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POST-ICECAP

Just–In–Time Training

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Components

  • Modified Rankin Scale Training (ICECAP version)
  • Disability Rating Scale (DRS)
  • NIH Toolbox and Neuro QoL (ICECAP version)
  • Neuropsych Outcomes Training (BTACT)
  • Patient-reported Questionnaires
  • Chart Review
  • Recruitment and Retention Practices

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Modified Rankin Scale Training

  • SIREN mRS training is available through the Clinical Coordinating Center and is identical to ICECAP.
  • Use this direct link for mRS Training
  • Training consists of watching a training video, then watching and scoring five vignettes.
  • A certificate will be sent automatically via email upon passing. For the POST-ICECAP study, it is necessary to send this certificate to the CCC or to upload it to WebDCU.
  • The SIREN mRS certification is valid for two years.

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  • This form should only be completed if the subject has any mRS=5 OR has a disorder of consciousness at any visit.

  • Please follow the Detailed Instructions while administering the DRS questionnaire.

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NIH Toolbox and Neuro QoL

  • Since September 1, 2025, NIH Toolbox neuropsychology tests will not be administered in POST-ICECAP
  • Neuro QoL will be administered at 3 and 12 month telephone or in person visits using Short Forms
  • Training modules are provided at this link

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Neuropsych Outcomes Training Certification

Brief Test of Adult Cognition by Telephone (BTACT)

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BTACT Administration Forms

  • FORM A English (1, 6, 12 months visits)
  • FORM B English (3, 9 months visits)
  • FORM A Spanish (1, 6, 12 months visits)
  • FORM B Spanish (3, 9 months visits)

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Questionnaires

  • All assessment related participant instructions and questions are to be read verbatim and no training is required.

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Pittsburgh Cardiac Arrest Category Score

  • Free App to calculate the scores

Android

Apple

  • Youtube video explaining how it was developed

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Chart Variables Specific to POST-ICECAP

  • Direct link to CRF completion Guidelines

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Tips for Recruitment and Retention

Through our research experience of working with cardiac arrest survivors and their families, we are sharing a list of actions that have facilitated recruitment and retention of study participants.

We also encourage sites to share their own best practices for communal learning through this live document.

  • A resource list of informational, support groups, and mental health resources for patients & families.