Share your stories of living with EI
For Ichthyosis Awareness Month 2026 we are running a new awareness campaign, where we invite our community to share stories about their "EI Heroes". 

Some examples of an EI Hero might include:
- An affected baby, child, teen, or adult who you think is really brave;
- A member of your family or community who has really helped someone affected with EI;
- A member of your family or community who has helped support EI Cure Project;
- A healthcare professional who has really helped with your EI journey;
- A beloved pet that helped you cope with EI

What you share with us will be used to create stories for our online social media campaign to help us celebrate all the wonderful people that help someone with EI everyday.

Thank you so much for choosing to join our campaign to help others better understand life with EI, and to inspire and motivate others to become EI Heroes in the future!

Best regards,
Helen Lill

(Founder and Head of Research at EI Cure Project)
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Email *
Which country do you live in / Where are you from? *
Which type of EI do you or your family member have? *
Required
How old is your family member who is affected with EI? *
Tell us a little bit about you and your family member and who is affected with EI? *
Tell us about your EI Hero - who are they, and why do you think they are an EI Hero? *
To support my story, I will share the following 
(Select all that apply, and send photos or videos to eicureproject@gmail.com):
 *
Required
We will be sure to send the post to you for approval before making the story live on Social Media.

Thank you so much for being willing to share your story for our campaign,

EI Cure Project Team
A copy of your responses will be emailed to the address you provided.
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