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Cryoglobulinemic Vasculitis

Pr David Saadoun

Department of Internal Medicine and clinical Immunology

National reference centre for Autoimmune systemic diseases

Hôpital La Pitié-Salpêtrière, Sorbonne University, Paris, FRANCE

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Disclosures

Consulting, research grant and lecturing fees from Abbvie, Amgen, Sanofi, Roche-Chugai, Celltrion, Hifibio, Novartis, Janssen and Glaxo Smith Kline.

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Cryoglobulinemia: Clinical spectrum

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Jennette JC et al Arthritis 2013

Vasculitides classification

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Cacoub P & Saadoun D NEJM 2024

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Etiologies of Cryoglobulinemia vasculitis

G. Boleto et al Seminars in Arthritis and Rheumatism 2020

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Cacoub P & Saadoun D NEJM 2024

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Cacoub P & Saadoun D NEJM 2024

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Skin Manifestations of Cryoglobulinemia Vasculitis

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Mononeuropathy�Multiplex 20%

Cacoub P et al AIDS 2005

Distal Polyneuropathy 80%

Neurological manifestations of Cryoglobulinemia Vasculitis

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Renal pathology in cryoglobulinaemic vasculitis

a | Extracapillary proliferation in the kidney, with features of fibrinoid necrosis (arrow) and interruption of the capsule.

b | Membranoproliferative pattern with double contour appearance of the glomerular basement membrane (arrow).

c | Periodic acid–Schiff (PAS)-positive endoluminal pseudothrombi (corresponding to cryoglobulin precipitates) (arrow).

d | PAS stain shows diffuse membranoproliferative glomerulonephritis.

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Cardiac Involvement

CNS Vasculitis

GI vasculitis

Saadoun et al A&R 2010; Casato et al J Hepatol 2004; Terrier et al Am J Cardiol 2013

Life threatening Manifestations of Cryoglobulinemia Vasculitis

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Cryoglobulinemia: Monoclonal (type I) vs mixed (type II/III)

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Type I

Mixed cryoglobulinemia (type II/III)

Clinical findings

Purpura

70%

90%

Skin ulcers

30%

15%

Cold induced symptoms

Frequent

Rare

Hyperviscosity syndrome

Occasionally (IgM>4g/dL)

Rarely

Laboratory findings

CG composition

mIgG or IgM

Type II (mIgMk)

Cryocrit

5-50%

<5%

Low C4/RF activity

Occasionally

Frequent

Histopathology

Vascular obstruction/thrombosis

Vasculitis

Adapted from Muchtar et al Blood 2017

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Cryoglobulinemia: Differential diagnosis

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���Cryoglobulinemia: Differential diagnosis��

  • Other cryoproteins (cryofibrinogenemia….)
  • Connective tissue associated small vessel vasculitis (SLE, pSS, RA..)
  • Other small vessel vasculitis (ANCA, IgA, endocarditis….)

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Cryofibrinogenemia

Saadoun et al Am J Med 2009

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Cryofibrinogenemia vs cryoglobulinemia

  • Other cause of cold indced skin ulcers and small vessel vasculopathy
  • Mechanical arterial thrombosis by precipitation of cryofibrinogen
  • Rare, 10% of cryoproteins
  • Detection in plasma and not in serum
  • Essential or secondary (infections, AID, cancer, hemopathy)
  • Avoidance of cold exposure, fibrinolytics

Saadoun et al Am J Med 2009

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61 yrs old patient, mIgG k (« MGUS »)

purpura, renal artery thrombosis

Leung et al, NDT 2009

Crystal-cryoglobulin

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Cryoglobulinemia: Prognosis

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Dammaco et al NEJM 2013

Natural history of Cryoglobulinemia

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HCV-

HCV+

Survival

1-year

91 %

96%

2-year

89 %

90%

5-year

79 %

75%

10-year

65%

63%

Prognostic factors of survival in Cryoglobulinemia Vasculitis

HCV cryoVas

Liver fibrosis

Vasculitis severity

Use of immunosuppressants

Antiviral therapy

Non-HCV cryoVas

Age >60 yrs

Renal involvement

Saadoun et al JAMA internal Med 2006; Terrier et al A&R 2011

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Spectrum and Prognosis of Noninfectious Renal Mixed Cryoglobulinemic GN

  • MCGN was related to primary Sjögren’s syndrome in 22.5% and B NHL in 28.7%
  • Main outcomes:
    • Severe infections 29.1%
    • New-onset B-cell lymphoma 8.9%
    • Death 24%

Prognostic significance of pts characteristics for renal outcome

Zaidan et al JASN 2016

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Cryoglobulinemia: Pathogenesis

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Mechanisms of HCV-related cryoglobulinaemia vasculitis

Roccatello D et al Nat. Rev. Dis. Primers 2018

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Cryoglobulinemia: Treatment

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Chronic HCV infection

Poly- oligoclonal

B-cell expansion

Autoantibodies

RF - IC

Mixed cryoglobulins

Cryoglobulinemic vasculitis

Monoclonal B-cell

proliferation

Overt lymphoma

HCV eradication

Immunomodulation

Chemotherapy

Plasma exchange

Steroids

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Correlation between virological and clinical response in Cryovas

Adapted from Vassilopoulos, D. & Calabrese L. H. (2012) Nat. Rev. Rheumatol.

Sustained virological response

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PegIFN-RBV-PI1

SOF-RBV2

SOF-DACLA3

N=30

N=24

N=40

Complete clinical response

At Week 12

At end of therapy (W24)

46.6%

66.7%

71%

87.5%

90.2%

90.2%

Virological response

At week 12

After end of therapy (W36)

73.9%

66.6%

92%

74%

100%

100%

Clearance of cryoglobulin (W24)

22.2%

41.6%

50%

Serious adverse event

46.6%

8%

0%

Steroids and/or Rituximab use

43%

16%

4.8%

Cryovas: Anti HCV therapy

  1. Saadoun D, et al. Arthritis Rheum 2006; 2. Saadoun D, et al. Ann Rheum Dis 2015; 3. Saadoun D, et al. Gastroenterology 2017 & 2019

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Chronic HCV infection

Poly- oligoclonal

B-cell expansion

Autoantibodies

RF - IC

Mixed cryoglobulins

Cryoglobulinemic vasculitis

Monoclonal B-cell

proliferation

Overt lymphoma

HCV eradication

Immunomodulation

Chemotherapy

Plasma exchange

Steroids

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NATURAL INTERFERON-α VERSUS ITS COMBINATION WITH 6-METHYL-PREDNISOLONE IN THE THERAPY OF TYPE II MIXED CRYOGLOBULINEMIA:

A LONG-TERM, RANDOMIZED, CONTROLLED STUDY

Dammacco F et al, Blood 84: 3336-3343, 1994.

GROUP 1

(15 Pts)

IFN-α: 3 mu s.c. THREE TIMES A WEEK

GROUP 2

(18 Pts)

6-METHYL-PREDNISOLONE (PDN): 16 mg/d

GROUP 3

(17 Pts)

IFN-α: 3 mu s.c. THREE TIMES A WEEK

PLUS

PDN: 16 mg IN THE DAYS FREE FROM IFN THERAPY

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MONTHS OF TREATMENT

0

10

20

30

40

50

60

70

1

2

3

4

5

6

7

8

9

10

11

12

Complete remission (%)

6.7

CONTROLS (n=15)

IFNa + Medrol (16mg/d) (n=17)

52.9

IFNa (n=15)

53.3

Medrol (16mg/d) (n=18)

16.7

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Randomized controlled trial in HCV-Cryovas

Dammaco et al Blood 1994

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Chronic HCV infection

Poly- oligoclonal

B-cell expansion

Autoantibodies

RF - IC

Mixed cryoglobulins

Cryoglobulinemic vasculitis

Monoclonal B-cell

proliferation

Overt lymphoma

HCV eradication

Immunomodulation

Chemotherapy

Plasma exchange

Steroids

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Evidence-based recommendations on the management of Cryovas

Ramos Cazals et al Journal of Hepatology 2017

Level of evidence: 3

Level of agreement: 9.42/10

Strength of recommendation: C

Plasma exchange may be added to other therapies, especially in patients with severe/ life-threatening cryoglobulinemic vasculitis

  • Skin necrosis/ulcers, rapidly progressive GN, alveolar hemorrhage, GI or cardiac involvement
  • Hyperviscosity syndrome/Type I cryo

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Chronic HCV infection

Poly- oligoclonal

B-cell expansion

Autoantibodies

RF - IC

Mixed cryoglobulins

Cryoglobulinemic vasculitis

Monoclonal B-cell

proliferation

Overt lymphoma

Immuno-modulators

Rituximab

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Arm A: 12 HCV CryoVas patients

Rituximab (375 mg/ m2/week for 4 weeks)

D0

W4

W12

W24

W48

Inclusion

Randomization

Primary study

Endpoint*

End of study

visit

Visits

Arm B: 12 HCV CryoVas patients

Best available therapy (Plex, Steroids, MTX) for 24 weeks

Patients in whom antiviral therapy had failed to induce remission

*Remission at W24 was defined as a Birmingham Vasculitis Activity Score (BVAS) of 0

Sneller et al Arthritis & Rheum 2012

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Arm A: 12 HCV CryoVas patients

Rituximab (375 mg/ m2/week for 4 weeks)

D0

W4

W12

W24

W48

Inclusion

Randomization

Primary study

Endpoint*

End of study

visit

Visits

Arm B: 12 HCV CryoVas patients

Best available therapy (Plex, Steroids, MTX) for 24 weeks

Patients in whom antiviral therapy had failed to induce remission

10 (83%) patients in the rituximab group vs 1(8%) in the control group were in remission at 6 months

a result that met the criterion for stopping the study (P < 0.001).

Sneller et al Arthritis & Rheum 2012

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Sneller et al Arthritis & Rheum 2012

The median duration of remission for rituximab-treated patients who reached the primary end point was 7 months.

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Arm A: 28 CryoVas patients (25HCV)

Rituximab (1g at day 1 and 15) #

D0

W4

W12

W24

W48

Inclusion

Randomization

Primary study

Endpoint*

Arm B: 29 CryoVas patients (28 HCV)

Non Rituximab therapy (Plex, Steroids, CYC or Aza) for 48 weeks

Severe CRyoVas: skin ulcers, neuropathy, glomerulonephritis

*Survival of treatment at 12 months

De Vita et al Arthritis & Rheum 2012

# 2nd course of RTX if relapse

W96

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The median duration of response to RTX was 18 months

De Vita et al Arthritis & Rheum 2012

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Cryoglobulinemia: Treatment Safety

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Factors associated with flare of Cryovas

  • High level of serum cryoglobulin (>1g/L)
  • Kidney involvement (MPGN)
  • RTX 1g regimen

Sene et al Arthritis & Rheum 2009; Desbois et al J Rheumatol 2020

Delay RTX to Cryovas flare: 24h to 9 days

<30min

Day 7

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Cryoglobulinemia: Treatment of relapsing cryovas

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Variables

Low dose RTX (N=48)

Standard dose RTX (N=208)*

Clinical response

Overall response

81%

86%

CR

50%

_

Immunological response

CR

44%

41%

PR

10%

21%

Relapse rate (Month 12)

Relapsers

41%

32%

Median time to relapse

6 (4-12)

7 (4-12)

Side effects

Total nbr AE

11.5%

19.9%

SAE

1.9%

5.9%

M. Visentini et al. Autoimmunity Reviews 14 (2015) 889–896

Low-dose rituximab for relapsing mixed cryoglobulinemia vasculitis

Phase 2, single-arm two-stage trial of low-dose rituximab (250 mg/m² × 2) in 52 patients with HCV-associated Cryovas who were non-responder to antiviral therapy

* Pooled data from literature

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Chronic HCV infection

Poly- oligoclonal

B-cell expansion

Autoantibodies

RF - IC

Mixed cryoglobulins

Cryoglobulinemic vasculitis

Monoclonal B-cell

proliferation

Overt lymphoma

HCV eradication

Immunomodulation

Chemotherapy

Plasma exchange

Steroids

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Saadoun et al ACR 2013

RTX 375 mg/m2 day 1, Fludarabine 40 mg/m² day 2-4, and CYC 250 mg/m² days 2-4,

every 4 weeks, for 3 to 6 cycles

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Chronic HCV infection

Poly- oligoclonal

B-cell expansion

Autoantibodies

RF - IC

Mixed cryoglobulins

Cryoglobulinemic vasculitis

Monoclonal B-cell

proliferation

Overt lymphoma

HCV eradication

Immunomodulation

Plasma exchange

Steroids

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Arm A: 24 patients

Belimumab 200mg/week SC for 24 weeks

D0

W4

W12

W24

W48

Inclusion

Randomization

Primary study

Endpoint*

End of study

visit

30mg/d

0

Prednisone (mg/day)

Arm B: 24 patients

Placebo of Belimumab 200mg/week SC for 24 weeks

Induction therapy

with Rituximab IV

whithin 6 weeks

*Complete clinical response rate of vasculitis symptoms at W24 with corticosteroid withdrawal (prednisone at 0 mg/day) at W12

Multicenter randomized double-blind study comparing

RTX plus belimumab vs RTX + placebo of belimumab in non-infectious Cryovas

TRIBECA STUDY

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Multicenter phase 2 single-arm proof-of-concept trial assessing the efficacy and safety of Obinutuzumab in the treatment of non-infectious active CryoVas refractory or intolerant to Rituximab��� CRYOBI STUDY

Primary endpoint: Complete remission of CryoVas at 6 months with corticosteroid withdrawal in at least 50 % of patients

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Chronic HCV infection

Poly- oligoclonal

B-cell expansion

Autoantibodies

RF - IC

Mixed cryoglobulins

Cryoglobulinemic vasculitis

Monoclonal B-cell

proliferation

Overt lymphoma

Immuno-modulators

Low dose IL2

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Reversible Quantitative Deficit in Treg Lymphocytes in HCV-Cryo Vasculitis

CD25high (% of CD4+)

4

4

5

6

Before treat.

On Treat.

Early F/U

Late F/U.

**

**

-CR

-NR/PR

After Treat.

A

0

20

40

60

80

100

0

1

2

3

CD

25

high

(

cells

/

μ

l)

Cryoglobulins (

g/l

)

R

²

-

0

.

1

, p<

0

.

005

0

20

40

60

80

100

0.0

0.2

0.4

CD

25

high

(

cells

/

μ

l)

C

4

(

g/l

)

R

²

-

0

.

16

, p<

0

.

005

Saadoun, Blood 2004. Landau Arthritis Rheum 2008

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Saadoun et al., NEJM 2011

  • 10 refractory HCV cryovas patients treated
  • Well tolerated
  • Excellent Treg induction
  • Clinical improvements in 8/10 patients

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Therapeutic strategies in mixed cryoglobulinemia

Mild disease

(Purpura, arthralgia,

mild neuropathy)

Life threatening

(Rapidly progressive GN,

cardiac, digestive vasculitis)

Rituximab & steroids

± plasmapheresis

± belimumab

Steroids, plasmapheresis,

Rituximab ± CYC

or bendamustin

Low dose steroids

Colchicine

Treatment of underlying diseases

(HCV, NHL..)

Severe disease

(Active renal disease,

Mononeuritis multiplex, skin necrosis)

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Cryoglobulinemia: Monoclonal (type I) vs mixed cryovas

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Type I

Mixed cryoglobulinemia (type II/III)

Therapeutical findings

Avoidance of cold

Frequent

Rarely

PLEX

Frequent

Occasionnally

Underlying disease

MGUS, MM, WM, CLL, B-NHL (rarely)

AID (pSS, SLE..), HCV, B-NHL, essential

Targeted treatment based on mIgM or IgG

Rituximab based therapy

Adapted from Muchtar et al Blood 2017

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Isatuximab in type I cryoglobulinemia: A prospective pilot study

ICE (Isatuximab CryoglobulinEmia) STUDY

Phase 2 pilot prospective study of 21 patients with type I cryoglobulinemia treated by Isatuximab

*Complete clinical response rate of cryoglobulinemia vasculitis symptoms at week 20

*

Active type I IgG cryovas

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Therapeutic strategies in type I cryoglobulinemia

m IgM cryo

B cell targeted TT

m IgG or IgA cryo

Plasma cell targeted TT

Bortezomib

or IMIDs (Lenalidomide..)

or Anti CD38

± plasmapheresis,

± autologous stem cell transplantation

or other Myeloma therapy

Avoid cold exposure++

Rituximab

± Bendamustin or CYC

± Plasmapheresis

or other CLL/B NHL therapy

Avoid cold exposure++

Treatment of underlying diseases

(Myeloma, CLL, NHL..)

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