1 of 14

Meaningful involvement of people living with NCDs

Prachi Kathuria

Capacity Development Consultant, NCD Alliance

#NCDvoices

2 of 14

#NCDvoices

NCDA Strategy 2021-2026

3 of 14

Consulting a broad cross section of people living with NCDs to understand common challenges faced, recommendations and how they want to be meaningfully involved

Leveraging the Advocacy Agenda of People Living with NCDs for advocacy efforts at global, regional and national levels

Ensuring meaningful involvement of people living with NCDs in the NCD response, including in decision making processes to guarantee outcomes that reflect their needs and views

Amplifying voices of people living with NCDs by building a public narrative on NCDs, challenging misconceptions surrounding NCDs and breaking down stigma and discrimination

#NCDvoices

4 of 14

Advocacy Agenda of People Living with NCDs

#NCDvoices

  • Touchstone for the Our Views, Our Voices initiative built through a participatory process
  • Reference for the NCD community to present to decision makers urging them to take action and to put people first.
  • Calls for action in four key areas:
    • Prevention
    • Human Rights and Social Justice
    • Treatment, Care, and Support
    • Meaningful Involvement

​

Adapted to national contexts and leveraging for advocacy and communications efforts

5 of 14

Building a Public Narrative on NCDs

  • Our Views, Our Voices Training Strategy co-produced with 2019-2020 Global Advisory Committee
  • 2019 Train the Trainer Workshop
  • 18 in-country Our Views, Our Voices

trainings

  • 280+ people living with NCDs trained
  • Our Views Our Voices Virtual Training 2021
  • Increased confidence and capacity of

people living with NCDs to call for action

  • Amplifying voices of people living with NCDs

#NCDvoices

6 of 14

Global Charter on Meaningful Involvement of People living with NCDs

6

  • 4 Multistakeholder dialogues
  • 4 Our Views, Our Voices meetings co-hosted w/alliances
  • May - June

Regional

Country-level

  • Stakeholder interviews
  • Community conversations

– reaching the last mile

  • May - June
  • Online Survey - June
  • Charter
  • Draft public comment – July - Aug

Global

7 of 14

What is meaningful involvement?

#NCDvoices

8 of 14

The Global Charter on Meaningful Involvement of People Living with NCDs

Committing to its fundamental principles and core strategies

Operationalising meaningful involvement in organisational practices

Sharing lessons learnt and good practice

www.ourviewsourvoices.org/global-charter

#NCDvoices

9 of 14

10 of 14

#NCDvoices

NCD Diaries are available in English, Spanish and French ourviewsourvocies.org/ncddiaries

11 of 14

Recognition of importance of meaningful involvement of people living with NCDs

11

12 of 14

Recognition of importance of meaningful involvement of people living with NCDs: Country level

12

People living with NCDs involved in the NCD ICC (Interagency coordinating committee) and on Kenya MoH’s NCDs and COVID-19 sub- committee on community engagement

Policy making: Kenya

Implementation: India

M&E: Ghana

13 of 14

What was common? The beginning..

14 of 14

To learn more about the Advocacy Agenda of People Living with NCDs and how you can take action, visit

ncdalliance.org

ourviewsourvoices.org

THANK YOU