Desanto-Shinawi Syndrome Patient Information
This form created by the DESSH foundation is meant to help us bring together children of all different backgrounds and help introduce them to the rest of the DESSH community. It allows us to spread awareness and help people find the proper care they need.

PRIVACY POLICY respects your privacy. We protect your personal information and adhere to the highest standards in gathering, using and safeguarding constituent information, including all donor personal and gift information. does not rent, sell or trade our mailing lists.
Any information you provide – such as name, physical address, phone number or email address – will be used only to deliver services and to keep you informed and up to date on activities, including programs, services, special events, funding needs, opportunities to volunteer or legislative alerts. does not knowingly solicit information or contributions from minors under the age of 18 without the consent of a parent or guardian, and we request that anyone with knowledge of information or contributions from a minor immediately advise us.
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