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We are excited to collaborate with NYU’s Comprehensive Epilepsy center!

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Dr. Orrin Devinsky and Dr. Dana Price at NYU are investigating the accuracy of smart phone identification of seizures and non-seizure events in rare genetic epilepsies.

If you are interested in learning more about this trial, enrolling your child, or becoming a parent reviewer, please reach out to Kim Nguyen at 646-558-0842 or email her at Kim.Nguyen2@nyulangone.org

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Research Purpose

Our aim is to explore how accurately parents and epileptologists can classify seizure types and non-seizure events. We are seeking parents who are willing to submit home videos of their child experiencing seizures or seizure-mimicking events.

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Who Can Participate

Participants who meet the following inclusion criteria:

  • Ages between 3 months and 35 years old
  • Confirmed genetic diagnosis of the following rare epilepsy syndromes: SYNGAP, CDKL5, Rett Syndrome, CACNA1A, STXBP1, KCNQ2
  • Has smart phone video recordings of one or more events, ideally accompanied by a video EEG recording of the same event