PXE Research Meeting Registration 2020
Meeting dates: October 14 and 15, 2020
Event Address: Your home (Zoom link will be distributed after you register)
You can share my name in the contact list of attendees
Preferred breakout session (we will breakout into workgroups to define these parameters for the global natural history study)
Patient reported outcomes
I am interested in these aspects of PXE research:
Dietary restrictions (just kidding, we were going to feed you a gastronomique delight, but you have to eat in your own kitchen :)
Please donate $25 (or more) to PXE International to defray staff and Zoom costs and continue support of PXE research.
Credit card or PayPal: PayPal.me/pxeinternational
Check: PXE International, 26400 Woodfield Road #189, Damascus MD 20872
A copy of your responses will be emailed to the address you provided.
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