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e-Health Task Force @ TNC 22 Trieste�

GÉANT eHealth Task Force

https://wiki.geant.org/display/EHE/eHealth+-+Home

June 13, 2022

Mario Reale / GÉANT / Research Engagement & Support Team

GÉANT eHealth task Force Coordinator

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Welcome ! Agenda for today

Time start	Time end	Talk	Presenter / Discussion item
9:00	9:10	Opening�Introduction to the meeting	Mario Reale GÉANT
9:10	9:40	The EHDS and EU DGA Sharing eHealth data. Data Valley White Paper	Silvia Martinelli, �Paola Aurucci �University of Turin
9:40	10:00	Towards a European Sovereign Health Data Space	David Manset�be-ys.com
10:00	10:10	Digital ecosystem for women’s & children’s health: experimentation of a certified platform for advanced telemedicine	Andrea Cassone IRCCS Burlo-Garofolo TS
10:10	10:30	Discussion on next steps and workplan items	All - Trieste and online

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The landscape around us NRENs

The EC is heavily committed to invest in eHealth:

Horizon Europe, DEP, EU4Health Programme on-going
HaDEA Health and Digital Executive Agency (establ. April 2021)
EHDS regulation proposal (published on May 3)
Cross-border medicine: MyHealth@EU platform

Guidelines on exchange of health data published - June 10

Member States are developing their national eHealth initiatives

Various level of maturity across different countries

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HaDEA:EU Health and Digital Executive Agency

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COVID aka: make the most of every crisis

COVID 19 has kept us apart for 2 years but it also helped to underline how responding to pandemics needed cross-border synergies in Health in the European Union
The EU digital COVID certificate has been an amazing achievement supported by the EC and the European Health Network ( July 2021 )
Quick response, cross-border collaboration, relying on digital technologies and mobile communication ensured success ( 590+ million certificated issued )
Sharing of research data on COVID significantly boosted the development of vaccines

https://www.covid19dataportal.org

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EHDS (European Health Data Space regulation)

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What role can we as NRENs play ?

Run away, of course.

We’re still in time for it !

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What role can we as NRENs play ?�(outcome of two community events)

Liaise with the EC and inform our eHealth community connected institutions about new call, project calls, regulations, communications
Primary use of Health Data and Telemedicine

Provide high bandwidth and enable ubiquitous teleconsulting, diagnosys
Train and disseminate to help making tools, processes LANs and WLANs secure
Liaise with national eHealth initiatives /domestic agencies

Identifying collaboration domains (eInfrastructure, Storage Services, Cloud)

Secondary usa of Health Data and Research

Push for the adoption of our open, community standards (e.g. AAI, AAI-a-a-S)

Ensuring FAIR access to research data - avoiding vendor lock-in

Providing eHealth specific services (e.g. anonymization, secure data transfer..)
Evaluate possible contributions to medical research eInfrastructures (EHDS)

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The GÉANT eHealth Task Force

Approved by the GÉANT Community Programme Committee in July 2021

for a first initial year of work
Following two main community events (Jan 27, June 25)

Mandate from NRENs: to gather NRENs’ efforts on eHealth, exploit synergies, exchange best practices

Seek specific collaborations with Health related projects

Goal for the TF is to implement the work plan and include additional work items if needed
The approved TF work plan is available on

https://bit.ly/ehealth-tf-workplan

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eH TF Workplan

#	Work Item	Work Item Lead	Status
1	Initial GAP analysis report, also based on outcomes of eHealth baselining event, including a prioritized list of items to work upon [ https://bit.ly/eh-tf-gap-analysis ]	GÉANT�GN4-3 WP3T4	Done
2	Comprehensive report on key eHealth datasets locations	GÉANT�GN4-3 WP3T4	---
3	Organization of first GÉANT joint Security and Privacy training for eHealth �[ Planned for July 6, 2022, https://events.geant.org/event/1205/ ]	GN4-3�WP8	In�Progress
4	Production of a GÉANT community white paper on eHealth baseline of required services and tools	GÉANT�GN4-3 WP3T4	To do
5	Implementation of a reference eHealth data access and analysis workflow using the GÉANT CCF (Community Cloud Flow)	GÉANT�GN4-3 WP3T4	---

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Prof.Gabriele von Voigt �Leibnitz Universitaet Hannover�Fachgebiet Computational Health� Informatics DE�
Prof. Joao De Miranda �Instituto Politécnico de Portalegre (IPP)� CERENA/IST, Universidade de Lisboa PT�
Prof. Maria Luisa Lavitrano �Università degli Studi di Milano-Bicocca IT�
Dr. Gilles Matthieu �Research Engineer at INSERM, French eHealth Institute FR�
Prof. Christian Lovis / Uni Geneva �Chairman, Medical Information Sciences, University Hospitals of Geneva CH

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Current Steering Committee members

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Roadmap from the Steering Committee

Dissect the problem of supporting eHealth in its natural domains

Infrastructure Interoperability /Ethical Issues /Regulatory /Business related

Acquire information on the exact status of national eHealth initiatives in each EU country, including the legal aspects/frameworks
Push for the adoption and the enforcement of standards
Training, Training, Training !
Liaise with the national eHealth initiatives and large international collaboration in eHealth

Dissect within the whole eHealth domain the different categories of issues we’re facing:

Regulatory issues
Ethical issues
Technical issues (platform, interoperability, software..)
Business issues

About technical interoperability there is a fundamental need to enforce the adoption standards
The line should be drawn, separating the underlying infrastructural level (for which device interoperability should be ensured by requesting compliance to specific standards) from the upper application layer, open for market customization and competitive solutions.
It would be really useful to get to know the exact status of national eHealth initiatives in each EU country, including the legal aspects/frameworks
Many national initiatives on eHealth are currently either starting or on-going. In addition to those, of course, very large international collaborations exist on eHealth. �So, these should be good contact points for NRENs to start liaising to.

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Topics for possible webinars for NRENs

Funding Opportunities

New funding opportunities are available which could be functional to stimulate activities in eHealth:

New tenders for the HERA preparatory phase / HERA preparation topic

Infrastructure/Info systems, AI tools and models for data treatment)

New calls from HeDEA - Health and Digital Executive Agency

Latest EU commission landscape developments

Specifically starting from the EHDS regulatory framework

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First GÉANT Security and Privacy

training for eHealth

University of Malaga and online, July 6th 2022
Developed by GN4-3 WP8 GÉANT and SURF
Registration on https://events.geant.org/event/1205/
Topics covered:

Introduction to Privacy
Implications of privacy on services and on handling personal data
Introduction to Security
Security in action: how to protect your resources and services
Anonymization and Pseudo-Anonymization techniques
A summary of the new proposed EHDS regulation

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Risks and mitigations

Risk name	Risk description	Possible causes	Mitigation
None there	Insufficient NRENs buy-in	NRENs just do not have enough free manpower to commit	Clear estimate of available manpower Synergies with other initiatives
Empty BoF	Poor attendance to the BoF	Competition with concurrent BoFs�Insufficient dissemin.	Careful planning involving NRENs; �Communications to NRENs
“I like the idea” �(but go ahead without me)	Lack of NREN committed volunteer manpower	Wrong perception on the opportunities	Target communications on opportunities
Isolation	Insufficient coordination with relevant bodies and ongoing community activities on eHealth	Lack of key contacts;�Missing perceptions on opportunities by external proj. or initiatives	Proactive seek to establish periodic updates/catch-up with initiatives(e.g:EOSC-Life)

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Some suggested discussion points �(later today)

How to enhance the participation level from the NRENs

Getting a clear picture of National eHealth initiatives and related applicable Legal frameworks

How to effectively exploit collaborations and synergies with worldwide initiatives
How to promote the services and open standards the NRENs are familiar with in the eHealth domain
Coordinate about the forthcoming deliverable

Specific additional ideas on content
Sharing work

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e-Health TF update

eHealth TF wiki home:

https://wiki.geant.org/display/EHE/eHealth+-+Home

Thank you !

Mario Reale / GÉANT - Research Engagement & Support

mario.reale@geant.org