SDC in the real world: Capturing PROMs

Vadim Peretokin�Peretokin Consulting

Organized by

FHIR® SDC Conference

June 2025

SDC in the real world: Capturing PROMs

Vadim Peretokin

Peretokin Consulting

FHIR® SDC Conference | June 2025

Speaker Intro

• Vadim Peretokin
• International FHIR consultant
• ex-Philips
• 10 years of FHIR implementations
• Modelling & software development
• Projects in Norway, Sweden, Denmark,
• Finland, Netherlands, Belgium, Israel,
• and the US
• Software architect
• Java / C# / C++ / Python / Javascript / Typescript / Lua

FHIR® SDC Conference | June 2025

Philips Healthcare Informatics

FHIR® SDC Conference | June 2025

About [your name]

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FHIR® SDC Conference | June 2025

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FHIR® SDC Conference | June 2025

ICHOM

• Boston-based independent nonprofit
• Develops standardized Patient-Centered Outcome Measures (PROMs)
• Priority on clinical and quality-of-life outcomes most important to patients.

FHIR® SDC Conference | June 2025

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…which enables the continuous improvement central to VBHC

Standardized, harmonized outcomes makes comparative analytics easy and possible...

Standardized outcomes the base for VBHC

Patient-centered outcomes

1. Spend for 2017, WHO: Global Spending on Health, 2019 2. Per WEF Value in health care estimate 3. Elusive Waste: The Fermi Paradox in US Health Care, by Dr. Don Berwick .

Note: Global savings are based on assumption that VBHC can save 30% in healthcare spending

• $7.8Tr

Global healthcare spending¹

Estimated ~30% of global healthcare spending is "wasted"^2,3

Value-based healthcare has the potential to unlock $2+ trillion in better use of resources globally by eliminating wasted spend

Other providers

Individual provider

Benchmarking network average

Performance

Worse

Better

FHIR® SDC Conference | June 2025

ICHOM uniquely positioned to enable HC system transformation

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Objective, independent and patient centered non-profit organization

Network of 1000+ clinical thought leaders & patients engaged globally

Global reach, top annual conference and leading digital convener of pioneers and leaders in VBHC

Agile, having established 40 standard sets in just eight years with 32 in peer reviewed papers

The ICHOM Vision

Unlock the potential of value-based healthcare…

…by defining global Standard Sets of health-outcome measurements that involve provider observations as well as patient-reported outcomes

…and providing solutions to remove technical and operational barriers around data access, thereby facilitating adoption and reporting and benchmarking of these measures worldwide

…and to align all stakeholders on contributing to HC system sustainability:

• Patients: ability to make informed decisions
• Providers/payers (including employers): intelligence on their performance versus others and drive improvement
• Pharma and MedTech: prove net contribution to patient value and system productivity
• Insurers: fewer, more effective, treatments per patient

FHIR® SDC Conference | June 2025

46 sets covering 60% of the global disease burden

FHIR® SDC Conference | June 2025

Breast Cancer measure set walkthrough

FHIR® SDC Conference | June 2025

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In our [ICHOM] dialogue with providers globally we have two types of discussions

• We have implemented 3-4 standard sets, but found it challenging to scale to the full list of ICHOM measurement sets

• The implementation of the standard sets has been fairly manual – we have not been able to integrate in our EMRs and automate the data capture process

• We are building a platform to implement the breast cancer standard sets with full Interoperability with our EMR. We will be able to use it for many ICHOM sets, but would love to have all sets configured the same way to speed things up,

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• …

• …

1. Significant implementation effort

2. Strong demand for benchmarking

FHIR® SDC Conference | June 2025

IT-ready sets: FHIR profiles

ICHOM CDM digitized

FHIR® SDC Conference | June 2025

FHIR Questionnaires

FHIR® SDC Conference | June 2025

Demo of patient baseline - FHIRpath lab

FHIR® SDC Conference | June 2025

Demo of patient baseline�- Android

FHIR® SDC Conference | June 2025

Demo of patient baseline - LHC forms

FHIR® SDC Conference | June 2025

Demo of patient baseline - smartqedit

FHIR® SDC Conference | June 2025

Power of Questionnaires

• Same data, multiple viewers
• Little effort for the implementer if a Questionnaire is prepared beforehand
• Great way to distribute your forms/questionnaires/surveys in a digital manner

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FHIR® SDC Conference | June 2025

Form prepopulation

FHIR® SDC Conference | June 2025

Form data extraction

• Extract completed Questionnaires into resource instances
• Convert resource instances to relational views using SQL on FHIR tooling
• Benchmark data across many institutions using off the shelf analytics software!

FHIR® SDC Conference | June 2025

Call to action

• Better support for internalization in Questionnaire tooling
• More promotion of existing tooling, Questionnaires, and SDC!

FHIR® SDC Conference | June 2025

Contacts

• fhir@vadimperetok.in - FHIR advice & implementation
• Philips - Chris Melo - Philips Informatics
• ICHOM - Greg Robinson - utilising ICHOM PROMs

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FHIR® SDC Conference | June 2025

Got questions?

FHIR® SDC Conference | June 2025

Thank you!

FHIR® SDC Conference | June 2025

Speaker Photos

FHIR® SDC Conference | June 2025