�“How to Build an EDS Plate: Feel Better with Food”?�  Bonnie Nasar RDN

John Ferman Email: info@edsawareness.com

EDS Awareness “Educational Series”�March 9, 2022

Agenda

• Who are we?�
• What is our program?�
• Introduce our speaker

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- Q & A��

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What is our Program?

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Link to join Webinar

https://us02web.zoom.us/j/84445643220 

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Resources on www.edsawareness.com

• Disjointed Book Review�https://www.chronicpainpartners.com/disjointed-is-a-new-book-for-patients-with-heds-hsd-and-their-physicians/

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• EDS Awareness Newsletter

htt https://www.chronicpainpartners.com/eds-awareness-educational-programs-and-newsletter/

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Over 100 webinars; 60 expert speakers; 50 topics ‘� https://www.chronicpainpartners.com/webinars/

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• EDS Healthcare Providers Educational program

https://ehlers-danlos-cme.org/

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• EDS Nursing Educational program� https://ehlers-danlos-nursing-edu.org/

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• EDS Leadership Program

https://leadeds.com/

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Disclaimer

• This presentation contains general information about Ehlers-Danlos Syndrome and related conditions and the personal accounts, stories, observations and other non-medical representations of the EDS community who voluntarily participate in this program.  �
• The views and statements expressed in this presentation do not necessarily reflect the views of the EDSawareness.com group.�
• We do not assume or accept any liability for the accuracy, quality, suitability, and currency of the information.�
• The information is not advice, and should not be treated or acted upon as such. If you are having medical problems now -- call 911 in the US (or emergency services in your country).�
• Always consult your doctor before you start, stop, or change any part of your self-care or medical treatment.

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“How to Build an EDS Plate: Feel Better with Food”?�  Bonnie Nasar RDN

Bonnie Nasar RDN

About our speaker:

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• Bonnie graduated Magna Cum Laude from New York University  with a Bachelors of Science in Nutrition and Food Studies.

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• She completed her Dietetic Internship through CUNY-Hunter in New York City.

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• For over twenty years, Bonnie has been a registered dietitian/nutritionist working with every age group from babies to the elderly.

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• Her areas of specialization include Mast Cell Diseases, Ehlers Danlos Syndrome, and Chronic Pain.

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• Click here for more about Bonnie Nasar RDN

nasarnutrition.com

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How to Build an EDS Plate

nasarnutrition.com

How to Build an EDS Plate

www.nasarnutrition.com

Welcome

• I have Ehlers Danlos Syndrome (hEDS) and Postural Orthostatic Tachycardia Syndrome (POTS)
• I have 4 children, 2 of which have Cutaneous Mastocytosis
• I live and breath EDS, POTS, & Mast Cell Disease

Registered Dietitian Nutritionist

Bonnie Nasar RDN

How To Build An EDS Plate

www.nasarnutrition.com

What You Will Learn

Components of a Balanced Diet

Why these Components Matter for EDS

How to Build Your EDS Plate

Resource for Further Learning

www.nasarnutrition.com

How to Build an EDS Plate

This is for you, if

How to Build An EDS Plate

www.nasarnutrition.com

The content in this webinar is based on:

Mariangela Rondanelli , Milena Anna Faliva , Alessandra Miccono, Maurizio Naso, Mara Nichetti, Antonella Riva, Fabio Guerriero, Manuela De Gregori, Gabriella Peroni and Simone Perna

Food pyramid for subjects with chronic pain: foods and dietary constituents as anti-inflammatory and antioxidant agents

How to Build An EDS Plate

www.yourdomainame.com

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Components of a Balanced Diet

Fruits, Vegetables, Fiber Rich Carbohydrates, Proteins, and Healthy Fats

How to Build an EDS Plate

www.nasarnutrition.com

Fruits

Fresh and frozen are both great options

Vegetables

Fresh, pre-cut, and frozen are all great options

Fiber Rich Carbohydrates

Cooked from dry, ready prepared, or packaged are great.

Proteins

Cooked from raw or frozen for animal sources, dried or fresh or prepared for vegetables sources are great

Healthy Fats

Plant-based oils, fatty fish, and nuts and seeds are all great.

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Why These Components Matter for EDS

Fruits, Vegetables, Fiber Rich Carbohydrates, Proteins, and Healthy Fats

How to Build an EDS Plate

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• Vitamin C crucial for collagen synthesis

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• Phytochemicals oxidative stress + inflammation, and may play a role in promoting gut health

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• Fiber gut microbes use this to make butyrate, a compound that intestinal and chronic inflammation

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Fruit and vegetable intake pro-inflammatory cytokines and reactive oxygen species that contribute to inflammation

How to Build an EDS Plate

www.nasarnutrition.com

Fruits and Vegetables

• B vitamins crucial for energy production and healthy blood cells

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• Avoids glycemic peaks seen with refined carbohydrate foods may help manage inflammation

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• Fiber gut microbes use this make butyrate, a compound that intestinal and chronic inflammation

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• Like fruits and vegetables, contain compounds with anti-inflammatory properties

How to Build an EDS Plate

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Fiber Rich Carbohydrates

• Protein is broken down to amino acids our bodies use these amino acids to make collagen

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• Plant-based proteins, poultry, and seafood seem to have more favorable affects when it comes to inflammation

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• Contain vitamins and minerals necessary for hundreds of body processes

How to Build an EDS Plate

www.nasarnutrition.com

Proteins

• Can contain polyphenols and fatty acids that play roles in inflammation

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• Essential for skin, hormone, and brain health

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How to Build an EDS Plate

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Healthy Fats

• B Vitamins- Helps with energy production and fatigue

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• Magnesium- Helps with muscle soreness, sleep, inflammation, anxiety, brain health, and synthesis of collagen, and constipation

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• L-Carnitine- Involved in energy production

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• MSM- Antioxidant and inflammatory properties, reduces cytokine production

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How to Build an EDS Plate

Supplementation

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• B Vitamins- salmon, citrus fruits, leafy greens, eggs, beef, etc

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• Magnesium- nuts and seeds, leafy greens, legumes, etc

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• L-Carnitine- animal products

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• MSM- coffee, tea, leafy green vegetables, apples, etc

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How to Build an EDS Plate

Food Sources

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How to Build an EDS Plate

Supplementation

• Vitamin D- Healthy bones, Inflammation, and Immune System

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• Vitamin B12- healthy RBCs and nerves

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• Vitamin C- Collagen synthesis, wound healing, Iron absorption

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• Lion's Mane Mushroom- may help with brain fog, depression & anxiety. May also protect against stomach ulcers

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How to Build an EDS Plate

Food Sources

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• Vitamin D- salmon, tuna, sardines, fortified juices/milks, beef liver, shiitake mushrooms

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• Vitamin B12- dairy/fortified milk, eggs, tuna, organ meat, sardines, beef, tuna, fortified cereals

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• Vitamin C- citrus fruits, bell peppers, strawberries, tomatoes, cruciferous vegetables, white potatoes

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• Lion's Mane- found in Asian markets

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Not Recommended

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• Histamine diet- Avoidance of ALL known high-histamine triggering foods

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• Food intolerance tests/Hair test- Tests that "identify" food intolerances

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• NAET testing- Alternative medicine claiming to treat allergies

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How to Build an EDS Plate

• Personalized Diet Modifications- Adding and removing foods based on symptoms

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• Food and Symptom Diary- Tracking foods eaten and symptoms that arise to look for patterns

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• Reintroduction of foods to ascertain triggers

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What Does Work

How to Build an EDS Plate

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What Else Works

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• Sleep- Restorative for the body

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• Exercise- Muscle maintenance and joint protection

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• Physical Therapy- Managing joint hypermobility

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• Quality Care Team- Having a team of qualified professionals

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How to Build an EDS Plate

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How to Build an EDS Plate

Fruits, Vegetables, Fiber Rich Carbohydrates, Proteins, and Healthy Fats

How to Build an EDS Plate

www.nasarnutrition.com

How to Build an EDS PLate

Water

How to Build an EDS PLate

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Vegetables

Protein

Healthy fats

Fiber rich

carbohydrates

How to Build an EDS PLate

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Vegetables

Protein

Healthy fats

Fiber rich

carbohydrates

How to Build an EDS PLate

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Fruit

Protein

Healthy fats

Fiber rich

carbohydrates

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Simple Snack Ideas

How to Build an EDS Plate

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• Balanced nutrients: Carbs, fat, and protein
• Provides energy, satiety, and lengthens digestions

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• Carb heavy snacks can lead to energy crashes and blood sugar spikes

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How to Build an EDS Plate

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What Makes a Good Snack?

• Sliced apples with peanut butter and chocolate chips

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• Granola with soy milk and sliced strawberries

• Sliced bell peppers with hummus and crackers

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• Avocado toast topped with chickpeas

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• Yogurt with walnuts and blueberries

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How to Build an EDS Plate

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Healthy Simple Snacks

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Tips for Eating Outside the House

How to Build an EDS Plate

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• Bring a dish you know you can eat

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• If comfortable, ask around for the recipes of the dishes that people are bringing

• Put your drink in the same glass as everyone else to feel more comfortable and blend in

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• As a last resort, eat beforehand and stick to snacking on safe food items and drinks

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How to Build an EDS Plate

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Dinner Parties

• Look up the menu beforehand to see what options are available

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• Call the restaurant to clarify how food is made or if substitutions can be made

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• As a last resort, eat beforehand and stick to ordering safe sides and drinks

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How to Build an EDS Plate

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Restaurants

• You don't have to answer any questions if you don't want to!

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• Pretend you didn't hear a comment being made if it makes you uncomfortable and change the subject

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• Turn the question on them- "I eat for my health, how about you?"

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Handling Questions and Comments

from Family and Friends

Why do you

eat like that?

How to Build an EDS Plate

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Cousin Sue

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Message

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Case Study Patient

How to Build an EDS Plate

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How to Build an EDS Plate

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Case Report

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Age 18, Female, College Student.

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Patient Demographics:

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Patient with Hypermobile Ehlers Danlos Syndrome, Mast Cell Activation Disease, Migraines, and POTS (Postural Orthostatic tachycardia Syndrome).

Diagnosis:

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She reports being super tired during the day, and it is struggle for her to complete her classes and homework. Main symptoms are Chronic pain, brain fog, fatigue, headaches, gastrointestinal pain (bloating, constipation, and pain).

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Problems:

How to Build an EDS Plate

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Patient Background

This patient is young but has a great support system in her mother.

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She tries to make the best of her situation and wants to advocate for herself, but sometimes finds everything overwhelming.

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Her relationship with food is difficult, as she realizes she needs to eat but food causing pain makes her not want to eat.

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Her weight is normal for her height.

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How to Build an EDS Plate

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Nutrition Management for Chronic Pain

Able to help pinpoint offending foods and eliminate them.

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Helped with GI symptoms a lot.

She ate lots of veggies and fruits, less sugary and processed foods, and enough macronutrients to meet her needs.

I had her use Kate Farms oral supplement to replace meals, as she would sometimes go the entire day without eating.

Her Symptom Survey was reduced from 128pts to 86 pts. This is a good start.

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Food and Symptom Diary

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Elimination of tomato products

On Good Days

On Bad Pain Days

Symptom Survey

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How to Build an EDS Plate

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Difficulties with Diet Changes

Part of the reason her symptom scale did not reduce more is because it was a struggle for the patient to get rid of processed foods such as French fries and ranch dressing.

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She did not want to feel left out when dining with friends.

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She felt the difference in her pain level and fatigue level when she ate processed items, but it was still a struggle.

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How to Build an EDS Plate

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Other Factors Affecting Diet

Strong possibility of Gastroparesis

Gastroparesis is referred to as delayed gastric emptying. It is a disorder that slows or stops the movement of food from your stomach to your small intestine. Stomach muscles work poorly or not at all causing the stomach to take too long to empty its contents. Diabetes is the most common underlying cause because it can damage nerve cells, but in Ehlers Danlos Syndrome, we see a very high rate of it as well.

The patient was encouraged to get a GI motility study done.

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How to Build an EDS Plate

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Considerations

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Motivating young people to cook for themselves and not eat junk is difficult.

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Encouraging meal prep and easier ways to get things done

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Encouraging food intake on high pain days

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Resource for Further Learning

How to Build an EDS Plate

www.nasarnutrition.com

How to Build an EDS Plate

www.nasarnutrition.com

All of this is just a taste of nutrition when it comes to EDS!

Other nutrition topics to think about:

• How anti-inflammatory foods decrease chronic pain
• Which tools and strategies can help us prepare healthy meals with less effort and time required
• Which foods help us feel best and which foods might make our symptoms worse
• How the "trifecta" can affect our nutrition needs
• How to create new habits when changing our food choices for the better
• How to overcome flares without derailing progress

How to Build an EDS Plate

www.nasarnutrition.com

My course EDS Pain Relief Protocol will help you master these concepts so you can start feeling better

5 in-depth modules

Self-paced format

Recipe Booklets

EDS Pain Relief Protocol

Printable handouts

Packed with actionable tips

How to Build an EDS Plate

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hello@nasarnutrition.com

https://nasarnutrition.com/eds-nutrition-pain-protocol