped mass in the area of the transverse colon.
  • May be pain over area of intussusception.

Rectal Examination

  • May reveal bloody or currant jelly stool, presence of a mass.

Government of Canada, 2013

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Intussusception: Risk Factors and Diagnostic Tests

Risk Factors

  • Common in males 3-12 months of age
  • Young children between 6 months to 3 years
  • Abnormal intestinal formation at birth
  • Certain conditions such as cystic fibrosis, Crohn's disease and celiac disease

Diagnostic Tests

  • None

Government of Canada, 2013

Mayoclinic, 2021

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Intussusception: Treatment and Management

Adjuvant Therapy

  • Start IV therapy with normal saline.
  • Give enough fluid for maintenance or more, according to state of hydration and physician order.
  • If there is evidence of hypovolemia or shock, give a bolus of IV fluid (20 mL/kg) over 20 minutes; repeat boluses may be given up to a total fluid amount of 40-80 mL/kg during the first hour.

Government of Canada, 2013

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Intussusception: Treatment and Management

Nonpharmacologic Interventions

  • Nothing by mouth
  • Insert nasogastric tube if, upon consultation, a physician supports its use

Pharmacologic Interventions

  • None

Government of Canada, 2013

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Intussusception: Nurses’ Role

  • Assess vitals, monitor signs of infections.
  • Thorough head to toe examination: Assess abdomen for distension, abnormal shape, bowel sounds, lumps and tenderness.
  • Assess and manage pain.
  • Initiate IV fluids as per prescriber’s order.
  • Ensure adequate hydration; monitor intake, output and fluid loss.

Belleza, 2021

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Intussusception: Nurses’ Role

  • Monitor stool for bloody diarrhea “Red currant jelly” stools
  • Insert nasogastric tube and perform gastric decompression
  • Prepare child and family for surgery
  • Provide education and support for patient and family members

Belleza, 2021

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Anorectal Malformations

  • Birth defects of a child’s anus or rectum that interfere with the normal passage of stool
  • When the anus is completely blocked, the condition is called imperforate anus
  • Anus may be missing, blocked by a thin or thick layer of tissue, or more narrow than normal

NIDDK, 2019b

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Anorectal Malformations

  • In rare cases, the anus may be normal while the rectum is blocked or narrowed.
  • Many children with anorectal malformations have a fistula, or abnormal passage, between the rectum to another part of the body.
  • In some children with anorectal malformations cloaca is present.

Risk:

  • Boys are higher risk to be born with anorectal malformations.
  • Family history: If parents have one child with the malformation.

NIDDK, 2019b

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Anorectal Malformations: Causes and Diagnosis

Cause:

  • Occur when the anus and rectum do not develop normally before birth
  • Exact cause is still unknown
  • Genes or mutations of genes may play a role

Diagnosis:

  • Physical examination:Examine the perineum and genitalia of the newborn and check for other birth defects
  • Diagnostic tests: Ultrasounds, x-rays, MRI

NIDDK, 2019b

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Anorectal Malformations: Signs and Symptoms

On examination:

  • No visible anus
  • An anal opening that is not in the normal location
  • An anus that is tighter or more narrow than normal
  • Stool through a fistula and out of perineum, urethra or vagina (in the first 24 hours after birth)

NIDDK, 2019b

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Anorectal Malformation: Treatment and Management

  • Treated with surgery
  • Surgery type depends on the location and type of malformation
  • Surgery often performed in the first few days after the birth
  • May need one or more surgeries
  • Need regular follow ups and additional treatment complications after surgery

NIDDK, 2019b

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Anorectal Malformation: Nurses’ Role

  • Collaborate with interprofessional team
  • Educate patient: Long term issues a child faces surrounding continence
  • Monitor the sign of urinary tract infections and onset of menstruation in females
  • Monitor for bowel control
  • Help care providers to enhance the quality of life
  • Help to bring most optimal treatment and outcomes
  • Address concerns and support the care providers

Smith & Avansino, 2021

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Case Study

A new born baby girl passes her first stool. While changing the diaper, the nurse notice that the stool is coming out of vaginal opening.

What would this finding of the nurse indicate?

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Red Flags

  • Difficulty latching on to the breast or bottle
  • Excessive gagging/choking, gasping while attempting to suck, chew, or swallow and irregular breathing when eating
  • Redness, sudden or severe pain or tenderness in the area of the hernia
  • Symptoms of intestinal obstruction, such as abdominal pain, bloating, nausea, and vomiting
  • Failure to get first menstrual cycle

Government of Canada, 2013

Hussin et al., 2021

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Cultural Considerations

Religion, culture, beliefs, and ethnic customs can influence how families understand and use health concepts:

  • Health beliefs: In some cultures talking about a possible poor health outcome will cause that outcome to occur.
  • Health customs: In some cultures family members play a large role in health care decision-making.
  • Ethnic customs: Differing gender roles may determine who makes decisions about accepting & following treatment recommendations.

AHRQ, 2020

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Cultural Considerations (Continued)

Religion, culture, beliefs, and ethnic customs can influence how families understand and use health concepts:

  • Religious beliefs: Faith and spiritual beliefs may affect health seeking behavior and willingness to accept treatment.
  • Dietary customs: Dietary advice may be difficult to follow if it does not fit the foods or cooking methods of the family.
  • Interpersonal customs: Eye contact or physical touch may be ok in some cultures but inappropriate or offensive in others.

AHRQ, 2020

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Cultural Considerations: Examples

  • Orofacial clefting prevalence, according to Conway, varies with regions and is highest in Asian countries.
  • African-American children are more likely to have umbilical hernia.
  • There is a wide range of cultural beliefs regarding cleft lips and palate:
    • Attributing causes of cleft to God's will, superstitious beliefs that the child's father went fishing when the mother was pregnant or inheritance.
    • Caused by maternal antenatal trauma, fruit picking, or carpentry.
    • Chinese culture attributes clefts to cleaning house drains, sewing, or using scissors.

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References:

  • Belleza, M. (2021, February 11). Intussusception. https://nurseslabs.com/intussusception/

  • CDC- Centre for Disease Control and Prevention. (2020, December 28). Facts about Cleft and Cleft palate. https://www.cdc.gov/ncbddd/birthdefects/cleftlip.html

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References:

  • Hussin I, Halim AS, Ibrahim MI, Markos ZO, Effendie ESAB. Cultural Beliefs on the Causes of Cleft Lip and/or Palate in Malaysia: A Multicenter Study. Cleft Palate Craniofac J. 2022 Feb;59(2):209-215. doi: 10.1177/10556656211003797. Epub 2021 Apr 5. PMID: 33813904.

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References:

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References:

  • Smith, C. A., Avansino, J. (2021 Aug 12). Anorectal Malformations. StatPearls Publishing. https://www.ncbi.nlm.nih.gov/books/NBK542275/

  • Troullioud, L. A. G., Jaafar, S., Mendez, M. D. (2021 Aug 11). Pediatric Umbilical Hernia. StatPearls Publishing. https://www.ncbi.nlm.nih.gov/books/NBK459294/

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