Experiences with Hospitalization Survey
Preliminary Summary of 449 Community Experiences
Who Created the Survey
This survey was designed and created by a coalition of individuals who have survived coerced psychiatric interventions with the goal of giving a voice to people who have been harmed by forced treatment and would not participate in psychiatric research. This information will be shared back with community members who have chosen to receive it as a component of their participation.
Why We Created the Survey
The survey was created to give survivors of coercive psychiatric interventions a space to share information about what happened to them. As people who have been psychiatrized, knowledge is consistently produced about us and for systems that have and continue to harm us. This survey is designed for the co-creation of knowledge by and for a marginalized community without the intervention of systems we have identified as harmful. This information will be free and made accessible to people with these experiences.
We believe there is inherent value in communities being involved in the production of their own knowledge, particularly since epistemic injustice has kept us from being considered accurate reporters of our own experiences. The prioritizing of academic means of knowledge production is rooted in paternalism, and we reject the assumption that knowledge only matters or is meaningful when it is designed by people who have had the privilege to participate in higher education.
Participant Information
Age
Range: 11-75
Median Age: 39
Modal Age: 25
Participant Identities
Trauma Survivor: 66%
Lived Experience with Substance Use: 25%
Disabled Person/Person with Disability: 36%
Neruodivergent: 12%
Person of Color: 8%
LGBTQIA+: 32%
Mental Health Consumer/Client: 79%
Psychiatric Survivor: 47%
Ex-patient: 30%
Person of Size: 22%
Experiences with Suicidal Thoughts
Age of First Suicidal Thoughts
Disclosure: Who We Told
Impact of Disclosure
Results of Disclosure
Police/911/Welfare Check: 48%
Psychiatric Hospitalization: 86%
Medical Hospitalization: 36%
Emergency Department: 71%
Jail/Incarceration: 3%
Certification/Civil Commitment/ Long-Term Hospitalization: 12%
Residential Treatment: 20%
Religious/Spiritual Intervention/ Treatment: 7%
Experiences with Hospitalization
Compelled, Threatened, or Pushed into Voluntary Treatment
How We Were Compelled
Threatened with Involuntary Treatment: 42%
Pressure from Family: 26%
Gatekeeping to other Treatment or Meds: 21%
Needing a Place to Stay: 4%
Pressure from Provider: 10%
No Other Options: 25%
Helpfulness of Our Hospitalizations
Harmful Experiences
Sexual Assault by Staff: 1%
Physical Restraints: 31%
Chemical Restraints: 22%
Seclusion: 31%
Staff Physically Touched or Restrained: 23%
Hate Speech: 7%
Misgendering: 5%
Assaulted by Staff: 4%
52%
Of us experienced no change or worsening of suicidal thoughts after hospitalization.
53%
Attempted suicide after hospitalization
78%
Experienced symptoms of PTSD related to hospitalization
Would we tell providers about future suicide crisis?
How effective was the hospital at addressing the concerns that led to our suicidal thoughts?
ADDITIONAL QUANTITATIVE ANALYSIS FROM SURVEY
SURVEY OF PROFESSIONALS