Survey for Patients and Caregivers with Acute Hepatic Porphyria
This survey is to collect patient and caregiver perspectives on their experiences with acute hepatic porphyria.
All responses are anonymous, and the information collected will be used by the Canadian Association for Porphyria to inform submissions about GIVLAARI® (givosiran) to the Canadian Agency for Drugs and Technologies in Health (CADTH) and the Institut national d’excellence en santé et services sociaux (l’INESS) in Quebec. Responses may be used in the future to inform other CADTH/l’INESS submissions or other advocacy work of the Canadian Association for Porphyria.
To begin, do you live in Canada?
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This form was created inside of Canadian Association for Porphyria/Association Canadienne de Porphyrie.