Patient perspective about cancer drugs cost
This questionnaire is part of follow-up study (published in Lancet Oncology in Jan 2016) about expensive cancer drugs actual costs in Europe. Besides the update of cancer drug prices, the additional value is expected from the patient perspective. Based on literature, the pricing system of cancer drugs is not considered to be transparent. Patient as a final consumer is influenced by the cost, but it is not clear why is that so and what could be the potential solutions to overcome these problems. The aim of this survey is to cast light how expensive cancer drugs influence the patient through patient representatives (ECPC members). Desired outcome would be to map the current situation in European countries and find with which factors they correlate. Doing so we also hope to raise the awareness and highlight critical issues concerned to patient burden due to cost of drugs. The expected outcome would be valuable for decision makers by transmitting the current realistic situation among European Union member states. With any questions or additional comments please contact r.ots@nki.nl.
Your name
Your answer
Email
Your answer
Country
Your answer
Patient organisation you represent
Your answer
1. Do you think patients in your country are missing out on the best possible treatment due to financial problems?
Required
2. Do you think the patient in your country are aware they are missing out on treatment options?
Required
2.1 Please specify why you think patients in your country are aware/ not aware they are missing out on treatment options.
Your answer
3. Do you think patients have difficulties applying for health insurance?
Required
3.1 Why do you think patients may have difficulties applying for health insurance?
Your answer
4. Do you think this matter (affordability) is given enough attention by other stakeholders (hospitals, governments, insurances, etc.)?
Required
4.1 In case this matter is not given enough attention by other stakeholders (hospitals, governments, insurances, etc.), please specify from which party more attention and which kind is expected?
Your answer
5. Do you have quantitative data in your country about cancer patients’ financial difficulties?
Required
5.1 Please specify what quantitative data you have in your country about cancer patients' financial difficulties?
Your answer
6. Is additional financial support provided for patients?
Required
7. By whom the financial support is provided and for what usage?
8. How patients with financial difficulties are identified in your country? 
Your answer
9. Is in your country financial counseling provided for cancer patients? 
Required
9.1 If financial counseling is provided in your country, please specify by whom and what are the limitations?
Your answer
10. What applications are planned (or already implemented) in your country to resolve problems caused by cancer drug cost?
Your answer
11. Which used application has shown great results to assist patient with financial issues and why? 
Your answer
12. What is the main limitations in your country to implement solutions for cancer patient cost related issues? 
12.1 Additional comments about the main limitations in your country to implement solutions for cancer patient cost related issues?
Your answer
13. What would be your suggestion to address the inequality problems in your country/ Europe? 
Your answer
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