TITLE OF RESEARCH PROJECT
What Communication Partner Training (CPT) do clinicians provide in the first 4 months post-stroke?
Name of Researchers
Beverley SnowdenDr Lynsey ParrottDr Sarah GriffithsDr Suzanne Beeke
BackgroundThis research project forms part of my masters research at the University of St Mark & St John. It is being carried out by myself. My tutors are Dr Lynsey Parrott and Dr Sarah Griffiths at the University of St Mark & St John and we are working in collaboration with Dr Suzanne Beeke at UCL. I am investigating what clinicians understand about Communication Partner Training (CPT) and how they apply this approach during the first 4 months post-stroke.
Purpose• There is good evidence to show that CPT is beneficial for people with aphasia but there is very little evidence showing the effectiveness of CPT during the acute phase post-stroke.• This research will investigate what CPT clinicians are using in the UK during the first 4 months post-stroke. It is also anticipated that the challenges and facilitating elements to providing CPT during this period will be uncovered. It is an area of research that hasn’t received much attention, so it is hoped that the information gathered will be of benefit to clinicians working with aphasia as well as to people with aphasia and their communication partners.
Participation• Clinicians are eligible to participate if they are a qualified speech and language therapist who have worked with people with aphasia during the first 4 months post-stroke. • The research will be carried out via an e-mail questionnaire which should take about 15 mins to complete. • You have been invited because you are a qualified speech and language therapist. You have been identified through the Royal College of Speech and Language Therapists, your interest in aphasia and CPT via social media and aphasia and stroke special interest forums.• This project is voluntary, and you can choose not to participate. You can withdraw at any stage by closing the questionnaire without being penalised or disadvantaged in any way. • Your decision to complete and return the survey will be interpreted as an indication of your agreement to participate. • To take part you will need to complete an online survey.• The survey will be available from 31.11.18 until 31.12.18 . The study involves one survey only, to be completed once only, by each speech and language therapist.
Results of the Survey• The information collected will be a mixture of questions with multiple choice answers and some questions with free responses. It will gather information about your speech and language therapy experience (e.g. number of years practising and your clinical setting). It will also ask about the therapy you provide for people with aphasia and their communication partners and the feasibility of using CPT for people with aphasia during the first 4 months post-stroke. • Some verbatim quotes may be used as part of the study, but all efforts will be made to ensure that you cannot be identified.• Once the data are analysed, all survey entries will be deleted. The data will be stored via a Secure University network.
Expenses and payments• There will be no payments, expenses or incentives offered for your participation in this research. What will I have to do? • You will need to access the survey via the link above. What are the advantages of taking part?• There are no specific benefits directly involved in participating. What are the possible disadvantages and risks of taking part? • All efforts will be made to ensure confidentiality and anonymity. There may be some risk to anonymity if verbatim quotes are used to demonstrate a specific issue. Will my taking part in the study be kept confidential? • Whilst researchers will protect the confidentiality and anonymity of all participants and their data at all times, there are risks to anonymity because of the relatively small numbers of participants.• Some of the data collected may be looked at by authorised people from the University of St Mark & St John to check that the study is being carried out correctly. All will have a duty of confidentiality to the research participant and will do their best to meet this duty. • All data will be stored on the secure network drive at the University of St Mark & St John. • There are no plans to retain the data for further research and all the data will be deleted following analysis. The data will not be used for other studies.
What will happen if I don’t want to carry on with the study? • You are free to withdraw from the study by not pressing the submit button and closing down the questionnaire. You will not need to provide any explanation and there will be no penalty. • Once the questionnaire is submitted it will not be possible to withdraw from the study as your responses will be anonymous and it will not be possible to identify and redact your data.
What if there is a problem?• If you have any concerns or problems with the study, please contact one of the researchers whose details are included at the end of this participant information sheet. He or she will do their best to answer your questions.
What will happen to the results of the research study?• The results of this questionnaire will be used to form part of my masters research. By participating, you will not be provided with a copy of the findings, but it is anticipated that the outcomes will be shared with and via the RCSLT, aphasia interest groups, poster displays and other relevant forums for dissemination.
Thank you for taking the time to read the information sheet. If you have any queries or requests for further information, please don’t hesitate to contact me on
With kind regards
Beverley Snowden University of St Mark & St John
mobile no: 07977013207
The link to the survey is at the top of this page.