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PERSATUAN SINDROM PRADER-WILLI MALAYSIA

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PERSATUAN SINDROM PRADER-WILLI MALAYSIA

Affiliate Members of International Prader-Willi Syndrome Organisation.

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Members by parents/caregivers and patients from all over the state of East Malaysia & Peninsular Malaysia.

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Registered on September 2016,

A support group to provide practical supports and assistance to individual and families affected by Prader-Willi Syndrome from treatment, rehabilitation, education and social aspect for Prader-Willi patients.

(Reg. No. : PPM – 023 -10 – 02092016 )

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SYNDROME

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PRADER-WILLI

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Anxiety

Behavioural

Challenges

What is

Prader-Willi

Syndrome ?

Always being hungry

Never feeling full

Scheduled Meal times

&

A calorie restricted diet

24 hour supervision

No food treats !

Low

Muscle Tone

Scoliosis

Autistic Features

Sleep Apnea

Delayed

Milestones

Cognitive

Delays

Skin Picking

Risk Of

Obesity

High Pain

Treshold

Regular

Hospital

Visits

Occupational

Therapy

Speech & Language Therapy

Physio

therapy

Orthotic

treatments

Growth Hormone Treatment

Risk Of Overeating

Needs

Characteristic

Phenotype

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WORRY / ANXIETY

OUTBURST

RIGIDITY

PERSEVERATION

STUBBORNNESS

NON COMPLIANCE

REPETITIVE QUESTIONS

ARGUING

MOST COMMON BEHAVIOUR ISSUES IN PWS

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CO HOST – 5^TH & 6^TH ASIA PACIFIC PRADER-WILLI SYNDROME CONFERENCE

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www.pwsamalaysia.org.my

PersatuanSindromPraderWilliMalaysia

malaysian_pws

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