Planning our Approach to Improving Palliative Care for People with Huntington's Disease

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Taking Action Earlier: Redefining Palliative Care in Huntington’s Disease for Lasting Impact

What Are The Aims of this Project?

Understand how palliative care can improve the lives of people with Huntington’s Disease
Work with individuals with experience of Huntington’s Disease to identify the right time for palliative support and to navigate complex care planning
Develop guidance for healthcare providers on timely and appropriate referrals to Palliative Care
Improve palliative care access for people with Huntington’s Disease within Severn Hospice’s catchment area
Share learning to support the wider Huntington’s Disease community

Please take a few minutes to share your thoughts about how you feel this project and Palliative Care could support you and/or your loved ones living with Huntington's Disease

All answers are submitted anonymously

Please tell us about your experience of Huntington's Disease

I am living with a diagnosis of Huntington's Disease

I am currently caring for someone with Huntington's Disease

I have previously cared for someone with Huntington's Disease

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