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LEADING THROUGH STORYTELLING

Becca Monteleone, PhD�Disability Studies�University of Toledo

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NEED A CLOSER LOOK?

www.plaintruthproject.org/access

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AGENDA

Why Storytelling?

What Stories to Tell?

How to Tell Stories to Many Different Audiences?

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WHY STORYTELLING?

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WHAT KINDS OF STORIES COMMONLY GET TOLD ABOUT PEOPLE WITH I/DD?

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AS SOMEONE ELSE’S “GOOD DEED”

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AS PASSIVE VICTIMS

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BOTH THESE MODELS PERPETUATE MYTHS AND STEREOTYPES

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IT’S A JUSTICE ISSUE

When we rely on stereotypes, people with intellectual disabilities have their experiences and knowledge invalidated. Historically, this has resulted in:

  • Institutionalization
  • Sterilization
  • Loss of Agency

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YOUR WORK CONTAINS STORIES THAT CHALLENGE THESE STEREOTYPES AND MYTHS

How do you currently share about your work?

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WHY DO WE TELL STORIES?

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WHAT DOES STORYTELLING DO THAT OTHER KINDS OF KNOWLEDGE SHARING DOESN’T?

Reaches a wider, more diverse audience

Creates an emotional and personal connection

Gets at ambiguities and intangibles

Opens up new conversations

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WHAT STORIES TO TELL?

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WHAT DOES STORYTELLING LOOK LIKE?

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START AT THE BEGINNING…

A story is a moment, not a report

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QUESTIONS TO ASK WHEN CHOOSING A TOPIC:

  • Who is your audience? What does this audience need to take away?
  • What would they be surprised to learn about your work/experience?
  • What’s something people frequently get wrong about this subject?
  • What was a pivotal moment in your own thinking about this subject? (don’t be afraid to share your own growth!)
  • Where do you fit in the story (why are you the right person to tell it?)

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WHAT STORIES ARE MINE TO TELL?

The Ethics of Storytelling

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THINGS TO CONSIDER

  • Ask permission to share someone’s story
  • Collaborate with storytellers with I/DD
  • Make sure relationships are reciprocal
  • Avoid infantilizing, exoticizing, or exploiting
  • Create multiple storytelling products for different purposes

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STEP 1: THINK OF A KEY MEMORY IN YOUR OWN WORK/EXPERIENCE AT THE NISONGER CENTER (ONE MOMENT!)

Who is your audience? What does this audience need to take away?

What would they be surprised to learn about your work/experience?

What’s something people frequently get wrong about this subject?

What was a pivotal moment in your own thinking about this subject? (don’t be afraid to share your own growth!)

Where do you fit in the story (why are you the right person to tell it?)

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ASK YOURSELF: WHY DO I WANT TO SHARE THIS STORY? �

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STEP 2: ESTABLISHING THE KEY DETAILS

Setting: Time, place

Characters: Who they are, their relationships

Plot: What changes from the beginning to the end (avoid simply describing a program or place)

What information does the audience NEED to know to understand the story

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STEP 3: ADDING RICHNESS

  • Five senses descriptions: the weather, the feel of your clothes, the taste of food – our senses help your audience imagine your world
  • Dialogue
  • Emotions

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STEP 4: RECORD YOURSELF

  • Share your memory with as much detail as possible
  • Have a friend or loved one ask you additional questions
  • Transcribe for publication or as a script

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TAKE A MOMENT AND SHARE YOUR STORY WITH SOMEONE AROUND YOU

Listeners: offer additional questions and feedback

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STORIES TAKE MANY FORMS!

  • Recordings becoming written scripts
  • Written pieces
  • Interviews
  • Improvisation
  • Supported
  • Movement-based
  • Illustrations

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STEP 5: DECIDE HOW TO SHARE YOUR STORY

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HOW TO TELL STORIES TO MANY DIFFERENT AUDIENCES?

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AS PROFESSIONALS, WE TEND TO RELY ON:

  • Jargon
  • Statistics
  • Acronyms
  • Other signals that we are in the “know.”

These things can make our stories hard to understand!

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KNOW YOUR AUDIENCE

Tyrone Weedon/Make Studio for ProPublica

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CHARACTERISTICS OF PLAIN LANGUAGE

Single clause sentences

Active tense

Repeat nouns instead of using pronouns (especially at the beginning of a new paragraph)

Bulleted lists

Vocabulary familiar to your reader

Clear chronology

Explanations of new/crucial ideas, terminology, or quotes

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WHAT PLAIN LANGUAGE IS NOT

Censoring content

“Dumbing” things down

Automatically shorter than the original

A universal accessibility solution

The automatic preference for people with intellectual disabilities

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HELPFUL TOOLS

Writing guides

Thesaurus

Lists of most frequently occurring words

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PLAINTRUTHPROJECT.ORG/PLAIN-LANGUAGE-GUIDES-DATABASE

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NO IDEAS ARE TOO COMPLEX

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DESCRIBE YOUR JOB OR RESEARCH AREA USING ONLY THE 1000 MOST COMMONLY OCCURRING ENGLISH WORDS

Up-Goer 5: https://splasho.com/upgoer5/

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DESCRIBE YOUR JOB USING ONLY THE 1000 MOST COMMONLY OCCURRING ENGLISH WORDS

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TRY IT OUT!

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TRANSLATE TO PLAIN LANGUAGE

Mission Statement� �The mission of The Ohio State University Nisonger Center is to empower and support all people with developmental  disabilities and their families through interdisciplinary training, research, and service.� �Vision Statement� �To cultivate an inclusive environment for all individuals, through the highest quality of interdisciplinary care, education, and research to support people with developmental disabilities.

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DEFINING KEY TERMS

The Nisonger Center values are the commitments made by our faculty, staff, and students regarding how we will carry out our work. Our values include:

  • Person/Family- Centered
  • Self-determination
  • Diversity and Inclusion
  • Equity
  • Community
  • Excellence
  • Innovation

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RESOURCES

Storytelling:

Plain Language

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THANK YOU!

Rebecca.Monteleone@utoledo.edu

RebeccaMonteleone.com