2024 Kleefstra Syndrome North American Family Conference Survey
The 2024 Kleefstra Syndrome North American Family Conference is starting to come together! In order to better plan for hotel space, conference space, childcare, meal planning, budget, and activities we need to have some idea of how many people will attend. All of this is premilinary and subject to change based on interest and availability of facilitators.

DATE: June 20 Hotel check-in/registration begins
June 21-22 Conference sessions & Family Fun activities
June 23 Closing activities/check-out if you choose

LOCATION:  Boston, MA suburb

THEME: Build Community, Build the Future

SESSION FORMAT: To be detemined by the conference volunteer committee

To best facilitate discussion and learning without distraction, we are asking that sessions be attended by registered adults only. We are planning to provide care for our KS children, KS adults and their siblings. If you choose not to use our childcare options please note children under the age of 18 cannot be left in a hotel room unsupervised by an adult per Massachusetts state law.
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Email *
Please select from the options below. *
Guidebook: How much interest do you have in the following speakers? *
Interested
Neutral
Not interested
Dr. Tjitske Kleefstra MD
Dr. Siddharth Srivastava MD (BCH neurologist KS clinic))
Zoe Frazier (Genetic Counselor KS clinic Boston)
Dr. Tamar Katz (Psychiatry)
Experts within the Special Needs/Rare Disease Family Space
Members of IDefine
Experienced KS parents
Researchers and their updates
Is there a topic from the 2022 North American Family Conference that you would like to revisit? *
Do you have a topic that you think is important for a general audience to learn more about? *
Are you interested in volunteering to help build out, plan and execute the conference? *
A copy of your responses will be emailed to the address you provided.
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