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Human Health Project Program Development Strategy

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HHP Programs

  • Real-World Data Research
  • Real-World Data with Clinical Trial Comparison
  • Patient Empowerment Training Modules
  • Patient Advocacy Program
  • Crowdsourced Diagnosis Program
  • Health Meetup Program

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Connected Grassroots Efforts

All HHP programs are grassroots efforts that are initiated by ordinary people and integrated to work together.

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Real-World Research Program

  • The Real-World Health Research Program at Human Health Project (HHP) collects via surveys real-world patient-reported data about specific health conditions, and makes this information available to the public in real time and analyzed at no cost.
  • Includes causes, symptoms, treatments, side effects (special focus on treatment outcomes)
  • The purpose of the program is to provide free and unbiased crowdsourced, real-world integrative health information to individuals and communities, so that they can become more informed about their health condition and treatment options.

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Real World Data with Clinical Trial Comparison

Program goals

  • To compare and contrast HHP real-world survey data with external data to reveal possible new findings and inconsistencies
  • Help users understand clinical trial data for diseases that affect them
  • Contextualize real-world survey data with external references
  • Make users aware of pre-existing clinical trial summaries

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Patient Advocacy Program

  • In this program non professional volunteers are trained to act as advocates (offline and online) for patients and caregivers who are unfamiliar with healthcare bureaucracy and protocols.��The program includes:�- Creation and delivery of training modules for advocate competency levels (including Patient Empowerment Program)�- Advocate application�- Advocate training & certification�- Advocate/patient matching�- Advocate monitoring�- Program feedback surveys

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Patient Empowerment Program

  • A self-paced program, delivered online and offline, empowers patients, caregivers and advocates facing complex health challenges including:
    • Accessing, organizing and managing your medical records
    • Researching your condition and increasing your health literacy
    • Accessing and understanding scientific literature
    • Choosing a doctor and building your healthcare team
    • Preparing for a medical appointment
    • Knowing your rights in your location (HIPAA, NHS, etc)
    • Saving time, money and increasing overall value from your healthcare providers and insurance companies

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Crowdsourced Diagnosis Program

  • This program helps individuals get a diagnosis for their condition
  • Includes the following:
    • Completion of anonymous form by patient/caregiver with medical history
    • Cases are reviewed by HHP evidence-based medicine specialists
    • Dissemination to the HHP community & media channels
    • Collection & analysis of feedback including machine learning
    • Comments posted by HHP Patient Investigators (PI) who collaborate with the patient and each other to offer peer-to-peer advice and support
    • Reward points for top feedback contributors redeemable for HHP swag
    • Patients then discuss the crowdsourced information with their doctors

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Health Meetup Program

  • Structured offline and online (video) meetings delivered by non professionals with multiple roles for maximum participation including:
    • Patient Empowerment Program Meetup Training manuals
    • Meetup format and roles training manual
    • Patient/caregiver/advocate case presentations (2 to 4 per meeting depending on length)
    • Case presentation feedback and evaluation
    • Patient/caregiver/advocate mentoring
    • Patient/caregiver/advocate follow-up support

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Thank you