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COVID-19 Prep for People Living with Chronic Illness

March 7, 2020

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Set-up

Click Unmute and Start Video

Click Participants

and Chat menu buttons

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Raise your hand

  • Use the �participants �menu tool��--or--
  • Type * in chat

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Rename yourself by hovering on

your name and clicking “Rename”.

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Hello!

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Participant Intro- Chat

Please share your:

  • Name
  • Gender Pronoun
  • Location
  • Why you decided to be here

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Welcome

  • Somatic room and access coordinator
  • Closed captioning
  • Chat
  • Slides

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Presencing

Wash your Hands by Dori Midnight

bit.ly/dorihands Wash Your Hands.

Scroll through faces if you can or sit in the knowing

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Why are we here?

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How’s This Gonna Go?

  • There are hundreds of people at this event.

  • We will have speakers and facilitators during the main part of the call

  • You can also type into the chat box during that time

  • We will also have time in small breakout groups where all of you can share.

Agenda

Welcome! Introductions + Background

Presencing + Embodied Practice

The Power of Networks”

What do you need to know and what does it mean

What does this mean for our movements and communities

BREAKOUT ROOMS

Wrap Up & What’s Next

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Who are we?

  • This webinar is hosted by a small group of people who came together over the last week.
  • Several of us have worked together in the past - most of us have not.
  • We believe in the power of mutual aid and networks, in the wisdom of people with chronic illnesses and disabilities, and in health justice.
  • We are honored to be with you here today in this time.

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NETWORK!!!!

We are already a network!!!

As of early this morning, 931 people have used the form to:

  • register for this event
  • get the recording, transcript and materials from it afterwards�and/or
  • request to be a part of a local or national network

If you have not yet filled out that form, you can do that at: bit.ly/march7webinar

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Group Agreements

  • Go with the Flow
  • One mic or speak one at a time
  • Pause before speaking
  • Equalize power relationships
  • Everyone is a teacher and a learner
  • Self care, community care

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Embodied P{ractice

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Embodied Practice

How are you feeling

What do you need to be present and in your full whole self?

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What we know and what we need

  • It’s Purim
  • The power of networks
  • Illder and crip wisdom
  • We can’t and don’t have to solve it all today

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What we have

What do you have in your tank or practices in your life that help you move through

How do you describe your network?

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Grounding Together

Who is speaking right now?

Crissaris Sarnelli, MD

She/They

Family Medicine Primary Care Doctor and Healer

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Crissaris Sarnelli, MD

Focuses

  1. Health precautions you can take
  2. Caring for each other, from mild-severe cases
  3. When to seek care and how to go about it

Full Document: Preparing For and Dealing with COVID-19 Coronavirus

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Health Precautions & Tools (1 out of 3)

SOME WAYS TO STAY AS HEALTHY AS POSSIBLE:

Exercise special attention to your wellness practices

  • meditation/grounding/mindfulness/stress-meditating practices
  • eating as healthily as you can
  • movement/massage, as you can
  • plant allies/vitamins: i.e. elderberry, garlic, echinacea, vitamin D, C, Zinc, Omega-3

Practicing compassion, kindness and care, with yourself and others

Full Document: Preparing For and Dealing with COVID-19 Coronavirus

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Preventing Spread

Wash hands, often and properly with soap and water OR hand sanitizer (you can make your own at home!)

Cover your cough

If you are sick with cough, fever or other cold like symptoms, stay home

Clean and disinfect your surfaces properly

Avoid handshakes; Find new/old ways of greeting (pound/fist bump, elbows, lower limbs)

It does not spread through food

What are strategies that will include and protect people who are imprisoned and houseless?

Full Document: Preparing For and Dealing with COVID-19 Coronavirus

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Caring for Each Other

  • No evidence children are at higher risk.�
  • No information yet on effect on pregnant people. Pregnant people experience immunologic and physiologic changes which might make them more susceptible to viral respiratory infections, including COVID-19.
  • We know that elderly folx and people with severe chronic illnesses of the heart, lung and kidneys and immune-suppressed folx are twice as likely to have serious illness.

Full Document: Preparing For and Dealing with COVID-19 Coronavirus

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Symptoms

Mild symptoms:

Symptoms: Fever (subjective or measured) and/or cough, and/or runny nose, NO TROUBLE breathing

What to do: stay at home, do not visit clinic, do not visit emergency room. Helps prevent illness in others and exposes you less to other illnesses (flu, for example, is still rampant and to date, in the US since October for example, CDC reports 34-49M illnesses, 350-620k hospitalizations, 20-52k deaths)

Contact your healthcare provider to ask about obtaining extra necessary medications (90 day supplies) to have on hand in case there is an outbreak of COVID-19 in your community and you need to stay home for a prolonged period of time. If you cannot get extra medications, consider using mail-order for medications.�

Be sure you have over-the-counter medicines and medical supplies (tissues, etc.) to treat fever a

nd other symptoms.

A note on masks:

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Symptoms

Moderate symptoms:

Symptoms: same as above, but feeling generally worse, achy, STILL NO TROUBLE BREATHING�

Advise is same �

If you are not sure whet

her your symptoms are severe, call your healthcare place, or DOH, or free/federally qualified health care centers (which are places you can get medical advice without insurance) in your area and describe your symptoms and advise on what do;

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Severe Symptoms

Severe symptoms:

Symptoms: Trouble breathing, tightness/heaviness in your chest, bluish lips, for children: ribs collapsing, turning blue, flaring nostril breathing; new confusion or lethargy/inability to arouse; Any quickly changing symptoms-sudden change ability to breath or change in mental status�

What to do: call 911 to be transferred to hospital setting asap; tell the service of your symptoms and that you are concerned about COVID-19 so help comes prepared appropriately

Care: you will get care at health facilities and your loved ones may still be able to visit with precautions. They can also call, etc as you are able to receive them

*Prior to visiting any health care facility, it is good practice to call ahead with concern and/or immediately when arrive inform of symptoms so proper precautions can take place

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How to contact me:

You can reach out to me on Instagram @drcrissaris

Will do my best to answer questions as I can about coronavirus or direct you to who can help.

Please do not reach out for direct medical advice. If you feel there is an emergency, please use advice above

We could start a list of places people can access for care regardless of circumstance.

Are there other health care folx here willing to be sources of info and share their contacts?

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Reflection Time

What is coming up for you?

  • How angry i am at how 45 and his admin is botching this; the politics of testing and how few tests have happened here in the US compared to elsewhere and the impact of that on all of us

=

What is coming up for you

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Movement mutual care and support

  • Movement and social justice culture
  • Not buying into the racism and oppression
  • Everyday can be a struggle
  • Traditional movement and social justice responses

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Movement mutual care and support

Rest time Breaks

Holding each other

Practice what we preach

Slowing down- breathe, breathe and breathe

Asking what you can do and allow the person to be

Community Care Clinics - March 23rd 3-5 pm EST/12-2 pm

April 7th 12-2 pm EST and 9-11 am PST

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What would a liberatory and transformed culture mean and be for you?

=

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BREAKOUTS!!!!!!

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Group Agreements

  • Go with the Flow
  • One mic or speak one at a time
  • Pause before speaking
  • Equalize power relationships
  • Everyone is a teacher and a learner
  • Self care, community care

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How it works

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You can always click “Ask for Help”

1

2

3

Click here

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Curating Wisdom

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Mutual Care Networks and Practices

Strategies for folks with chronic illness

Strategies for Accomplices and Care Team

Medical Professionals Support and Good Guide

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Mutual Care Networks and Practices

Discussing with partners safety precautions we can agree on to limit infection through close intimate contact with others

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Strategies for Chronically Ill People

Pod mapping https://batjc.wordpress.com/pods-and-pod-mapping-worksheet/

Share verified information (i.e. the documents here)

  • Coming up: anger at govt admin, lack of testing in US vs other countries. State govt demands for higher testing going unanswered. Can we get test kits from other countries?

Agreeing on what safety precautions all are using in and out of home in terms of cohabitating/bringing medical supplies to a sick person/bringing medical supplies to a non-sick person/

Asking Resource Generation if they will create a fund for severely immunocompromised ppl to use ubers instead of public transit & asking RG to give money to working class folks who need to stay home/quarantine but can’t afford to lose income

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Strategies for Chronically Ill People

This is a moment when able bodied people are realizing our interconnectedness and the need for healthcare access for all and for accessibility measures (teleconferencing, healthcare for all, care networks);. Potential for coalition building across different disabilities, and across disabled and nondisabled people.

Skillsharing and partnership across difference, rather than separation, othering, isolationism, rugged individualism. We can instead choose interdependence

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Strategies for Chronically Ill People

Techniques for grounding and calming ourselves and each other, since getting into unnecessarily heightened anxiety states do not serve our individual or collective wellbeing. Countering misinformation and fear mongering. Staying grounded in reality, Practicing our grounding practices (breathing, meditation, connecting with loved ones, nature, etc)

Stressing the importance of masks for people who are ill and not those who are not.

  • Look into herbal remedies (and possible complications) with specific meds/illnesses to find best fit.
  • Can our illder community come together to develop a calling-in language to remind able-bodied community members that proactive preparedness for the most vulnerable does not equate to “panic,” how to push back against the belittling of preparedness and community organizing work? Memes? Language to bring back to workplaces?
  • Wear a mask (N95 is good for viruses); Vogmask is a multi-use mask; over the counter surgical masks are one-time use.
  • Use good disinfecting/sanitizing practices (see CDC)

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Strategies for Accomplices

Start practicing safer hygiene now (even if virus is not yet in your area) so that there’s less learning curve later (i.e., hand washing, not touching face, etc.)

Take care of yourself

Share verified information (i.e. the documents here)

Honor the sick person’s wishes for their care�-listening to communities to learn their needs�- change language, from “panic” to “proactive response”

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Strategies for Accomplices

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Health Care professionals and guides

If people are not getting tested (and if there aren’t enough tests), how can we care for people? → assume possible infection and take those precautions

Share verified information (i.e. the documents here)

Signal to patients that you are their ally

Take a collaborative approach to diagnosis and treatment

Consider Corona as a possibility

Help us understand timelines...aka if someone works in a school, is the timeline that DOE will recommend to ALL STAFF match our needs? Should we be advocating for different level of precautionary measures aka taking action to earlier/asking for more notice? Will you give us doctor’s notes lol?

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Health Care professionals and guides

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Any Questions

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Any Questions

Going forward - is there a way to connect with each other

How do we articulate how to care for each other

How do we make this happen - liberated and free spaces

How can folks who do not have a strong care network establish one? Are there people here who can offer forms of support to one another?

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Any Questions

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Wrap UP!!

What’s Next

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Brief Review of Updates

as of 03/05/2020

(dense but we’ll explain it)

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Timeline (slide 1 of x)

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Select Border & Travel Restrictions

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Snapshot

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COVID-19 CDC Risk Assessment by Countryhttps://www.cdc.gov/coronavirus/2019-ncov/travelers/index.html

China

Level 3 Travel Notice

Iran

Level 3 Travel Notice

South Korea

Level 3 Travel Notice

Italy

Level 3 Travel Notice

Japan

Level 2 Travel Notice

Includes Hong Kong

Level 1 Travel Notice

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  • WHO Situation Report- as of March 4, 2020
    • Globally 93,090 cases confirmed, 80,422 in China
    • 76 countries outside China with cases, 12,668 confirmed cases outside China
    • 2984 deaths in China, 214 deaths outside of China

*reference map on following page

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Situation Summary: Covid-19 U.S. (March 4, 2020)www.cdc.gov/coronavirus/2019-ncov/cases-in-us.html

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REVISED NYSDOH (3/5/20) Criteria to Guide Evaluation of Patients Under Investigation (PUI) for COVID-19

Clinical Features 

AND

Epidemiologic Risk

Fever1 or signs/symptoms of lower respiratory illness (e.g. cough or shortness of breath)

AND

Any person, including healthcare workers2, who has had close contact3 with a laboratory-confirmed4 COVID-19 patient within 14 days of symptom onset

Fever1 or signs/symptoms of lower respiratory illness (e.g. cough or shortness of breath)

AND negative results on a molecular respiratory viral panel (e.g., Biofire or equivalent)5

AND

A history of travel from a geographic area for which a CDC LEVEL 2 or LEVEL 3 Travel Health Notice has been issued for COVID-19 (sustained or widespread community transmission)6 (see below) within 14 days of symptom onset

 

Fever1 or signs/symptoms of lower respiratory illness (e.g. cough or shortness of breath) requiring hospitalization AND negative results on a molecular respiratory viral panel (e.g., Biofire or equivalent)5

AND

A history of travel from a geographic area for which a CDC LEVEL 1 Travel Health Notice has been issued for COVID-196 (see below) within 14 days of symptom onset

Fever1 AND severe lower acute respiratory illness (e.g., pneumonia, ARDS) requiring hospitalization and without alternative explanatory diagnosis (e .g., influenza, legionella, streptococcal pneumonia, fungal infections)7

AND

No source of exposure has been identified.

Clusters of epidemiologically linked individuals with fever1 AND signs/symptoms of lower respiratory illness (e.g. cough or shortness of breath) AND negative results on a molecular respiratory viral panel (e.g., Biofire or equivalent)5

AND

Potential epidemiologic risk other than categories defined above (e.g., residence in a county with evidence of community-acquired COVID-19 but no known direct exposure)8

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Key Steps

  • Prevent the introduction of respiratory germs INTO your facility
  • Prevent the spread of respiratory germs WITHIN your facility
  • Prevent the spread of respiratory germs BETWEEN facilities

Nursing Home Preparedness

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Preparedness Resources

  • CDC resources for COVID-19 preparedness

https://www.cdc.gov/coronavirus/2019-ncov/healthcare-facilities/guidance-hcf.html

  • Actions for hospitals

http://www.centerforhealthsecurity.org/cbn/2020/cbnreport-02272020.html

  • ASPR resources for COVID-19 and pandemic planning 

https://asprtracie.hhs.gov/technical-resources

  • CDC strategies for optimizing supply of N95 respirators.

https://www.cdc.gov/coronavirus/2019-ncov/hcp/respirator-supply-strategies.html