Aligning F2F and remote groups into one model of peer support
October 2020�Reason Digital and Deepr
Stroke Association
Space for logo’s
Names of collaboration partners:
Contents
Original Impact hypothesis
User needs statements:
As a stroke survivor with limited access and ability in using online tools
I need to access the information that was previously provided to me F2F
As a volunteer
I need to create activities/facilitate conversations that are accessible, engaging and support community building
“Creating new approaches to volunteer and support group engagement will;
How we conducted research
Research type: | No. of participants: | Link/s: |
Telephone Interviews | 18 | https://miro.com/app/board/o9J_kocXzLw=/ |
Service Mapping Workshop | 8 | https://miro.com/app/board/o9J_kocXzLw=/ |
Ideation workshop | 15 | https://miro.com/app/board/o9J_kocXzLw=/ |
Progress against outcomes and indicators
Progress:
OUTCOME 1:
Challenge Themes Identified from Interviews
The challenge themes have been grouped according to whether groups met or not, and accessibility needs of volunteers and members.
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Access
Skills
Confidence
Didn’t meet as group
Facilitation
New members
Organisation
Did meet or communicate as a group
Motivation
Accessibility
Memory challenges
Fatigue
Aphasia
Digital Maturity
Progress against outcomes and indicators
Progress:
OUTCOME 2:
Innovation Example 1: Facilitation
Volunteers found facilitating online groups challenging, and at times completely exhausting!
One volunteer got in contact with InterAct Stroke Support. They are a charity that use professional actors to read to people in hospital recovering from a stroke. Following a stroke, stimulation through reading and conversation can encourage the brain to alter and adapt, making it easier to process and understand language and communication.
InterAct Stroke now send a volunteer to an online support group in the South, to facilitate group support sessions. As a result, the volunteer leader now feels like she can contribute to the session, and also receive support from the group instead of being focused on facilitating.
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Innovation Example 2: National Referrals
During lockdown, existing local in person groups took their sessions online. Not all groups set up remote ways of meetings, so some members weren’t able to attend their groups, despite having digital skills and appetite to join.
We’ve seen over lockdown that we can instantly meet with people all over the country (and the world!) at the click of a button. Geographical barriers no longer exist.
A group in the south of England was running a successful online choir. With some support from Stroke Association Volunteer and Community Officers, members from across the UK were connected with the choir to join.
What originally was a London based stroke choir now has members from Northern Ireland and the North East!
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Innovation Example 3: Mutual Aid Group
For members with no or low digital access or skills, engaging in online groups just wasn’t possible over the lockdown period. But innovation doesn’t have to mean using new technology - it can just mean doing something in a new way.
For one group in the north of England, they set up a Whatsapp group to communicate with members who could, and individual phone calls for those who couldn’t. .
Volunteers used the Whatsapp to coordinate a local stroke mutual aid group, and identified members that were shielding to drop food parcels and deliveries off to.
Whilst digital wasn’t used to directly support shielding members, it enabled the coordination between members to provide real practical support to members at the most challenging of times.
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Progress against outcomes and indicators
Progress:
OUTCOME 3:
Progress against outcomes and indicators
Progress:
OUTCOME 4:
Progress against outcomes and indicators
Progress:
OUTCOME 5:
Learnings that influence what happens next
Learnings that influence the wider sector
What next?
We’re still puzzled by...
Stroke peer support group member’s experience
Key contact details: