Health Equity Town Hall�for MSI Community

Sharing lessons learned during implementation of M-PCOR Toolkit within the DuPage County Muslim Community during COVID-19 Pandemic

How to become a Patient Partner by understanding health care treatment options post-COVID-19 pandemic

Town Hall Agenda

4 Segments of the Town hall

Virtreach Data Presentation

Mosque Community/

Target Population

Mosque PCOR Toolkit

Panel Discussion

Introduction

Purpose

Evidence

Next Steps

1 hour

1 hour

Town Hall Format

Housekeeping Items

Prayer with Our Intent

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اَللّٰهُمَّ رَحْمَتَكَ أَرْجُوْا فَلَا تَكِلْنِيْ إِلٰى نَفْسِيْ طَرْفَةَ عَيْنٍ وَّأَصْلِحْ لِيْ شَأْنِيْ كُلَّهُۥ لَآ إِلٰهَ إِلَّآ أَنْتَ

O Allah, I hope for Your mercy, do not leave me by myself for even the duration of an eye blink, and correct my total condition. Besides You, there is none worthy of worship.

Rebecca Johnson, PhD, MSc, is a freelance researcher specializing in Research, Partnership and; Facilitation.

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Her current work focuses on building the capacity of community based stakeholders to engage with health

research and researchers. Dr. Johnson is currently a consultant to the Chicago Community Media and Research Partnership led by Jen Brown (ARCC and Northwestern University) in partnership with Jhmira Alexander (Public Narrative) and Mareva Lindo, and supports the community based Pastors4PCOR faith based-research engagement HUB and network alongside Dr. Paris Davis and Dr. Diana Ingram.

Dr. Rebecca Johnson

Community Health Researcher

Host Introduction

1. Do you know what PCOR stands for? (yes/no)
2. Which stakeholder groups do you identify yourself with? (a checklist of 10 options)
3. Do you know what Mosque-PCOR toolkit is for? (yes/no)
4. Do you know where to access the Mosque-PCOR Toolkit? (yes/no)
5. Does your Mosque engage Community Health Workers to support members healthcare? (yes/no)

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Polling

ACA’s mandate on Expediting Health Equity

Birth of Translational Sciences Institute & PCORI (2010)

Project Need: Background

PCORI Mission

PCORI helps people make informed health care decisions, and improve health care delivery and outcomes, by producing and promoting high integrity, evidence-based information that comes from research guided by patients, caregivers and the broader health care community.

PCORI Strategic

Plan

Purpose of the Town hall

Project Need: Background

To foster the culture of engagement between the mosque-community and our healthcare system through building Partnerships & coming up with Co-Learning Opportunities

Virtreach Data Presentation

Mosque Community

Contributions

Mosque PCOR Toolkit

Panel Discussion

Introduction

Purpose

Evidence

Next Steps

1 hour

1 hour

Town Hall Format: Segment #1

Muslim Society Inc. (MSI) Background

• Located in Glendale Heights
• Serving the community and surrounding suburbs since the early 1990’s
• MSI has grown from a full time Masjid to an active Islamic center catering to over a 1,000 individuals and still growing
• Holds all 5 prayers, two weekly Friday prayers and a variety of other programs and services
• MSI’s vision is to become a center that promotes spiritual, educational, and social growth for each of its attendees.

Mosque Programs

Before the Pandemic

• Zakat
• Funeral Services
• Nikkah/Marital services
• Weekend Islamic School
• After school Maktab
• Summer school for children

• Hifz Program
• Community outreach
• Weekly Tafseer programs
• Youth engagement - sports, education
• Food pantry, Financial assistance, Refugee support

Mosque Support to COVID-19 victims

(Contributions during Pandemic)

• Two COVID-19 Vaccination Clinics in April and May 2021 in collaboration w/ Compassionate Care Pharmacy
• COVID-19 Testing events in MSI parking lot (was open to ALL public)
• Continuing community services via online platforms (Zoom, youtube, FB)
• Funeral Services
• Food pantry

Mosques biggest hurdles during Pandemic

• Social distancing and concerns of virus spread during group prayers and events
• Difficulties in accommodation for large gathering (Friday prayers, Eid, Ramadan)
• Many people seeking vaccine resources couldn’t navigate system on their own when vaccine was released
• Questions about the vaccine - Halal or Haram?

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• Lack of communication with mosque members due to limited use of social media among certain populations
• Limited attendance during prayers and congregations
• Decreased funding and donations
• Disconnect of Mosque programs and canceled activities for youth and adults
• Barrier to helping those dependent on the mosque

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Mosques biggest hurdles during Pandemic

MSI’s Current Focus

• Increased mosque membership
• Increased participation in programs- Hifz, Sunday school, after school Maktab
• Expanded future programs
• People will have more information to connect to resources
• Funding for operational and expansion projects
• Increased donations from mosque members

Outcome measures to evaluate MSI Goals

• Enrollment in mosque programs
• Patrons of mosque food bank
• Volunteer team
• Weekly Email newsletters to the community
• Connecting to community via other Social media channels

PCOR Principles Highlighted throughout EMPART Project at MSI

• Reciprocal Relationships
• Co-Learning
• Partnerships
• Transparency, Honesty, Trust

Virtreach Data Presentation

Mosque Community/

Target Population

Mosque PCOR Toolkit

Panel Discussion

Introduction

Purpose

Evidence

Next Steps

1 hour

1 hour

Town Hall Format: Segment #2

What is the Mosque-PCOR toolkit?

The Birth of Mosque-PCOR Toolkit

Engaging Muslim Americans for Research on Community Health (E-MARCH)

Jan 2017 – Dec 2019

Oct 2019

Feb 2020

Sep 2021

Mosque-PCOR

Project #1

Mosque-PCOR Toolkit

1^st Mosque-PCOR Conference

Equipping Muslim with PCOR-Based Action Oriented Research Tools

EMPART)

Aug 2020 – October 2021

A-MAP 2021

Mosque-PCOR

Project #2

2^nd Mosque-PCOR Conference

Development of Mosque-PCOR Toolkit

Dissemination of Mosque-PCOR Toolkit

Highlights of Mosque-PCOR Toolkit

Provides guidance for:

1. CBPR: Community-based participatory approach in mosques
2. Conducting patient-Centered community health projects
3. PCOR life cycle vs. Project Management life cycle
4. Community stakeholders
5. Recruitment strategies
6. Faith-based messaging: 3R Model
7. Sustainability of resources

Who are Mosques Stakeholders?

Highlights of Mosque-PCOR Toolkit

Different levels of stakeholders engage differently with project teams.

A trained PCOR professional will be able to bridge the communication gaps with the help of PCOR principles.

Need for Mosque-PCOR Community Advisory Board

Highlights of Mosque-PCOR Toolkit

Recommendation:

Mosque-PCOR CAB to be made up of different stakeholders in the community.

Highlights of Mosque-PCOR Toolkit

Provide Guidance on Using

PCORI Methodology for:

• Implementing Patient-Centeredness
• Engaging community stakeholders
• Guidelines for leaders on communication and messaging (causal inference method)

A Community Health

Collaboration

EMPART Disseminates Mosque-PCOR Toolkit

https://www.pcori.org/research-results/2020/equipping-muslims-pcor-based-action-oriented-research-tools-empart

WFC Service Areas Vs. Project Focus Areas

Target Mosque-Communities

1. North Chicago - MCC: Muslim Community Center
2. Western Suburbs: MSI - Muslim Society Inc.
3. Southwestern Suburbs - MAB: Muslim Association of Bolingbrook
4. Southeast Suburbs - Al Nahda

EMPART Timeline

31

Recruiting

CHRWs

Aug 2020

Sept 2020

Developed CHW Training Program

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Oct 2020

Nov 2020

DEC 2020 – May 2021

Jul –Aug 2021

Sept 2021

Conducting Outreach Online

Trained CHWs

5 Town Hall Meetings in collaboration with Mosque-

Communities

2^nd Mosque-PCOR Conference

Mosque-PCOR CHW Training Model

PCOR Engagement Principles

1. Community Engagement and Advocacy
2. System Navigation
3. Participatory Research / Patient-Centered Research
4. Public Health Concepts & Approaches/Integrations
5. Coordination of Services
6. Education
7. Social-Emotional Support
8. Community-Cultural Liaison

Core Competencies as determined by American Public Health Association APHA

Mosque-PCOR Toolkit

PCOR Standards Methodology

Research Fundamentals

PCOR Ambassadorship

Mosque-PCOR CHW

Training Tools

Virtreach Data Presentation

Mosque Community/

Target Population

Mosque PCOR Toolkit

Panel Discussion

Introduction

Purpose

Evidence

Next Steps

1 hour

1 hour

Town Hall Format: Segment #3

Communication Channels

Communication Activities

VIRTREACH Model

VIRTUAL OUTREACH

Weekly Newsletter

Hotline

630-868-3639

Live Online Chat

Mosque-PCOR CHW Community Health Worker

Online Self-Help Form

Informed Choices

VIRTREACH Model

Communication Channels

VIRTREACH: Phone Channel

Open Enrollment OE8

Special Enrollment Period and Biden Admin OE8

VIRTREACH: Phone Channel

Phone Call Data for 630-868-3639

Total Answered Calls live = 484

Total number of calls = 1281

Total # of useful calls = 1176

VIRTREACH: Website

Web Chat Data & Site visits

VIRTREACH: Website

Data from Online Self-Help Form

52 people filled out this form

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• 19 = Access to Care
• 13 = Social Services
• 11 = Free Clinic

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Out of 52 requests 10 were COVID-19 Vaccine related

VIRTREACH: Activities

Community Events vs. Website Traffic (Google Analytics)

1

5

4

3

2

6

1. Tue, Dec 15

Stakhldr Mtg Invite #2

• Sun, Jan 21

Celebrate MLK Day email

• Tue, Feb 23

Stakhldr Mtg Invite #4

• Mon, Mar 08

WFC Newsletter

• Thu, Mar 25

Ask a Doc Webinar Flyer

• Wed, May 26

Intern with WFC email

VIRTREACH: Phone Channel

Phone Call Data for 630-868-3639

Factors Affecting Nature of Calls

1. Open Enrollment - Nov - Dec 2020
2. Ramadan - May 2021
3. Many folks know WFC for Health Coverage Solutions
4. Outreach Posters were placed in the end of February 2021
5. Number of calls picked up after posters were placed by the CHWs in the Grocery and neighborhood stores

Total number of calls = 1281

Total # of useful calls = 1176

Answered and recorded live = 484

VIRTREACH: Activities

Online Resource Directory

Nonprofits and healthcare business catering to Muslims can sign-up for the FREE online directory https://assets.worryfreecommunity.org

70 Assets on the map

& growing...

Virtreach Data Presentation

Mosque Community/

Target Population

Mosque PCOR Toolkit

Panel Discussion

Introduction

Purpose

Evidence

Next Steps

1 hour

1 hour

Town Hall Format: Segment #4

BREAK

Panelists’ Introduction

Kara Murphy

Missing In Action

Patient Partner

Sean Casten

Jeff Kubik

Dr. Mimi Doll

United States

Congressman

(Illinois - 6)

President,

DuPage Health Coalition

Founder,

Candeo Consulting, Inc.

President,

EBRM,

(Employee Benefits Risk Management Services)

Panelists’ Introduction

Hon. Sean Casten

United States Congressman

(Illinois - 6)

As a scientist, clean energy entrepreneur and CEO, and now as a Member of Congress representing the western suburbs of Chicago, Congressman Sean Casten has dedicated his life to fighting climate change. Casten draws upon his previous private sector experience in Congress to craft market-based solutions to reduce emissions while creating jobs and spurring economic growth.

Casten serves on the Science, Space, and Technology Committee, the Select Committee on the Climate Crisis and is the Vice Chair of the House Financial Services Subcommittee on Investor Protection, Entrepreneurship, and Capital Markets. He also serves as Co-Chair on the New Democrat Coalition Climate Change Task Force.

Panelists’ Introduction

Kara Murphy

Kara Murphy, MS is the President of the DuPage Health Coalition, a nonprofit whose mission is to coordinate efficient and effective health access for low income uninsured and underinsured residents of DuPage County. DHC’s largest program is Access DuPage, coordinating comprehensive healthcare for 6,000 uninsured DuPage County residents annually; 65,000 patients since program launch. DHC also operates Silver Access, an ACA premium assistance program, DuPage Dispensary of Hope (a free pharmacy), and COVID-19 related programming including PPE distribution and wide scale community vaccination efforts (COVID-19, influenza).

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Ms. Murphy was previously the co investigator for a number of NIH/NCI funded community based participatory research grants in cooperation with Northwestern University and Feinberg School of Medicine. A graduate of Benedictine University and Grinnell College, Kara is an adjunct professor in nonprofit leadership at North Central College. Active on a number of local boards and planning councils, she is co-chair of Impact DuPage and HEART, DuPage County’s Health Equity and Access Response Team. She is also a member of the NM Institutional Review Board.

President,

DuPage Health Coalition

Panelists’ Introduction

Dr. Mimi Doll

Candeo Consulting, Inc., a consulting firm specializes in work with community-serving organizations, health, educational, and governmental institutions, and coalitions. Services include: needs and asset assessment, program development and evaluation, organizational capacity building, and grant writing.

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With a strong foundation in qualitative research, including focus groups, interviews, listening sessions and town halls, Mimi strives to hear the story of people’s lives and channel this into actionable strategies for change. Dr. Doll is dedicated to addressing the structural, community and individual concerns that give rise to health and social inequities. For past two decades Dr. Doll has been bringing stakeholders together and find multi-sectorial solutions to complex health and social challenges. She values including a variety of stakeholders at the table, recognizing that nuanced solutions are reached when all voices are heard.

Prior to the inception of Candeo Consulting, Inc. in 2009, Mimi has fulfilled several research and evaluation related roles in health, education and social services including project director of a federally-funded HIV prevention program serving adolescents in therapeutic school settings, coordinator of a federally- funded structural change and community mobilization intervention aimed at reducing adolescent HIV risk, as well as consultant and evaluator on a variety of initiatives and programs including violence prevention, substance abuse prevention, sexual risk prevention, organizational capacity development, and service learning.

Founder,

Candeo Consulting, Inc.

Panelists’ Introduction

Jeff Kubik

Jeff Kubik is an attorney with MBA from the University of Chicago who has been in insurance industry for more than 40 year. He specializes in the fully insured Individual and Small Group marketplace. J

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Mr. Kubik is currently the president of EBRM, the largest General Agency for Blue Cross and Blue Shield of IL. He has experience in processing claims and managing risk for both Individuals and Small Groups, including the forming and managing of a company that provided full scale administrative and risk management services for Blue Cross and other carriers.

President,

EBRM,

(Employee Benefits Risk Management Services)

Panelists’ Introduction

Patient Partner

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Missing in Action

Patients are representative of the population of interest in community health programs and projects and participate in projects and programs to help guide its aims. Anyone as a Patient or as their family members, caregivers, and the organizations can represent as a Patient Partner.

Panel Discussion

Hon. Sean Casten

United States Congressman

(Illinois - 6)

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Opening Remarks

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What would be most beneficial to DuPage County, given the resources and community assets we already have, to support the existing healthcare needs?

Panel Discussion Question

• From your perspective what has been most effective /operational change to improve access to health care?

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• Can you provide examples from CBOs you have worked with - How does it differ from working with a health system or a hospital?

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• What is your advice on building better partnerships for DuPage County needs?

Kara Murphy

President,

DuPage Health Coalition

Panel Discussion

Dr. Mimi Doll

Founder,

Candeo Consulting, Inc.

• What are some of the lessons from other faith-based communities suffering from inequities that can be implemented for a more cohesive response to for the mosque communities? and have these programs survived or evolved during COVID-10 pandemic?

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• How can a CBO working in DuPage area develop a relationship with your services or programs and how can a patient or organization partner and participate in the innovative community health treatments?

Panel Discussion

Jeff Kubik

President,

EBRM,

(Employee Benefits Risk Management Services)

• What steps would a community organization need to take to provide services as part of an insurance benefit package?

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• Does the insurance support the use of Community Health Workers by the beneficiaries? and who can bill and get remunerated for the CHWs services?

(such as physician? Hospital? any healthcare provider i.e. FQHC, Social Services CBO, etc.?)

Open Panel Discussion

Anyone can participate in the discussion.

1. Do you think you can use the Mosque-PCOR toolkit in your future work? (yes/no)
2. What would you use the Mosque-PCOR toolkit for? (open-ended)
3. Do you think mosques are places for? healing or free medical programs or both
4. Would you use CHWs for your healthcare needs if you find one? (yes/no)
5. Who should pay the CHWs?
1. Hospital/Clinicians
2. CBOs
3. Mosques

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Polling

Acknowledgements

• The Project Team including Masood, Asna, Nabil, Saif
• The MSI Mosque Team - Br. Nadeem; Br. Afsar; Br. Shabbir
• Dr. Rebecca Johnson
• Dr. Aasim Padela
• The Community Health Worker Team
• CHW team here Dr. Mahreen Bux and AbdurRahman
• Aneka Neralla
• Orbit 360 and their Information technology expert Usman Mughul

Upcoming

2-Day Symposium

2021

September 18th & 25th

•How will you recruit?

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Participant Recruitment & Retention

Dissemination of Mosque-PCOR Toolkit

This townhall is part of a series of 4 townhalls that are held as part of the community engagement project, Equipping Muslims with PCOR-Based, Action-Oriented Research Tools, EMPART

funded by the Patient-Centered Outcomes Research Institute, PCORI (EATR 18847) to disseminate the mosque-PCOR Toolkit

Town Hall Agenda

The PCORI Dissemination and Implementation Framework