Parent Survey for Perceived Value and Access to Physical Therapy Services for Children with Developmental Disabilities
INDIANA UNIVERSITY STUDY INFORMATION SHEET FOR

Perceived Value and Access to Physical Therapy Services for Children with Developmental Disabilities


You are invited to participate in a research study investigating the perceived value and access to physical therapy services for children with developmental disabilities. You were selected as a possible subject because you have a child with developmental disabilities or you are a physical therapist who works with children with developmental disabilities. We ask that you read this form and ask any questions you may have before agreeing to participate in the study.

The study is being conducted by Stephanie Tellus and Deanna Proimos, Indiana University Doctor of Physical Therapy students and Riley Childhood Development Center LEND Fellows and Peter Altenburger, PhD, PT.

STUDY PURPOSE

The purpose of this study is to investigate the perceived value and access to physical therapy services for children with developmental disabilities. This study seeks to identify barriers that exist to accessing physical therapy services as well as perceived value of physical therapy services by the families receiving care and the physical therapists providing care. We are conducting this survey without the use of external funding, and we do not perceive any conflict of interest in conducting this survey.

PROCEDURES FOR THE STUDY:

We are asking you to participate in our research project by completing an on-line survey that should take 15 minutes or less to complete. The survey asks questions about your perceived value of and access to physical therapy services for your child/patients. The findings will help to better understand the challenges that individuals with developmental disabilities face related to physical therapy. It will also help inform us of barriers that may need to be addressed in order to improve access and family satisfaction of physical therapy services.


RISKS AND BENEFITS

The risk of participating in this study are minimal. The only perceived risk we can see at this time is participants may feel uncomfortable answering a question. Participants reserve the right to not answer any question that makes them uncomfortable.

You are not expected to directly benefit from participating in this research.


CONFIDENTIALITY

The survey does not contain any personal or sensitive questions.

PAYMENT

You will not receive payment for taking part in this study.


CONTACTS FOR QUESTIONS OR PROBLEMS

For questions about the study, contact the researchers Stephanie Tellus at sjurbans@iupui.edu or Deanna Proimos at dproimos@iun.edu.

For questions about your rights as a research participant or to discuss problems, complaints or concerns about a research study, or to obtain information, or offer input, contact the IU Human Subjects Office at (317) 278-3458 or (800) 696-2949.

VOLUNTARY NATURE OF STUDY
The survey is voluntary and you may refuse to participate or discontinue your participation at any time prior to submitting the completed survey. Once your unidentified responses have been submitted we are not capable of removing your specific data. Submitting a completed survey will serve as implied consent to participate in this research project. No information will be released in a manner that could be used to identify you or your institution.


This research is intended for individual 18 years of age or older. If you are under age 18, do not complete the survey.

This research is for residents of the United States. If you are not a U.S. resident, do not complete the survey.

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