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Experiences with Hospitalization Survey

Preliminary Summary of 449 Community Experiences

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Who Created the Survey

This survey was designed and created by a coalition of individuals who have survived coerced psychiatric interventions with the goal of giving a voice to people who have been harmed by forced treatment and would not participate in psychiatric research. This information will be shared back with community members who have chosen to receive it as a component of their participation.

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Why We Created the Survey

The survey was created to give survivors of coercive psychiatric interventions a space to share information about what happened to them. As people who have been psychiatrized, knowledge is consistently produced about us and for systems that have and continue to harm us. This survey is designed for the co-creation of knowledge by and for a marginalized community without the intervention of systems we have identified as harmful. This information will be free and made accessible to people with these experiences.

We believe there is inherent value in communities being involved in the production of their own knowledge, particularly since epistemic injustice has kept us from being considered accurate reporters of our own experiences. The prioritizing of academic means of knowledge production is rooted in paternalism, and we reject the assumption that knowledge only matters or is meaningful when it is designed by people who have had the privilege to participate in higher education.

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Participant Information

Age

Range: 11-75

Median Age: 39

Modal Age: 25

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Participant Identities

Trauma Survivor: 66%

Lived Experience with Substance Use: 25%

Disabled Person/Person with Disability: 36%

Neruodivergent: 12%

Person of Color: 8%

LGBTQIA+: 32%

Mental Health Consumer/Client: 79%

Psychiatric Survivor: 47%

Ex-patient: 30%

Person of Size: 22%

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Experiences with Suicidal Thoughts

Age of First Suicidal Thoughts

  • Range: 5 years old - 55 years old
  • Average: 16 years old
  • Modal Age: 12 years old
  • Median Age: 14 years old

Disclosure: Who We Told

  • Parent/Guardian: 22%
  • Trusted Adult: 13%
  • Friend: 32%
  • Mental Health Worker: 35%
  • Teacher/School Staff: 13%
  • Medical Professional: 18%
  • Posted Online/Social Media: 9%
  • People Found Out without Consent: 9%
  • No One: 38%

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Impact of Disclosure

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Results of Disclosure

Police/911/Welfare Check: 48%

Psychiatric Hospitalization: 86%

Medical Hospitalization: 36%

Emergency Department: 71%

Jail/Incarceration: 3%

Certification/Civil Commitment/ Long-Term Hospitalization: 12%

Residential Treatment: 20%

Religious/Spiritual Intervention/ Treatment: 7%

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Experiences with Hospitalization

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Compelled, Threatened, or Pushed into Voluntary Treatment

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How We Were Compelled

Threatened with Involuntary Treatment: 42%

Pressure from Family: 26%

Gatekeeping to other Treatment or Meds: 21%

Needing a Place to Stay: 4%

Pressure from Provider: 10%

No Other Options: 25%

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Helpfulness of Our Hospitalizations

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Harmful Experiences

Sexual Assault by Staff: 1%

Physical Restraints: 31%

Chemical Restraints: 22%

Seclusion: 31%

Staff Physically Touched or Restrained: 23%

Hate Speech: 7%

Misgendering: 5%

Assaulted by Staff: 4%

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52%

Of us experienced no change or worsening of suicidal thoughts after hospitalization.

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53%

Attempted suicide after hospitalization

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78%

Experienced symptoms of PTSD related to hospitalization

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Would we tell providers about future suicide crisis?

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How effective was the hospital at addressing the concerns that led to our suicidal thoughts?

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ADDITIONAL QUANTITATIVE ANALYSIS FROM SURVEY

  • 100% of POC respondents were involuntarily hospitalized
  • 100% of POC respondents experience 7+ PTSD symptoms following hospitalization
  • 100% of POC respondents attempted suicide following hospitalization
  • Men & Trans+ people were more likely to be involuntarily hospitalized, women more likely to experience “involuntary voluntary”
  • 84% of queer participants experienced identity based discrimination in hospitalization
  • Men & Trans+ people were more likely to experience seclusion and restraint
  • Involuntary admissions were more likely to experience seclusion and restraint

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SURVEY OF PROFESSIONALS

  • 43% of providers encounter suicide on weekly basis, additional 25% monthly
  • ⅔ say suicide is adequately covered in professional training, but it is only required in one graduate program in CO (MSW at DU)
  • 33% had gatekeeper training (not assessment or management training)
  • 72% would find evaluation and management training helpful