1 of 19

Disability ERG: 101 The Basics

Alan Hejl

Spark Access

Founder & Lead Consultant

SPARKACCESS.IO

2 of 19

Access Check

Do you need any accommodations to fully participate in this meeting?

​

​

Examples:

  • Physical Access in the room and building
  • Slow down/speed up speech
  • Slide mailout
  • Direct visibility of speaker
  • Detailed agenda/check-in throughout presentation
  • Live Captions (CART)
  • American Sign Language (need 72 hours in advance to provide)

​

​

2

SPARKACCESS.IO

3 of 19

Agenda

  • Welcome & Introduction
  • NDEAM
  • Disability Fundamentals
  • Disability ERG Foundations
  • Q&A

​

​

3

SPARKACCESS.IO

4 of 19

Spark Access is Built on Lived Experience

4

ALAN HEJL

Disability Advocacy & Lived Experience

Self: Chronic Nerve Pain, ADHD, Running Injuries

Partner: SCI & Manual Wheelchair User

Accessibility Expertise

Spark Access is a Disability Owned Business Enterprise (DOBE)

CPACC, International Assoc. of Accessibility Professionals (IAAP)

UofM Disability Inclusion and Accessible Design Certificate

Industry Experience

Spark Access Founder, Accessibility Consulting

​

Built Accessibility Center of Excellence @ General Motors &�Co-President of GM Able ERG

​

5G/V2X Autonomous & Connected Vehicles @ Ford Motor Company &

Member of FEDA ERG

Government & Civic Volunteer

Detroit Disability Power

​

Michigan Disability

Rights Coalition

​

Ferndale Accessibility & Inclusion Advisory Commission

SPARKACCESS.IO

5 of 19

5

Spark Access Mission:

Be a catalyst for accessibility and disability inclusion in the mobility industry to build a more inclusive future and sense of belonging for people with disabilities.

​

​

​

​

SPARKACCESS.IO

6 of 19

NDEAM (National Disability Employment Awareness Month)

  • NDEAM celebrates annual recognition of the positive impact of people with disabilities in the American workforce.

​

  • Started in 1945 and supported by bipartisan presidents.

​

  • Administered by ODEP (Office of Disability Employment Policy) since 2001.

​

  • 2025 Theme:

“Celebrating Value and Talent”

​

  • More info

6

SPARKACCESS.IO

7 of 19

Disability Employment FactSheet

​

​

​

​

The unemployment rate among those with disabilities in 2024 was 7.5 %, versus 3.8 % for people without disabilities

​

​

​

​

​

Source:

U.S. Bureau of Labor Statistics

Disability, on average, is associated with lower earnings, fewer advancement opportunities, and greater job insecurity

​

​

​

​

​

Source:

Deloitte Disability Inclusion at Work

Among employed individuals, those with disabilities are less likely to be in management, professional, and related occupations (37.9 %) compared with persons without disabilities (44.1 %).

​

​

​

​

​

​

​

Source:

Bureau of Labor Statistics

7

SPARKACCESS.IO

8 of 19

Disability Fundamentals

8

SPARKACCESS.IO

9 of 19

The Inaccessibility Cycle

9

SPARKACCESS.IO

10 of 19

People with Disabilities (PwD) are a Significant Underserved Community

  • 27 % of the US Population (CDC)
    • 63+ million PwD

​

  • 22.9 % of Michiganders (2020 Census)
    • 2.3 Million PwD

​

  • 17% of the Global Population (WHO)
    • 1.3+ Billion PwD

​

  • Aging Population Doubling
    • Age 60+ ; 12% in 2020 to 22% of 2050 (WHO)

​

  • +5.6% Annual Temporary Disabilities in US

Disability comes in many forms:

Physical / Mobility

D/deaf & Hard of Hearing

Blind & Low Vision

Cognitive and Emotional Disabilities

Speech Disabilities

When you focus on Disability Inclusion (Accenture, 2023):�

  • 1.6 X Higher Revenue
  • 2.6 X Net Income
  • 2X Shareholder Return

10

SPARKACCESS.IO

11 of 19

Words Matter for Inclusion

  • Disability: “Persons with disabilities include those who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others.” – United Nations, CRPD

​

  • Accessibility: “The term “accessibility” means the design, construction, development, and maintenance of facilities, information and communication technology, programs, and services so that all people, including people with disabilities, can fully and independently use them.” – POTUS, DEIA Announcement 2021

​

  • Ableism: “Ableism is attitudes, actions, and circumstances that devalue people because they are disabled or perceived as having a disability.” – Emily Ladau, Demystifying Disability

​

  • Intersectionality: “A metaphor for understanding the ways that multiple forms of inequality or disadvantage sometimes compound themselves and create obstacles that often are not understood among conventional ways of thinking.“ – Kimberlé Crenshaw

11

SPARKACCESS.IO

12 of 19

Disability ERG Experience

12

SPARKACCESS.IO

13 of 19

Disability ERG 101

  • Disability ERG’s should be welcoming to:
    • People with disabilities
    • Caregivers
    • Allies

​

  • Leadership should be led by PwD

​

  • Events should be accessible and lead by example for inclusion.
    • (Event Accommodations should not be the financial burden of the ERG to maintain*)

​

  • Find Your Executive Champion who is a PwD, Caregiver, or strong ally tied to a Business Domain that is close to accessibility.

​

  • Structure a Business Council to drive Change in Policies and Action that leverages ERG feedback

​

​

​

​

​

13

SPARKACCESS.IO

14 of 19

Key Activities of a Disability ERG

Routine ERG Activities:

  • Networking
  • Volunteering
  • Learning and Development
  • Skills and Leadership Development
  • Storytelling
  • Intersectional Events with other ERG’s

​

Business Impacts:

  • Health and Benefits Feedback
  • Promote EAP Services
  • Universal Design Workshops
  • Emergency Preparedness
  • Inclusive Event Guidelines
  • Workplace Improvement
  • Accommodations Review

​

​

​

Successful Initiatives:

  • Neurodiversity Groups
  • Defining Non-Apparent Disabilities
  • Disability Self-ID Campaigns
  • Caregiver Support Resources
  • Mental Health Resources
  • Build Global ERG Chapters

14

SPARKACCESS.IO

15 of 19

Annual Disability Inclusion Milestones

​

April Autism Acceptance Month

​

May Global Accessibility Action/Awareness Day

​

July Disability Pride Month

​

October Disability Employment Awareness Month

​

Dec 3rd International Day for Persons with Disabilities��Many Many More….

​

SPARKACCESS.IO

16 of 19

Many Many More….

16

OCTOBER

October

ADHD Awareness Month

United States

October

Breast Cancer Awareness Month

United States

October

Colon Cancer Awareness Month

United States

October

Depression Education and Awareness Month

United States

October

Down Syndrome Awareness Month

United States

October

Dwarfism Awareness Month

United States

October

Dysautonomia Awareness Month

Global

October

Dyslexia Awareness Month

United States

October

Eczema Awareness Month

United States

October

Liver Cancer Awareness Month

United States

October

Learning Disability Awareness Month

United States

October

National Disability Employment Awareness Month

United States

October

Raynaud's Awareness Month

United States

October

Rett Syndrome Awareness Month

United States

October

Selective Mutism Awareness Month

United States

https://www.personalizedcause.com/awareness-events-calendar/

October

Spina Bifida Awareness Month

United States

October

Stomp Out Bullying Month

United States

https://www.stompoutbullying.org/participate-in-world-day-bullying-prevention

1-Oct

Internationl Day of Older Persons (United Nations)

Global

7-Oct

World Day of Bullying Prevention (day subject to change annually)

Global

5-Oct

American Veterans Disabled for Life Awareness Day

United States

5-Oct

World Meningitis Day

Global

6-Oct

World Cerebral Palsy Awareness Day

Global

7-Oct

International Trigeminal Neuralgia Awareness Day

Global

7-Oct

Team Margot Stem Cell and Bone Marrow Awareness Day

United States

9-Oct

PANDAS / PANS Awareness Day

United States

https://pandasnetwork.org/get-involved/awareness-day/

10-Oct

World Mental Health Day

Global

9-Oct

World Sight Day (day subject to change annually)

Global

13-Oct

Metastatic Breast Cancer Awareness Day

United States

13-Oct

World Thrombosis Day

Global

15-Oct

Blind Americans Safety Day / White Can Safety Day

United States

15-Oct

Breast Reconstruction Awareness (BRA) Day

United States

20-Oct

World Osteoporosis Day

Global

20-31 Oct

Disability Mentoring Days (Starts on the Third Wednesday of each October)

United States

22-Oct

International Stuttering Awareness Day

Global

24-Oct

World Polio Day

Global

25-Oct

Hydrocephalus Day

Global

25-31 Oct

International Epidermolysis Bullosa (EB) Awareness Week

Global

29-Oct

World Stroke Day

Global

SPARKACCESS.IO

17 of 19

Supporting the Business

17

Disability ERG

HR

Facilities

Digital Products & Services

Physical Products

Talent Acquisition

Innovation

Corporate Giving

Communication

& Events

SPARKACCESS.IO

18 of 19

Disability Inclusion & Accessibility can only succeed by including people with disabilities

  • “Nothing About Us, Without Us”: Include People with Disabilities

​

  • Seek disability-owned businesses to work with for training and disability-related services
    • Look for the DOBE Certification

​

  • Don’t have budget?

​

​

​

​

​

18

SPARKACCESS.IO

19 of 19

Thank You!��

alan@sparkaccess.io

231.360.3291

Detroit & Ferndale, Michigan, USA

19

Connect with Spark Access for other training and education:

​

  • Disability ERG Support
  • Disability Pride Education
  • Inclusive Design & Universal Design
  • Accessibility Innovation
  • Facilities Review and Assessments
  • Technical fields of accessible mobility (autonomous vehicles, EV Charging infrastructure, and urban planning)

​

SPARKACCESS.IO