We are working on developing a patient registry and survey for patients with chromophobe RCC.
Why is this important?
Chromophobe RCC is a rare subtype of kidney cancer, which makes it challenging for researchers to gather enough data to:
- Understand the disease better
- Develop more effective treatments
- Improve patient outcomes
Patient registries are crucial tools in rare cancer research. They allow us to:
- Collect valuable data from a larger pool of patients
- Identify patterns in diagnosis, treatment, and outcomes
- Guide future research directions
- Potentially accelerate the development of new therapies
How you can help
By expressing interest in participating in a patient registry through the form below we'll add you to the email list to be notified when it becomes available. Researchers may also subscribe for updates on when the de-identified data will be available.
What to expect
If you choose to provide your email address:
- We'll keep you updated on the development of the patient registry
- You'll be among the first to know when it launches
- You'll receive information on how to participate when the time comes
Your privacy is important to us. Your email will only be used for communications for the items you have selected to subscribe to as part of this form.
