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Metrics and Reporting Workshop

9 February 2023

Welcome! We will begin shortly…

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Agenda

Welcome / Brief Introduction to the Data Use Community (DUC)

Introductions in Jamboard

Jamboard Workshop

Wrap Up and Next Steps

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About the Data Use Community

  • The DUC creates a forum for learning from country experiences and sharing what is working now.
  • We bring together a variety of stakeholders through virtual meetings and our online discussion board.

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USG Agencies

Other Donors

Health Informatics Practitioners

Implementers

Data Use Community

Relationship Matrix

CDC

SGAC

USAID

WHO

Global Fund

Data�Scientist

Database�Admin

Data�Manager

BMGF

IP

MOH

NGO

As an independent initiative, DUC is an open community that collaborates with and participates in a variety of different groups and partnerships. Many of these groups engage in synergistic projects that align closely with the DUC. These groups not only help inform and shape the DUC, but also provide key insights into the current challenges and opportunities.

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What brought us here today?

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Number of People Currently on ARV?

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Amara’s Facility

Visit

People and Training

Process and Definitions

Tools and Technology

Indicator

Complex and diverse approaches designed to support ministry and donor needs.

Capture

Transformation and Tabulate

Use

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Today’s Workshop Goals

Attendees will…

  1. gain a better understanding of the different goals and needs for metrics and reporting
  2. build relationships and linkages between teams working on reporting challenges
  3. share experience in calculation and data exchange/sharing processes
  4. begin to gather common challenges and practices
  5. identify what this group can do to move people forward

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Let’s get started!

Introduce yourself in the Jamboard!

bit.ly/ducjamboard-feb23

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forum.datausecommunity.org

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Join the Mailing List

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Receive monthly email updates on all upcoming DUC meetings and progress.�www.datausecommunity.org

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Examples of Process Flows

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What is the current state that you are experiencing?

What are the primary objective(s) of the system and users?

- Improved Client care (providers)

- MOH Reporting / Planning (MOH)

- PEPFAR Reporting? / Other funders

- other

Are calculations made at the facility level or at a centralized level?

What questions are you most interest

- Logbooks / tally sheets

- EMR (OpenMRS, SmartCare)

- Excel

- Database queries

- Proprietary tooling

- other

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  1. What questions are you most interested in answering with the data you are working with?
  1. What unexpected uses/benefits have you seen for national reporting systems?
  1. Are you doing calculations at the local, district, regional, and/or national level?

What is the current state that you are experiencing?

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  • What tools have you found have helped to automate your process?
  • In what areas would you like to see help with automation?

What is the current state that you are experiencing?

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  • In the countries that you are working with, to what extent are you seeing National Data Repository (NDR) influenced by:

- Standards (FHIR, OHDSI's OMOP)

- Specific tools (DHIS2)

- Custom

  • Is there a process to reconcile duplicate patients (single patient served at multiple sites)?�- Is a client registry (CR) used?�- Manual or automated process?

What is the current state that you are experiencing?

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What is the current state that you are experiencing?

How are the data moved from step to step?

-Electronic transfer

-Manual

Is there a central repository of patient-level data? (Data Lake or Warehouse)

-FHIR based?

-Who manages?

Is there a process to reconcile duplicate patients (single patient served at multiple sites)?

-Is a client registry (CR) used?

-Manual or automated process?

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Data Use Community

Evolution and Use of National Systems

29 September 2022

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Degree of Scale

Broad community acceptance and use of a given intervention around the world, in multiple geographies

National or regional level acceptance and uptake of an intervention via CQI or other MOH-sponsored initiatives

A given clinical area/environment begins to replicate the intervention.

An implementation of that idea that proves helpful / viable.

An idea about an intervention based upon experience.

RCT

Cohort study

Case study, etc.

Level of Consensus

Practice Wisdom / Opinion

Site Intervention

Multi-site IV

Individual Idea

Individual Belief

Team �Consensus

National

Area �Consensus

Broad

MA

Harvesting Best Practice from Experience

RCT=Randomized Controlled Trial, MA=Meta-Analysis, IV=Intervention

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Initial DUC Goals

Focus area: HIV treatment continuity (others to follow)

Outcomes:

Field Practitioners: peer learning

Digital Health Tool Developers: disease-specific requirements (learn how to customize their technology for specific health delivery problems)

Broader Global Health Community: best practice recommendations (DUC secretariat synthesizing community recommendations)

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Technical Intervention Framework(TIF)

A way to navigate through the interventions discussed at DUC meetings and connect across projects

  • Snapshot of the intervention as of a point in time
  • Created from the interventions shared in DUC meetings
  • Open for input and feedback

Access the TIF here:

https://guides.ohie.org/duc

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Current Challenges

As the world works towards HIV epidemic control, there are:

Many data related challenges in HIV case continuity in treatment, in both care delivery and programmatic oversight

Significant innovations leveraging data/information systems for HIV continuity in treatment/interruption in treatment that exist within the field

Experiences that are not organized in a way that can inform future best practices

Consensus building opportunities around best practices within groups that typically do not occur organically

Our Approach

Community of Practice to transform anecdotal experiences into agreed-upon best practices

Solutioning Methods of incorporating agile techniques to our DUC data analytics process

Challenges with data sharing, governance, and ownership across multiple PEPFAR-supported countries

A Strategic Data Vision to formalize, categorize, align our data initiatives and solutions

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USG Agencies

Other Donors

Health Informatics Practitioners

Implementers

Data Use Community

Relationship Matrix

CDC

SGAC

USAID

WHO

Global Fund

Data�Scientist

Database�Admin

Data�Manager

BMGF

IP

MOH

NGO

As an independent initiative, DUC is an open community that collaborates with and participates in a variety of different groups and partnerships. Many of these groups engage in synergistic projects that align closely with the DUC. These groups not only help inform and shape the DUC, but also provide key insights into the current challenges and opportunities.

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This community will engage with stakeholders from a diverse geographical and service delivery representation to look at these challenges from multiple perspectives and create a comprehensive view of the challenges and needed solutions.

Data Managers

Epidemiologists

Strategic Information Advisors

Surveillance Officers

Monitoring and Evaluation

Officers

Program Managers

Health Information System

Managers

System/Database Administrators

Data Scientists

Subject Matter Experts

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Developing Community Themes

  1. HIV Treatment Continuity

  • Data Integration: Patient Identity Management

  • Data Integration: Metrics and Reporting

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Developing Themes