​

Getting you to Mount Data

Indiana CTSI Informatics

​

Titus Schleyer, DMD, PhD

Co-Director, Indiana CTSI Informatics

Professor of Biomedical Informatics

Overview

CTSI Informatics team

Our main collaborators

CTSI Informatics and the Regenstrief Data Core

Importing electronic health record data directly into REDCap

Atlas – Visual query tool for the INPC

Indiana University Research Data Commons

CTSI Informatics team

Brenda L. Hudson, MA, CCRP, PMP

Director, Recruitment Concierge Service

brlhudso@iu.edu

​

Waqas Amin MD, MSIS

Director, Research Informatics Operations

wamin@iu.edu

Kosali Simon

Co-Director, Indiana CTSI Informatics

Distinguished Professor- Paul O’Neill Chair - Herman Wells Professor

Executive Director-IU Research Data Commons

simonkos@iu.edu

​

Titus Schleyer, DMD, PhD

Co-Director, Indiana CTSI Informatics

Professor of Biomedical Informatics

schleyer@regenstrief.org

Medina Sydykanova, MSHM,

PMP

Project manager

msydyka@regenstrief.org

CTSI Informatics collaborators

Nitesh V. Chawla, PhD Professor of Computer Science and Engineering University of Notre Dame

nchawla@nd.edu

Pavlos Vlachos, PhD Professor of Healthcare Engineering�Purdue University�pvlachos@purdue.edu

​

Michael Pfrender, PhD Professor of Biological Sciences

University of Notre Dame

michael.pfrender.1@nd.edu

Sheri Sanders, PhD Associate Director of Bioinformatics for the Genome and Bioinformatic Core Facility

University of Notre Dame

ssander5@nd.edu

Betsy Hillery, MBA

Director of Health Data Initiatives

Purdue University

eahillery@purdue.edu

​

​

CTSI Informatics and the Regenstrief Data Core

Resources we offer and ways to access them

To access these resources, please contact RDS

​

​

• Indiana Network for Patient Care (INPC)
• SAVI Community Information System (Polis Center)
• genomic data

​

• All of US research hub
• National Clinical Cohort Collaborative (N3C)

​

​

• Cirrhosis Registry
• Improving Chronic Disease Surveillance and Management through the use of EHRs and Health Information Systems (MENDS)

• Musculoskeletal Registry
• Wound Care Registry
• Regenstrief COVID-19 Research Data Commons

​

• OnCore/Advarra Systems (consent management system)
• cohort discovery (VPN is required)

​

​

​

​

available soon to external researchers

local data sets

national data sets

clinical registries

clinical research management

standardized (OMOP) INPC data

Your first steps to an EHR data-based study

• understand the data

​

​

​

​

​

​

​

• request data

​

​

​

​

​

​

​

​

• submit a feasibility request

​

• keep up-to-date

​

Importing electronic health record data (EHR) directly into REDCap

REDCap Clinical Data Interoperability Service (CDIS) pulls EHR data directly from IU Health and Eskenazi EHR databases.

​

• eliminates manual data entry and reduces quality data issues (such as transcription errors)
• reduces the cost of data extraction with minimal Health IT involvement

IUH-Cerner EHR integration

• completed pilot testing of two use cases
• User Access Governance Document approved by IU Legal
• CDIS service available to researchers

​

Eskenazi-Epic EHR integration

• pilot testing of use case in progress

​

​

​

For more information, please reach out to Waqas Amin at wamin@iu.edu.

A closer look at ATLAS

A closer look at ATLAS

Indiana University Research Data Commons (RDC)

IU RDC provides researchers with information about data sets, rules and regulations, and resources: https://researchdata.iu.edu/.

Self-paced training for research using:

1. Electronic Health Records, including INPC
2. NIH’s All of Us Comprehensive Genomics, Survey, Administrative Data
3. Climate and Environment Data
4. CoreLogic Housing data

For more information, please reach out to Kosali Simon at simonkos@iu.edu.

​

What kind of help would you like CTSI Informatics to provide to you?

​

​

​

​

​

Join us at the breakout sessions and let us know—

​

Thank you!

If you had a magic wand, what would you like to happen in CTSI Informatics?