Establishing the Cognitive and Behavioural Profiles of Sotos Syndrome
Thank you for your interest in our research. We are currently recruiting adults and children with Sotos syndrome. Taking part in the study will involve completing a number of different tasks designed to measure abilities such as remembering information, understanding a conversation and making patterns. The study will take approximately 60 minutes to complete and regular breaks can be taken if necessary. This part of the research is only open to families in the UK.

The second part of the research involves completing an online questionnaire. The questionnaire is designed to measure personality and behaviour in individuals with Sotos syndrome. This part of the research can be completed by families from any country. The minimum age for the study is 2.5 years.

Once this form has been completed, you will be sent a full information pack and/or a link to the questionnaire. Completing the form does not commit you to taking part in the research and you are under no obligation to participate. The study has received ethical approval from the Department of Psychology, University of Sheffield and is being supervised by Dr. Megan Freeth and Dr. Elizabeth Milne. The details you enter will be stored safely in an electronic database which is only accessible by members of the Sheffield Autism Research Group. We value your privacy and no details will be passed to any third parties.

If you have any questions, please email:

What is your child's name? *
Your answer
What is your child's gender? *
What is your child's date of birth? *
Your answer
Which country do you live in? *
Your answer
Does your child attend school? *
If yes, which school?
Your answer
Does your child require one to one support in school?
Does your child have a developmental disorder(s) diagnosis? *
If yes, please list here which developmental disorder(s) your child has been diagnosed with.
e.g. Sotos Syndrome, Autistic Spectrum Disorder, Anxiety.
Your answer
Additional Information
Please provide any extra information/comments that you think might be helpful:
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Contact Details
Full name of parent/caregiver: *
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Contact details for parent/caregiver: *
Please provide the contact details that you would like us to use to contact you (email/telephone/address).
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