DISABILITY &
ABLEISM
AN INTRODUCTION TO
VERSION 2.0 - 2022
A Disability is not something to be “fixed”�It is a mismatch between an individual’s abilities and�the environment/society that was built around them.
�Disability is a lived experience. Its communities are diverse.
Disabled is not a bad word.
DISABILITY IS A COMPLEX IDENTITY
The purpose of this document is to compassionately provide education for non-disabled allies, and baseline resources �for Disabled folks who can easily feel isolated.
INTENTION
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BROAD CATEGORIES OF DISABILITY
The Disability Pride flag has 5 colors to represent each 1
Original version created by Disabled artist Ann Magill
DISABILITY & ABLEISM
Mental Illness
Intellectual & Developmental
Physical Disabilities
Sensory Disabilities
Non-Apparent, Invisible & Undiagnosed Disabilities
Mental Illness, Anxiety Disorder, Depression, Eating Disorder, Mood Disorder, PTSD
Intellectual & Developmental, Autism Spectrum Disorder, Traumatic Brain Injury, Down Syndrome
Physical Disabilities, Arthritis, Facial Difference, Limb Difference, Multiple Sclerosis
Sensory Disabilities, Blind or Low Vision, Color Blind, d/Deaf or Hard of Hearing
Non-Apparent, Invisible & Undiagnosed Disabilities, Chronic Pain, Diabetes, Epilepsy
Note: Some disabilities overlap categories, and some Disabled people do not identify with these categories
(e.g. Depression is a Mental Illness and Non-Apparent)
BROAD CATEGORIES OF DISABILITY
EXAMPLES
DISABILITY & ABLEISM
6
THE STATS
THE LARGEST MINORITY
DISABILITY & ABLEISM
Sources: (2) The CDC, (3) Cornell University, (4) Invisible Disabilities Association, (5) Psychology Today
7
LOOK AHEAD
INDEX
01
02
03
04
05
DISABILITY & ABLEISM
8
ABLEIST
LANGUAGE
WORDS MATTER
9
Ableism is discrimination against people with disabilities. �It’s rooted in the belief there’s a correct way for bodies and minds to function. It reinforces the false idea that anyone who deviates from that is inferior. Ableism perpetuates that people with disabilities are imperfect and need to be fixed.
�It shows up in a variety of ways, personal or institutional, intentional or unintentional. (6)
WHAT IS ABLEISM?
Source: (6) Very Well Mind
10
HOW TO SPEAK ABOUT DISABILITY
DISABILITY & ABLEISM
LANGUAGE
WORDS
PHRASES
crazy
c-word
deformed
dumb
freak
handicapped
insane
losing their mind
maniac
moron
nuts
lame
r-word
slow
blind to/blind eye
confined to a wheelchair
wheelchair-bound
differently-abled
falling on deaf ears
hearing-impaired
high/low-functioning
suffers from…
tone deaf
victim of …
MISUSE OF MEDICAL DIAGNOSIS
AS ADJECTIVE
bipolar
narcissist(ic)
psycho(tic)
schizo(phrenic)
senile
sociopath(ic)
HYPERBOLE
Challenging: I have PTSD from...
Missed Something: I’m deaf/I’m blind
Particular: I’m so ADD*/ADHD/OCD…
Stressed: Having a panic attack
DISABILITY & ABLEISM
LANGUAGE
*Note: ADD is an outdated medical term
12
Disabled
Handicapped, Differently-Abled,�Special-Needs
Normal, Regular
DID
YOU
MEAN
Suffers From, Victim of
Non-Disabled
Lives with
DISABILITY & ABLEISM
LANGUAGE
Source: (8) Holland Bloorview Kids Rehabilitation Hospital
WHY LANGUAGE IS IMPORTANT
DISABILITY & ABLEISM
LANGUAGE
Source: (7) Harvard Business Review
14
DISABILITY
IN MEDIA
REPRESENTATION MATTERS
15
REPRESENTATION MATTERS
DISABILITY & ABLEISM
MEDIA
Sources: (9) Respectability, (10) Ruderman White Paper
HARMFUL TROPES
DISABILITY & ABLEISM
MEDIA
Someone with a Disability is not inherently a victim
Tiny Tim, Wait Until Dark
Relationships do not heal
mental illness
Garden State, Silver Linings Playbook
Untreated disability is not
a super-power or skill
Monk, House
Disabled people are more their condition
Legion
INSPIRATION PORN
DISABILITY & ABLEISM
MEDIA
DISABLED VILLAINS
DISABILITY & ABLEISM
MEDIA
Disability does not cause
evilness & violence
Antman & the Wasp, Unbreakable/Glass/Split series, Detective Pikachu, Scandal
Mental Illness does not
evilness & violence
Daredevil, Fight Club, The Joker, Fatal Attraction, Friday the 13th, Halloween, Justified, Psycho, Pretty Little Liars, Split
Physical differences do not make someone scary
Darth Vader, James Bond Series, The Lion King, The Witches
Evil characters do not deserve their disability
Captain Hook, The Green Goblin, Mission Impossible
Marvel Villain Ghost 1987 -
Barb and Star Go to Vista Del Mar, 2021
Unbreakable Series, 2000-2019
The Witches, 2020
Voldemort, 2001-’11
Malificent, 1959 -
The Lion King, 1994
Captain Hook, 1953 - 2018
Detective Pikachu, 2019
The Land Before Time, 1988
Nightmare on Elm Street Series, 1984 -
Scream Queens, 2015-‘16
Fight Club, 1999
Blofeld in Bond Series, 1961-
Texas Chainsaw Massacre, 1974 -
Darth Vader in Star Wars, 1977-‘83
Austin Powers Series, 1997-2002
Joker in Batman, 1940 -
Harvey Dent/Two-Face, in Batman 1942 -
Pretty Little Liars 2010-‘17
Green Goblin in Spiderman, 1964 -
Penguin in Batman, 1941 -
Shrek, 2001-‘11
Rylo Ken in Star Wars, 2015 -
Avatar, 2009
American Psycho 2000
The Hills Have Eyes 2006
Jason in Friday the 13th Series, 1980 - 2009
Dexter, 2006 -
Dr. Poison in
Wonder Woman, 1942 -
Zoom inThe Flash, 2001 -
Snow in Hunger Games, 2012 - 2015
HORROR
COMEDY
SCI-FI/
FANTASY
CHILDREN’S
DRAMA/�ACTION
Marvel Villain Ghost 1987 -
Barb and Star Go to Vista Del Mar, 2021
Unbreakable Series, 2000-2019
The Witches, 2020
Voldemort, 2001-’11
Malificent, 1959 -
The Lion King, 1994
Captain Hook, 1953 - 2018
Detective Pikachu, 2019
The Land Before Time, 1988
Nightmare on Elm Street Series, 1984 -
Scream Queens, 2015-‘16
Fight Club, 1999
Blofeld in Bond Series, 1961-
Texas Chainsaw Massacre, 1974 -
Darth Vader in Star Wars, 1977-‘83
Austin Powers Series, 1997-2002
Joker in Batman, 1940 -
Harvey Dent/Two-Face, in Batman 1942 -
Pretty Little Liars 2010-‘17
Green Goblin in Spiderman, 1964 -
Penguin in Batman, 1941 -
Shrek, 2001-‘11
Rylo Ken in Star Wars, 2015 -
Avatar, 2009
American Psycho 2000
The Hills Have Eyes 2006
Jason in Friday the 13th Series, 1980 - 2009
Dexter, 2006 -
Dr. Poison in
Wonder Woman, 1942 -
Zoom inThe Flash, 2001 -
Snow in Hunger Games, 2012 - 2015
FACIAL DIFFERENCE
PHYSICAL DISABILITY
NON-APPARENT
MENTAL ILLNESS
Marvel Villain Ghost 1987 -
Barb and Star Go to Vista Del Mar, 2021
Unbreakable Series, 2000-2019
The Witches, 2020
Voldemort, 2001-’11
Malificent, 1959 -
The Lion King, 1994
Captain Hook, 1953 - 2018
Detective Pikachu, 2019
The Land Before Time, 1988
Nightmare on Elm Street Series, 1984 -
Scream Queens, 2015-‘16
Fight Club, 1999
Blofeld in Bond Series, 1961-
Texas Chainsaw Massacre, 1974 -
Darth Vader in Star Wars, 1977-‘83
Austin Powers Series, 1997-2002
Joker in Batman, 1940 -
Harvey Dent/Two-Face, in Batman 1942 -
Pretty Little Liars 2010-‘17
Green Goblin in Spiderman, 1964 -
Penguin in Batman, 1941 -
Shrek, 2001-‘11
Rylo Ken in Star Wars, 2015 -
Avatar, 2009
American Psycho 2000
The Hills Have Eyes 2006
Jason in Friday the 13th Series, 1980 - 2009
60+
39
200
Dexter, 2006 -
135+
16+
12+
1,028
5+
18+
7+
3+
2
9+
84
21+
2+
30+
3
1+
1+
235
4+
2+
7
40
Dr. Poison in
Wonder Woman, 1942 -
Zoom inThe Flash, 2001 -
Attem-pted
1+
87+
7 Million
40+
Snow in Hunger Games, 2012 - 2015
Note: 2 heroes’ disabilities removed in film adaptation, but villain’s kept
5+
1+
KILL COUNT
“Hi, so these are my hands. It’s a condition called ectrodactyly, I’m missing my middle fingers. This comment made me genuinely disheartened and I think it just goes to show how society and entertainment has made people like me out to be something scary. And we’re not and it’s just so, it’s just so sad. I want to claim ignorance on this person but I don’t think that’s fair because I can’t control what you’re scared of [crying]. But it just sucks that you’re scared of someting thatI can’t control. Because I didn’t ask to be born like this, I just was. And [Crying] I promise I’m not a scary person.
[Sniffle] It just sucks that people are scared of it, when they shouldn’t be. I just would tell you to get yourself educated, and just out there. Because we’re out there and we can’t change.” Alyssa Cleland, 24
23
INACCURATE PORTRAYAL OF MENTAL ILLNESS
DISABILITY & ABLEISM
MEDIA
Sources: (11) Victoria State Government, (12) Elon University, (13) Canadian Mental Health Association
DISABILITY & ABLEISM
STATS
U.S. Population
living with mental illness
Out of 4,598 Film Characters
portrayed living with mental illness
Out of 1,220 Series Characters
portrayed living with mental illness
UNDER-REPRESENTED
From a 2019 study of nearly 6,000 filmes and series, Source: (14) USC Annenberg
25
MENTAL ILLNESS SHOWN IN CONTEXT WITH
DISABILITY & ABLEISM
STATS
FILM
SERIES
DISPARAGEMENT
HUMOR
CONCEALMENT
Source: (14) USC Annenberg
26
DISABILITY & ABLEISM
STATS
Film characters living with mental illness shown as perpetrators of violence
Source: (14) USC Annenberg
27
IMPACT
60% thought schizophrenia �would lead to violence (15)
30% of people thought depression �would lead to violence (15)
3-5% of all violence is attributed �to mental illness (16)
DISABILITY & ABLEISM
STATS
Source: (15) American Journal of Psychology, (16) National Library of Medicine
28
STIGMA IN CASTING
DISABILITY & ABLEISM
MEDIA
29
STIGMA BEHIND THE SCENES
DISABILITY & ABLEISM
MEDIA
Source: (17) Inevitable Foundation
30
DISABILITY BEHIND THE SCENES
DISABILITY & ABLEISM
MEDIA
43% of those Faced identity-based discrimination
Several respondents say they decline to ask for accommodations in order to hold onto work, while others say that self-advocacy takes away from the work itself.
Source: (17) Inevitable Foundation, (18) Job Accommodation Network
31
“ACCLAIM”
Non-disabled actors playing characters with Disabilities are often rewarded for their portrayal
Being nominated for playing a Disabled character increases your likelihood of winning an Oscar to 50%
DISABILITY & ABLEISM
MEDIA
Source: (19) IndieWire
32
OSCAR WINNERS: “DISABLED” PORTRAYAL
Tom Hanks, 1994
Philidelphia
Living HIV+
Colin Firth, 2011
The King’s Speech Speech Disability
Julianne Moore, 2015
Still Alice
Living with Alzheimer's
Jared Leto, 2014
Dallas Buyers Club
Living HIV+
Matthew McConaughey
Dallas Buyers Club
Living HIV+
Sean Penn, 2002
I Am Sam
Intellectual Disability
Jack Nicholson, 1998
As Good As It Gets
Living w/ OCD
Edward Norton, 1997
Primal Fear
Living with DID
Angelina Jolie, 2000
Girl Interrupted
Living w/ Mental Illness
Geoffrey Rush, 1997
Shine
Living w/ Schizophrenia
Jessica Lange, 1995
Blue Sky
Living w/ Mental Illness
Nicole Kidman, 2003
The Hours
Living w/ Mental Illness
Eddie Redmayne, 2015
The Theory of Everything
Living w/ ALS
Anthony Hopkins, 2021
The Father�Living w/ Dementia
Joaquin Phoenix, 2020
The Joker
Living w/ Mental Illness
Renée Zellweger, 2020
Judy
Living w/ Mental Illness
Rami Malek, 2019
Bohemian Rhapsody
Living HIV+
Brie Larson, 2016
Room�Living w/ Mental Illness
Al Pacino, 1993
Scent of a Woman
Blind
Jamie Foxx, 2005
Ray
Blind
Holly Hunter, 1994
The Piano
Speech Disability
Daniel Day Lewis, 1990
My Left Foot
Living with CP
Hillary Swank, 2005
Million Dollar Baby
Mobility Disability
Anthony Hopkins, 1990
Silence of the Lambs
Living w/ Mental Illness
Tom Hanks 1995
Forest Gump
Intellectual Disability
*SINCE 1990
Cate Blanchett, 2014
Blue Jasmine
Living w/ Mental Illness
Christopher Plummer, 2014
Beginners
Living w/ Invisible Illness
Note: Hopkins is first winner w/ public Autism diagnosis
DISABILITY & ABLEISM
MEDIA
33
OSCAR WINNERS: DISABLED ACTORS
Marlee Matlin, 1988
Children of a Lesser God
There are Best Actor winners who have lived with addiction and won portraying characters living with addiction. They do not publicly identify as Disabled so have not been included.
NOTE:
Harold Russell, 1946
The Best Years of Our Lives
*ALL TIME
DISABILITY & ABLEISM
MEDIA
Troy Kotsur, 2022
CODA
PROPER PORTRAYAL OF DISABILITY
DISABILITY & ABLEISM
MEDIA
Is Disability used
as a plot device?
Is Disability used for sympathy
or humor?
Is Disability portrayed as something solely inspirational?
Portrayal may enable Ableism
PROPER PORTRAYAL OF DISABILITY
DISABILITY & ABLEISM
MEDIA
Are the creators and storytellers Disabled?
Are Disabled actors portraying the characters?
Are the Disabeld characters whole people?�With love lives, sex lives, responsibilities, senses of humor…
Portrayal likely supports
accurate Disability representation
36
PROPER PORTRAYAL OF DISABILITY
DISABILITY & ABLEISM
MEDIA
37
INCLUSIVE�DESIGN
ACCESSIBILITY MATTERS
INCLUSIVE DESIGN
DISABILITY & ABLEISM
DESIGN
39
USE OF TEXT
DISABILITY & ABLEISM
DESIGN
Source: (20) HootSuite
40
EXAMPLE COLOR COMBINATIONS (23)
COLOR
DISABILITY & ABLEISM
DESIGN
Source: (21) Colour Blind Awareness, (22) Worldwide Web Consortium, (20) HootSuite, (23) Martin Krzywinski
41
IMAGES & VIDEO
DISABILITY & ABLEISM
DESIGN
Source: (24) UX Collective
42
DISABILITY &�THE WORKPLACE
EQUITY MATTERS
30%
of College-Educated, Full-Time employees who work �in an office live with a Disability
62% of those live with non-apparent/invisible disabilities
DISABILITY & THE WORKPLACE
Source: (25) Center for Talent Innovation
44
DISABILITY & ABLEISM
WORKPLACE
MANAGING EMPLOYEES
45
WORKPLACE RESOURCES
DISABILITY & ABLEISM
WORKPLACE
Source: (26) ADA National Network, (27) U.S. Office of Personnel Management , (28) Guardian Life
ADA: REASONABLE ACCOMMODATIONS
DISABILITY & ABLEISM
WORKPLACE
Source: (29) Office of Disability Rights
47
ADA: REASONABLE ACCOMMODATIONS
DISABILITY & ABLEISM
WORKPLACE
Source: (29) Office of Disability Rights
48
NON-APPARENT/INVISIBLE DISABILITIES & MASKING
DISABILITY & ABLEISM
WORKPLACE
Source: (26) Accessibility.com, (27) Invisible Disabilities Org, (25) New York Times
49
Kassandra in Netflix’s Love on the Spectrum
50
RESOURCES FOR DISABLED WORKERS
DISABILITY & ABLEISM
WORKPLACE
1. Document
2. Disclose & Discuss
3. Defend
4. Distress-Management
DEALING WITH DISCRIMINATION
DISABILITY & ABLEISM
WORKPLACE
52
ADDITIONAL RESOURCES
DISABILITY & ABLEISM
WORKPLACE
53
COMPANY DEI, EAP, STD, & LTD PROGRAMS
Add your company’s details here
DISABILITY & ABLEISM
WORKPLACE
Disability at Work
54
RESOURCES
ALLYSHIP MATTERS
BECOME A DISABILITY ALLY
DISABILITY & ABLEISM
RESOURCES
Learn Disability Etiquette
Expose yourself to Disability History & Culture
Consult the paid expertise of Disabled people
Allyship
LEARN DISABILITY HISTORY
DISABILITY & ABLEISM
RESOURCES
WATCH
READ
Sundance Audience Award Winner and Academy Award Best Doc Nominee, shows a ‘70s Disabled teen summer camp, and its campers who became activists that shaped Disability Justice
One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human.
NYT article on the Historic 504 Sit-In, a 26 day protest access the country that lead to the Rehabilitation Act �of 1973
Read about the Captiol Crawl, an accessibility protest which lead to the historic 1990 ADA, American’s with Disabilities Act
LEARN DISABILITY ETIQUETTE
DISABILITY & ABLEISM
RESOURCES
LISTEN TO
READ
Two Disabled friends discuss light & heavy everyday disability topics
Episode 87 - Disability Etiquette
An approachable guide to being a thoughtful, informed ally to Disabled people, with steps for how to speak and act, and how you can help make the world a more inclusive place.
58
SERIES TO WATCH
SPECIAL
DISABILITY & ABLEISM
RESOURCES
Resources
59
FILMS TO WATCH
DISABILITY & ABLEISM
RESOURCES
Resources
BOOKS TO READ
Alice Wong
Care Work: �Dreaming Disability Justice
Leah Lakshmi Piepzna-Samarasinha
Some disabilities are visible, others less apparent--but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by Disabled people.
This collection of essays explores the politics and realities of disability justice, centering around sick and disabled queer, trans, Black, and brown people, with knowledge for all, showing that mapping access is radical love.
DISABILITY & ABLEISM
RESOURCES
Haben defines disability as an opportunity for innovation. She pioneered her way through obstacles, graduated from Harvard Law, and now uses her talents to advocate for people with disabilities.
What Can a Body Do? How We Meet the Built World
Sara Hendren
What might assistance based on the body's stunning capacity for adaptation--rather than a rigid insistence on "normalcy"--look like? Imagine a future that will better meet the extraordinary range of our collective needs and desires.
Mismatch : How Inclusion Shapes Design
Kat Holmes
Holmes shows how inclusion can be a source of innovation and growth, especially for digital technologies. Each time we remedy a mismatched interaction, we create an opportunity for more people to contribute to society in meaningful ways.
TO FOLLOW - ARTISTS
DISABILITY & ABLEISM
RESOURCES
TO FOLLOW - ARTISTS
DISABILITY & ABLEISM
RESOURCES
TO FOLLOW - EDUCATION & CULTURE
DISABILITY & ABLEISM
RESOURCES
TO FOLLOW - LIFESTYLE & CULTURE
DISABILITY & ABLEISM
RESOURCES
65
DISABILITY & ABLEISM
RESOURCES
66
ACCESSIBLE DESIGN RESOURCES: COURSES
DISABILITY & ABLEISM
RECOURCES
67
ACCESSIBLE DESIGN RESOURCES: TOOLS
DISABILITY & ABLEISM
RESOURCES
68
ACCESSIBLE DESIGN RESOURCES: VIDEOS
DISABILITY & ABLEISM
RESOURCES
69
ACCESSIBLE DESIGN RESOURCES: READING
DISABILITY & ABLEISM
RESOURCES
70
THANK YOU
DISABILITY MATTERS
For any usage questions or presentation inquiries, please contact JenelleBringer@Gmail.com
Created & Written by Jenelle Bringer
Written by Lori Samuels
Additional Inclusive Design Research by “E.N.”
DISABILITY & ABLEISM
SOURCES CITED
INTRO
LANGUAGE
MEDIA
SOURCES CITED
DISABILITY & ABLEISM
SOURCES CITED
MEDIA
16. Swanson, Jeffrey W., et al. “Mental Illness and Reduction of Gun Violence and Suicide: Bringing Epidemiologic Research to Policy.” Annals of Epidemiology, vol. 25, no. 5, May 2015, pp. 366–376, www.sciencedirect.com/science/article/pii/S1047279714001471, 10.1016/j.annepidem.2014.03.004.
17. “Cost of Accommodations Report — Funding the next Generation of Disabled Screenwriters — Inevitable Foundation.” Inevitable Foundation, inevitable.foundation/cost-of-accommodations/download. May 2022.
18. “Benefits and Costs of Accommodation.” Askjan.org, askjan.org/topics/costs.cfm?csSearch=2546498_1. Accessed 16 July 2022.
19. Thompson, Anne, and Anne Thompson. “Here Are 59 Actors Who Landed Oscar Nominations for Portraying Characters with Disabilities.” IndieWire, 25 Sept. 2017, www.indiewire.com/2017/09/actors-oscar-nominations-disabilities-afflictions-1201879957. Accessed 16 July 2022.
DESIGN
20. “Everything You Need to Know about Inclusive Design for Social Media.” Hootsuite Social Media Management, 9 Jan. 2019, blog.hootsuite.com/inclusive-design-social-media/.
21. Colour Blind Awareness. “Colour Blindness.” Colour Blind Awareness, 2022, www.colourblindawareness.org/colour-blindness/.
22. W3C. “Understanding Success Criterion 1.4.3 | Understanding WCAG 2.0.” W3.org, 2016, www.w3.org/TR/UNDERSTANDING-WCAG20/visual-audio-contrast-contrast.html.
23. “Data Visualization, Design and Information Munging - Martin Krzywinski / Genome Sciences Center.” Mkweb.bcgsc.ca, mkweb.bcgsc.ca/colorblind/.
24. “UX Collective.” UX Collective, uxdesign.cc.
WORKPLACE
25. A Talent Pool That Many Companies Neglect: Employees with Disabilities. https://www.talentinnovation.org/_private/assets/DisabilitiesInclusion_PressRelease.pdf.
26. National Network. “An Overview of the Americans with Disabilities Act | ADA National Network.” Adata.org, 2019, adata.org/factsheet/ADA-overview.
27. “What Is an Employee Assistance Program (EAP)? - OPM.gov.” U.S. Office of Personnel Management, 2019, www.opm.gov/faqs/QA.aspx?fid=4313c618-a96e-4c8e-b078-1f76912a10d9&pid=2c2b1e5b-6ff1-4940-b478-34039a1e1174.
28. “Long Term vs Short Term Disability Insurance – What’s the Difference? | Guardian.” Www.guardianlife.com, www.guardianlife.com/disability-insurance/long-term-vs-short-term.
29. “Types of Reasonable Accommodation | Odr.” Dc.gov, 2019, odr.dc.gov/book/manual-accommodating-employees-disabilities/types-reasonable-accommodation.
SOURCES CITED cont…